RFA: IBD Exchange

Dear Colleagues,

The Crohn's & Colitis Foundation of America (CCFA) is embarking on a large initiative to create an interconnected collection of patient information, biospecimens and knowledge to advance the understanding of the causes and lead to the discovery of a cure or effective treatment for inflammatory bowel disease (IBD). This program, called the IBD Exchange, will provide investigators with access to the resources needed to support their research, facilitate sharing of knowledge (more rapidly than relying on publication in peer-reviewed journals), promote the sharing of clinical data and biospecimens between investigators and serve as an educational venue for investigators and patients with IBD. This RFA is focused on the construction of large data management systems and web portals. Download the full RFA.

CCFA requests that you forward this RFA to any suitable applicants.

The IBD Exchange will comprise four main interfaces between its back-end data repositories and distinct types of users: 1) a public-facing interface primarily directed at patients and social networking through the web; 2) a clinical interface intended mainly for passive and active point-of-care data entry; 3) a broad research interface focused on large-scale data deposition, queries, and userbase searches and polling; and 4) a biospecimen repository laboratory information management system closely integrated with the IBD Exchange physical specimen repository. Although these four data sets and data views potentially service different user bases and requirements, they should all fundamentally interface with one (or more) primary IBD Exchange data management back-end database systems. Brief descriptions of these database systems and web portals are in the full RFA..

Successful applicants will have experience and expertise in one of more of these data / interface systems. Further requirements are included in the attached RFA. Interested groups should submit a letter of intent(LOI) no later than October 1, 2013. The LOI will be used as an initial screen for applicant pool. Successful pre-applicants will be invited to participate in an informational teleconference (late October) and submit a full application (due January 5, 2014).

LOIs as well as questions about the RFA should be directed to:

Tania Kamphaus, Ph.D.
Director of Collaborative Research Projects
Crohn’s & Colitis Foundation of America
733 Third Avenue, Suite 510, New York, NY 10017
Tel: 646-943-7429; Fax: 212-779-4098
E-mail: tnkamphaus@ccfa.org

Best wishes,
Tania