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A New Life with IBD
(in Work & School)
Are you a new student just starting out at college? Read this articles for tips on managing on campus with IBD
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Appeal letter sample: Financial Resources
(in Finances, Medication)
Template letter for professionals to provide to IBD patients information on finanicial assistance programs. Letter provides information on financial and medication assistance programs.
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Appeal letter sample: Life Insurance
(in Finances)
Template letter for patients to provide to their life insurance company explaining IBD, their treatment and prognosis. Healthcare provider completes letter providing medication history and prognosis.
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Appeal letter sample: Ostomy patient assistance
Template letter for patients requesting extensive or coverage for mental health benefits. Healthcare provider completes and patient submits request for coverage/extension of coverage to insurance provider.
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Appeal letter sample: Private Dorm and Bathroom
(in Work & School)
Template letter for college students requesting dorm room accommodations. Healthcare provider completes letter requesting specific accommodations including single dorm room with a private bathroom in a residence hall. Letter is then provided to the patient's college or university.
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Appeal letter sample: Social Security Disability
(in Finances, Work & School)
Template letter for professionals to provide to IBD patients needing assistance in getting disability insurance. This letter is intended for the Social Security Administration.
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Applying for Social Security Benefits: Is Your Condition Found In the List of Disabling Impairments?
(in Finances)
The Social Security Administration's "Handbook for Physicians" contains a "Listing of Impairments" for each major body system (e.g. digestive system). The listings for inflammatory bowel disease are published in the handbook. This information is important to have if you are considering filing for disability.
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Crohn’s Disease & Ulcerative Colitis: A Guide for Parents
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
Learning that your child has IBD can be difficult. The guide helps parents learn important issues about IBD including medication, disease management and about issues related to school and coping.
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Crohn’s Disease & Ulcerative Colitis: A guide for teachers and other school personnel
(in Coping & Support, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
This guide can help teachers and other school personnel to understand these chronic intestinal illnesses.
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Doing Our Homework: A Parent’s Guide to Educational Equity
(in Patient Rights, Work & School)
Two federal laws, Section 504 of the Rehabilitation Act of 1973 and the Individuals with Disabilities Education Act, provide protection for public school students with disabilities. Learn more about these laws that can help your child achieve educational success
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Employment Accommodation Letter
(in Work & School)
Template letter to request employer accommodations including office placement located near a bathroom; allowed to start work an hour later each day; other accommodations. Letter may be given to healthcare provider to complete and provide specific needs for the employee. Letter is then provided to the patient's employer.
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Facts about Inflammatory Bowel Diseases
(in Complications, Coping & Support, Disease Basics, Finances, Pregnancy, Stress, Symptom Management, Treatments)
This book compiles critical, up-to-date statistics and information about IBD. The book generates greater awareness and a deeper understanding of Crohn’s disease and ulcerative colitis among patients, families, health care professionals, CCFA supporters, and others interested in broadening their knowledge on IBD.
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FAQ: Health Care Reform
(in Finances, Health Insurance, Patient Rights)
On March 23, 2010, the Patient Protection and Affordable Care Act was signed into law. This document provides answers to key questions about the new health care reform and how it may affect patients and caregivers.
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Finding the Funds for College
(in Finances, Work & School)
Are you thinking about college - and concerned about rising costs. The impact of medical expenses on a family budget may challenging, but don't let fear of finances stop you from pursuing your educational dreams. There are many resources available for colleges, find them here.
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IBD & Me: Activity Book for Kids!
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
A colorful book with information & activities to help kids ages 8-12 learn about IBD.
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IBD and Older Adults
(in Coping & Support, Dating & Relationships, Finances, Health Insurance, Stress, Symptom Management)
Although ulcerative colitis are traditionally diagnosed in younger people, about 16% of people were diagnosed at age 60 or older. Learn more about how IBD affects older adults in this fact sheet.
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Immunomodulators
(in Finances, Medication, Symptom Management, Treatments)
As their name implies, immunomodulators weaken or modulate the activity of the immune system. This section provides information on immunomodulator drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.
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Managing Inflammatory Bowel Diseases as a Young Adult
(in Coping & Support, Stress, Symptom Management, Work & School)
Although IBD can occur at any age, people are frequently diagnosed between the ages of 15 -30. This fact sheet provides helpful information for young adults to help them take charge of their IBD care.
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Pediatric Crohn's: Finding the Right Path to Care - 5/19/11
(in Diagnosis & Testing, Disease Basics, Coping & Support, Diet & Nutrition, Work & School, Symptom Management)
This pediatric webcast explains: Important differences between pediatric and adult Crohn's disease, the medical management of pediatric CD, the critical role of nutrition, growth and development of the pediatric Crohn's patient, and quality of life and support systems.
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Pete Learns All About Crohn's & Colitis
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Work & School)
Comic book to help kids and teens learn about IBD.
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School Accommodations Letter
(in Work & School)
Template letter to request school accommodations including unlimited bathroom access, excused absences, and other accommodations. Letter may be given to healthcare provider to fill-in details and specific accommodations needed for the child or teen.
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Social Security
(in Finances, Health Insurance)
Disability insurance provides income to people with medical conditions that are so severe they are unable to work. This section provides questions and answers to help individuals with IBD understand how the application and appeal processes work if they need to apply for disability benefits.
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Spanish Glossary (Glosario)
(in Complications, Coping & Support, Dating & Relationships, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Finances, Flares, Health Insurance, Medication, Ostomy, Patient Rights, Pregnancy, Sexuality, Stress, Symptom Management, Traveling, Treatments, Women's Issues, Work & School)
Commonly used words about IBD are presented in the glossary.
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Taking IBD to School
(in Patient Rights, Work & School)
Communicating with teachers and school administrator about your child's disease is important. Every faculty person doesn't have to know every detail, but every individual the student will come in contact with does need to know what the student should be allowed to do to accommodate their disease. Learn more about helping your child achieve educational success in this article.
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TEASER: Pediatric Crohn's Disease: Finding the Right Path to Care
(in Disease Basics, Stress, Symptom Management, Treatments, Work & School)
Understanding what Crohn's disease (CD) is and how it can affect a young person's health and life will better equip you to actively participate as a member of your healthcare team. Featuring pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold, this webcast was developed to help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. A full-length version is available at www.ccfa.org.
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Teen Guide: Dealing with Crohn’s & Colitis
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
This valuable guide helps teenagers learn about IBD and provides helpful tips for coping with and managing IBD.
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Template Section 504 Plan for Children with Inflammatory Bowel Disease
(in Work & School)
If you need help working with your child's school to develop and educational plan for your child, this 504 template letter may be helpful. The letter includes description a 504 plan and contains sample accommodations that can be implemented in school. Cut and paste sections of the letter to develop a final letter that meets your child's specific needs.
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The Importance of Planning
(in Finances, Work & School)
It is important for patients, caregivers and parents to make plans to insure that school/colleg age children with IBD have adequate health insurance coverage. Plan ahead for changes in coverage to avoid lapes in coverage. Learn more in this article on planning.
