A New Life with IBD

(in Work & School)

Are you a new student just starting out at college? Read this articles for tips on managing on campus with IBD

Aminosalicylates

(in Flares, Medication, Symptom Management, Treatments)

Aminosalicylates are compounds that contain 5-aminosalicylic acid (5-ASA).

Antibiotics

(in Flares, Medication, Symptom Management, Treatments)

Antibiotics are effective as long-term therapy in some people with IBD, particularly Crohn's disease patients. This section provides information on antibiotic drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.

Appeal letter sample: Adalimumab for UC

(in Medication, Treatments)

Template letter for professionals to complete so patients with ulcerative colitis (UC) may receive authorization to take adalimumab when they are no longer responsive to infliximab. Healthcare provider completes letter and patient submits to their insurance company.

Appeal letter sample: Infliximab dose escalation

(in Medication, Treatments)

Template letter for professionals to complete so patients may receive authorization for increased dosing of infliximab. Healthcare provider completes letter and patient submits to their insurance company.

Appeal letter sample: Off Labeling

(in Medication, Treatments)

Template letter for professionals to complete when using a medication to treat IBD that is considered off-label. Healthcare provider completes letter and patient submits to their insurance company providing documentation of the medical necessity of the drug being prescribed to the patient.

Appeal letter sample: Private Dorm and Bathroom

(in Work & School)

Template letter for college students requesting dorm room accommodations. Healthcare provider completes letter requesting specific accommodations including single dorm room with a private bathroom in a residence hall. Letter is then provided to the patient's college or university.

Balancing the Risks and Benefits of Treatment in Inflammatory Bowel Diseases - 6/9/09

(in Diagnosis & Testing, Disease Basics, Medication, Symptom Management, Treatments)

This webcast discusses how to find out about the side effects of IBD medication, learn how to decide which is the right treatment medication for you, and learn how to decode statistics.

CCFA Debuts New Digital Fundraising Platform 'Stay Classy'

(in Coping & Support)

CCFA Debuts New Digital Fundraising Platform 'Stay Classy' 

CCFA Partners: Building a Platform for Success

(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Symptom Management)

Join the almost 10,000 people who are already a part of this groundbreaking study.

Clinical Trials Glossary

(in Disease Basics)

A control group, FDA, and informed consent are some of the words important to know when considering a clinical trial. A list of other important words and their definition are included in this glossary.

Corticosteroids

(in Flares, Medication, Symptom Management, Treatments)

In general, corticosteroids are recommended only for short-term use in order to achieve remission. This section provides information on corticosteroid drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.

Crohn’s Disease & Ulcerative Colitis: A Guide for Parents

(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)

Learning that your child has IBD can be difficult. The guide helps parents learn important issues about IBD including medication, disease management and about issues related to school and coping.

Crohn’s Disease and Ulcerative Colitis: Emotional Factors Q & A

(in Coping & Support, Flares, Stress, Traveling)

Living with a chronic disease such as IBD can be emotionally challenging. Learning about coping and getting support can help with disease management. This brochure answers important questions and offers suggestions maintain emotional health.

Diagnosing and Managing IBD

(in Coping & Support, Diagnosis & Testing, Disease Basics, Health Insurance, Stress, Symptom Management, Treatments)

This brochure provides answers to the most common questions regarding diagnostic tests used for diagnosing and managing inflammatory bowel disease.

Doing Our Homework: A Parent’s Guide to Educational Equity

(in Patient Rights, Work & School)

Two federal laws, Section 504 of the Rehabilitation Act of 1973 and the Individuals with Disabilities Education Act, provide protection for public school students with disabilities. Learn more about these laws that can help your child achieve educational success

Eating the Right Foods

(in Diet & Nutrition, Disease Basics)

As the science of nutrition has matured, we’ve learned a great deal about the interplay between a variety of nutritional factors, and we’ve begun to understand our bodies as complex biological systems.

Facts about Inflammatory Bowel Diseases

(in Complications, Coping & Support, Disease Basics, Finances, Pregnancy, Stress, Symptom Management, Treatments)

This book compiles critical, up-to-date statistics and information about IBD. The book generates greater awareness and a deeper understanding of Crohn’s disease and ulcerative colitis among patients, families, health care professionals, CCFA supporters, and others interested in broadening their knowledge on IBD.

Finding the Funds for College

(in Finances, Work & School)

Are you thinking about college - and concerned about rising costs. The impact of medical expenses on a family budget may challenging, but don't let fear of finances stop you from pursuing your educational dreams. There are many resources available for colleges, find them here.

General Healthcare Maintenance

(in Disease Basics, Symptom Management)

It is important to continue general health maintenance. While working with your gastroenterologist, also remember to speak with your primary care health care provider about other important health issues. Learn more about other important health issues in this fact sheet

I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens

(in Stress, Symptom Management, Treatments)

Some kids, teens and even adults have a hard time swallowing pills. This fact sheet provided strategies to help them learn to swallow pills.

IBD & She: Focusing on Living While Managing IBD - 6/16/10

(in Coping & Support, Dating & Relationships, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Medication, Pregnancy, Sexuality, Treatments, Women's Issues)

This webcast discusses: What are important gender issues in IBD? How does IBD affect intimacy and sexuality? What is the impact of IBD medication on fertility and pregnancy?

IBS and IBD: Two Very Different Disorders

(in Disease Basics)

Many people are confused about two distinct gastrointestinal disorders - IBD and IBS. Irritable bowel syndrome (IBS) produces some symptoms similar to those of inflammatory bowel disease (IBD), but they are not the same...

Inflammatory Bowel Disease: Why Should I Take My Medications? - 3/6/08

(in Disease Basics, Symptom Management, Treatments)

This webcast discusses the various medications for IBD and why it is important to take them.

Living with Crohn’s Disease

(in Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments)

The purpose of this brochure is to provide helpful answers to commonly asked questions about Crohn's disease, such as what it is, cause, diet, is their a cure, among many others. The goal is to discuss the key points about Crohn’s disease and what the individual may expect in the future.

Managing Flares and Other IBD Symptoms

(in Complications, Disease Basics, Flares, Medication, Pregnancy, Sexuality, Stress, Symptom Management, Treatments, Women's Issues)

The purpose of this brochure is to help the individual manage their life with a disease that can at times be painful, uncomfortable, inconvenient, or embarrassing. Provides helpful symptom management and flare prevention tips in dealing with IBD.

Managing Inflammatory Bowel Diseases as a Young Adult

(in Coping & Support, Stress, Symptom Management, Work & School)

Although IBD can occur at any age, people are frequently diagnosed between the ages of 15 -30. This fact sheet provides helpful information for young adults to help them take charge of their IBD care.

More than my diagnosis – Youth and IBD

(in Disease Basics, Stress)

Written by Alyssa Zeldenrust, a 22-year-old Crohn’s patient, political science student and passionate blogger

Patient Question: I have Crohn's and am almost always extremely dehydrated...What should I do?

(in Complications, Coping & Support, Symptom Management)

Pediatric Crohn's: Finding the Right Path to Care - 5/19/11

(in Diagnosis & Testing, Disease Basics, Coping & Support, Diet & Nutrition, Work & School, Symptom Management)

This pediatric webcast explains: Important differences between pediatric and adult Crohn's disease, the medical management of pediatric CD, the critical role of nutrition, growth and development of the pediatric Crohn's patient, and quality of life and support systems.

Pregnancy and IBD

(in Pregnancy, Sexuality, Stress, Symptom Management, Women's Issues)

Generally speaking, women with IBD in remission can become pregnant as easily as other women of the same age. Read information you need to know about pregnancy and IBD in this fact sheet.

School Accommodations Letter

(in Work & School)

Template letter to request school accommodations including unlimited bathroom access, excused absences, and other accommodations. Letter may be given to healthcare provider to fill-in details and specific accommodations needed for the child or teen.

Short Bowel Syndrome and Crohn’s Disease

(in Complications, Treatments)

Short Bowel Syndrome (sometimes referred to as SBS) is a disorder that affects people who
have had large portions of their small intestine surgically removed as a result of a digestive
illness, such as Crohn’s disease. Learn more about its causes and treatments.

Spanish Glossary (Glosario)

(in Complications, Coping & Support, Dating & Relationships, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Finances, Flares, Health Insurance, Medication, Ostomy, Patient Rights, Pregnancy, Sexuality, Stress, Symptom Management, Traveling, Treatments, Women's Issues, Work & School)

Commonly used words about IBD are presented in the glossary.

Taking IBD to School

(in Patient Rights, Work & School)

Communicating with teachers and school administrator about your child's disease is important. Every faculty person doesn't have to know every detail, but every individual the student will come in contact with does need to know what the student should be allowed to do to accommodate their disease. Learn more about helping your child achieve educational success in this article.

TEASER: Excerpts from "Progress in Crohn's Disease"

(in Diagnosis & Testing, Disease Basics, Symptom Management, Treatments)

Watch this excerpt from CCFA's hour-long "Progress in Crohn's Disease" webcast. The full-length webcast, available at www.ccfa.org, helps to answer: what are the current and emerging therapies in CD; how research is targeting and utilizing research; and what's new in pediatric research.

TEASER: IBD & She: Focusing on Living While Managing Crohn's and Colitis

(in Complications, Dating & Relationships, Diagnosis & Testing, Disease Basics, Medication, Pregnancy, Sexuality, Stress, Symptom Management, Treatments, Women's Issues)

This teleconference/webcast discussed women and IBD, and was led by physician experts Sunanda V. Kane, MD, MSPH, and Uma Mahadevan-Velayos, MD. The webcast includes discussion on " What are important gender issues in IBD?" "How does IBD affect intimacy and sexuality?" and "What is the impact of IBD medication on fertility and pregnancy?" These are excerpts from the hour-long webcast, which can be viewed at www.ccfa.org.

Teen Guide: Dealing with Crohn’s & Colitis

(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)

This valuable guide helps teenagers learn about IBD and provides helpful tips for coping with and managing IBD.

The Importance of Planning

(in Finances, Work & School)

It is important for patients, caregivers and parents to make plans to insure that school/colleg age children with IBD have adequate health insurance coverage. Plan ahead for changes in coverage to avoid lapes in coverage. Learn more in this article on planning.

The New Face of CCFA-Sponsored Research

(in Diagnosis & Testing, Disease Basics, Treatments)

Our gut microbiota have a key role in IBD, but only a limited number of the enormously complex bacteria, viruses, and fungi that make up this community have been identified, and their functions are largely unknown.

Tips For Helping Yourself If You Are Depressed

(in Coping & Support, Stress)

Discusses how some individuals can experience depression with inflammatory bowel disease. This document provides helpful tips on managing depression in inflammatory bowel disease.

Treatment Options in IBD

(in Disease Basics)

If you have been diagnosed with Inflammatory Bowel Disease (IBD), you'll want to learn as much as possible about the treatment options available. Over the past decade, major advances in deciphering the mechanisms of this disease has greatly expanded those options. Understanding which forces are work—and when—have generated a number of exciting opportunities for therapeutic intervention.

Ulcerative Colitis: The A to Z of Treating UC- 7/28/10

(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Medication, Symptom Management, Treatments)

This webcast discusses: Current and emerging treatment approaches to ulcerative colitis, long-term disease maintenance and quality of life, and considerations when discussing options with your healthcare provider.

Update on Colorectal Cancer: Knowledge is Prevention - 3/1/07

(in Diagnosis & Testing, Disease Basics, Symptom Management)

This webcast discusses the latest information on screening, treatment, and prevention of colorectal cancer.

Vivir con la Enfermedad de Crohn

(in Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments)

Written in Spanish, this brochure provides helpful answers to commonly asked questions about Crohn's disease, such as what it is, cause, diet, is their a cure, among many others. The goal is to discuss the key points about Crohn’s disease and what the individual may expect in the future.

Voices of Progress: Improving Outcomes Part 2

(in Complications, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Symptom Management, Treatments)

CCFA held a three-day research colloquium in Atlanta. The colloquium involved a panel of six IBD research leaders from across the country and touched on topics such as therapies, genetics, nutrition, and much more. This five-part series is a "must view" for anyone interested in the future of IBD research.

Voices of Progress: Predicting Prognosis Part 2

(in Complications, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Symptom Management, Treatments)

CCFA held a three-day research colloquium in Atlanta. The colloquium involved a panel of six IBD research leaders from across the country and touched on topics such as therapies, genetics, nutrition, and much more. This five-part series is a "must view" for anyone interested in the future of IBD research.

Webcasts

(in Flares, Medication, Ostomy, Sexuality, Stress, Women's Issues)

View a complete list of webcasts available by CCFA.