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A New Life with IBD
(in Work & School)
Are you a new student just starting out at college? Read this articles for tips on managing on campus with IBD
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About the Epidemiology of IBD
(in Disease Basics)
Epidemiology is the study of the frequency and distribution of diseases in the population.
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Aminosalicylates
(in Flares, Medication, Symptom Management, Treatments)
Aminosalicylates are compounds that contain 5-aminosalicylic acid (5-ASA).
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An Introduction to Clinical Trials: Patients Take Part in Searching for the Cure
(in Treatments)
Thinking about participating in a clinical trial? It is best to understand the drug development process before you begin. Learn about the purpose and how to choose a clinical trial in this important information.
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Antibiotics
(in Flares, Medication, Symptom Management, Treatments)
Antibiotics are effective as long-term therapy in some people with IBD, particularly Crohn's disease patients. This section provides information on antibiotic drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.
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Appeal letter sample: Adalimumab Dosing
(in Medication, Treatments)
Template letter for professionals to complete so patients may receive authorization for increased dosing of adalimumab. Healthcare provider completes letter and patient submits to their insurance company.
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Appeal letter sample: Adalimumab for UC
(in Medication, Treatments)
Template letter for professionals to complete so patients with ulcerative colitis (UC) may receive authorization to take adalimumab when they are no longer responsive to infliximab. Healthcare provider completes letter and patient submits to their insurance company.
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Appeal letter sample: Calprotectin
(in Diagnosis & Testing, Medication)
Template letter for professionals to complete so patients may receive insurance coverage for the calprotectin stool test. Healthcare provider completes letter and patient submits to their insurance company prior to testing.
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Appeal letter sample: Capsule Endoscopy
(in Diagnosis & Testing, Medication)
Template letter for professionals to complete so patients may undergo a capsule endoscopy for diagnostic purposes instead of other methods of examination. Healthcare provider completes letter and patient submits to their insurance company prior to testing.
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Appeal letter sample: Certolizumab Pego Boost
(in Medication, Treatments)
Template letter for professionals to complete so patients may appeal insurance decisions related to the dosing of certolizumab. Healthcare provider completes letter and patient submits to their insurance company.
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Appeal letter sample: Financial Resources
(in Finances, Medication)
Template letter for professionals to provide to IBD patients information on finanicial assistance programs. Letter provides information on financial and medication assistance programs.
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Appeal letter sample: Infliximab & HACA
(in Diagnosis & Testing, Medication)
Template letter for professionals to complete so patients may undergo laboratory studies for serum infliximab and human anti-chimeric antibody (HACA) levels. Healthcare provider completes letter and patient submits to their insurance company prior to testing.
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Appeal letter sample: Infliximab dose escalation
(in Medication, Treatments)
Template letter for professionals to complete so patients may receive authorization for increased dosing of infliximab. Healthcare provider completes letter and patient submits to their insurance company.
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Appeal letter sample: Life Insurance
(in Finances)
Template letter for patients to provide to their life insurance company explaining IBD, their treatment and prognosis. Healthcare provider completes letter providing medication history and prognosis.
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Appeal letter sample: Mental Health Benefits
(in Coping & Support)
Template letter for patients requesting extensive or coverage for mental health benefits. Healthcare provider completes and patient submits request for coverage/extension of coverage to insurance provider.
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Appeal letter sample: Metabolite Level Testing
(in Diagnosis & Testing, Medication)
Template letter for professionals to complete so patients may undergo metabolite level testing instead of other testing methods. Healthcare provider completes letter and patient submits to their insurance company prior to testing.
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Appeal letter sample: Off Labeling
(in Medication, Treatments)
Template letter for professionals to complete when using a medication to treat IBD that is considered off-label. Healthcare provider completes letter and patient submits to their insurance company providing documentation of the medical necessity of the drug being prescribed to the patient.
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Appeal letter sample: Ostomy patient assistance
Template letter for patients requesting extensive or coverage for mental health benefits. Healthcare provider completes and patient submits request for coverage/extension of coverage to insurance provider.
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Appeal letter sample: Pediatric Adalimumab Therapy
(in Medication, Treatments)
Template letter for professionals to complete so parents of pediatric patients taking adalimumab may appeal insurance denials. Healthcare provider completes letter and parent submits to their insurance company.
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Appeal letter sample: Private Dorm and Bathroom
(in Work & School)
Template letter for college students requesting dorm room accommodations. Healthcare provider completes letter requesting specific accommodations including single dorm room with a private bathroom in a residence hall. Letter is then provided to the patient's college or university.
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Appeal letter sample: Social Security Disability
(in Finances, Work & School)
Template letter for professionals to provide to IBD patients needing assistance in getting disability insurance. This letter is intended for the Social Security Administration.
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Appeal letter sample: TPMT (thiopurine methyltransferase)
(in Diagnosis & Testing)
Template letter for professionals to complete so patients may undergo genetic testing for TPMT (thiopurine methyltransferase) enzyme. Healthcare provider completes letter and patient submits to their insurance company prior to testing.
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Applying for Social Security Benefits: Is Your Condition Found In the List of Disabling Impairments?
(in Finances)
The Social Security Administration's "Handbook for Physicians" contains a "Listing of Impairments" for each major body system (e.g. digestive system). The listings for inflammatory bowel disease are published in the handbook. This information is important to have if you are considering filing for disability.
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Arthritis
(in Complications)
Arthritis, or inflammation of the joints, is the most common complication outside the gastrointestinal tract. Learn more about the types of arthritis and treatment options
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Balancing the Risks and Benefits of Treatment in Inflammatory Bowel Diseases - 6/9/09
(in Diagnosis & Testing, Disease Basics, Medication, Symptom Management, Treatments)
This webcast discusses how to find out about the side effects of IBD medication, learn how to decide which is the right treatment medication for you, and learn how to decode statistics.
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Biologic Therapies
(in Flares, Medication, Symptom Management, Treatments)
Biologic therapies are often reserved to treat more advanced or aggressive disease. This section provides information on biologic drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.
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Bone Loss in IBD
(in Complications)
As many as 30%-60% of people with IBD have lover than average bone density. This fact sheet provides an overview of low bone density.
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Bringing to Light the Risk of Colorectal Cancer among Crohn’s & Ulcerative Colitis Patients
(in Complications)
If you have had inflammation of the colon, you are at higher risk for developing colorectal cancer than the general population. This brochure helps patients learn more about the risks and prevention of colorectal cancer.
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CCFA Debuts New Digital Fundraising Platform 'Stay Classy'
(in Coping & Support)
CCFA Debuts New Digital Fundraising Platform 'Stay Classy'
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CCFA Launches IBD Genetics Initiative
(in Diagnosis & Testing, Disease Basics, Treatments)
Recent studies have demonstrated that specific organisms in the gut can cause IBD in the presence of specific genes, and that specific genes only cause disease in the presence of specific organisms.
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CCFA Partners: Building a Platform for Success
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Symptom Management)
Join the almost 10,000 people who are already a part of this groundbreaking study.
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Challenges in Clinical Management of IBD Patients
This webcast discusses different clinical management challenges IBD patients face.
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Clinical Trials 101
(in Disease Basics)
Understanding the Basics of CCFA Studies and Clinical Trials.
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Clinical Trials Glossary
(in Disease Basics)
A control group, FDA, and informed consent are some of the words important to know when considering a clinical trial. A list of other important words and their definition are included in this glossary.
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Complementary and Alternative Medicine (CAM)
(in Medication, Symptom Management, Treatments)
Crohn's disease and ulcerative colitis can be treated but not cured with conventional medical therapies. Therefore, some people living with IBD look toward complementary and alternative medicine (CAM) to supplement convential therapies to help ease their symptoms. Get answers to your questions about CAM in this fact sheet.
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Consensus Conference: Colorectal Cancer Screening and Surveillance in Inflammatory Bowel Disease
(in Complications)
IBD are associated with an increased risk for developing colonrectal cancer. This professional article highlights important finding from a panel of international experts who convened to recommendations for the performance of surveillance. The findings are presented in the article.
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Corticosteroids
(in Flares, Medication, Symptom Management, Treatments)
In general, corticosteroids are recommended only for short-term use in order to achieve remission. This section provides information on corticosteroid drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.
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Crohn’s & Colitis Glossary
(in Disease Basics)
Commonly used words about IBD are presented in the glossary.
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Crohn’s Disease & Ulcerative Colitis: A Guide for Parents
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
Learning that your child has IBD can be difficult. The guide helps parents learn important issues about IBD including medication, disease management and about issues related to school and coping.
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Crohn’s Disease & Ulcerative Colitis: A guide for teachers and other school personnel
(in Coping & Support, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
This guide can help teachers and other school personnel to understand these chronic intestinal illnesses.
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Crohn’s Disease and Ulcerative Colitis Diet and Nutrition Q & A
(in Diet & Nutrition)
The food that IBD patients eat can affect symptoms of IBD and may play some role in the inflammatory process. Learning more about diet and nutrition can help patients manage their disease symptoms.
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Crohn’s Disease and Ulcerative Colitis: Emotional Factors Q & A
(in Coping & Support, Flares, Stress, Traveling)
Living with a chronic disease such as IBD can be emotionally challenging. Learning about coping and getting support can help with disease management. This brochure answers important questions and offers suggestions maintain emotional health.
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Current Controversies in IBD Treatment
(in Coping & Support, Treatments)
This webcast discusses advantages and disadvantages of different therapies
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Diagnosing and Managing IBD
(in Coping & Support, Diagnosis & Testing, Disease Basics, Health Insurance, Stress, Symptom Management, Treatments)
This brochure provides answers to the most common questions regarding diagnostic tests used for diagnosing and managing inflammatory bowel disease.
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Diagnosing Crohn's Disease and Ulcerative Colitis
(in Diagnosis & Testing)
Learn about the test used to diagnose and manage IBD in this brochure. Common tests include imaging tests such as colonoscopies, blood tests and stool tests
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Diet and IBD
(in Diet & Nutrition)
Once you develop IBD, paying special attention to what you eat may go a long way toward reducing symptoms and promoting healing. In this article, we answer some common questions patients living with IBD may have regarding your diet.
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Diet and Nutrition
(in Diet & Nutrition, Stress, Symptom Management)
Diet and nutrition concerns of patients with inflammatory bowel disease are extremely common. The information provided here offers an overall dietary guide for patients and their families. It is based on the results of ongoing studies and the accumulation of knowledge gained in recent years.
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Dieta y Nutrición
(in Diet & Nutrition)
The food that IBD patients eat can affect symptoms of IBD and may play some role in the inflammatory process. Learning more about diet and nutrition can help patients manage their disease symptoms.
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Doing Our Homework: A Parent’s Guide to Educational Equity
(in Patient Rights, Work & School)
Two federal laws, Section 504 of the Rehabilitation Act of 1973 and the Individuals with Disabilities Education Act, provide protection for public school students with disabilities. Learn more about these laws that can help your child achieve educational success
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Dr’s Orders - 10 Questions To Ask on Your Next Visit
(in Disease Basics)
Going to see your doctor can be an overwhelming experience -- but it doesn’t have to be. Establishing good communication with your health care provider, especially your gastroenterologist, can make all the difference and heighten the likelihood of better long-term results. Here is a list of questions that may help you on your next doctor’s visit.
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Eating the Right Foods
(in Diet & Nutrition, Disease Basics)
As the science of nutrition has matured, we’ve learned a great deal about the interplay between a variety of nutritional factors, and we’ve begun to understand our bodies as complex biological systems.
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Eating Tips To Get You Through The Holidays
(in Diet & Nutrition)
Eating Tips To Get You Through The Holidays
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Emotional Wellness and IBD
Although emotional issues may occur before a flare-up of Crohn's or ulcerative colitis, there is no evidence to show that stress, anxiety, or tension is responsible for IBD.
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Employment Accommodation Letter
(in Work & School)
Template letter to request employer accommodations including office placement located near a bathroom; allowed to start work an hour later each day; other accommodations. Letter may be given to healthcare provider to complete and provide specific needs for the employee. Letter is then provided to the patient's employer.
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Extraintestinal Complications: Kidney Disorders
(in Complications)
The kidneys filter the body's blood supply and eliminate waste through urine. Serious kidney complications in IBD are rare, but some less serious ones occur more frequently. Learn more about IBD related kidney disorders in this fact sheet
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Eye Complications in IBD
(in Complications)
Patients with IBD can experience an number of eye problems. Most of these conditions are treatable and do not pose any significant threat. Learn more about common eye problems in this fact sheet
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Facts about Inflammatory Bowel Diseases
(in Complications, Coping & Support, Disease Basics, Finances, Pregnancy, Stress, Symptom Management, Treatments)
This book compiles critical, up-to-date statistics and information about IBD. The book generates greater awareness and a deeper understanding of Crohn’s disease and ulcerative colitis among patients, families, health care professionals, CCFA supporters, and others interested in broadening their knowledge on IBD.
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FAQ: Health Care Reform
(in Finances, Health Insurance, Patient Rights)
On March 23, 2010, the Patient Protection and Affordable Care Act was signed into law. This document provides answers to key questions about the new health care reform and how it may affect patients and caregivers.
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Finding a Specialist or Treatment Center
(in Coping & Support)
You’ve been diagnosed with ulcerative colitis or Crohn’s disease. Learning all that you can about your condition and understanding your options and prospects will help you navigate the healthcare decision-making process.
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Finding the Funds for College
(in Finances, Work & School)
Are you thinking about college - and concerned about rising costs. The impact of medical expenses on a family budget may challenging, but don't let fear of finances stop you from pursuing your educational dreams. There are many resources available for colleges, find them here.
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Frequently Asked Questions About Colorectal Cancer & IBD
(in Complications, Disease Basics, Stress)
Discusses frequently asked questions about colorectal cancer (crc). People with Crohn's disease and ulcerative colitis are at a higher risk for developing CRC than the general population.
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General Healthcare Maintenance
(in Disease Basics, Symptom Management)
It is important to continue general health maintenance. While working with your gastroenterologist, also remember to speak with your primary care health care provider about other important health issues. Learn more about other important health issues in this fact sheet
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Helpful Links
Resources to commonly asked questions to daily living for patients, caregivers, family members, friends & healthcare professionals.
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I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens
(in Stress, Symptom Management, Treatments)
Some kids, teens and even adults have a hard time swallowing pills. This fact sheet provided strategies to help them learn to swallow pills.
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IBD & Me: Activity Book for Kids!
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments, Work & School)
A colorful book with information & activities to help kids ages 8-12 learn about IBD.
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IBD & She: Focusing on Living While Managing IBD - 6/16/10
(in Coping & Support, Dating & Relationships, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Medication, Pregnancy, Sexuality, Treatments, Women's Issues)
This webcast discusses: What are important gender issues in IBD? How does IBD affect intimacy and sexuality? What is the impact of IBD medication on fertility and pregnancy?
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IBD and Older Adults
(in Coping & Support, Dating & Relationships, Finances, Health Insurance, Stress, Symptom Management)
Although ulcerative colitis are traditionally diagnosed in younger people, about 16% of people were diagnosed at age 60 or older. Learn more about how IBD affects older adults in this fact sheet.
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IBD Recipes
(in Diet & Nutrition)
Food affects everyone differently. Not sure what to eat... try one our recipes like grilled turkey breast, oven french fries or fish fingers. Try a little at first to see if it is ok for for your particular condition.
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IBS and IBD: Two Very Different Disorders
(in Disease Basics)
Many people are confused about two distinct gastrointestinal disorders - IBD and IBS. Irritable bowel syndrome (IBS) produces some symptoms similar to those of inflammatory bowel disease (IBD), but they are not the same...
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Immunomodulators
(in Finances, Medication, Symptom Management, Treatments)
As their name implies, immunomodulators weaken or modulate the activity of the immune system. This section provides information on immunomodulator drugs including the different types, delivery, possible side effects, drug interactions, and special considerations.
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Inflammatory Bowel Disease: Why Should I Take My Medications? - 3/6/08
(in Disease Basics, Symptom Management, Treatments)
This webcast discusses the various medications for IBD and why it is important to take them.
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Influenza and IBD
(in Symptom Management)
Otherwise know as the flu, influenza is a contagious respiratory illness caused by influenza viruses. Some people, including older people, young children and individuals with certain health conditions, are at high risk for serious complications from the flu. You can learn more about how to protect yourself in this fact sheet.
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Intestinal Complications
(in Complications)
Some intestinal complications of IBD occur in both ulcerative colitis and Crohn's disease. Intestinal complications of IBD tend to occur when there is intestinal inflammation. Learn more about these complication and what you should do in this fact sheet
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Liver Disease and IBD
(in Complications)
Several complications of IBD are related to the liver and the biliary system. The liver may develop active inflammation, which usually subsides with appropriate treatment of IBD. Learn more about Liver Disease and IBD in this important fact sheet.
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Living with Crohn’s Disease
(in Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments)
The purpose of this brochure is to provide helpful answers to commonly asked questions about Crohn's disease, such as what it is, cause, diet, is their a cure, among many others. The goal is to discuss the key points about Crohn’s disease and what the individual may expect in the future.
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Living with Ulcerative Colitis
(in Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Treatments)
The purpose of this brochure is to provide helpful answers to commonly asked questions about ulcerative colitis, such as what it is, diet, cause, is their a cure, among many others. The goal is to discuss the key points about ulcerative colitis and what the individual may expect in the future.
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Managing Flares and Other IBD Symptoms
(in Complications, Disease Basics, Flares, Medication, Pregnancy, Sexuality, Stress, Symptom Management, Treatments, Women's Issues)
The purpose of this brochure is to help the individual manage their life with a disease that can at times be painful, uncomfortable, inconvenient, or embarrassing. Provides helpful symptom management and flare prevention tips in dealing with IBD.
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Managing IBD: Taking Charge of Your Disease - 12/6/11
(in Diagnosis & Testing, Disease Basics, Medication, Symptom Management, Treatments)
This program is in English and Spanish, and explains: Overall goals of disease management, treatment options and self-management strategies, defining remission in IBD, and the importance of treatment adherence.
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Managing Inflammatory Bowel Diseases as a Young Adult
(in Coping & Support, Stress, Symptom Management, Work & School)
Although IBD can occur at any age, people are frequently diagnosed between the ages of 15 -30. This fact sheet provides helpful information for young adults to help them take charge of their IBD care.
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Managing the Costs of Your IBD Care Webcast
Webcast on July 23, 2013 at 3 PM Eastern that will cover managing the costs of your IBD care.
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Microscopic Colitis
(in Disease Basics)
Microscopic colitis is characterized by chornic diarrrhea caused by inflammation in the colon.
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More than my diagnosis – Youth and IBD
(in Disease Basics, Stress)
Written by Alyssa Zeldenrust, a 22-year-old Crohn’s patient, political science student and passionate blogger
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Next generation medicine: Individualized treatment
(in Diagnosis & Testing, Disease Basics, Medication, Treatments)
Across the field of medicine, doctors and researchers are gaining a better understanding of how various factors affect the path of diseases – putting individualized treatment within reach.
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No Reservations: How to Take the Worry out of Eating Out
(in Diet & Nutrition)
Eating out doesn't have to be a challenging experience. Eating out with IBD can be enjoyable. All it takes is a little planning. Tips about dining our are provided in this article.
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Nutrition and IBD
(in Diet & Nutrition)
Nutrition concerns of patients with living Inflammatory Bowel Disease (IBD) are extremely common, and appropriate. Patients often believe that their disease is caused by, and can be cured by diet. Unfortunately, that seems to be too simplistic an approach, which is not supported by clinical and scientific data. Diet can certainly affect symptoms of these diseases, and may play some role in the underlying inflammatory process, but it appears not to be the major factor in the inflammatory process.
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On the Road Again: Travel Tips for Summer Vacations!
(in Traveling)
Vacation travel is well within the reach of any patient who is already managing Crohn's disease or ulcerative colitis. This article helps you plan your trip
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Ostomates Food Reference Chart
(in Diet & Nutrition, Ostomy)
For individuals who have had ostomy surgery, it is important to know the effects of various foods on ileal output. View general food guidelines developed by the United Ostomy Associations of America.
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Patients in Clinical Trials: Peggy Shares Her Experience
Peggy, a clinical trial participant share her store about her experience in a clinical trial. Reading what she has to say may help you make your own decision about the clinical trial process.
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Pediatric Crohn's: Finding the Right Path to Care - 5/19/11
(in Diagnosis & Testing, Disease Basics, Coping & Support, Diet & Nutrition, Work & School, Symptom Management)
This pediatric webcast explains: Important differences between pediatric and adult Crohn's disease, the medical management of pediatric CD, the critical role of nutrition, growth and development of the pediatric Crohn's patient, and quality of life and support systems.
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Pete Learns All About Crohn's & Colitis
(in Coping & Support, Diagnosis & Testing, Diet & Nutrition, Disease Basics, Stress, Symptom Management, Work & School)
Comic book to help kids and teens learn about IBD.
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Pregnancy and IBD
(in Pregnancy, Sexuality, Stress, Symptom Management, Women's Issues)
Generally speaking, women with IBD in remission can become pregnant as easily as other women of the same age. Read information you need to know about pregnancy and IBD in this fact sheet.
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Psychosocial Issues and Kids with IBD
(in Coping & Support)
Treatment of pediatric IBD consists of medical therapies to reduce inflammation in the gastrointestinal tract.
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Removing the Colon: Surgical Options and Opportunities
(in Ostomy)
Proctocolectomy -- surgical removal of the colon and rectum -- isn't anyone's first choice for treating inflammatory bowel disease (IBD), but sometimes it could be your best option.


