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Links & Other ResourcesAs you know, CCFA's efforts are focused on inflammatory bowel diseases—Crohn's disease and ulcerative colitis. We're frequently asked about related organizations, or other sources of information. Below is a list of other organizations or web sites that may be a helpful reference. Click on the category you wish to see to jump around the list, or, scroll down to view all of our links. Please wait for the entire page to load before jumping from category to category.
Please note: CCFA is not affliated with, nor do we endorse, the organizations, groups, publications, and individuals that appear on this list, or otherwise "linked" to CCFA, and is in no way responsible for the content displayed or discussed in these "linked" web sites, chat rooms, publications, or other resources. CCFA is also not responsible for any e-mail you may receive when joining a mailing list, chat room, or bulletin board. Medical Organizations & Agencies American Board of Medical Specialties (ABMS)
1007 Church Street
Suite 404
Evanston, IL 60201
(847) 491-9091
The web site discusses the purpose of the ABMS. To find out if an individual physician or surgeon is board-certified, call (800) 776-2378.
American Chronic Pain Association (ACPA)
PO Box 850
Rocklin, CA 95677
(916) 632-0922
The ACPA seeks to provide a support system for those suffering with chronic pain through education and self-help group activities.
American College of Gastroenterology
4900 B South 31st Street
Arlington, VA 22206-1656
(703) 820-7400
You can call this professional society to request information or pamphlets. Tap into the "Digest This!" section of their site for "Understanding Your GI Tract" and "Digestive Health Tips."
American College of Surgeons (ACS)
55 East Erie Street
Chicago, IL 60611
Office of Public Information
(312) 664-4050, ext. 391
The web site describes the ACS, and also lists pamphlets you can order by phone, including "Patient's Choices," "What is Laporoscopic Surgery?" and a four-part series, "When You Need an Operation."
American Medical Association (AMA)
515 North State Street
Chicago, IL 60610
(312) 464-5000
Offers a "Physician Select" online service, which allows you to see if a physician is accredited by the AMA. Also offers links to other medical associations, and medical journals online.
American Society for Parenteral and Enteral Nutrition (ASPEN)
8630 Fenton Street
Suite 412
Silver Spring, MD 20910
(301) 587-6315 or (800) 727-4567
This site is an excellent source of information for those on total parenteral nutrition (TPN). \ Celiac Sprue Association/USA, Inc.
P.O. Box 31700
Omaha, NE 68131-0700
Phone: (402) 558-0600 Food and Drug Administration (FDA)
Office of Health Affairs
5600 Fishers Lane
Rockville, MD 20857
Phone: (301) 827-4420
Information about new drug approvals, FDA Consumer (the consumer magazine from the FDA), and more!
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
P.O. Box 17864
Milwaukee, WI 53217
(414) 964-1799 or (888) 964-2001
Provides support and education information for people affected by functional bowel disorders, including irritable bowel syndrome (IBS).
Joint Commission for Accreditation of Healthcare Organizations (JCAHO)
One Renaissance Blvd.
Oakbrook Terrace, IL 60181
(630) 792-5000
Customer Service: (630) 792-5800
This organization inspects hospitals every three years to ensure they meet their standards for accreditation. Its web site contains information about the organization and recent news. To inquire about a specific hospital, please call the customer service number listed above.
North American Society for Pediatric Gastroenterology Hepatology and Nutrition (NASPGHAN)
This site is a complete resource, with informative articles about the entire spectrum of IBD. Some sections require membership.
National Digestive Disease Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Phone: (301) 654-3810
National Institute of Diabetes & Digestive & Kidney Diseases
9000 Rockville Pike
Bethesda, MD
Phone: (301) 496-3583
The division of the National Institutes of Health (NIH) that provides government funding for digestive disease research.
National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
Phone: (301) 496-6308 or (800) 272-4787
Has a good "Health Hotlines" section — a database of "800" numbers for health organizations, as well as "NIH Clinical Alerts" — the latest information from the National Institutes of Health.
National Organization For Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: (203) 746-6518
Office of Rare Diseases
The Rare Diseases Office at the National Institutes of Health, featuring scientific activities, a genetic and rare diseases information center, and a portal to databases that provide information on major topics of interest in rare diseases research.
The Oley Foundation, Inc.
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
Phone: (800) 776-OLEY
A source for educational materials on home parenteral and enteral nutrition. Oley also provides support and networking to patients.
ODPHP National Health Information Center
P.O. Box 1133
Washington, DC 20013-1133
Phone: (800) 336-4797
Channels requests for information to appropriate health agencies and publishes information on health-related topics.
Ostomy Association of Boston
Phone: (508) 270-4600 (Boston area)
(800) 952-7664 (Outside of Boston)
The Society for Surgery of The Alimentary Tract
900 Cummings Center
#221-U
Beverly, MA 01915
Phone: (978) 927-8330
Fax: (978) 524-8890
Society of Laporoendoscopic Surgeons (SLS)
7330 SW 62nd Place
Suite 410
Miami, FL 33143
(800) 446-2659
Discusses laparoscopic and endoscoscopic surgery. Includes a member search function to help find a laparoscopic or endoscopic surgeon in your area.
Society of Gastroenterology Nurses and Associates, Inc.
401 North Michigan Avenue
Chicago, IL 60611-4267
E-mail: sgna@sba.com
United Ostomy Associations of America (UOAA)
P.O. Box 66
Fairview, TN 37062
1-800-826-0826
E-mail: info@uoaa.org
WECARE
A professional community dedicated to help women advance as leaders, educators, clinicians, researchers, mentors, and scholars in the field of inflammatory bowel disease (IBD). Top of Page
Medical Journals on the Internet Please note that most of these require registration. Full text may not be available for all articles listed. National Library of Medicine's MEDLINEplus
National Library of Medicine's home page focuses on easy research of health topics. Includes a search engine, dictionaries, and directories. Also includes information in spanish.
PubMed
National Library of Medicine's search service to access the 9 million citations in MEDLINE and Pre-MEDLINE (with links to participating online journals), and other related databases. GUT Journal
HMS Beagle Inflammatory Bowel Diseases Journal
Journal of the American Medical Association Journal of Pediatric Gastroenterology and Nutrition
MD Digests
Medscape Gastroenterology
New England Journal of Medicine
The Lancet
Nature
Science News
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Physician Sites/Medical Centers Biotechnology Industry Organization
Web site focusing on the biotech industry.
The Cleveland Clinic
This comprehensive site takes a look inside the Cleveland Clinic. Includes physician education programs, information about clinical trials and multilingual text.
Cedars-Sinai Inflammatory Bowel Disease Center
The Cedars-Sinai IBD Center Web site, geared mostly toward research.
Certifying Board of Gastroenterology Nurses and Associates, Inc. (CBGNA)
Complete listing of certification courses, handbooks and exams.
3525 Ellicott Mills Drive, Suite N
Ellicott City, MD 21043-4547
Tel: 410-418-4808
Fax: 410-418-4805
Doctor's Guide to the Internet
Doctor's Guide provides the latest news, medical information and resources with daily news updates and frequently updated links.
Doctors Reference Site
Johns Hopkins Gastroenterology and Hepatology Resource Center
Site includes information on causes, therapies, complications, and research.
MedicineNet.com
Features doctor-produced medical information.
Medslides
The latest medical information, via the Internet, provided in a slide-show format.
Prous Science
A Web site focusing on medications and general medical information. Contains an extensive listing of journals and other information. (Incluye información en Español.)
Pharmalicensing.com
A resource for the pharmaceutical and biotech licensing and business development. The site offers in-depth company and licensing opportunity profiles, news, events and articles.
Physician's Guide to the Internet
A resource to help physicians find their way around the Web.
Top of Page For People with IBD — By People with IBD Annie's Crohn's Disease Web Page
Celiac Support Page
A site designed to offer support for people with Celiac Disease.
Colitis Cookbook
Offers a list of recipies and other information that should be helpful to the colitis sufferer.
Crohn's Disease/Ulcerative Colitis Home Page
Provides links to an extensive list of information sources on the Internet.
Crohn's Disease Resource Center
A nice site for people with Crohn's disease, including book excerpts and a message board.
Intestine City
Web site done by a person with Crohn's disease. Full of resources for other people with IBD. Chat rooms, message boards, and a "pen-pal" page are just some of the features of this site.
Teens With Crohn's Disease Page
Stories, advice, and recipes!
Top of Page Newsgroups and Message Boards Been There, Done That message board
IBD Sucks
An extensive discussion board for people with IBD. Topics range from alternative remedies to mental health issues, and everything in between!
iVillage.com Message Boards
This site, geared towards women, provides a message board to discuss Crohn's disease.
My Life with Crohn's Disease
A site produced by someone who knows what it is like to live with Crohn's disease, and how he copes on a daily basis.
Yahoo Groups listing for Crohn's and colitis lists
Support for Parents of IBDers Message Board
A message board within a web site for parents of kids with IBD.
Crohn's-Colitis Support Newsgroup (through Google Newsgroups)
Ostomy Support Newsgroup (through Google Newsgroups)
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International Organizations European Federation of Crohn's and Ulcerative Colitis Associations
International Organization of Inflammatory Bowel Disease (IOIBD)
International Ostomy Association
c/o British Colostomy Association
15 Station Road, Reading, Berks. RG1 1LG
England
Australia
Australia Crohn's & Colitis Association
P.O. Box 201
Mooroolbark, Victoria 3138
Tel: (03) 726 9008
Australian Crohn's & Colitis Association (Queensland)
P O Box 548
Maleny QLD 4552
Tel: (07) 5494 2149
South Australian Crohn's & Colitis Association
P.O. Box 3153
Grenfell Street
Adelaide, SA 500
Austria
Österreichische Morbus Crohn/Colitis Ulcerosa Vereinigung (ÖMCCV)
Obere Augartenstrasse 26-28
A-1020 Wien
Tel.: + 43 (0)1 333 06 33
E-mail: crohn-colitis@oemccv.or.at
Belgium
Crohn en Colitis Ulcerosa Vereniging vzw (CCV)
Schalmei 2
2970'S-Gravenwezel
Tel: + 32 (0)3 385 27 19
Fax: + 32 (0)3 383 52 14
E-mail: ambulancecentrum@village.uunet.be
Brazil
ABCD-Associação Brasileira de Colite Ulcerativa e Doença de Crohn
Rua da Consolação, 3.741 -7o andar
01416-001 - São Paulo - SP - Jd. América
Tel: 5511-280-1378
Fax: 5511-280-1094
E-mail: abcd99@att.global.net
Canada
Crohn's and Colitis Foundation of Canada (CCFC)
60 St. Clair Avenue East
Suite 600
Toronto, Ontario M4T 1N5
Tel: 416-920-5035
E-mail: ccfc@ccfc.ca
Denmark
Colitis Crohn Foreningen (CCF)
Birkegade 11
2200 Københaven N
Tel: + 45-35-35-48-82
Fax: + 45-35-35-47-82
E-mail: ccf@ccf.dk
Finland
Crohn's and Colitis Association in Finland
(Crohn ja colitis ry)
P.O. Box 44 - FIN-02101 Espoo
Tel: + 358 (0)9 148 5784
Fax: + 358 (0)3 241 2561
E-mail: ccafin@sci.fi
France
Association François Aupetit (AFA)
Hôpital Rothschild
33, Boulevard de Picpus
75571 Paris - Cedex 12
Tel: + 33 1 40 19 99 19
Fax: + 33 1 40 19 34 36
Germany
Deutsche Morbus Crohn/Colitis Ulcerosa Vereinigung (DCCV e.V.)
Parcelsusstrasse 15
51375 Leverkusen 1
Tel: + 49 (0)214 87608-0
Fax: + 49 (0)214 87608-88
E-mail: info@dccv.de
Hungary
Magyarországi Crohn-Coliteses Betegek Egyesülete (MCCBE)
Igmándi utca 22. Fzst. 1.
1112 Budapest
Tel: + 361 322 80 98
Fax: + 361 457 94 94
Iceland
Crohn´s og Colitis Ulcerosa samtökin á Íslandi
P.o. Box. 5388
125 Reykjavik Iceland
Tel: 416-920-5035
E-mail: CCU@isl.is
Ireland
Irish Society for Colitis & Crohn's Disease (ISCC)
Carmichael Centre
North Brunswick Street
Dublin - 7
Tel: + 353 (0)1 872 14 16
Fax: + 353 (0)1 873 57 37
Israel
The Israel Foundation for Crohn's Disease and Ulcerative Colitis
P.O. Box 5231
Herzlia
Fax: 09-9567628
Italy
Federazione Nazionale delle Associazione per le Malattie InflammatorieCroniche dell'Intestino (AMICI)
Via Adolfo Wildt 19/4
20138 Milano
Tel: + 39 (0)2 28 93 637
Fax: + 39 (0)2 268 22 670
E-mail: http://ccfa.org/medinfo/medinfo/amicimail@geocities.com
Luxembourg
Association Luxembourgeoise de la Maladie de Crohn (ALMC)
B.P. 648
2016 Luxembourg
Tel: + 352 50 98 28
Fax: + 352 47 98 20 20
The Netherlands
Crohn en Colitis Ulcerosa Vereniging Nederland (CCUVN)
Wilhelminastraat 45
3621 VG Breukelen
Tel: + 31 (0)346 26 10 01
Fax: + 31 (0)346 26 49 74
E-mail: ccuvn79@hetnet.nl
New Zealand
Crohn's & Colitis Support Group
P.O. Box 24-171
Royal Oak, Auckland
Phone: (09) 636-7228
Fax: (09) 636-7242
E-mail: ccsg@clear.net.nz
Norway
Landsforeningen Mot Fordøyelsessykdommer (LMF)
c/o FFO, Smågruppesekretariatet
Postboks 4568 Torshov
0404 Oslo
Tel: + 47 88 00 50 21
Fax: + 47 88 00 50 31
E-mail: imfnorge@online.no
Portugal
Associaçao Portuguesa de Doença Inflamatória do Intestino (APDI)
Apartado 50531
1711 Lisboa Codex
Tel: 351 (0) 351 (0)39 81 38 65
Fax: + 351 (0)39 85 48 89
Slovakia
Crohn Klub (VUV) — Vyskumny ústav vyzivy
c/o Ing. Tomás Gertler/COSMEX
Nevädzova 8, P.P. Box 60
827 99 Bratislava
Tel: + 421 7 43330829, 43330917, 43338003
Fax: + 421 7 43338020
E-mail: cosmex@datagain.sk
South Africa
South African Crohn's & Colitis Association
P.O. Box 2638
Cape Town 8000
Tel: (021) 25-2350
Spain
Asociación de Enfermos de Crohn y Colitis Ulcerosa (ACCU)
C/ Hileras 4, 4o, 6 y 7
28013 Madrid
Tel/Fax: + 34 (91) 542 63 26
E-mail: accuesp@arrakis.es
Sweden
Riksförbundet för Mag-och Tarmsjuka (RMT)
Gotlandsgaten 46, PO Box 20054
104 60, Stockholm
Tel: + 46 (0)8 642 42 00
Fax: + 46 (0)8 642 11 00
E-mail: solveig.johansson@magotarm.se
Switzerland
Schweizerische Morbus Crohn/Colitis Ulcerosa Vereinigung (SMCCV)
Postfach
5001 Aarau
Tel: + 41 (0)62 824 87 07
Fax: + 41 (0)62 824 87 07
Alternate Web site: www.asmcc.ch
E-mail: welcome@smccv.ch
United Kingdom
National Association for Colitis & Crohn's Disease (NACC)
4 Beaumont House
Sutton Road
St. Albans, Herts. AL1 5HH
Tel. administration: + 44 (0) 1727 83 00 38
Tel. information: + 44 (0) 1727 84 42 96
FAX: + 44 (0)1727 86 25 50
E-mail: nacc@nacc.org.uk or r.driscoll@nacc.org.uk
Zimbabwe
Zimbabwe Association for Colitis & Crohn's Disease
2 Montclaire Close
Borrowdale, Harare
Tel: Harare 885556
Top of Page Information in Other LanguagesOther than the sites listed above, we also know of three other sites featuring information in Spanish:
Ademas de el sitio Web indicado, también conocemos dos sitios Web adicionales que suministran información en Español:
Grupo Andaluz para el Estudio de la Enfermedad Inflamatoria Intestinal
Grupo Español de Trabajo de Enfermedad de Crohn y Colitis Ulcerosa (GETECCU)
This web site also contains information in Dutch:
Bevat informatie in het Nederlands:
Laboratory of Experimental Internal Medicine
This web site has information in French for physicians:
Offre de l'informationaux médecins en français:
Communications Med.ca
Top of Page Clinical Trial Information Centerwatch (Clinical Trials Listing Service)
This site features an international listing of clinical research trials. Trials are searchable by treatment area and by geographical location. Clincial Trials.gov
Regularly updated information about a trial's purpose, who may participate, locations, and phone numbers for federally and privately supported clinical trials. Medtrial.com
A complete resource of where to find clinical trials that deal with every disease. Site has a search engine for easier navigation in order to find the trials.
Worm Research
This is a study, being done in Iowa, that is investigating the possible usage of worms in helping to cure IBD.
Top of Page Miscellaneous Resources American Autoimmune Related Diseases Association, Inc.
Complete resource for patients and physicians, focusing on Autoimmune diseases. Includes legislative information.
American Dietetic Association
Extensive and interesting information about diets and nutrition.
Americans with Disabilities Act Page
This page is part of the U.S. Department of Justice Web site, and features information on settlement and mediation programs.
Band-Aids and Blackboards
A site about growing up with medical problems.
CHID
Database containing hundreds of citations referencing many different diseases.
Health World Online
This site features complete information about natural medications and treatments.
Healthfinder
This site offers a complete resource of medical issues, including treatments and medicines.
InteliHealth
Includes information on nutrition, general health, and other conditions.
The J-Pouch Group
A site dedicated to discussing Ileo-anal anastomosis or what's known as the "J-Pouch" operation.
Medexplorer.com
Medexplorer is a free medical/health related search engine, used primarily for healthcare professionals and consumers.
MedMark: Medical Bookmarks
A resource for Web sites, divided up by disease category.
MEDLINEplus
Provides a rich array of evaluated health and disease-related web resources for the consumer.
National Guideline Clearinghouse
A site dedicated to giving patients information about guidelines used when dealing with a disease. A complete resource.
OstoGroup.org
A site dedicated to helping Ostomates without insurance obtain free ostomy supplies or ostomy supplies at the best possible prices. This organization also accepts ostomy supply donations.
Pages for Kids
Extensive listing of Web site and listings geared towards kids!
Tufts University Nutrition Navigator
An online rating and review guide to help Web users find nutritional information best suited to their needs. Links to various nutritional resources; includes a section on special dietary needs.
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