News

NY State "Crohn's and Colitis Fairness Act" (A277/S4918)

As part of the advocacy efforts in New York State in 2016 we are focusing on Bill no A277/S4918 - amending the public health law to enact the Crohn's and Colitis Fairness Act into New York State law. This bill addresses restroom access for those with eligible medical conditions. We have some good traction on this bill, which is sponsored by Assemblywoman Amy Paulin (Passed in 2016 in the Assembly last session) and Senator Kemp Hannon. We are trying to build support over the next few weeks among the NY State Senate in advance of the bill coming up for a vote. You can help in one of several ways.

Next Steps:

  • Please thank your Assembly member for their support of this bill
  • Please contact your State Senator and let them know you would love for them to push for this bill to come up for a vote this session and also for their support of this bill (S4918). Please do this as soon as possible. The legislative Session ends on June 16, 2016. 

Identify your New York State Assembly person and Senator by using these links:

Then either email them, call their office or visit* and ask for their support. We have drafted a sample email below but feel free to use your own words. Then ask friends and family to do the same. It really is that easy. With enough of our voices being heard we feel very confident we can get this bill passed this year and you will have been a part of the process!

Dear ______________

I am a voter/constituent in your district and I am asking for your support of Bill A277/S4918, which enacts the "Crohn's and Colitis Fairness Act" providing Restroom Access. This bill would allow people with medical conditions that require urgent restroom use--such as the inflammatory bowel diseases (IBD) Crohn’s disease and ulcerative colitis--to use an employee’s-only restroom when a public one is not available and it is safe for the business to do so. In NY State there are more than 100,000 people with these debilitating diseases. I am sure you can imagine how it must feel to be denied access to a bathroom when you so desperately need one. This Bill is important to me because...(I have IBD or am related to or friends with - whatever personal connection you wish to share ). Please support this bill and vote for it when it comes before you. If you need more information please feel free to visit the website http://www.ccfa.org/

Thank you,

Your name

*If you choose to go on a visit there are materials available you may wish to bring to leave behind. They are available at https://www.dropbox.com/sh/zfcrkvnznvc2jmk/AABfVYkPB6nzgAhqURPV59gda?dl=0


Ben Simmoneau of Fox 5 is Emceeing the NYC Take Steps Walk on Thursday, May 12th! 

Ben Simmoneau joined Fox 5 as the anchor of Good Day Wake Up in June 2013. Prior to joining Fox 5, Simmoneau worked as an anchor and reporter for KYW-TV, the CBS-owned station in Philadelphia. Previously, he worked as an investigative reporter and anchor at WGAL-TV, the NBC affiliate in Harrisburg-Lancaster, Pa.

Simmoneau has won three Emmy Awards, an Edward R. Murrow award for investigative reporting and a Walter Cronkite Award from the University of Southern California for excellence in political journalism.

Before graduating from Ithaca College with a journalism degree, Simmoneau worked for Chris Matthews as a researcher on his bestselling book American: Beyond Our Grandest Notions.

An avid runner, Simmoneau also enjoys reading, traveling and exploring the city. He also serves on the Executive Council for the Greater New York Chapter of the Crohn's & Colitis Foundation of America. He currently resides in Manhattan with his wife, daughter and son.


2015 Accomplishments

In 2015, we directed $28.4 million to research — a 21% year-over-year increase – bringing CCFA’s total research investment from inception to $267.1 million. Because of our investment, CCFA has been and will continue to be a part of every major scientific breakthrough in IBD research – a fact we should all be very proud of.

Below are just a few more highlights of our 2015 accomplishments:

  • We served 600,000 participants through our education programs, a 105% year-over-year increase!
  • Team Challenge engaged 1,724 participants nationwide.

  • Take Steps held 140 walks in 41 states, engaging more than 60,000 participants and 220 corporate partners.

Click here to read more about our accomplishments.

Recent Press

  • Huffington Post op-ed by Michael Osso, IBD Is More Than 'Just a Bathroom Disease' (May 19, 2016)

  • Huffington Post op-ed by Michael Oss, Can Diet Help Manage IBD Symptoms? (April 6, 2016)

  • Check out this article from the Scholastic Choices Magazine, featuring our 2014 Take Steps New York City honored hero, Luc Hyman (March 2015 issue).

  • Watch Regional Director Rhondell Domilici & Endurance Manager Megan Keane discussing Team Challenge & CCFA on WNBC's COZI-TV News 4 at 7 (June 24, 2015)

  • spin4 is mentioned in Forbes for its embrace of the lastest millenial health craze, cycling (November 11, 2015).

  • A recap of Broadway's Got Guts is featured in Broadwayworld.com (November 12, 2015).

  • Read about the impact and reach of IBD on HuffingtonPost.com (November 23, 2015).


2016 Monthly Volunteer Newsletter

January | February | March | April | May


Chapter Happenings

Women of Distinction Luncheon | April 13, 2016 | $2.8M

On April 13th, the 23rd Annual Women of Distinction Luncheon was attended by more than 700 guests and raised $2.8 million dollars. The event included a fashion show of Andrew Gn's fall 2016 collection partnered with Bergdorf Goodman. wod 2016 honorees chairs

Honorees included:

Nancy Brown, Woman of Distinction in Philanthropy

Judith Hannan, Woman of Distinction in Journalism

Peter H. Rubin, M.D., Humanitarian Award

Andrew Gn, Designer of the Year

Steven DeCrescenzo, Rising Star

Thank you to our co-chairs, Ellen Crown, Lara Engleberdt Metz, Elyse Newhouse, Carolyn Rowan, Michelle Swarzman, and Michele Sweetwood. Also thank you to our host, Lori Stokes, anchor at Eyewitness News This Morning ABC7.

View photos on Society Allure.

48th Annual Awards Dinner | December 9, 2015 | $825,000

Over 750 guests gathered at the Sheraton NY Times Square Hotel to honor Man of the Year, Warren Heck, and Rosenthal Humanitarian of the Year, Richard Geswell, at the 48th Annual Awards Dinner on December 9th.

More than $825,0000 was raised that evening to support CCFA's mission. Joe Piscopo entertained the crowd with his rendition of Frank Sinatra songs.

Thanks to Mitchell Modell, CEO of Modell's Sporting Goods for Chairing the event and to Abby Modell for securing our auction and raffle items as well as all who came out to support our cause. 

Click here for the e-Journal of Hope.

Broadway's Got Guts | November 2, 2015 | $145,000

The inaugural Broadway's Got Guts event at the Friars Club was SOLD OUT! 200 guests enjoyed a spectacular evening of wonderful entertainment by Broadway’s brightest singing the wonderful standards and hits sung by the late, great Nancy LaMott who was herself diagnosed with Crohn's disease. The first Nancy LaMott "Got Guts" Award was presented to Maxwell Federman to recognize his courage and determination.  Thank you to our co-chairs, Wendy and Dr. Robert Federman, Lenora and John Klein, Suzan and Hon. Jerry Kremer, Robin Modell, Marilyn Chinitz and Piero Pozzi, and Randi Rahm.

The show was hosted by Seth Rudetsky, Sirius XM radio host, who introduced all the Broadway talent including: Matt Doyle, Adam Kantor, Laura Michelle Kelly, Alix Korey, Marc Kudisch, Karen Mason, Howard McGillin, Lauren Molina, Chelsea Morgan Stock, Elizabeth Ward Land, and Betsy Wolfe.

Thank you to our sponsors:

Presenting: Catherine Adler

Gold: Broadway Cares | Drapkin Family | Peter Yawitz

Silver: Melissa and Robert Mittman | Steven Waldman, MD

Last but not least, thank you to the event producers, Marc Eliot, David Friedman, Barbara Kaynan, Toby Ellen Sarna, and Peter Yawitz.

Click here for the journal.

Photos: Society Allure | Michael Yorkes Photography

Recap in Broadwayworld.com