NY State "Crohn's and Colitis Fairness Act" (A277/S4918)
GOOD NEWS! Bill S4918, which enacts the Crohn’s and Colitis Fairness Act in New York State, has passed the Senate Health Committee and has been placed on the Senate Calendar. The next step is to get the bill on the “active list” for a reading and vote on the Senate floor.
What can you do?
1) Identify your New York State Senator here: http://www.nysenate.gov/find-my-senator
2) Contact your State Senator by phone and email (email template below) to ask for their support of this bill (S4918) and explain why it is personally important to you. Ask your Senator to push Senator Flanagan, Temporary President and Majority Leader of the Senate, to put it on the active list and bring it to a vote this session.
3) You can also post this request on your Senator’s Facebook and Twitter feeds, as well as the Facebook and Twitter feeds of the two Senators below.
- Senator Flanagan: https://www.facebook.com/SenatorJohnFlanagan/timeline
- Senator Hannon: https://www.facebook.com/kemp.hannon/ or on Twitter @HannonSenate
4) Ask your friends and family in NY State to do the same! It really is that easy. With enough of our voices being heard, we are confident we will get the Crohn’s and Colitis Fairness Act passed in New York this year, and you will have been a part of the process!
For more information, and to track the progress of the bill, click on the link: https://www.nysenate.gov/legislation/bills/2015/S4918
I am a voter/constituent in your district and I am asking for your support of Bill S4918, which enacts the "Crohn's and Colitis Fairness Act" providing Restroom Access. This bill would allow people with medical conditions that require urgent restroom use- such as Crohn’s disease and ulcerative colitis- to use an employees-only restroom when a public one is not available and it is safe for the business to do so. In NY State there are more than 100,000 people with these debilitating diseases. I am sure you can imagine how it must feel to be denied access to a bathroom when you so desperately need one because of a severe and chronic medical condition. This Bill is important to me because... (I have IBD or am related to or friends with - whatever personal connection you wish to share).
Please contact Senator Flanagan to have him put this bill (S4918) on the active list and vote for it when it comes before you. If you need more information, please feel free to visit the Crohn’s & Colitis Foundation’s website: http://www.ccfa.org/.
*If you are able to visit your State Senator in person, the materials at the link below are helpful to leave behind: https://www.dropbox.com/sh/zfcrkvnznvc2jmk/AABfVYkPB6nzgAhqURPV59gda?dl=0.
Ben Simmoneau of Fox 5 is Emceeing the NYC Take Steps Walk on Thursday, May 12th!
Ben Simmoneau joined Fox 5 as the anchor of Good Day Wake Up in June 2013. Prior to joining Fox 5, Simmoneau worked as an anchor and reporter for KYW-TV, the CBS-owned station in Philadelphia. Previously, he worked as an investigative reporter and anchor at WGAL-TV, the NBC affiliate in Harrisburg-Lancaster, Pa.
Simmoneau has won three Emmy Awards, an Edward R. Murrow award for investigative reporting and a Walter Cronkite Award from the University of Southern California for excellence in political journalism.
Before graduating from Ithaca College with a journalism degree, Simmoneau worked for Chris Matthews as a researcher on his bestselling book American: Beyond Our Grandest Notions.
An avid runner, Simmoneau also enjoys reading, traveling and exploring the city. He also serves on the Executive Council for the Greater New York Chapter of the Crohn's & Colitis Foundation of America. He currently resides in Manhattan with his wife, daughter and son.
In 2015, we directed $28.4 million to research — a 21% year-over-year increase – bringing CCFA’s total research investment from inception to $267.1 million. Because of our investment, CCFA has been and will continue to be a part of every major scientific breakthrough in IBD research – a fact we should all be very proud of.
Below are just a few more highlights of our 2015 accomplishments:
- We served 600,000 participants through our education programs, a 105% year-over-year increase!
Team Challenge engaged 1,724 participants nationwide.
Take Steps held 140 walks in 41 states, engaging more than 60,000 participants and 220 corporate partners.
Staten Island Social Scene: Broadway actress belts it out for Crohn's disease on Staten Island Advance (June 14, 2016)
Huffington Post op-ed by Michael Osso, IBD Is More Than 'Just a Bathroom Disease' (May 19, 2016)
Huffington Post op-ed by Michael Oss, Can Diet Help Manage IBD Symptoms? (April 6, 2016)
Check out this article from the Scholastic Choices Magazine, featuring our 2014 Take Steps New York City honored hero, Luc Hyman (March 2015 issue).
Watch Regional Director Rhondell Domilici & Endurance Manager Megan Keane discussing Team Challenge & CCFA on WNBC's COZI-TV News 4 at 7 (June 24, 2015)
spin4 is mentioned in Forbes for its embrace of the lastest millenial health craze, cycling (November 11, 2015).
A recap of Broadway's Got Guts is featured in Broadwayworld.com (November 12, 2015).
Read about the impact and reach of IBD on HuffingtonPost.com (November 23, 2015).
2016 Monthly Volunteer Newsletter
Women of Distinction Luncheon | April 13, 2016 | $2.8M
On April 13th, the 23rd Annual Women of Distinction Luncheon was attended by more than 700 guests and raised $2.8 million dollars. The event included a fashion show of Andrew Gn's fall 2016 collection partnered with Bergdorf Goodman. wod 2016 honorees chairs
Nancy Brown, Woman of Distinction in Philanthropy
Judith Hannan, Woman of Distinction in Journalism
Peter H. Rubin, M.D., Humanitarian Award
Andrew Gn, Designer of the Year
Steven DeCrescenzo, Rising Star
Thank you to our co-chairs, Ellen Crown, Lara Engleberdt Metz, Elyse Newhouse, Carolyn Rowan, Michelle Swarzman, and Michele Sweetwood. Also thank you to our host, Lori Stokes, anchor at Eyewitness News This Morning ABC7.
View photos on Society Allure.
48th Annual Awards Dinner | December 9, 2015 | $825,000
Over 750 guests gathered at the Sheraton NY Times Square Hotel to honor Man of the Year, Warren Heck, and Rosenthal Humanitarian of the Year, Richard Geswell, at the 48th Annual Awards Dinner on December 9th.
More than $825,0000 was raised that evening to support CCFA's mission. Joe Piscopo entertained the crowd with his rendition of Frank Sinatra songs.
Thanks to Mitchell Modell, CEO of Modell's Sporting Goods for Chairing the event and to Abby Modell for securing our auction and raffle items as well as all who came out to support our cause.
Click here for the e-Journal of Hope.
Broadway's Got Guts | November 2, 2015 | $145,000
The inaugural Broadway's Got Guts event at the Friars Club was SOLD OUT! 200 guests enjoyed a spectacular evening of wonderful entertainment by Broadway’s brightest singing the wonderful standards and hits sung by the late, great Nancy LaMott who was herself diagnosed with Crohn's disease. The first Nancy LaMott "Got Guts" Award was presented to Maxwell Federman to recognize his courage and determination. Thank you to our co-chairs, Wendy and Dr. Robert Federman, Lenora and John Klein, Suzan and Hon. Jerry Kremer, Robin Modell, Marilyn Chinitz and Piero Pozzi, and Randi Rahm.
The show was hosted by Seth Rudetsky, Sirius XM radio host, who introduced all the Broadway talent including: Matt Doyle, Adam Kantor, Laura Michelle Kelly, Alix Korey, Marc Kudisch, Karen Mason, Howard McGillin, Lauren Molina, Chelsea Morgan Stock, Elizabeth Ward Land, and Betsy Wolfe.
Thank you to our sponsors:
Presenting: Catherine Adler
Gold: Broadway Cares | Drapkin Family | Peter Yawitz
Silver: Melissa and Robert Mittman | Steven Waldman, MD
Last but not least, thank you to the event producers, Marc Eliot, David Friedman, Barbara Kaynan, Toby Ellen Sarna, and Peter Yawitz.
Click here for the journal.
Recap in Broadwayworld.com