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[Update] Restroom Access Act in New York

In 2015, the Crohn's and Colitis Fairness Act was passed in the Assembly, thanks in large part to sponsor, Assemblywoman Paulin.  It was strongly supported, with only one or two nays.  The bill was then passed on to the Senate, sponsored by Senator Hannon from LI.  The bill passed the Senate Health Committee with 14 yays, 2 yays with reservations and one absent, and then was passed along to be voted on by the full Senate. The Senate ended their session at the end of June without voting on the bill. The bill clearly is seen as a positive addition- there is just a lot of competition in getting it to the floor for a vote.  The Senate passed it into their Rules Committee which is what they do with bills that did not get voted on. This means that if they choose to go back into session this fall it can come up again for a vote, but typically they are only in session from January - June. They will decide in the fall if they need to go back into session this year. 

If they do not go into session again until next January, the process will start over. However, Assemblywoman Paulin's office said the process would be much quicker this time around. The sponsors will remain on the bill for both the Senate and House and it will quickly sail through the Assembly. Then it will go back to the Senate.

What can we do to help?  Thank your Assembly people for voting for the bill. It is nice to let them hear appreciation after the fact.  Identify constituents in Senator Hannon and Senator Flanagan's (the Senate Speaker who decides what bills are put on the agenda for a vote) districts to reach out in support of the bill, and the importance of putting it up for a vote, in the meantime. Their district area and contact information is below.  Continue to encourage your own State Senator to support this bill when it comes to a vote.

Senator Flanagan - Speaker of the Senate

District:  Melville, Commack, Stony Brook, Part of Port Jefferson

Phone: 631-361-2154 

Email address: flanagan@nysenate.gov

Senator Hannon - Chair of Health Committee and Sponsor of Bill

District: Bethpage, East Meadow, Farmingdale, Franklin Square, Garden City, Garden City South, Hempstead, Hicksville, Island Trees, Lakeview, Levittown, Malverne, Massapequa, Old Bethpage, Plainedge, Salisbury, Seaford, UniondalePhone: 516-739-1700

Email address: Hannon@nysenate.gov


In the Media

  • Check out this article from the Scholastic Choices Magazine, featuring our 2014 Take Steps New York City honored hero, Luc Hyman.

  • Watch Regional Director Rhondell Domilici & Endurance Manager Megan Keane discussing Team Challenge & CCFA on WNBC's COZI-TV News 4 at 7.


2015 Monthly Volunteer Newsletter

January | February | March | April | May | June | July


Chapter Happenings

A Weasel on an Easel by Taylor Sinett| $3,500

Taylor Sinett is a hard-working ninth grader at Carrie Palmer Weber Middle School in Port Washington, New York. Taylor has watched her cousin, Casey Mintz, struggle with ulcerative colitis for seven years. She has spent many afternoons in Casey’s hospital room keeping her company while Casey recovered from yet another surgery or procedure.

Inspired by her cousin, Taylor wrote a book, A Weasel on an Easel, that carries the overall message of learning to love yourself for who you are. Through the sales of her book, Taylor has raised over $3,500 for the CCFA! Taylor hopes to continue to promote her book so that sales top $10,000. In the meantime, she is working on her second book Jack on a Plaque.

We thank Taylor and her family for their continued support in honor of her cousin, Casey.

7th Annual Young Professional Comedy Night | March 31 | $16,000

For the first time, we were completely sold out and raised more than $16,000 for CCFA. Everyone that attended, laughed their A$$es off for a good cause. 

A round of applause to co-chairs: Alex Modell, Nicole White, Brittany Modell, David Gelbard, Ashley Modell, Andrew Modell and Missy Modell.  

Thank you to our sponsors:  

Special Mention to all the comedians who were fabulously funny:  Michael Fine - Host, DC Benney, Luc Hyman, Ted Alexandro, Joe DeVito and Ophira Eisenberg.

To all the attendees, thank you for laughing with us and supporting us year after year. For more information on our Young Professionals Committee, email emunoz@ccfa.org

22nd Annual Women of Distinction Awards Luncheon | April 23 | $1.8 Million

Chairs, Ellen Crown, Elyse Newhouse, Michelle Swarzman and Michele Sweetwood did it again.  They led CCFA Greater New York Chapter’s Women of Distinction 2015 Luncheon to a resounding success on April 23rd. 

Over the past 22 years, the Women of Distinction Luncheon has honored New York City women who are making a difference in the lives of those living with Crohn’s disease and ulcerative colitis.  This year, with the help of our WOD Committee and our Honorees  -- Eliza Bolen, Executive Vice President, Oscar de la Renta – Cyma Zarghami, President, Viacom’s Kids and Family Group, Lara Englebardt Metz, Lara Metz Nutrition and Chloe Hubbe, Rising Star - we raised more than $1.8 Million for CCFA’s research and education programs.  Veteran news reporter and Crohn’s disease patient Cynthia McFadden of NBC News hosted this year’s luncheon and  and an amazing fashion show was presented by Oscar de la Renta featuring the 2015 Fall Collection – Peter Copping, Creative Director.

Thank you to our WOD Partners:  Bergdorf Goodman for all their support and to the Waldorf for their delightful menu.  Special thank you to BNY Mellon and Lenora and John Klein for being the first 2 guests to pledge and start us off with a $5k pledge each to our first ever Text to  Pledge Campaign which helped to raise another $45k that afternoon.  Special thank you to our volunteers, Inez Weinstein Staff, the Waldorf Staff, John Martinez and his crew, Barbara Berman and her dressers,the Trish McEvoy make-up artists and the Ricardo Maggiorre hairdressers.   The room was filled with so many generous donors we thank you all for supporting us year after year.  We look forward to seeing you at next year’s luncheon.

Photo Album courtesey of Michael Yorkes

Black Tie Magazine | Hamptons.com | New York Social Diary

Society Allure album by Rob Rich, 516-676-3939, Robwayne1@aol.com

Take Steps New York City | May 14 | $340,000

IN A WORD... AMAZING!  NYC, you have once again left me speechless. Which is HARD to do!  NYC TAKE STEPS WAS A PERFECT DAY!  Thank you ALL for the hard work and love you put into making this event the success it was! You are true champions in the fight to find cures for IBD.

HIGHLIGHTS

  • 94 Teams
  • 800+ participants
  • OVER $340,000 RAISED toward our GOAL of $440,000, and still counting. 

To help us reach our goal, please visit http://cctakesteps.org/nyc or contact Suzanne Isbell at 848-218-2493, sisbell@ccfa.org.

Take Steps Staten Island | May 30 | $39,000

Success all around for our #StatenIslandTakeSteps walk – the weather was beautiful and everyone was in high spirits, as we were able to celebrate surpassing our goal of $30,000! This year’s walk grew with over 300 participants and collectively we raised awareness and crucial funds, fundraising more than $39,000!  Remember to use #StatenIslandTakeSteps and #TakeSteps2015 when posting photos on social media! Click here to download photos from the walk!

A very special thank you to our Honored Heroes, Marcus Grant and Dr. Jeffrey Abergel! Congrats again to our top fundraisers and teams who made MVP Status on Walk Day! 

Without the support of our generous sponsors and in-kind donors and entertainment, we would not be able to ensure that  $.93 of every walk program dollar raised goes directly to fund our Mission.

National Sponsor: AbbVie 
Local Sponsor: (Bronze Level) Staten Island University Hospital

The Walk is just one day, but fundraising continues through the end of the calendar year, so keep your campaign going with emails and social media blasts! Many of you have fundraisers, outreach campaigns and follow-up still on the horizon.