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Greater New York Chapter

 


SPECIAL HIGHLIGHTS

Stay Connected with the CCFA E-Digest: E-Newsletter of the Greater New York Chapter


Receive up to the date information on Crohn's disease and ulcerative colitis, upcoming CCFA events and information on local support groups


Click here to view the latest edition

To join the e-newsletter mailing list, please click here or contact Kymberlee at  212-679-1570  212-679-1570 or at ksetterberg@ccfa.org

  




                

TEAM NYC IS GEARING UP FOR SUMMER 2010!
This summer, cross the finish line at one of these exciting destination races: the 13.1 Half Marathon in historic Boston, or the Napa-to-Sonoma Half Marathon in California Wine Country. Do something you never thought you could do while helping 1.4 million people win back their lives. You can make a difference, help find cures and run or walk 13.1 miles! For more information please visit our website www.ccteamchallenge.org  or contact  Danielle Whittaker, Team Challenge Manager at  212-679-1570  212-679-1570 or at dwhittaker@ccfa.org 


Saturday, June 26, 2010

South Street Seaport

Registration and Festivities open at 4pm

Take Steps for Crohn's & Colitis is the nation's largest event dedicated to finding a cure for digestive diseases. Participants will experience everything New York City has to offer by enjoying our multi-cultural borough festival – A Walk through the Boroughs at the South Street Seaport – all while raising the awareness and the much needed funding to find a cure for Crohn's disease and ulcerative colitis.

More than 1.4 million Americans are affected by Crohn's disease and ulcerative colitis; collectively know as Inflammatory Bowl Disease or IBD. It is estimated nearly 38,000 people in New York City are affected by these devastating diseases. In addition to raising money for research, Take Steps brings together the community in a fun and energetic atmosphere where participants are encouraged to make noise and be heard -- raising awareness of these little-known diseases in our community and across the nation.

Get Involved and Register Today!

Register today and start making a difference. Form a team, walk as an individual, join a team, become a corporate sponsor, volunteer or make a donation. Which ever you choose, join today and Be Heard for digestive diseases!

For additional information on Take Steps New York City, please contact Kymberlee Setterberg, Take Steps Walk Director at 212-679-1570 or ksetterberg@ccfa.org


 

CCFA Hope Courage Bracelet

The CCFA Hope Courage Bracelet was designed to raise awareness of our mission to cure Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases.

Jewelry designer Catherine M. Zadeh has teamed up with the Crohn's & Colitis Foundation of America, Inc. (CCFA) to bring you this exclusive bracelet.  The purchase of this piece will help those afflicted with these diseases.

Get Your Bracelet Today! Call  212-679-1570  212-679-1570 or email newyork@ccfa.org

Available in Silver for $100 and in 10k Gold for $375

Proceeds from the sale of this bracelet benefit the Crohn's and Colitis Foundation of America (CCFA).



"Beat" IBD and unleash your Inner Rock Band!

The CCFA Greater New York Chapter is proud to announce that it will be sponsoring the formation of a new musical group called "BEAT" IBD, a band which will be composed entirely of patients and healthcare workers who are determined to "beat IBD".  The band will play at fund raisers and clubs not only in the New York area, but outside as well, in order to raise money for the CCFA and further IBD research.  The band will play upbeat music in the genres of pop, rock and jazz.  If you are a musician and are committed to defeating inflammatory bowel disease, please contact "Beat" IBD founder/CCFA member/drummer Adam F. Steinlauf, M.D. at a_steinlauf@hotmail.com, or call   (917)538-2158  (917)538-2158 .


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CALENDAR/EVENTS
February 26, 2010

CCFA Poker Night
hosted by Ari and Anna Meisel

Board Memeber, Ari Meisel and his wife Anna are pleased to host a Poker Event to benefit the Greater New York Chapter of the Crohn's & Colitis Foundaiton.

Date: February 26, 2010

Time: 7:00pm

Location: Soho Location - TBA

GREAT prizes from Caribbean vacations, Atlantic City Getaways and even private yoga lessons. The initial buy in is $200 and there will be re-buy opportunities during the tournament. We will also have Blackjack tables for the non poker players as well as cocktail only tickets

For more information or to purchase tickets, please click here on contact us at 212-679-1570

April 22, 2010

CCFA Theatre Club



Thursday, April 22, 2010 at 8:00pm

Lunt Fontaine Theatre, 205 West 46th St., Bet. Broadway & 8th Ave.

Tickets - $350 a pair

Get your tickets today!  Call or email Ed Munoz, (212) 679-1570 or
emunoz@ccfa.org


April 29, 2010

17th Annual Women of Distinction Awards Luncheon

DATE: Wednesday, April 28, 2010

TIME: 11:30 AM – Cocktails/Silent Auction 
12:00 PM – Luncheon

PLACE: Waldorf=Astoria, Grand Ballroom
New York City
 

HONORARY CHAIR: Nancy Brown

LUNCHEON CHAIRS: Elyse Newhouse, Carolyn Rowan, Michelle Swarzman & Michele Sweetwood

HONOREES: Karen Peetz, CEO, Financial Markets and Treasury Services, Bank of NY Mellon, Ellen Crown, Fundraiser and CCFA Board Member
                                                                                                                       
FASHION SHOW: Jay Ahr, Dior, Kaufman Franco, Andrew GN, CD Greene, Naeem Khan, J. Mendel, Jason Wu, Oscar de la Renta and Valentino.

RISING STAR: TBA

HOST: Cynthia McFdden, Co-Anchor, ABC News, Nightline & Primetime

For additional information or to purchase a table and/or tickets, please contact Ed Munoz at 212-679-1570 or newyork@ccfa.org

August 17, 2010 - August 22, 2010

 

2010 Camp Oasis New York Session - Elizaville

August 17-22, 2010

Applications are Available Now!

 

CCFA Camp Oasis is a co-ed residential camp program that's mission is to enrich the lives of children with Crohn's disease and ulcerative colitis by providing a safe and supportive camp community. The Greater New York Chapter is proud to participate in this program and is open to any child with IBD between the grades of 3rd and 10th graders (in Fall 2010). For additional information on Camp Oasis, please contact our office at 212-679-1570.

 

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SUPPORT GROUPS



CCFA SUPPORT GROUPS
CCFA Support Groups offer important information about coping with Crohn's disease and ulcerative colitis. Support groups are held in a warm, welcoming and safe atmosphere. Meetings are open to all patients, friends and family. All meetings are offered free of charge and are facilitated by a CCFA trained facilitator.

If you would like to receive a monthly support group email reminder and/or updates, please click here to sign up

First Tuesdays
Monthly drop-in sessions open to patients of all ages.

When: The first Tuesday of each month, 6:30 - 8:00pm
Where: 386 Park Avenue South, 14th floor


Staten Island Monthly Drop-In
Coming Soon!


Women's Group
Monthly drop-in featuring discussions important to women living with IBD.

When: The third Wednesday of each month, 6:30 - 8:00pm
Where: 386 Park Avenue South, 14th Floor
 

Bronx Monthly Drop-In
Monthly drop-in support sessions open to patients of all ages.

When: The first Friday of each month, 6:00 - 7:00pm

Where: AMG Medical Group, 2826 Westchester Ave., Suite 204, Bronx, NY 10461

*The September Bronx Group will not be meeting.  The group will resume as scheduled on Friday, October 2.*

Brooklyn & Queens Groups - Coming Soon!

All support group listings are subject to change.
Please call to confirm the meeting date, time, and place.

Patient "Power of Two" Connection for Support
Looking to find support and comfort by talking to someone by phone and/or e-mail who knows the challenges of living with Crohn's disease or ulcerative colitis? Want to provide a helping hand to those in need of help? If so, then join our "Power of Two" Connection program! We'll match you up, based on your needs or your request to help others – answering questions, visiting someone in the hospital, or just being there to listen.


To register for a group or for more information,
contact the Greater NY Chapter at  (212) 679-1570  (212) 679-1570 , newyork@ccfa.org.

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MORE INFORMATION

Volunteers Needed!

Adopt-a-Doctor Program
Making sure CCFA materials are available in physician offices.  Requires regular visits to approximately 3-4 physician offices.

General Clerical Work
Light office work, including stuffing envelopes and computer work, can be as needed or on a regular basis.
 
Special Events

Help to plan and prepare for the variety of special events throughout the year. 

...and much more!

We welcome all  people interested in helping the fight against IBD.

Click here to submit your volunteer application today!
For additional information please contact our office (212) 679-1570, or email
newyork@ccfa.org . 

Workplace Giving

Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. The CCFA, Greater New York Chapter is a member of Community Health Charities.  Employees of corporations, federal agencies, and state/municipal governments nationwide have the option to give to CCFA through Community Health Charities which has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at (212) 679-1570 or email newyork@ccfa.org.

Membership - New & Renewals

Join or renew your membership here!


Honor a Loved One With a Tribute Donation

Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.  You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00).  Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.  If no card type is specified, our CCFA Purple card will be sent.

Please note if you would like us to send you free request envelopes for future tributes.

Your tribute gift can be mailed to our office or charged to a credit card
by calling (212) 679-1570 or email
newyork@ccfa.org.

Donate Your Car, Boat or R.V.

Before you sell your vehicle, consider donating it to CCFA.
Our vehicle donation program helps raise needed funds for research and community-based education programs. It's so much easier  than selling yourself.  Not to mention, the tax deduction you will receive.
 


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CONTACT INFO

Greater New York Chapter
386 Park Avenue South, 14th Floor
New York, NY 10016-8804

Phone: (212) 679-1570
Fax: (212) 679-3567
E-mail: newyork@ccfa.org

Staff:

Michele Przypyszny, Executive Director
mprzypyszny@ccfa.org
Ext. 202

Jose Munoz, Development Coordinator
jmunoz@ccfa.org
Ext. 212

Ed Munoz, Director of Operations
emunoz@ccfa.org
Ext. 201

Elizabeth Pace, Take Steps Walk Manager
epace@ccfa.org
Ext. 207

Kymberlee Setterberg, Take Steps Walk Director
ksetterberg@ccfa.org
Ext. 203

Danielle Whittaker, Team Challenge Endurance Manager
dwhittaker@ccfa.org
Ext. 210

 

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