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Greater New York Chapter

 


SPECIAL HIGHLIGHTS

Stay Connected with the CCFA E-Digest: E-Newsletter of the Greater New York Chapter


Receive up to the date information on Crohn's disease and ulcerative colitis, upcoming CCFA events and information on local support groups


Click here to view the latest edition

To join the e-newsletter mailing list, please click here or contact Kymberlee at 212-679-1570 or at ksetterberg@ccfa.org

  



The Greater New York Chapter is pleased to offer a download of the slides presented at our 2nd Annual In the Pipeline: Patient Education Symposium. Please click on any of the presentations below to download

Diagnosing IBD presented by Barry W. Jaffin, MD

Crohn's Disease and Ulcerative Colitis: What's the Difference presented by Joseph Felder, MD

What's the Best Treatment for Me? presented by Ellen J. Scherl, MD

Surgical Solutions presented by Joel J. Bauer. MD

Complimentary and Alternative Medicines presented by Keith Benkov, MD

IBD.com: Navigating the Web presented by Arun Swaminath, MD

Getting the Most from the Doctor/Patient Relationship presented by Peter H. Rubin, MD

Coping Strategies for Everyone presented by Laurie Stevens, MD

To Eat or Not To Eat presented by Anthony Weiss, MD

Living Life Fully with an Ostomy presented by Alexis Sherman, RN, BSN, WOCN


This program is free of cost thanks to the generous support of the following sponsors:
 


Are you a patient living with Crohn's disease or ulcerative colits?
Do you know someone living with IBD?

Don't miss this wonderful opportunity to learn more about IBD and connect with others!

CLICK HERE to RSVP

Date: Thursday, December 3
Time: 5:30pm - 7:30pm
Location: Forest Hills Library
108-19 71 Avenue
Forest Hills, NY 11375

This program is free of cost due to the support of




                

TEAM NYC IS GEARING UP FOR SUMMER 2010!
This summer, cross the finish line at one of these exciting destination races: the 13.1 Half Marathon in historic Boston, or the Napa-to-Sonoma Half Marathon in California Wine Country. Do something you never thought you could do while helping 1.4 million people win back their lives. You can make a difference, help find cures and run or walk 13.1 miles! For more information please visit our website www.ccteamchallenge.org  or contact  Danielle Whittaker at 212-679-1570 or at dwhittaker@ccfa.org 



CCFA Hope Courage Bracelet

The CCFA Hope Courage Bracelet was designed to raise awareness of our mission to cure Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases.

Jewelry designer Catherine M. Zadeh has teamed up with the Crohn's & Colitis Foundation of America, Inc. (CCFA) to bring you this exclusive bracelet.  The purchase of this piece will help those afflicted with these diseases.

Get Your Bracelet Today! Call 212-679-1570 or email newyork@ccfa.org

Available in Silver for $100 and in 10k Gold for $375

Proceeds from the sale of this bracelet benefit the Crohn's and Colitis Foundation of America (CCFA).



"Beat" IBD and unleash your Inner Rock Band!

The CCFA Greater New York Chapter is proud to announce that it will be sponsoring the formation of a new musical group called "BEAT" IBD, a band which will be composed entirely of patients and healthcare workers who are determined to "beat IBD".  The band will play at fund raisers and clubs not only in the New York area, but outside as well, in order to raise money for the CCFA and further IBD research.  The band will play upbeat music in the genres of pop, rock and jazz.  If you are a musician and are committed to defeating inflammatory bowel disease, please contact "Beat" IBD founder/CCFA member/drummer Adam F. Steinlauf, M.D. at a_steinlauf@hotmail.com, or call  (917)538-2158.

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CALENDAR/EVENTS
December 3, 2009

CCFA Theatre Club



Thursday, December 3, 2010 at 8:00pm

Richard Rodgers Theatre, 226 West 46th St., Bet. Broadway & 8th Ave.

Tickets - $350 a pair

Get your tickets today!  Call or email Ed Munoz, (212) 679-1570 or emunoz@ccfa.org

December 10, 2009

The 42nd Annual

Michael S. Modell Memorial Awards Dinner

in memory of William D. Modell, National Co-Founder, CCFA

Honoring

Seth Horowitz

President - Modell's Sporting Goods
Man of the Year

Tommy Lasorda
Special Advisor to the Chairman and
Hall of Fame Manager of the Los Angeles Dodgers
Dick Schaap Lifetime Achievement Award

Jill & Robert Hoberman
Managing Director, Hoberman Miller Goldstein & Lesser CPA's
Humanitarian of the Year

Master of Ceremonies
Robert Wuhl
Actor & Writer

Special Guest Speaker
Governor Mario M. Cuomo

Metropolitan Ballroom
The Sheraton New York Hotel & Towers • Seventh Avenue at 53rd Street
Silent Auction & Cocktails - 5:30PM • Dinner - 7:00 PM
Business Attire

December 10, 2009

Classical Music Performance to Benefit CCFA Greater New York

Bulgarian Pianist, Nadejda Vlaeva, will perform an intriguing program of rarities, including a World Premiere and a New York Premiere, on Thursday, December 10th at 7:30 p.m. at the Merken Concert Hall at the Kaufman Center (129 W. 67th Street, NYC).

Nadejda Vlaeva has been praised for her communicative performances and ability to move audiences. Some critics have even called her talent "God-given" and something "we hope for but rarely see"

The program will include: Sonata No. 2 by Sergei Bortkiewicz, a brilliant Romantic composer in the same vein as Tchaikovsky and Rachmaninoff; Prokofiev's rarely heard romantic Sonata No. 1; a set of variations by Alexander Vladigerov, the son of famed Bulgarian composer Pantcho Vladigerov; two exquisite preludes by Anatol Liadov; the world premiere of Lowell Liebermann's Variations on a Theme of Schubert; and Liszt's Dante Sonata.

$10 dollars of each $30 ticket sold will go back to the CCFA. Please keep your ticket stubb after the concert and sent to:

CCFA GNY, 386 Park Avenue South, 14th Floor, NY, NY 10016 Attn: Michele Przypyszny.

For more information on the artist, visit www.nadejdavlaeva.com

April 22, 2010

CCFA Theatre Club



Thursday, April 22, 2010 at 8:00pm

Lunt Fontaine Theatre, 205 West 46th St., Bet. Broadway & 8th Ave.

Tickets - $350 a pair

Get your tickets today!  Call or email Ed Munoz, (212) 679-1570 or
emunoz@ccfa.org


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SUPPORT GROUPS



CCFA SUPPORT GROUPS
CCFA Support Groups offer important information about coping with Crohn's disease and ulcerative colitis. Support groups are held in a warm, welcoming and safe atmosphere. Meetings are open to all patients, friends and family. All meetings are offered free of charge and are facilitated by a CCFA trained facilitator.

If you would like to receive a monthly support group email reminder and/or updates, please click here to sign up

First Tuesdays
Monthly drop-in sessions open to patients of all ages.

When: The first Tuesday of each month, 6:30 - 8:00pm
Where: 386 Park Avenue South, 14th floor


Staten Island Monthly Drop-In
Monthly drop-in sessions open to patients of all ages.

When: The first Tuesday of each month, 7:00 - 8:30pm
Where: College of Staten Island, Center of Performing Arts, 1P, Room 116 E. 

Women's Group
Monthly drop-in featuring discussions important to women living with IBD.

When: The third Wednesday of each month, 6:30 - 8:00pm
Where: 386 Park Avenue South, 14th Floor
 

Bronx Monthly Drop-In
Monthly drop-in support sessions open to patients of all ages.

When: The first Friday of each month, 6:00 - 7:00pm

Where: AMG Medical Group, 2826 Westchester Ave., Suite 204, Bronx, NY 10461

*The September Bronx Group will not be meeting.  The group will resume as scheduled on Friday, October 2.*

Brooklyn & Queens Groups - Coming Soon!

All support group listings are subject to change.
Please call to confirm the meeting date, time, and place.

Patient "Power of Two" Connection for Support
Looking to find support and comfort by talking to someone by phone and/or e-mail who knows the challenges of living with Crohn's disease or ulcerative colitis? Want to provide a helping hand to those in need of help? If so, then join our "Power of Two" Connection program! We'll match you up, based on your needs or your request to help others – answering questions, visiting someone in the hospital, or just being there to listen.


To register for a group or for more information,
contact the Greater NY Chapter at (212) 679-1570, newyork@ccfa.org.

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MORE INFORMATION

Volunteers Needed!

Adopt-a-Doctor Program
Making sure CCFA materials are available in physician offices.  Requires regular visits to approximately 3-4 physician offices.

General Clerical Work
Light office work, including stuffing envelopes and computer work, can be as needed or on a regular basis.
 
Special Events

Help to plan and prepare for the variety of special events throughout the year. 

...and much more!

We welcome all  people interested in helping the fight against IBD.

Click here to submit your volunteer application today!
For additional information please contact our office (212) 679-1570, or email
newyork@ccfa.org . 

Workplace Giving

Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. The CCFA, Greater New York Chapter is a member of Community Health Charities.  Employees of corporations, federal agencies, and state/municipal governments nationwide have the option to give to CCFA through Community Health Charities which has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at (212) 679-1570 or email newyork@ccfa.org.

Membership - New & Renewals

Join or renew your membership here!


Honor a Loved One With a Tribute Donation

Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.  You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00).  Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.  If no card type is specified, our CCFA Purple card will be sent.

Please note if you would like us to send you free request envelopes for future tributes.

Your tribute gift can be mailed to our office or charged to a credit card
by calling (212) 679-1570 or email
newyork@ccfa.org.

Donate Your Car, Boat or R.V.

Before you sell your vehicle, consider donating it to CCFA.
Our vehicle donation program helps raise needed funds for research and community-based education programs. It's so much easier  than selling yourself.  Not to mention, the tax deduction you will receive.
 


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CONTACT INFO

Greater New York Chapter
386 Park Avenue South, 14th Floor
New York, NY 10016-8804

Phone: (212) 679-1570
Fax: (212) 679-3567
E-mail: newyork@ccfa.org

Staff:

Michele Przypyszny, Executive Director
mprzypyszny@ccfa.org
Ext. 202

Jose Munoz, Development Coordinator
jmunoz@ccfa.org
Ext. 212

Ed Munoz, Director of Operations
emunoz@ccfa.org
Ext. 201

Elizabeth Pace, Take Steps Walk Manager
epace@ccfa.org
Ext. 207

Kymberlee Setterberg, Take Steps Walk Director
ksetterberg@ccfa.org
Ext. 203

Danielle Whittaker, Team Challenge Endurance Manager
dwhittaker@ccfa.org
Ext. 210

 

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