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CHAPTER NEWSLETTERS:

April 2011

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2011



 


SPECIAL HIGHLIGHTS

Do you have questions that you would like to be answered in an upcoming newsletter? Ask the doctor!


Register Now! 


Team Challenge is now recruiting for Summer 2012 season.
Join us for a Half Marathon in the Virginia Wine Country, Kona Hawaii, or Napa to Sonoma.

For more information contact:

NYC: Megan Haran
mharan@ccfa.org 646-388-9293
Brooklyn: Alyssa Kirell
akirell@ccfa.org 646-388-9292

If you're a novice runner or walker, do something you never thought you could! You'll have full support straight through to the finish line.  Experienced runners and walkers can put their abilities to the test, and get energized by being part of an amazing team! You'll make new friends and great memories as you train and celebrate with others like you who care.

 



2012 New York City Take Steps Walk:

Thursday, May 17 2012
South Street Seaport, Pier 17
Registration and Festival, 5:30 PM
Walk: 7:00 PM

Register Now!

Take Steps for Crohn's & Colitis is CCFA's largest fundraising event.  Participants raise funds and awareness throughout the year and come together to celebrate the steps that have been taken towards a cure.

For more information, contact Danielle Thibault at dthibault@ccfa.org or 646-388-9283.

 

Join us for our newest event:
Team Challenge Cycle.

For more information, contact Adina Wolf: awolf@ccfa.org


 Did you miss our Annual Patient Education Day?
You can check out some of the presentations by clicking on the links below!

Recovering from IBD surgery by Rebecca A. Levine, MD
Impact of New IBD Therapies on Old Strategies by Ellen Scherl, MD, FACP, AGAF, FACG, FASGE 

Eating Right With IBD by Arthur D. Heller, M.D., F.A.C.P., A.G.A.F.
Getting the Most from the Doctor-Patient Relationship by Peter H. Rubin, MD
Know Your Rights in the Era of Healthcare Reform by Jennifer Jaff, Esq.
Living a Full Life With an Ostomy by Alexis Sherman RN, BSN, CWOCN
Stress and Coping with Chronic Disease by Laura C. Reigada, Ph.D.


SAVE THE DATE!

 

August 18th - 23rd

~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~

Our 2012 session will be held at Camp Oasis in Elizaville, New York

Applications will be available in mid-January 2012 for campers (grades 3-10), Leaders in Training (grades 11-12), and volunteers (age 18+).

Click here to learn more about this exciting program,
or contact Sergio Seijas at
sseijas@ccfa.org or 646-388-9290.


The Greater New York Chapter in the Media

Greater New York Executive Director, Rhondell Domilici, was a guest on two Fox news programs in honor of Crohn's and Colitis Awareness Week! You can watch them here and here!

CCFA and the 2011 New York Take Steps walk were featured on Fox News Live!
Hosted by Rick Folbaum, the segment featured gastroenterologist, Dr. Arun Swaminath, and Greater New York Executive Director, Rhondell Domilici.

Check out the segment here!


CCFA – Theatre Club
All tickets $350/pair
Purchase tickets through the CCFA Theatre club
and a portion of the ticket price will be donated to the Greater New York Chapter
For more information email
newyork@ccfa.org and mention Theatre or call 212-679-1570 ext. 2

Porgy and Bess
Thursday, February 15, 2012
Richard Rodgers Theater
226 West 46th Street

Evita
Thursday, April 19, 2012
Mariott Marquis Theater
1535 Broadway

Ghost
Thursday, May 17, 2012
8 pm
Lunt Fontaine Theatre
205 West 46th Street

Nice Work if You Can Get it
Thursday, June 14, 2012
7pm
Imperial Theatre
249 West 45th Street,


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CALENDAR/EVENTS

To be announced.

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SUPPORT GROUPS

PATIENT EDUCATION & SUPPORT GROUPS:
Meetings are open to all patients, friends and family.
All meetings are offered free of charge and are led by a trained facilitator
.

To receive more information, click here or contact:
Sergio Seijas, 212.679.1570, Ext. 1,
sseijas@ccfa.org

 


Ongoing Support Groups:
First Tuesdays
Monthly drop-in sessions open to all.
The 1st Tuesday of each month, 6:30 - 8:00pm
386 Park Avenue South, 14th Floor

Women's Group
Monthly drop-in featuring discussions important to women living with IBD.
The 3rd Wednesday of each month, 6:30 - 8:00pm
386 Park Avenue South, 14th Floor

*New Support Group for Parents and Caregivers of IBD Patients!*
The 2nd Wednesday of every month,
Topics to include: how to talk about illness, navigating transitions, managing school and work issues, sibling relationships, and nutrition and complimentary therapies.
contact Sergio Seijas for more information


"Power of Two" Connection for Support:
Looking to find support and comfort by talking to someone familiar with the challenges of living with IBD?
Want to provide a helping hand to others? Join our "Power of Two" Connection program! We'll match you up, based on your needs or your request to help others - answering questions, visiting someone in the hospital, or just listening.
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MORE INFORMATION

Ways to help:

Fundraising Pages:
Create a fundraising page in honor of your personal milestone or in memory of a loved one. You can also find another person's fundraising page here: http://online.ccfa.org/gnyfundraisingpages

Volunteer:
We welcome all  people interested in helping the fight against IBD.
Click here to submit your volunteer application today!
For additional information please contact our office (212) 679-1570, ext. 7137 or lsylvan@ccfa.org
 .

Workplace Giving:
The CCFA, Greater New York Chapter is a member of Community Health Charities.  Employees of corporations, federal agencies, and state/municipal governments nationwide have the option to give to CCFA through Community Health Charities which has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at (212) 679-1570 or email
newyork@ccfa.org.

Membership - New & Renewals
Join or renew your membership here!

Honor a Loved One With a Tribute Donation
Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.  You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00). 
Your tribute gift can be mailed to our office or charged to a credit card by calling (212) 679-1570 or email newyork@ccfa.org.


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CONTACT INFO

Greater New York Chapter
386 Park Avenue South, 14th Floor
New York, NY 10016-8804

Phone: (212) 679-1570
Fax: (212) 679-3567
E-mail:
newyork@ccfa.org

Staff:

Rhondell Domilici, Executive Director
rdomilici@ccfa.org
646-388-9281

Megan Haran, Team Challenge New York City Endurance Manager
mharan@ccfa.org
646-388-9293

Alyssa Kirell, Team Challenge Brooklyn Endurance Manager
akirell@ccfa.org
646-388-9292

Ed Munoz, Director of Operations and Special Events
emunoz@ccfa.org
646-388-9282

Jose Louis Munoz, Finance and Development Coordinator
jmunoz@ccfa.org
646-388-9291

Colleen Richards, Team Challenge Coordinator
colrichards@ccfa.org
646-388-9294

Sergio Seijas, Education and Support Manager 
sseijas@ccfa.org
646-388-9290

Liz Sylvan, Development Manager
lsylvan@ccfa.org
646-388-9287

Danielle M. Thibault, Take Steps Walk Manager
dthibault@ccfa.org
646-388-9283

 

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