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           Northeast Ohio Chapter

            Serving Cleveland, Akron, and Beyond

                              Address:                                Phone: 216.524.7700
                              4700 Rockside Road              Toll Free: 866.345.2232
                              Suite #425                              Fax: 216.524.7701
                              Independence, OH 44131      Email:
neohio@ccfa.org

 

Make a Donation

 

 


SPECIAL HIGHLIGHTS

  
Thank you to our hosts Cari & Eric Marderstein
for making VIVA! Cinco de Mayo a tremendous success!

Event photos now available, click the 'View Your Photos' link & enter event ID ccfa2012

Honorary Committee:
Matt Brower
Wendy & Dan Dobres
Stacy & Robby Edelstein
Bunny & Norm Ginis
Nancy & Jerry Goldberg
Matt BrowerDebbie & Jerry Isaak-Shapiro
Roseanne & Michael Kadis
Karen & Doug Katz
Lauren & Doug Levin
Elana & Kevin Lurie
Ruth Moskowitz
Anne Muskin
Diana & Todd Ponsky
Susan & Marc Schlessinger
Paula & Walter Schwartz
Susan Warshay & Jay Ross
Sarah & Ben Weiss
Joanne & Joel Yarvis
                      

____________________________________________________________________________

We are looking for volunteers

Many opportunities available.  Please complete this volunteer intake form to get started. 

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Chapter Newsletters
March 2012
February 2012

January 2012

April 2011
 
May 2011
June 2011
July
 2011
August 2011
September 2011
October 2011
November 2011
December 2011
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Make a difference today by signing up for Take Steps, CCFA's signature event  - fundraising and awareness campaign that brings together children and adults affected by digestive diseases in a festive, family-friendly environment filled with food, music, and entertainment.

Take Steps brings together a community that often suffers in silence and encourages
them to be heard.

Cleveland
 Sunday, June 3, 2012 at Wade Oval

http://www.cctakesteps.org/Cleveland2012 

To learn more, contact Sandy: smcfadden@ccfa.org or 216.524.7700.


Akron
Saturday, October 6, 2012 at Lock 3 Park
http://www.cctakesteps.org/Akron

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Team Challenge is our group training program next destination: Las .We prepare you to run or walk a half-marathon while helping raise funds to find a cure for Crohn's and colitis. When you join Team Northeast Ohio, you'll meet great people, get into great shape, and test your physical and mental strength with a destination half-marathon. 


Learn more at an upcoming info meeting
Saturday, August 4th, 8:00 a.m. < Mojo's Coffee & More, Bay Village (includes coffee)
Tuesday, August 7th, 6:30 p.m. < Pub Bricco, Akron (includes happy hour apps)
Monday, August 13th, 6:30 p.m.  < Whole Foods, Woodmere
Tuesday, August 21st, 7:00 p.m < LA Petes, Independence (breakfast included)
Wednesday, August 15, 6:30 p.m. < Red Hawk Grill, Concord (includes happy hour apps)
Thursday, August 23rd, 6:00 p.m. < Hard Rock Café, Cleveland Kick Off Party to Follow 

This is truly a life-changing experience!

 
Want more information?  abontempo@ccfa.org, 216.524.7700
 
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25th Annual Golf Tournament: August 20, 2012
Chagrin Valley Country Club, more details coming soon

 Photos from last year's event
To view, enter username: neohioccfa and password: crohns

Aaron Goldhammer and Tony Rizzo broadcasting live for WKNR, ESPN Cleveland
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 Registration Closed for 2012.  
 
www.ccfa.org/camps 
July 8 - 14 2012

Camp Oasis is a week-long overnight camp exclusively for children entering grades 2 through 11 with IBD. Youth entering 12th grade are eligible to be Leaders in Training (LIT) and volunteers who are 19 or older and high school graduates are welcome.  In 2011, we sent a record 19 Northest Ohio youth to Camp in Fenton Michigan! 

For 2012, CCFA is prioritizing first-time camper so that
we can provide this tremendous experience to as many youths as possible.
 

Also new in 2012, we are requesting a $50 application fee to assist CCFA in offsetting the costs of processing applications for this FREE camp.  This fee is non-refundable and due with the completed application packet. 
Thanks to the continued generosity of Great Lakes camp sponsors, we continue to provide Camp Oasis at minimal cost to families. 

view exclusive video here

Camp Oasis offers:

  • A Life Changing Experience - all campers (and most of the adults) have IBD, which makes for a very supportive community. Strengthened by the knowledge that they are not alone, campers try things they never imagined.
  • Outstanding Medical Care - 24-hour medical supervision by physicians, nurses, and other healthcare professionals who are experienced in treating children with IBD and ensure that campers follow the medical regimen prescribed by their doctors back home.
  • An Outstanding Program - we offer group and individual activties that appeal to every taste, ranging from the arts, to land and water sports, to high adventure.

As one former camper explains,

"Camp Oasis means friends, fun, forgetting about everything that normally sets you apart from everyone else, learning more about your disease, feeling confident and knowing that everyone here knows what you are going through." 

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Northeast Ohio Research Initiative


The Crohn's & Colitis Foundation of America funds IBD research across the United States and abroad to improve treatment and search for cures. Decisions about which projects receive funding are made by our National Scientific Advisory Committee, which awards research grants on the basis of scientific merit to the best and the brightest – no matter where those projects are located, and with the persistent goal of finding a cure for Crohn's disease and ulcerative colitis. 

CCFA has a long history of allocating significant research dollars to Northeast Ohio.  We are fortunate to be a hub of medical research, with world-class institutions including the Cleveland Clinic, University Hospital, and Case Western Reserve University. 

The Northeast Ohio Research Initiative provides the unique opportunity for donors to support local CCFA research projects, ensuring the success of those projects, and continuing the tradition of stellar science in the Northeast Ohio Chapter community.

Learn more or donate here
You can also send donations to
CCFA Northeast Ohio Research Initiative
4700 Rockside Road, Suite 425
Independence, OH 44131

Thank you for your support!
___________________________________________________________________________________________

 
CCFA Bracelets Now Available!


Blue silicone awareness bracelets feature "Crohn's & Colitis Foundation" on one side, and "www.ccfa.org" on the other.  Available in youth and adult size for only $1.  Call (216)524-7700 to buy yours today.

 ___________________________________________________________________________

 

     Lead Chapter Partner

 

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CALENDAR/EVENTS

To be announced.

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SUPPORT GROUPS

PLEASE JOIN US….
Our support group meetings are held in a warm, welcoming and safe atmosphere.  All meetings are offered free of charge.  Patients, families, and friends are encouraged to attend. 
* Please remember, we do not mention specific physician names or dosages of medications during our support groups. *

Although these groups are scheduled to meet as listed below, we strongly recommend that you contact the support group leader in advance to introduce yourself and confirm that a meeting will be held.

Interested in starting up a support group in your area?  Please contact the chapter office at 216-524-7700 or download the facilitator application HERE.


Cleveland-Westside

Location: Bay Village Public Library
502  Cahoon Rd.
Bay Village, OH 44140
Time: 7:00 - 8:30 p.m.
Contact: Nancy,
baysnm@sbcglobal.net
Group meets every 3rd Wednesday of the month.
*
West Side support group will not meet in June, July and August.*

Cleveland- Far Eastside NEW LOCATION
Location: Auburn Career Center - Technology Learning Center
8140 Auburn Road
Room 116
Concord, Ohio 44077

Time: 6:30 – 8:30 p.m.
Contact: Lorrie,(440) 897-8180
Group meets the 3rd Tuesday of each Month.
* ON TEMPORARY HIATUS *


Northwest Ohio, Toledo and Surrounding Area (Led by the Michigan Chapter)
Location: St. Luke's Hospital, classroom 1
5901 Monclova Rd.
Maumee, OH  43537
Time: 7:00 - 9:00 p.m.
Call: Jan at (419) 636-1423
Group meets the 1st Tuesday of every month.

 
Akron
We are currently working to set up an Akron area support group - beginning by identifying 2 volunteer co-facilitators.  If you or someone who know is interested in learning more about what this entails, please contact our Regional Education and Support Manager, Becky: bjohnsonrescola@ccfa.org.


News of Note

The Healthwell Foundation has established a Crohn's Disease assistance fund.  Click here for more information

The U.S. Food and Drug Administration has approved Remicade (infliximab) to treat moderately to serverely active ulcerative colitis (UC) in children 6 years and older who have had inadequate response to conventional therapy.  For further details on this recent FDA approval, click here

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MORE INFORMATION

Join the CCFA Northeast Ohio Fan Page on Facebook!

Follow Northeast Ohio CCFA on Twitter!

Join the CCFA Northest Ohio group on LinkedIn

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CONTACT INFO

Northeast Ohio Chapter

Address:
4700 Rockside Rd. #425              Phone: (216) 524-7700 
Independence. OH  44131            Toll-Free: (866) 345-2232

Email: neohio@ccfa.org                 FAX: (216) 524-7701                 

Staff:

Lesley Hoover, Chapter Director lhoover@ccfa.org

Terri Lowe-Donovan, Development Coordinator tlowedonovan@ccfa.org

Sandy McFadden, Interim Take Steps Walk Manager smcfadden@ccfa.org


                The office is open from 9am to 5pm, Monday through Friday.
                    There is a 24 hour voicemail that is checked regularly.


                                               Board of Directors

Ron Teplitzky, President

Joe Prada, President Elect

Ken Bloom, Vice President

Phil Moshier, Treasurer

Jean Akins, Secretary 

Jean-Paul Achkar, MD, Chapter Medical Advisory Committee Chair 

Paul Levin, Advocacy Chair      

Bradley Champagne, MD          James Merlino, MD

Rollie DeMonte                           John Moshier   

Mark Jacobs                               Tocombamarie Murphy

Debbie Isaak-Shapiro                 Joseph Patella

Barbara Kaplan, MD                  Karen Paull

Steve LaDue                                 Earl Pike

Dennis Medica                             Mousab Tabbaa, MD

Nancy Melenick                           Sarah Weiss


Emeritus Board Members:

Howard Edelstein

Robert Edelstein

Bruce Hartzmark                        

 

    
Thank you to our generous Chapter Sponsor who supports our year-round programming and events:

Cleveland Clinic Digestive Disease Institute

 
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