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           Northeast Ohio Chapter

            Serving Cleveland, Akron, and Beyond

                              Address:                                Phone: 216.524.7700
                              4700 Rockside Road              Toll Free: 866.345.2232
                              Suite #425                              Fax: 216.524.7701
                              Independence, OH 44131      Email:
neohio@ccfa.org

 

Make a Donation

 

 


SPECIAL HIGHLIGHTS



Register Now: Ask the Experts FREE Educational Program

Saturday, March 3, 2012
Embassy Suites, Independence Ohio
9:00 a.m. - 12:30 p.m.

Join us for keynote presentations and breakout sessions on topics including:
   
Diet & nutrition
Medical therapies
Coping
School needs
Clinical trials
Surgery

Breakfast provided

To register click here or call (216) 524-7700
This program is free and open to the public, however registration is required.

_________________________________________________________________


Save the Date: 
May 3, 2012 7:00 - 9:00 p.m.
Club Rock Cleveland (former Border's Bookstore space at La Place in Beachwood
)

Hosts:  Cari & Eric Marderstein

Remarks by Dr. Jon Braun and Dana Bernstein * Music by Run Avril Run*
Wine & Tequila Tastings *
Auction with Judith Ripka Jewelry*  


Honorary Committee:
Matt Brower
Wendy & Dan Dobres
Stacy & Robby Edelstein
Bunny & Norm Ginis
Nancy & Jerry Goldberg
Debbie & Jerry Isaak-Shapiro
Roseanne & Michael Kadis
Karen & Doug Katz
Lauren & Doug Levin
Elana & Kevin Lurie
Ruth Moskowitz
Anne Muskin
Diana & Todd Ponsky
Susan & Marc Schlessinger
Paula & Walter Schwartz
Susan Warshay & Jay Ross
Sarah & Ben Weiss
Joanne & Joel Yarvis

More details coming soon.............................

__________________________________________________________________________
Thank you to our fantastic speakers, Honorary Host Committee, and Event Committee for making this event a success! 

Clint O'Connor (Plain Dealer Film Critic), Amanda Barren (WKYC Channel 3 Reporter), and Tyler Davidson ("Take Shelter" Producer)
 

Bob Westfall, Debbie Isaak-Shapiro, Earl Pike, Paul Levin, Joe Prada, and Dr. Mousab Tabbaa




Councilman Matt Zone and his wife, Michelle

Event photos are available courtesy of Scott T. Morrison of Discovery Photo 
(click on the 'my images' link)

________________________________________________________________________________________


Thanks to CCFA's advocacy efforts, the week of  December 1-7 was been designated as the first Crohn's and Colitis Awareness Week. The Senate passed Resolution 199 in order to encourage all Americans to join in the effort to find cures for these diseases, help raise awareness and support research. For more information, http://online.ccfa.org/AwarenessWeek
___________________________________________________________________

We are looking for volunteers
Interested in serving on a special event committe, providing
assistance in the office with light administrative tasks, or being on-site to help out  during special events?.  Please contact Terri:
tlowedonovan@ccfa.org, or (216) 524-7700.

________________________________________________________________

CCFA Northest Ohio Newsletters Available

January 2012

April 2011
 
May 2011
June 2011
July
 2011
August 2011
September 2011
October 2011
November 2011
December 2011
 ____________________________________________________________

Make a difference today by signing up for Take Steps, CCFA's signature event  - an awareness and fundraising campaign that brings together children and adults affected by digestive diseases in a festive, family-friendly environment filled with food, music, and entertainment.

Take Steps brings together a community that often suffers in silence and encourages them to be heard.
By forming a team or signing up to walk as an individual, you will raise funds on behalf of the 20,000 Northeast Ohioans suffering from IBD.  More than 80 cents of every dollar you raise goes directly to fund research and patient programs in our local community.
With your help, a cure is only a few steps away. 

Cleveland
 Sunday, June 3, 2012 at Wade Oval
http://www.cctakesteps.org/Cleveland2012 

Akron
Saturday, October 6, 2012 at Lock 3 Park
http://www.cctakesteps.org/Akron2012


Local Hero Andy Peel and His Friends Lead the Walk
_________________________________________________________________________

Team Challenge is our half-marathon group training program, destination: wine country, Virginia on June 2nd. We prepare you to run or walk a half marathon while helping raise funds to find a cure for Crohn's and colitis. When you join Team Northeast Ohio, you'll meet great people, get into great shape, and test your physical and mental strength with a destination half-marathon.  This is truly a life-changing experience!

Learn More 

 
Come meet a Team Challenge coach, speak with alumni, and get inspired at one of these information sessions:

February 2, 6:30 p.m. at Fleet Feet Northfield
114 E. Aurora Road, #200, Northfield, OH 44067

February 4, 10:30 a.m. at Fitworks Rocky River
19607 Detroit Road, Rocky River, OH 44116

February 7, 6:30 p.m at Whole Foods Market - Village Square
27249 Chagrin Blvd., Woodmere, OH 44122

February 9, 6:30 p.m. at Second Sole Akron
1466 North Portage Path, Akron OH 44313

February 16, 6:00 p.m. at Market Avenue Wine Bar - Ohio City
2521 Market Ave. Cleveland, OH 44113
*Includes kick off party with wine tasting - open to the public *

Want more information?  contact Carissa:  cbowlin@ccfa.org, 216.524.7700

 __________________________________________________________________

25th Annual Golf Tournament: August 20, 2012
 Photos from last year's event
To view, enter username: neohioccfa and password: crohns

Aaron Goldhammer and Tony Rizzo broadcasting live for WKNR, ESPN Cleveland
__________________________________________________________________________________

Save the Date: July 8 - 14th 2012
Applications Available Now

view exclusive video here

Camp Oasis is a week-long overnight camp exclusively for children entering grades 2 through 11 with IBD. Youth entering 12th grade are eligible to be Leaders in Training (LIT(, and volunteers who are 19 or older and high school graduates are welcome.  In 2011, we sent a record 19 Northest Ohio youth to Camp in Fenton Michigan.
Camp offers:

  • A Life Changing Experience - all campers (and most of the adults) have IBD, which makes for a very supportive community. Strengthened by the knowledge that they are not alone, campers try things they never imagined.
  • Outstanding Medical Care - 24-hour medical supervision by physicians, nurses, and other healthcare professionals who are experienced in treating children with IBD and ensure that campers follow the medical regimen prescribed by their doctors back home.
  • An Outstanding Program - we offer group and individual activties that appeal to every taste, ranging from the arts, to land and water sports, to high adventure.

As one former camper explains,

"Camp Oasis means friends, fun, forgetting about everything that normally sets you apart from everyone else, learning more about your disease, feeling confident and knowing that everyone here knows what you are going through." 

_____________________________________________________________________________________

Northeast Ohio Research Initiative


The Crohn's & Colitis Foundation of America funds IBD research across the United States and abroad. Decisions about which projects receive funding are made by our National Scientific Advisory Committee, which awards research grants on the basis of scientific merit to the best and the brightest – no matter where those projects are located, and with the persistent goal of finding a cure for Crohn's disease and ulcerative colitis. 

CCFA has a long history of allocating significant research dollars to Northeast Ohio.  We are fortunate to be a hub of medical research, with world-class institutions including the Cleveland Clinic, University Hospital, and Case Western Reserve University. 

The Northeast Ohio Research Initiative provides the unique opportunity for donors to support local CCFA research projects, ensuring the success of those projects, and continuing the tradition of stellar science in the Northeast Ohio Chapter community.

Learn more or donate here
You can also send donations to
CCFA Northeast Ohio Research Initiative
4700 Rockside Road, Suite 425
Independence, OH 44131

Thank you for your support!

 

 

Got Guts Bracelets Now Available!


Blue silicone awareness bracelets feature "Got Guts" on one side, and "www.ccfa.org" on the other.  Available in youth and adult size for only $1.  Call (216)524-7700 to buy yours today.

 

 

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CALENDAR/EVENTS

To be announced.

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SUPPORT GROUPS

PLEASE JOIN US….
Our support group meetings are held in a warm, welcoming and safe atmosphere.  All meetings are offered free of charge.  Patients, families, and friends are encouraged to attend. 
* Please remember, we do not mention specific physician names or dosages of medications during our support groups. *

Although these groups are scheduled to meet as listed below, we strongly recommend that you contact the support group leader in advance to introduce yourself and confirm that a meeting will be held.

Interested in starting up a support group in your area?  Please contact the chapter office at 216-524-7700 or download the facilitator application HERE.


Cleveland-Westside

Location: Bay Village Public Library
502  Cahoon Rd.
Bay Village, OH 44140
Time: 7:00 - 8:30 p.m.
Contact: Nancy,
baysnm@sbcglobal.net
Group meets every 3rd Wednesday of the month.
*
West Side support group will not meet in June, July and August.*

Cleveland- Far Eastside
Location: Lake Health TriPoint Rm. 1012
7590 Auburn Road
Concord, OH 44024
Time: 6:30 – 8:00 p.m.
Contact: Lorrie,(440) 897-8180
Group meets the 3rd Tuesday of each Month.

Northwest Ohio, Toledo and Surrounding Area (Led by the Michigan Chapter)
Location: St. Luke's Hospital, classroom 1
5901 Monclova Rd.
Maumee, OH  43537
Time: 7:00 - 9:00 p.m.
Call: Jan at (419) 636-1423
Group meets the 1st Tuesday of every month.

 
Akron Area
We are currently working to set up an Akron area support group - beginning by identifying 2 volunteer co-facilitators.  If you or someone who know is interested in learning more about what this entails, please contact our Regional Education and Support Manager, Becky: bjohnsonrescola@ccfa.org.


News of Note

The Healthwell Foundation has established a Crohn's Disease assistance fund.  Click here for more information

The U.S. Food and Drug Administration has approved Remicade (infliximab) to treat moderately to serverely active ulcerative colitis (UC) in children 6 years and older who have had inadequate response to conventional therapy.  For further details on this recent FDA approval, click here

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MORE INFORMATION

Join the CCFA Northeast Ohio Fan Page on Facebook!

Follow Northeast Ohio CCFA on Twitter!

Join the CCFA Northest Ohio group on LinkedIn

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CONTACT INFO

Northeast Ohio Chapter

Address:
4700 Rockside Rd. #425              Phone: (216) 524-7700 
Independence. OH  44131            Toll-Free: (866) 345-2232

Email: neohio@ccfa.org               FAX: (216) 524-7701                 

Staff:

Lesley Hoover, Chapter Director lhoover@ccfa.org

Carissa Bowlin, Team Challenge Endurance Manager  cbowlin@ccfa.org

Terri Lowe-Donovan, Development Coordinator  tlowedonovan@ccfa.org

The office is open from 9am to 5pm, Monday through Friday. There is a 24 hour voicemail that is checked regularly.


                                               Board of Directors

Ron Teplitzky, President

Joe Prada, President Elect

Ken Bloom, Vice President

Phil Moshier, Treasurer

Jean Akins, Secretary 

Jean-Paul Achkar, MD, Chapter Medical Advisory Committee Chair 

Paul Levin, Advocacy Chair      

Bradley Champagne, MD          James Merlino, MD

Rollie DeMonte                           John Moshier   

Mark Jacobs                               Tocombamarie Murphy

Debbie Isaak-Shapiro                 Joseph Patella

Barbara Kaplan, MD                  Karen Paull

Steve LaDue                                 Earl Pike

Dennis Medica                             Sharon Stein, MD

Nancy Melenick                           Mousab Tabbaa, MD

                                                        Sarah Weiss

Emeritus Board Members:

Howard Edelstein

Robert Edelstein

Bruce Hartzmark                        

 

    
Thank you to our generous Chapter Sponsor who supports our year round programming and events:

Cleveland Clinic Digestive Disease Institute

 
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