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Upcoming Chapter Events:
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CALENDAR/EVENTS
May 17, 2012

CCFA Boston Physician Dinner
Thursday, May 17, 2012

Join us on May 17th for our annual CCFA Boston Physician Dinner featuring Dr. Jean-Frédéric Colombel who will be speaking on "IBD as progressive diseases." Cocktail hour will begin at 6:00 p.m. and dinner and presentation will begin at 7:00 p.m. at the Hampshire House, in Boston.

Open to physicians and healthcare professionals only.

Registration Fees:
$25 non-CCFA healthcare professional members
CMAC members, fellows and CCFA healthcare professional members - free of charge

This program supported in part through an unrestricted educational grant from:

For more info contact Kristin Armstrong
karmstrong@ccfa.org | 781-449-0324 ex. 21

May 19, 2012

Take Steps Maine
May 19, 2012

Payson Park | 4:00 p.m.
Portland, ME

For more information visit
http://cctakesteps.org/maine

or contact Marianne Gibson at
mgibson@ccfa.org | 781-449-0324 x 14

Find us on Facebook!

June 2, 2012

Take Steps Boston
June 2, 2012

Boston Common | 4:00 p.m.

For more information visit
http://cctakesteps.org/boston

or contact Marianne Gibson at
mgibson@ccfa.org | 781-449-0324 x 14

Find us on Facebook!

June 2, 2012

Dartmouth Hitchcock Medical Center
"The Basics & Beyond"
Patient & Family IBD Symposium

June 2, 2012
8:00 a.m. - 1:15 p.m.

Dartmouth Hitchcock Medical Center
1 Medical Center Drive - Lebanon, NH

Registration:
Non-Members - $15.00
Members & Senior Citizens - $10:00
Students under 18 - free of charge
Fee will be waived due to financial hardship

View Agenda & Register Online

Questions? Contact Kristin Armstrong, Regional Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

June 5, 2012




June 5, 2012
7:00 - 8:30 p.m.
Beechwood Hotel, Worcester MA

Interested in the latest treatment options for IBD? We are hosting a new education program on June 5, 2012 at the Beechwood Hotel in Worcester, Massachusetts from 7:00-8:30 p.m. The speaker will be Dr. Randy Pellish.

Topics will include risks/benefits of medications, surgery, and integrative therapies for Crohn's disease and ulcerative colitis; the impact of treatment adherence on disease management; and talking with your health care team about your treatment plan.

Register NOW!
This is a FREE event!

Directions to hotel: 363 Plantation Street Worcester, Massachusetts 01605
http://www.beechwoodhotel.com/contact.php

Questions? Contact:
Kristin Armstrong, Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

June 10, 2012

Cuts for Crohn's

Sunday, June 10th
11:00 a.m. - 4:00 p.m.

Tete-a-Tete
765 Beacon St, Newton Center
617-559-0660
www.teteatetesalon.com 
  
Appointments or walk in available
 
Raffle for "Day of Beauty" from Tete-a-Tete
$5 for 1, $20 for 5

August 18, 2012 - August 23, 2012

SAVE THE DATE!

 

August 18-23, 2012

~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~

Our 2012 session will be held at Camp Oasis in Elizaville, New York

Applications are being accepted for campers (grades 3-10), Leaders in Training (grades 11-12), and volunteers, including medical staff (age 18+).

Click here to learn more about this exciting program,
or contact Kristin Armstrong
karmstrong@ccfa.org | 781-449-0324 x 21

September 22, 2012

Take Steps Rhode Island
September 22, 2012

Colt State Park | 3:00 p.m.

For more information visit
http://cctakesteps.org/rhodeisland

or contact Marianne Gibson at
mgibson@ccfa.org | 781-449-0324 x 14

Find us on Facebook!

September 29, 2012

Take Steps Vermont
September 29, 2012

Place: TBA | 2:00 p.m.

For more information visit
http://cctakesteps.org/vermont  

or contact Alison Lodge at
alodge@ccfa.org | 646-734-6137

Find us on Facebook!

October 13, 2012

Take Steps Springfield
October 13, 2012

Forest Park | 2:00 p.m.

For more information visit
http://www.cctakesteps.org/springfieldma

or contact Marianne Gibson at
mgibson@ccfa.org | 781-449-0324 x 14

Find us on Facebook!

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SUPPORT GROUPS

NEW ENGLAND PATIENT SUPPORT PROGRAMS

POWER OF TWO

The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.

This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.


**If you are a first-time support group attendee,
please contact our Education and Support Manager, Kristin Armstrong 
at 781-449-0324x21 or karmstrong@ccfa.org before attending**

2012 Support Group Meeting Dates

Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org.
All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.

MASSACHUSETTS

Berkshire
Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA
Leader: Faith Newmark
Phone: (413) 442-2276
Email: FNewmark@Berkshire.RR.com
Co-leader: Donna Volpi
Phone: (518) 733-0278
Email: donnavolpi@hotmail.com
Time: 5:30 p.m.
Dates: MONDAY EVENINGS

Boston
Mass General Hospital
Location: Yawkey Bldg, Room 7-960
Date: 2nd Wednesday of each month
Time: 6:30-7:30 p.m.
Map Of Hospital

**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**

Boston
Location: Boston University Student Health Center, 881 Commonwealth Ave, Boston
Date: Thursday, May 3rd at 5 PM
Contact Info:
Jennie David: jendavid@bu.edu - 617-835-7002
Bethany  Kotlar: bhutchen@bu.edu - 217-714-0263
Description: An IBD support group designed for college-aged 
individuals who are directly or indirectly affected. Designed to build 
a community and encouragement for youth to pursue educational goals 
while living with a chronic disease.

Burlington
Ostomy Association of Boston (OAB) Meetings

Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA
(driving directions)
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Time: 7:00 p.m. – 9:00 p.m.
Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)

Martha's Vineyard
Location: Contact leaders for location of each meeting - call for details.
Leader: Kathy Chaves
Phone: (508) 693-5164
Email: Chavesvnyd@aol.com
Co-leader: Jen Combra Phone: (508) 696-0045
Time: 7:00 p.m.
Dates: 3rd TUESDAY OF EACH MONTH

Methuen
Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA
Leader: Judith Tompson
Time: 7:00 – 9:00 p.m.
Dates: 3rd WEDNESDAY OF EACH MONTH

**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**

Springfield

Location: Baystate Medical Center, Contennial Bldg., Medical Center Drive, Chicopee/Agawam Room
Leader: Ciro Camerota
Phone: 413-567-1666
Time: 2:30PM
Dates: 3rd Sunday of each month EXCEPT June, July, August, and December
Website: Ostomy Association of Greater Springfield, Inc.

Worcester
If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.

MAINE

Please contact Kristin Armstrong if you are interested in starting a support group in this area - karmstrong@ccfa.org | 781-449-0324 x 21

NEW HAMPSHIRE

Manchester
Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104
Leader: Jade Cibotti, RN
Phone: (603) 455-1960
Email: peacecreek_jade@yahoo.com
Time: 6:20 p.m. - 8:00 p.m.

Enter through the Main Entrance, take a right, the 1st door on your left is where the s-g meeting is held, the door may be closed when you get there .. just come on in, I'm there around 6:10p. If you have any problems finding the group or you need clearer directions feel free to call me 603-455-1960 or email me.

If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.

RHODE ISLAND

Providence
Support Group for Women with IBD
Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI  02903
Leader: Nancy Botelho, RNP
Phone: (401) 453-7953
Email: Kathleen Primo at kprimo@wihri.org
Co-leader: Sumona Saha, MD
Phone: (401) 453-7953
Email: ssaha@wihri.org
Time: 6:00 p.m. – 7:00 p.m.
Dates: 1st WEDNESDAY OF EACH MONTH

Providence
Support Group for Parents of Children with IBD
Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903
Leaders: Pedi GI Nurses (leaders rotate)
Phone: Nurses Line: (401) 444-5805
Co-leader: Russell Vigliotti
Phone: (401) 831-7656
Email: mjrv184@worldnet.att.net
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

Providence
Pediatric Patient Support Group

Location: *Group meets simultaneously with Parent Support Group*
Collis Board Room, 593 Eddy Street, Providence, RI 02903
(driving directions)
Leader: Stephanie Atlas, LICSW (Clinical Social Worker)
Phone: (401) 444-3247
Co-leader: Karen Swartz, CCLS (Child Life Specialist)
Phone: (401) 444-5613
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

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MORE INFORMATION

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Facebook Fan Page:
"Like" us! Keep up to date with local CCFA News & Events!
Visit: http://www.facebook.com/ccfaNE 
or search "Crohn's & Colitis Foundation of America - New England Chapter"

Facebook Profile Page:
Add CCFA New England Chapter as a friend: 
Visit: http://www.facebook.com/CCFA.NewEngland 
or search "Ccfa New England"

Facebook:
Add CCFA's Application - Stay Informed!
Click Here or search "CCFA" in applications

Twitter:
Follow CCFA New England Chapter:
Visit: http://twitter.com/CCFA_NewEngland 
or search CCFA_NewEngland




New England Advocacy Efforts

A New England Chapter Advocacy Committee has been formed to support current local and national legislative efforts that will improve the lives of individuals living with inflammatory bowel disease. If you are interested in being a part of the New England Chapter Advocacy Committee, please contact Education and Support Manager, Kristin Armstrong by phone at: 781-449-0324 ext. 21 or via email: karmstrong@ccfa.org.

For more information on CCFA's national advocacy efforts, please go to http://www.ccfa.org/advocacy/?LMI=9



Local & National IBD News!

* Falmouth Road Race success!
Novel Intestinal E. Coli Linked to Crohn's Disease
Certolizumab pegol appears effective for Crohn's disease

Read more IBD news at www.ccfa.org

Donate Your Car

Thinking of selling or even junking your old car, RV, or boat?  Instead, you can donate it to CCFA.  With free towing, it's easy and you'll receive a tax deduction for your donation.  Please call our office to learn more about this wonderful program!  Or, you can donate your car online!


Become a CCFA Member today!

As a member of CCFA, you will help us further the cause while receiving special membership benefits.  Membership benefits include subscription to the chapter newsletter and national magazine, discounts on CCFA books, and invitations to participate in chapter events and programs. 

Individual memberships are only $30.  Join or renew today!


Honor A Loved One With A Tribute Donation

Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause. 

You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00). 

Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.

Please note if you would like us to send you free request envelopes for future tributes.

Your tribute gift can be mailed to our office or charged to a credit card by calling 1-800-314-3459 or at ne@ccfa.org
Or you can make a tribute donation quickly and easily using our online form.

Examples of our Tribute card:
CCFA Purple

For Tribute card purchases:
* Tribute cards may be purchased at $5 per card.
* Please specify type: Honor, Memorial, or Blank


VOLUNTEERS NEEDED!

We are always looking for dedicated volunteers to help out at our events or within our office.  Volunteers may register by completing the Volunteer Interest form and emailing it to sedwards@ccfa.org or faxing it to 781-449-0325: Attention Sarah Edwards.  We will contact you to discuss volunteer opportunities that meet your interests and availability.  Alternatively, you can call Sarah at 781-449-0324 ext. 18.


Workplace Giving

The New England Chapter of CCFA is proud to participate in the workplace giving campaign of Community Health Charities.  At many workplaces throughout New England, employees can direct contributions to the charity of their choice.  Look for our name and agency code in your company campaign.  If you don't find us, please ask your employer to add CCFA.


Special Thanks to Mark Dilley for the top photo of Boston
http://www.markdilley.co.uk


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CONTACT INFO

New England Chapter

280 Hillside Avenue
Needham, MA 02494

Phone: (800) 314-3459 or (781) 449-0324
Fax: (781) 449-0325
Email: ne@ccfa.org

Rob Harris, CFRE
Regional Director
Extension 13
Email: rharris@ccfa.org  

Jess Adani
Development Manager
Extension 11
Email: jadani@ccfa.org

Kristin Armstrong
Regional Education & Support Manager
Extension 21
Email: karmstrong@ccfa.org

Sarah Edwards
Administrative Coordinator
Extension 18
Email: sedwards@ccfa.org

Marianne Gibson
Walk Director, Take Steps
Extension 14
Email: mgibson@ccfa.org

Alicia Hanifin
Endurance Manager, Team Challenge
Extension 12
Email: ahanifin@ccfa.org

Alison Rosenfeld
Senior Endurance Manager, Team Challenge
646-300-4208
Email: arosenfeld@ccfa.org

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