Tickets are on a first come first serve basis Each child must be accompanied by an adult. Admission is free of charge due to a generous donation given by the Museum of Science
To sign up or for more information please contact: Kristin Armstrong 781-449-0324 ext. 21 | karmstrong@ccfa.org
- - - - - - -
We are well into 2009, and that means more IBD Kids' Club activities! With many great events planned, this is shaping up to be our best year ever. Any child with IBD ages 8 to 18 can be a member, and we are always on the lookout for new activity ideas. Call Kristin Armstrong at: 781-449-0324 ext. 21 today to be a part of the IBD Kids' Club!
Introducing the New Hampshire Kids' Club Contact Kristin Armstrong for more information karmstrong@ccfa.org | 781-449-0324 x 21
July 19, 2009
Runners, walkers and wine enthusiast will join together for 13.1 miles through the beautiful vineyards of the Carneros wine region. Team Challenge is returning for our second year to experience this breathtaking course. Find out why Runners World Magazine selected the Napa-to-Sonoma Wine Country Half as BEST FINISH in their 2007 half marathon issue.
For more information contact: Marisa Sarringhaus, Endurance Manager msarringhaus@ccfa.org or 781-449-0324 x 12
Target Audience: This course was designed for physicians and other allied health professionals who wish to expand their knowledge of key health issues and enhance their role in the recognition, treatment and preventative care of patients with inflammatory bowel disease (IBD).
Faculty:Keynote Speaker: Steven N. Fine, MD Chief, Division of Gastroenterology, MetroWest Medical Center, Framingham, MA
Physician Continuing Education:This activity has been approved for AMA PRA Category 1 Credit(s) ™.
For additional information please contact: Kristin M. Armstrong, Education & Support Manager (781) 449-0324 x21, karmstrong@ccfa.org
We have submitted educational grant requests to various supporters, those who provide funding will be acknowledged on future announcements.
August 9, 2009
Falmouth Road Race
August 9, 2009 | 10 a.m.
For more information, please contact Marisa Sarringhaus, Endurance Manager msarringhaus@ccfa.org | 781-449-0324 x 12
August 18, 2009 - August 23, 2009
** SAVE THE DATE **
August 18-23, 2009
~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~
Our 2009 session will be held at Camp Scatico in Elizaville, NY
Applications will be available in January 2009 for campers (ages 8-15), Leaders in Training (ages 16-17), and volunteers (age 18+).
Learn more about this exciting program, or contact Kristin Armstrong, Education & Support Manager at karmstrong@ccfa.org or 1-800-314-3459 x 21.
December 6, 2009
Challenge Yourself to Change a Life!
Walkers and Runners of all abilities are encouraged to join Team New England as we train and fundraise for the Rock n Roll Las Vegas Half Marathon on December 6, 2009. These teams will begin training with our walk and run coaches in August to prepare for this exciting race along The Strip and packed with Vegas entertainment!
The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.
This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.
**If you are a first-time support group attendee, please contact our Education and Support Manager, Kristin Armstrong at 781-449-0324x21 or karmstrong@ccfa.org before attending**
2009 Support Group Meeting Dates
Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org. All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.
*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.
Berkshire Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA Leader: Faith Newmark Phone: (413) 442-2276 Email: FNewmark@Berkshire.RR.com Co-leader: Donna Volpi Phone: (518) 733-0278 Email: donnavolpi@hotmail.com Time: 5:30 p.m. Dates: MONDAY EVENINGS
Boston Children's Hospital Boston Parent & Family IBD Support Group Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA Leader: Kate Donovan Phone: 617-355-6416 Email: kate.donovan@childrens.harvard.edu **Please check back for meeting updates**
Burlington J-pouch support Location: Lahey Clinic, 41 Mall Road, Burlington, MA Leader: Kerry Casey, RN, CETN Email: Kerry.M.Casey@lahey.org Co-leader: Donna Loehner, RN, CETN Phone: 978-750-4225 Email: Donna.l.Loehner@lahey.org Dates: SOME WEDNESDAY EVENINGS.(call for dates)
Burlington Ostomy Association of Boston (OAB) Meetings Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA (driving directions) Leader: Kerry Casey, RN, CETN Email: Kerry.M.Casey@lahey.org Co-leader: Donna Loehner, RN, CETN Time: 7:00 p.m. – 9:00 p.m. Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)
Martha's Vineyard Location: Contact leaders for location of each meeting - call for details. Leader: Kathy Chaves Phone: (508) 693-5164 Email: Chavesvnyd@aol.com Co-leader: Jen Combra Phone: (508) 696-0045 Time: 7:00 p.m. Dates: 3rd TUESDAY OF EACH MONTH
Methuen Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA Leader: Judith Tompson Time: 7:00 – 9:00 p.m. Dates: 3rd WEDNESDAY OF EACH MONTH
**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**
Worcester If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
MAINE
If you are interested in starting a support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
NEW HAMPSHIRE
Manchester Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104 Leader: Jade Riberdy, RN Phone: (603) 630-7378 Email: peacecreek_jade@yahoo.com Time: 6:20 p.m. - 7:50 p.m. Dates: MONDAY EVENINGS - call for dates. Dates: February 9, 2009.
If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.
RHODE ISLAND
Providence Support Group for Women with IBD Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI 02903 Leader: Nancy Botelho, RNP Phone: (401) 453-7953 Email: Kathleen Primo at kprimo@wihri.org Co-leader: Sumona Saha, MD Phone: (401) 453-7953 Email: ssaha@wihri.org Time: 6:00 p.m. – 7:00 p.m. Dates: 1st WEDNESDAY OF EACH MONTH
Providence Support Group for Parents of Children with IBD Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903 Leaders: Pedi GI Nurses (leaders rotate) Phone: Nurses Line: (401) 444-5805 Co-leader: Russell Vigliotti Phone: (401) 831-7656 Email: mjrv184@worldnet.att.net Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
Providence Pediatric Patient Support Group Location: *Group meets simultaneously with Parent Support Group* Collis Board Room, 593 Eddy Street, Providence, RI 02903 (driving directions) Leader: Stephanie Atlas, LICSW (Clinical Social Worker) Phone: (401) 444-3247 Co-leader: Karen Swartz, CCLS (Child Life Specialist) Phone: (401) 444-5613 Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
Add CCFA's Application - Stay Informed! Click Here or search "CCFA" in applications
New England Advocacy Efforts
A New England Chapter Advocacy Committee has been formed to support current local and national legislative efforts that will improve the lives of individuals living with inflammatory bowel disease. If you are interested in being a part of the New England Chapter Advocacy Committee, please contact Education and Support Manager, Kristin Armstrong by phone at: 781-449-0324 ext. 21 or via email: karmstrong@ccfa.org.
Our mission is to plan social events that give CCFA patients and supporters a chance to get to know each other in a social environment and to fundraise for the CCFA.
Events are TBA - Please check back regularly. Past events include a beer and cheese pairing at the Publick House, hiking the Blue Hills, trivia night at Clery's, and a Celtics game.
UPCOMING EVENTS:
Thursday, May 28 | 8 P.M. Join us at CitySide Bar & Grill! 1960 Beacon Street, Cleveland Circle, Brighton MA
This is a 21+ event No cover charge - a $5.00 donation to CCFA is suggested
Thinking of selling or even junking your old car, RV, or boat? Instead, you can donate it to CCFA. With free towing, it's easy and you'll receive a tax deduction for your donation. Please call our office to learn more about this wonderful program! Or, you can donate your car online!
Become a CCFA Member today!
As a member of CCFA, you will help us further the cause while receiving special membership benefits. Membership benefits include subscription to the chapter newsletter and national magazine, discounts on CCFA books, and invitations to participate in chapter events and programs.
Once registered, please link your card number to our organization. CCFA's Community Rewards ID number is 49001018667.
You can earn rewards by making qualifying purchases at any Shaw's or Massachusetts Star Market on Tuesday, Wednesday, or Thursday. Shaw's will send a quarterly check to CCFA for 1% worth of qualifying purchases.
If you know of any other local stores offering to donate a portion of their proceeds from collected receipts, please notify us at 800 314-3459, or by email at ne@ccfa.org and we will gladly participate in their program as well.
Honor A Loved One With A Tribute Donation
Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.
You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00).
Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.
Please note if you would like us to send you free request envelopes for future tributes.
For Tribute card purchases: * Tribute cards may be purchased at $5 per card. * Please specify type: White, Purple, or Kids and also Honor, Memorial, or Blank
VOLUNTEERS NEEDED!
We are always looking for dedicated volunteers to help out at our events, with mailings and other office projects, and with our Take Steps walks. Volunteers may register by completing the Volunteer Interest form and emailing it to ccomins@ccfa.org or faxing it to 781-449-0325: Attention Craig Comins. We will contact you to discuss volunteer opportunities that meet your interests and availability. Alternatively, you can call Craig Comins, Executive Director at 781-449-0324 ext. 13 or email ccomins@ccfa.org
Workplace Giving
The New England Chapter of CCFA is proud to participate in the workplace giving campaign of Community Health Charities. At many workplaces throughout New England, employees can direct contributions to the charity of their choice. Look for our name and agency code in your company campaign. If you don't find us, please ask your employer to add CCFA.
