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SPECIAL HIGHLIGHTS



Saying goodbye to a dear friend.

The New England Chapter of the Crohn's and Colitis Foundation of America is deeply saddened by the loss of Joan Cutler on Monday, September 6.  Joany's involvement with CCFA spans over 40 years, and along with her husband Ted, is credited with the founding our Chapter.  One of her greatest achievements was starting the Anniversary Ball, now in its 37th year, and the highlight of the CCFA year.  You could always see Joany's mark on the event.  In addition to the Ball, Joany, along with her husband Ted, were involved with CCFA in numerous roles, both at the chapter and national levels.

We will miss Joany's wit, energy, and guidance.  Our thoughts and prayers go out to Ted and the entire family at this time of grief and sadness. 

Funeral services are scheduled for 9 a.m. Wedensday, Sept 8. at Temple Mishkan Tefila, 300 Hammond Pond Parkway, Chestnut Hill, MA



Quick Links

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Volunteer for CCFA

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CALENDAR/EVENTS
September 15, 2010

"Understanding Inflammatory Bowel Diseases: What Every Patient Needs to Know"

Wednesday, September 15, 2010
University of Vermont 
6:30 p.m. - 8:30 p.m.

This education program will cover:

Guidance on how to recognize symptoms
How to manage your disease
Current therapies and emerging research
Disease and treatment-related side effects
Emotional wellness and resources
Question-and-answer session
The University of Vermont: Billing Library North Lounge

Keynote Speaker: Dr. James A. Vecchio

Cost; Free

RSVP Today

September 19, 2010

INTRODUCING:

Join the National Team for our inaugural cycle season! 
Team Challenge Cycle participants will train and fundraise for the Centurion Canada 50 mile race on September 19, 2010 in the beautiful Blue Mountains of Ontario.

More Information

September 22, 2010

Save The Date

MetroWest Professional Dinner
September 22, 2010

For more information, contact:
Kristin Armstrong, Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

October 2, 2010

2nd Annual Providence Patient & Family Symposium
Saturday, October 2, 2010

Hasbro Children's Hospital
593 Eddy Street | Providence, RI

8:00 a.m. - 2:00 p.m.

Registration Fee:
Individuals $5 | Families $10
fee includes breakfast, lunch, and program materials
parking is validated


Register Today

For more information, contact:
Kristin Armstrong, Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

October 9, 2010

Worcester Patient & Family IBD Symposium
October 9, 2010


Beechwood Hotel
363 Plantation Street
Worcester, MA 01605

8:30 a.m. - 1:45 p.m.

Registration Fee:
Members $5 | Non-Members $10 | Studets/Fellows free

Register Today

October 16, 2010

Take Steps is coming to Springfield, MA!

October 16, 2010 | 2:00 p.m.
Forest Park - Springfield, MA

Register Today!

For more information, contact:
Marianne Gibson, Walk Director
mgibson@ccfa.org | 781-449-0324 x 14

October 20, 2010 - October 21, 2010


Love Where You Live

October 20-21, 2010 | 10 a.m. - 10 p.m.

Bloomingdale's - Chestnut Hill Locations
175 Boylston Street
225 Boylston Street
Newton, MA

$10.00 Per Ticket

Purchase Tickets

...100% Proceeds to benefit CCFA
Plus we receive an extra $5 when you present your ticket at the door on the day of the event

* CCFA receives $10 for each ticket we sell and you receive 15%* savings throughout Bloomingdale's on almost all merchandise in both stores at Chestnut Hill Mall!

* Another $5 donation is given to CCFA when you attend the Shopping Benefit on October 20th or 21st and present your ticket at the door. Proceeds from Bloomingdale's ticket sales at the door on the day of the event will be divided among charities that have 70 or more ticket holders attend the event. This additional donation could be in the thousands of dollars!

* Spend $300 or more using your Bloomingdale's charge card and you will receive an extra 5% off, for a total savings of 20%*!

If you purchase a ticket and cannot attend the event or take advantage of the Pre-Event Shopping Option, then we encourage you to give your ticket to a friend so that we may benefit from the Bloomingdale's donation.

This is a wonderful opportunity to shop and SAVE for the Holidays!

* limited exclusions apply

For more information or to purchase tickets, contact:
Jess Adani, Development Manager
jadani@ccfa.org | 781-449-0324 x 11

November 4, 2010

Save The Date

Baystate Patient & Family IBD Symposium
November 4, 2010

For more information, contact:
Kristin Armstrong, Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

November 6, 2010

Save The Date

Portland Patient & Family IBD Symposium
November 6, 2010

For more information, contact:
Kristin Armstrong, Education & Support Manager
karmstrong@ccfa.org | 781-449-0324 x 21

December 5, 2010

Team Challenge is going to Las Vegas!

Team Challenge participants from across the country will be travelling to Las Vegas for the ultimate half marathon experience on December 5th!  Whether you want to walk or run, this event is guaranteed to rock!  Expect 13.1 miles of a high-energy, action-packed course exclusively on the strip. With bands at every mile and more live music at the post-race concert you are in for a one of a kind event. Grab a friend and get ready to ROCK THE STRIP!!


 For more information, click here or contact Alison at arosenfeld@ccfa.org or
(781) 449-0324 x12

Also please join us at one of our upcoming formation sessions:

Saturday, August 7, 10:00 am l Lexington, MA
Tuesday, August 10, 12:15 pm l Boston, MA
Thursday, August 12, 6:30 pm l Milton, MA
Monday, August 16, 6:30 pm l Brookline, MA
Wednesday, August 25, 6:00 pm l Waltham, MA

RSVP for an info meeting today!

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SUPPORT GROUPS

NEW ENGLAND PATIENT SUPPORT PROGRAMS

POWER OF TWO

The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.

This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.


**If you are a first-time support group attendee,
please contact our Education and Support Manager, Kristin Armstrong 
at 781-449-0324x21 or karmstrong@ccfa.org before attending**

2010 Support Group Meeting Dates

Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org.
All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.

MASSACHUSETTS

Berkshire
Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA
Leader: Faith Newmark
Phone: (413) 442-2276
Email: FNewmark@Berkshire.RR.com
Co-leader: Donna Volpi
Phone: (518) 733-0278
Email: donnavolpi@hotmail.com
Time: 5:30 p.m.
Dates: MONDAY EVENINGS

Boston
Children's Hospital Boston Parent & Family IBD Support Group
Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA
Leader: Kate Donovan
Phone: 617-355-6416
Email: kate.donovan@childrens.harvard.edu
**Not meeting in the summer, will be meeting in the fall**
Please call Kate Donovan for more information

Boston
Mass General Hospital
(transitioning leaders, more info TBA)
Map Of Hospital

Burlington
Ostomy Association of Boston (OAB) Meetings

Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA
(driving directions)
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Time: 7:00 p.m. – 9:00 p.m.
Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)

Martha's Vineyard
Location: Contact leaders for location of each meeting - call for details.
Leader: Kathy Chaves
Phone: (508) 693-5164
Email: Chavesvnyd@aol.com
Co-leader: Jen Combra Phone: (508) 696-0045
Time: 7:00 p.m.
Dates: 3rd TUESDAY OF EACH MONTH

Methuen
Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA
Leader: Judith Tompson
Time: 7:00 – 9:00 p.m.
Dates: 3rd WEDNESDAY OF EACH MONTH

**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**

Springfield

Location: Baystate Medical Center, Contennial Bldg., Medical Center Drive, Chicopee/Agawam Room
Leader: Ciro Camerota
Phone: 413-567-1666
Time: 2:30PM
Dates: 3rd Sunday of each month EXCEPT June, July, August, and December
Website: Ostomy Association of Greater Springfield, Inc.

Worcester
If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.

MAINE

Biddeford
Location: Southern Maine Medical Center, 1 Medical Center Drive (P O Box 626) - Biddeford, ME
Leader: Kathleen Parsons
Phone: 207-283-7000 (general assistance)
Time: 7:00pm in Cafe 5
Dates: 1st Wednesday of each month  - first meeting May 5th, 2010
Website: http://www.smmc.org 

NEW HAMPSHIRE

Manchester
Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104
Leader: Jade Cibotti, RN
Phone: (603) 455-1960
Email: peacecreek_jade@yahoo.com
Time: 6:20 p.m. - 8:00 p.m.
2010 Dates: Feb 1, Mar 1, April 5, May 3

Enter through the Main Entrance, take a right, the 1st door on your left is where the s-g meeting is held, the door may be closed when you get there .. just come on in, I'm there around 6:10p. If you have any problems finding the group or you need clearer directions feel free to call me 603-455-1960 or email me.

If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.

RHODE ISLAND

Providence
Support Group for Women with IBD
Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI  02903
Leader: Nancy Botelho, RNP
Phone: (401) 453-7953
Email: Kathleen Primo at kprimo@wihri.org
Co-leader: Sumona Saha, MD
Phone: (401) 453-7953
Email: ssaha@wihri.org
Time: 6:00 p.m. – 7:00 p.m.
Dates: 1st WEDNESDAY OF EACH MONTH

Providence
Support Group for Parents of Children with IBD
Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903
Leaders: Pedi GI Nurses (leaders rotate)
Phone: Nurses Line: (401) 444-5805
Co-leader: Russell Vigliotti
Phone: (401) 831-7656
Email: mjrv184@worldnet.att.net
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

Providence
Pediatric Patient Support Group

Location: *Group meets simultaneously with Parent Support Group*
Collis Board Room, 593 Eddy Street, Providence, RI 02903
(driving directions)
Leader: Stephanie Atlas, LICSW (Clinical Social Worker)
Phone: (401) 444-3247
Co-leader: Karen Swartz, CCLS (Child Life Specialist)
Phone: (401) 444-5613
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

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