...to subscribe to our monthly newsletter, click here and select the "monthly newsletter" list option, or e-mail ne@ccfa.org with the subject "subscribe"
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Tuesday, February 9 at 7:30pm l Newman YMCA, Seekonk Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Tuesday, February 9th at 7:30 p.m. l Newman YMCA, Seekonk Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Tuesday, February 9th at 7:30 p.m. l Newman YMCA, Seekonk Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Tuesday, February 9th at 7:30 p.m. l Newman YMCA, Seekonk Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Tuesday, February 9th at 7:30 p.m. l Newman YMCA, Seekonk Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
Raffle prize just confirmed - two nights in an executive suite at the Four Seasons Boston plus breakfast each morning and dinner for 4 at the Bristol Lounge. Winner need not be present at the event to win. Get your tickets now | $25 each or 5 for $100
For more information, please contact: Jess Adani, Development Manager jadani@ccfa.org | 781-449-0324 x 11
Event Co-chairs * Lee Drooker * Lisa Paolino Chapter President * John Burns Planning Committee * Jess Adani * Brianne Barrett * Chari & Jay Bernten* * Jill Schoenfeld Boyarsky * Paula & John Burns * Amanda Dalia * Beata Dragovics * Allyson and Bill Fox * Ross Finn* * Brooke Hegarty * Judi & Joey Karas* * Pam & Jeff Mittleman * Patrick O'Toole * Deanna Riseman * David Safaii * Grayson & Alec Stern * Marissa Sweazy * Judi & Edward Walk* * Jane Wolfman
*Event Founders
March 27, 2010
Save the Date
Portland, Maine Pediatric Education Event March 27, 2010 8:30 a.m. - 1:00 p.m.
Camp Chewonki 485 Chewonki Neck Road, Wiscasset, ME 04578
Informational Meetings: Monday, February 8 at 6pm | Cary Memorial Library, Lexington Thursday, February 11 at 6pm | Brookline Library Tuesday, February 16 at 12:15pm | Boston Public Library Saturday, February 20 at 10am | Milton Library Wednesday, February 24 at 6pm | 80 Hope Avenue, Waltham MA
The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.
This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.
**If you are a first-time support group attendee, please contact our Education and Support Manager, Kristin Armstrong at 781-449-0324x21 or karmstrong@ccfa.org before attending**
2009 Support Group Meeting Dates
Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org. All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.
*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.
MASSACHUSETTS
Berkshire Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA Leader: Faith Newmark Phone: (413) 442-2276 Email: FNewmark@Berkshire.RR.com Co-leader: Donna Volpi Phone: (518) 733-0278 Email: donnavolpi@hotmail.com Time: 5:30 p.m. Dates: MONDAY EVENINGS
Boston Children's Hospital Boston Parent & Family IBD Support Group Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA Leader: Kate Donovan Phone: 617-355-6416 Email: kate.donovan@childrens.harvard.edu **Please check back for meeting updates**
Boston Mass General Hospital Time: 6:30-7:30 p.m. Dates: Third Tuesday of each month, taking summers off. Dates include: 2010: Jan. 19, Feb. 16, March 16, April 20, May 18 Location: 55 Fruit Street, Boston - Yawkey Building room 2-210 See Map of Hospital Leader: Liz Phone: 617-894-2768 Email: Liz710@gmail.com
Boston J-Pouch Support Mass General Hospital Time: 6:30-7:30 p.m. 2010: Dates: Jan. 14, March 11, May 13 Location: 55 Fruit Street, Boston - Yawkey Building room 4-810 See Map of Hospital Burlington J-pouch support Location: Lahey Clinic, 41 Mall Road, Burlington, MA Leader: Kerry Casey, RN, CETN Email: Kerry.M.Casey@lahey.org Co-leader: Donna Loehner, RN, CETN Phone: 978-750-4225 Email: Donna.l.Loehner@lahey.org Dates: SOME WEDNESDAY EVENINGS.(call for dates)
Burlington Ostomy Association of Boston (OAB) Meetings Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA (driving directions) Leader: Kerry Casey, RN, CETN Email: Kerry.M.Casey@lahey.org Co-leader: Donna Loehner, RN, CETN Time: 7:00 p.m. – 9:00 p.m. Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)
Martha's Vineyard Location: Contact leaders for location of each meeting - call for details. Leader: Kathy Chaves Phone: (508) 693-5164 Email: Chavesvnyd@aol.com Co-leader: Jen Combra Phone: (508) 696-0045 Time: 7:00 p.m. Dates: 3rd TUESDAY OF EACH MONTH
Methuen Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA Leader: Judith Tompson Time: 7:00 – 9:00 p.m. Dates: 3rd WEDNESDAY OF EACH MONTH
**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.** Springfield Location: Baystate Medical Center, Contennial Bldg., Medical Center Drive, Chicopee/Agawam Room Leader: Ciro Camerota Phone: 413-567-1666 Time: 2:30PM Dates: 3rd Sunday of each month EXCEPT June, July, August, and December Website: Ostomy Association of Greater Springfield, Inc.
Worcester If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
MAINE
If you are interested in starting a support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
NEW HAMPSHIRE
Manchester Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104 Leader: Jade Cibotti, RN Phone: (603) 455-1960 Email: peacecreek_jade@yahoo.com Time: 6:20 p.m. - 8:00 p.m. 2010 Dates: Feb 1, Mar 1, April 5, May 3
Enter through the Main Entrance, take a right, the 1st door on your left is where the s-g meeting is held, the door may be closed when you get there .. just come on in, I'm there around 6:10p. If you have any problems finding the group or you need clearer directions feel free to call me 603-455-1960 or email me.
If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.
RHODE ISLAND
Providence Support Group for Women with IBD Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI 02903 Leader: Nancy Botelho, RNP Phone: (401) 453-7953 Email: Kathleen Primo at kprimo@wihri.org Co-leader: Sumona Saha, MD Phone: (401) 453-7953 Email: ssaha@wihri.org Time: 6:00 p.m. – 7:00 p.m. Dates: 1st WEDNESDAY OF EACH MONTH
Providence Support Group for Parents of Children with IBD Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903 Leaders: Pedi GI Nurses (leaders rotate) Phone: Nurses Line: (401) 444-5805 Co-leader: Russell Vigliotti Phone: (401) 831-7656 Email: mjrv184@worldnet.att.net Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
Providence Pediatric Patient Support Group Location: *Group meets simultaneously with Parent Support Group* Collis Board Room, 593 Eddy Street, Providence, RI 02903 (driving directions) Leader: Stephanie Atlas, LICSW (Clinical Social Worker) Phone: (401) 444-3247 Co-leader: Karen Swartz, CCLS (Child Life Specialist) Phone: (401) 444-5613 Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
CCFA is pleased to announce our new pages available on Facebook, MySpace, and Twitter
Facebook: Add CCFA New England Chapter as a friend: Click Here or search "Ccfa New England"
Facebook: Become a fan of CCFA New England: Click Here
Facebook: Add CCFA's Application - Stay Informed! Click Here or search "CCFA" in applications
MySpace: Add CCFA New England Chapter as a friend: Click Here or search "CCFA New England"
Twitter: Follow CCFA New England Chapter: Click Here or search CCFA_NewEngland (ne@ccfa.org)
New England Advocacy Efforts
A New England Chapter Advocacy Committee has been formed to support current local and national legislative efforts that will improve the lives of individuals living with inflammatory bowel disease. If you are interested in being a part of the New England Chapter Advocacy Committee, please contact Education and Support Manager, Kristin Armstrong by phone at: 781-449-0324 ext. 21 or via email: karmstrong@ccfa.org.
Our mission is to plan events that give CCFA patients and supporters a chance to get to know each other in a social environment and to fundraise for the CCFA. All get-togethers are designed for young and fun professionals :)
Events are TBA - Please check back regularly. Past events include a beer and cheese pairing at the Publick House, hiking the Blue Hills, trivia night at Clery's, a Celtics game, and an End of Summer bash.
Thinking of selling or even junking your old car, RV, or boat? Instead, you can donate it to CCFA. With free towing, it's easy and you'll receive a tax deduction for your donation. Please call our office to learn more about this wonderful program! Or, you can donate your car online!
Become a CCFA Member today!
As a member of CCFA, you will help us further the cause while receiving special membership benefits. Membership benefits include subscription to the chapter newsletter and national magazine, discounts on CCFA books, and invitations to participate in chapter events and programs.
Once registered, please link your card number to our organization. CCFA's Community Rewards ID number is 49001018667.
You can earn rewards by making qualifying purchases at any Shaw's or Massachusetts Star Market on Tuesday, Wednesday, or Thursday. Shaw's will send a quarterly check to CCFA for 1% worth of qualifying purchases.
If you know of any other local stores offering to donate a portion of their proceeds from collected receipts, please notify us at 800 314-3459, or by email at ne@ccfa.org and we will gladly participate in their program as well.
Honor A Loved One With A Tribute Donation
Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.
You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00).
Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.
Please note if you would like us to send you free request envelopes for future tributes.
For Tribute card purchases: * Tribute cards may be purchased at $5 per card. * Please specify type: Honor, Memorial, or Blank
VOLUNTEERS NEEDED!
We are always looking for dedicated volunteers to help out at our events, with mailings and other office projects, and with our Take Steps walks. Volunteers may register by completing the Volunteer Interest form and emailing it to ccomins@ccfa.org or faxing it to 781-449-0325: Attention Craig Comins. We will contact you to discuss volunteer opportunities that meet your interests and availability. Alternatively, you can call Craig Comins, Executive Director at 781-449-0324 ext. 13 or email ccomins@ccfa.org
Workplace Giving
The New England Chapter of CCFA is proud to participate in the workplace giving campaign of Community Health Charities. At many workplaces throughout New England, employees can direct contributions to the charity of their choice. Look for our name and agency code in your company campaign. If you don't find us, please ask your employer to add CCFA.
