NEW ENGLAND PATIENT SUPPORT PROGRAMS
POWER OF TWO
The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.
This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.
**If you are a first-time support group attendee,
please contact our Education and Support Manager, Kristin Armstrong
at 781-449-0324x21 or karmstrong@ccfa.org before attending**
2009 Support Group Meeting Dates
Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org.
All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.
*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.
MASSACHUSETTS Arlington
Arlington, MA public library
Contact: Kristin Armstrong
Phone: 781-449-0324 x 21
E-mail: karmstrong@ccfa.org
Tues, May 19th - 6:30pm to 8:15pm
Tues, June 23rd - 6:30pm to 8:15pm
Location:
4th floor conference room
Robbins Library
700 Massachusetts Avenue
Arlington, MA 02476
directions: http://www.robbinslibrary.org/about/hours-directions
Berkshire
Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA
Leader: Faith Newmark
Phone: (413) 442-2276
Email: FNewmark@Berkshire.RR.com
Co-leader: Donna Volpi
Phone: (518) 733-0278
Email: donnavolpi@hotmail.com
Time: 5:30 p.m.
Dates: MONDAY EVENINGS
Boston
Children's Hospital Boston Parent & Family IBD Support Group
Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA
Leader: Kate Donovan
Phone: 617-355-6416
Email: kate.donovan@childrens.harvard.edu
**Please check back for meeting updates**
Boston
Mass General Hospital
Time: 6:30-7:30 p.m.
Dates: Third Tuesday of each month, taking summers off. Dates include:
Oct. 20, Nov. 17, Dec. 15 (pending interest), Jan. 19, Feb. 16, March 16, April 20, May 18
Location: 55 Fruit Street, Boston - Yawkey Building
2009 - room 7-950
2010 - room 2-210
See Map of Hospital
Leader: Liz
Phone: 617-894-2768
Email: Liz710@gmail.com
Burlington
J-pouch support
Location: Lahey Clinic, 41 Mall Road, Burlington, MA
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Phone: 978-750-4225
Email: Donna.l.Loehner@lahey.org
Dates: SOME WEDNESDAY EVENINGS.(call for dates)
Burlington
Ostomy Association of Boston (OAB) Meetings
Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA
(driving directions)
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Time: 7:00 p.m. – 9:00 p.m.
Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)
Martha's Vineyard
Location: Contact leaders for location of each meeting - call for details.
Leader: Kathy Chaves
Phone: (508) 693-5164
Email: Chavesvnyd@aol.com
Co-leader: Jen Combra Phone: (508) 696-0045
Time: 7:00 p.m.
Dates: 3rd TUESDAY OF EACH MONTH
Methuen
Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA
Leader: Judith Tompson
Time: 7:00 – 9:00 p.m.
Dates: 3rd WEDNESDAY OF EACH MONTH
**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**
Springfield
Location: Baystate Medical Center, Contennial Bldg., Medical Center Drive, Chicopee/Agawam Room
Leader: Ciro Camerota
Phone: 413-567-1666
Time: 2:30PM
Dates: 3rd Sunday of each month EXCEPT June, July, August, and December
Website: Ostomy Association of Greater Springfield, Inc.
Worcester
If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
MAINE
If you are interested in starting a support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
NEW HAMPSHIRE
Manchester
Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104
Leader: Jade Riberdy, RN
Phone: (603) 630-7378
Email: peacecreek_jade@yahoo.com
Time: 6:20 p.m. - 7:50 p.m.
Dates: MONDAY EVENINGS - call for dates.
Dates: February 9, 2009.
If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.
RHODE ISLAND
Providence
Support Group for Women with IBD
Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI 02903
Leader: Nancy Botelho, RNP
Phone: (401) 453-7953
Email: Kathleen Primo at kprimo@wihri.org
Co-leader: Sumona Saha, MD
Phone: (401) 453-7953
Email: ssaha@wihri.org
Time: 6:00 p.m. – 7:00 p.m.
Dates: 1st WEDNESDAY OF EACH MONTH
Providence
Support Group for Parents of Children with IBD
Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903
Leaders: Pedi GI Nurses (leaders rotate)
Phone: Nurses Line: (401) 444-5805
Co-leader: Russell Vigliotti
Phone: (401) 831-7656
Email: mjrv184@worldnet.att.net
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
Providence
Pediatric Patient Support Group
Location: *Group meets simultaneously with Parent Support Group*
Collis Board Room, 593 Eddy Street, Providence, RI 02903
(driving directions)
Leader: Stephanie Atlas, LICSW (Clinical Social Worker)
Phone: (401) 444-3247
Co-leader: Karen Swartz, CCLS (Child Life Specialist)
Phone: (401) 444-5613
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
