The New England Chapter of the Crohn's and Colitis Foundation of America is deeply saddened by the loss of Joan Cutler on Monday, September 6. Joany's involvement with CCFA spans over 40 years, and along with her husband Ted, is credited with the founding our Chapter. One of her greatest achievements was starting the Anniversary Ball, now in its 37th year, and the highlight of the CCFA year. You could always see Joany's mark on the event. In addition to the Ball, Joany, along with her husband Ted, were involved with CCFA in numerous roles, both at the chapter and national levels.
We will miss Joany's wit, energy, and guidance. Our thoughts and prayers go out to Ted and the entire family at this time of grief and sadness.
Funeral services are scheduled for 9 a.m. Wedensday, Sept 8. at Temple Mishkan Tefila, 300 Hammond Pond Parkway, Chestnut Hill, MA
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"Understanding Inflammatory Bowel Diseases: What Every Patient Needs to Know"
Wednesday, September 15, 2010 University of Vermont 6:30 p.m. - 8:30 p.m.
This education program will cover:
Guidance on how to recognize symptoms How to manage your disease Current therapies and emerging research Disease and treatment-related side effects Emotional wellness and resources Question-and-answer session The University of Vermont: Billing Library North Lounge
Join the National Team for our inaugural cycle season! Team Challenge Cycle participants will train and fundraise for the Centurion Canada 50 mile race on September 19, 2010 in the beautiful Blue Mountains of Ontario.
...100% Proceeds to benefit CCFA Plus we receive an extra $5 when you present your ticket at the door on the day of the event
* CCFA receives $10 for each ticket we sell and you receive 15%* savings throughout Bloomingdale's on almost all merchandise in both stores at Chestnut Hill Mall!
* Another $5 donation is given to CCFA when you attend the Shopping Benefit on October 20th or 21st and present your ticket at the door. Proceeds from Bloomingdale's ticket sales at the door on the day of the event will be divided among charities that have 70 or more ticket holders attend the event. This additional donation could be in the thousands of dollars!
* Spend $300 or more using your Bloomingdale's charge card and you will receive an extra 5% off, for a total savings of 20%*!
If you purchase a ticket and cannot attend the event or take advantage of the Pre-Event Shopping Option, then we encourage you to give your ticket to a friend so that we may benefit from the Bloomingdale's donation.
This is a wonderful opportunity to shop and SAVE for the Holidays!
* limited exclusions apply
For more information or to purchase tickets, contact: Jess Adani, Development Manager jadani@ccfa.org | 781-449-0324 x 11
November 4, 2010
Save The Date
Baystate Patient & Family IBD Symposium November 4, 2010
For more information, contact: Kristin Armstrong, Education & Support Manager karmstrong@ccfa.org | 781-449-0324 x 21
November 6, 2010
Save The Date
Portland Patient & Family IBD Symposium November 6, 2010
For more information, contact: Kristin Armstrong, Education & Support Manager karmstrong@ccfa.org | 781-449-0324 x 21
December 5, 2010
Team Challenge is going to Las Vegas!
Team Challenge participants from across the country will be travelling to Las Vegas for the ultimate half marathon experience on December 5th! Whether you want to walk or run, this event is guaranteed to rock! Expect 13.1 miles of a high-energy, action-packed course exclusively on the strip. With bands at every mile and more live music at the post-race concert you are in for a one of a kind event. Grab a friend and get ready to ROCK THE STRIP!!
Also please join us at one of our upcoming formation sessions:
Saturday, August 7, 10:00 am l Lexington, MA Tuesday, August 10, 12:15 pm l Boston, MA Thursday, August 12, 6:30 pm l Milton, MA Monday, August 16, 6:30 pm l Brookline, MA Wednesday, August 25, 6:00 pm l Waltham, MA
The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.
This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.
**If you are a first-time support group attendee, please contact our Education and Support Manager, Kristin Armstrong at 781-449-0324x21 or karmstrong@ccfa.org before attending**
2010 Support Group Meeting Dates
Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org. All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.
*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.
MASSACHUSETTS
Berkshire Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA Leader: Faith Newmark Phone: (413) 442-2276 Email: FNewmark@Berkshire.RR.com Co-leader: Donna Volpi Phone: (518) 733-0278 Email: donnavolpi@hotmail.com Time: 5:30 p.m. Dates: MONDAY EVENINGS
Boston Children's Hospital Boston Parent & Family IBD Support Group Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA Leader: Kate Donovan Phone: 617-355-6416 Email: kate.donovan@childrens.harvard.edu **Not meeting in the summer, will be meeting in the fall** Please call Kate Donovan for more information
Burlington Ostomy Association of Boston (OAB) Meetings Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA (driving directions) Leader: Kerry Casey, RN, CETN Email: Kerry.M.Casey@lahey.org Co-leader: Donna Loehner, RN, CETN Time: 7:00 p.m. – 9:00 p.m. Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)
Martha's Vineyard Location: Contact leaders for location of each meeting - call for details. Leader: Kathy Chaves Phone: (508) 693-5164 Email: Chavesvnyd@aol.com Co-leader: Jen Combra Phone: (508) 696-0045 Time: 7:00 p.m. Dates: 3rd TUESDAY OF EACH MONTH
Methuen Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA Leader: Judith Tompson Time: 7:00 – 9:00 p.m. Dates: 3rd WEDNESDAY OF EACH MONTH
**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.** Springfield Location: Baystate Medical Center, Contennial Bldg., Medical Center Drive, Chicopee/Agawam Room Leader: Ciro Camerota Phone: 413-567-1666 Time: 2:30PM Dates: 3rd Sunday of each month EXCEPT June, July, August, and December Website: Ostomy Association of Greater Springfield, Inc.
Worcester If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.
MAINE
Biddeford Location: Southern Maine Medical Center, 1 Medical Center Drive (P O Box 626) - Biddeford, ME Leader: Kathleen Parsons Phone: 207-283-7000 (general assistance) Time: 7:00pm in Cafe 5 Dates: 1st Wednesday of each month - first meeting May 5th, 2010 Website: http://www.smmc.org NEW HAMPSHIRE
Manchester Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104 Leader: Jade Cibotti, RN Phone: (603) 455-1960 Email: peacecreek_jade@yahoo.com Time: 6:20 p.m. - 8:00 p.m. 2010 Dates: Feb 1, Mar 1, April 5, May 3
Enter through the Main Entrance, take a right, the 1st door on your left is where the s-g meeting is held, the door may be closed when you get there .. just come on in, I'm there around 6:10p. If you have any problems finding the group or you need clearer directions feel free to call me 603-455-1960 or email me.
If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.
RHODE ISLAND
Providence Support Group for Women with IBD Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI 02903 Leader: Nancy Botelho, RNP Phone: (401) 453-7953 Email: Kathleen Primo at kprimo@wihri.org Co-leader: Sumona Saha, MD Phone: (401) 453-7953 Email: ssaha@wihri.org Time: 6:00 p.m. – 7:00 p.m. Dates: 1st WEDNESDAY OF EACH MONTH
Providence Support Group for Parents of Children with IBD Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903 Leaders: Pedi GI Nurses (leaders rotate) Phone: Nurses Line: (401) 444-5805 Co-leader: Russell Vigliotti Phone: (401) 831-7656 Email: mjrv184@worldnet.att.net Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
Providence Pediatric Patient Support Group Location: *Group meets simultaneously with Parent Support Group* Collis Board Room, 593 Eddy Street, Providence, RI 02903 (driving directions) Leader: Stephanie Atlas, LICSW (Clinical Social Worker) Phone: (401) 444-3247 Co-leader: Karen Swartz, CCLS (Child Life Specialist) Phone: (401) 444-5613 Time: 6:30 p.m. – 8:00 p.m. Dates: Usually meets 2nd Wednesday of the Month. Please contact leaders for specifics and to RSVP.
CCFA is pleased to announce our new pages available on Facebook, MySpace, and Twitter
Facebook: Add CCFA New England Chapter as a friend: Click Here or search "Ccfa New England"
Facebook: Become a fan of CCFA New England: Click Here
Facebook: Add CCFA's Application - Stay Informed! Click Here or search "CCFA" in applications
MySpace: Add CCFA New England Chapter as a friend: Click Here or search "CCFA New England"
Twitter: Follow CCFA New England Chapter: Click Here or search CCFA_NewEngland (ne@ccfa.org)
New England Advocacy Efforts
A New England Chapter Advocacy Committee has been formed to support current local and national legislative efforts that will improve the lives of individuals living with inflammatory bowel disease. If you are interested in being a part of the New England Chapter Advocacy Committee, please contact Education and Support Manager, Kristin Armstrong by phone at: 781-449-0324 ext. 21 or via email: karmstrong@ccfa.org.
Thinking of selling or even junking your old car, RV, or boat? Instead, you can donate it to CCFA. With free towing, it's easy and you'll receive a tax deduction for your donation. Please call our office to learn more about this wonderful program! Or, you can donate your car online!
Become a CCFA Member today!
As a member of CCFA, you will help us further the cause while receiving special membership benefits. Membership benefits include subscription to the chapter newsletter and national magazine, discounts on CCFA books, and invitations to participate in chapter events and programs.
Notice: Shaws/Star Market has discontinued their Community Rewards program, effective May 1, 2010
If you know of any other local stores offering to donate a portion of their proceeds through a program, please notify us at 800 314-3459, or by email at ne@ccfa.org.
Honor A Loved One With A Tribute Donation
Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause.
You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00).
Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.
Please note if you would like us to send you free request envelopes for future tributes.
For Tribute card purchases: * Tribute cards may be purchased at $5 per card. * Please specify type: Honor, Memorial, or Blank
VOLUNTEERS NEEDED!
We are always looking for dedicated volunteers to help out at our events or within our office. Volunteers may register by completing the Volunteer Interest form and emailing it to ccomins@ccfa.org or faxing it to 781-449-0325: Attention Craig Comins. We will contact you to discuss volunteer opportunities that meet your interests and availability. Alternatively, you can call Craig Comins, Executive Director at 781-449-0324 ext. 13.
Workplace Giving
The New England Chapter of CCFA is proud to participate in the workplace giving campaign of Community Health Charities. At many workplaces throughout New England, employees can direct contributions to the charity of their choice. Look for our name and agency code in your company campaign. If you don't find us, please ask your employer to add CCFA.
