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SPECIAL HIGHLIGHTS
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CALENDAR/EVENTS
July 11, 2009

Announcing Upcoming IBD Kids' Club event

Any child with IBD between the ages of 8 to 18 can be a member

Saturday, July 11th, 2009

Museum of Science
Boston, MA
http://www.mos.org/

Tickets are on a first come first serve basis
Each child must be accompanied by an adult.
Admission is free of charge due to a generous donation given by the Museum of Science

To sign up or for more information please contact:
Kristin Armstrong 781-449-0324 ext. 21 | 
karmstrong@ccfa.org

 - - - - - - -

We are well into 2009, and that means more IBD Kids' Club activities! With many great events planned, this is shaping up to be our best year ever. Any child with IBD ages 8 to 18 can be a member, and we are always on the lookout for new activity ideas. Call Kristin Armstrong at: 781-449-0324 ext. 21 today to be a part of the IBD Kids' Club!

Introducing the New Hampshire Kids' Club
Contact Kristin Armstrong for more information
karmstrong@ccfa.org | 781-449-0324 x 21


July 19, 2009

Runners, walkers and wine enthusiast will join together for 13.1 miles through the beautiful vineyards of the Carneros wine region. Team Challenge is returning for our second year to experience this breathtaking course. Find out why Runners World Magazine selected the Napa-to-Sonoma Wine Country Half as BEST FINISH in their 2007 half marathon issue.

For more information contact:
Marisa Sarringhaus, Endurance Manager
msarringhaus@ccfa.org or 781-449-0324 x 12

or visit http://www.ccteamchallenge.org/teams/newengland

August 5, 2009

PLEASE SAVE THE DATE
 
Inflammatory Bowel Disease and the Elderly
Professional Event

Jointly Sponsored by:

CCFA logo    

August 5, 2009
6:00 p.m. – 8:00 p.m.
Ken's Steakhouse ~ Framingham, Massachusetts

Target Audience:  This course was designed for physicians and other allied health professionals who wish to expand their knowledge of key health issues and enhance their role in the recognition, treatment and preventative care of patients with inflammatory bowel disease (IBD).


Faculty:           Keynote Speaker: Steven N. Fine, MD
                        Chief, Division of Gastroenterology,
                        MetroWest Medical Center, Framingham, MA
 

Physician Continuing Education: This activity has been approved for AMA PRA Category 1 Credit(s) ™.

For additional information please contact:
Kristin M. Armstrong, Education & Support Manager
(781) 449-0324 x21,
karmstrong@ccfa.org

 We have submitted educational grant requests to various supporters, those who provide funding will be acknowledged on future announcements.

August 9, 2009

Falmouth Road Race

August 9, 2009 | 10 a.m.

For more information, please contact
Marisa Sarringhaus, Endurance Manager
msarringhaus@ccfa.org | 781-449-0324 x 12

August 18, 2009 - August 23, 2009

** SAVE THE DATE **

August 18-23, 2009

~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~

Our 2009 session will be held at Camp Scatico in Elizaville, NY

 Applications will be available in January 2009 for campers (ages 8-15), Leaders in Training (ages 16-17), and volunteers (age 18+).

 Learn more about this exciting program, or contact Kristin Armstrong, Education & Support Manager at karmstrong@ccfa.org or 1-800-314-3459 x 21.

December 6, 2009

Challenge Yourself to Change a Life!

Walkers and Runners of all abilities are encouraged to join Team New England as we train and fundraise for the Rock n Roll Las Vegas Half Marathon on December 6, 2009.  These teams will begin training with our walk and run coaches in August to prepare for this exciting race along The Strip and packed with Vegas entertainment!

Tell Me More

To learn how you can join Team New England, contact Marisa Sarringhaus at msarringhaus@ccfa.org or 781.449.0324x12

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SUPPORT GROUPS

NEW ENGLAND PATIENT SUPPORT PROGRAMS

POWER OF TWO

The Power of Two - connecting people facing challenges brought on by living with Crohn's disease and ulcerative colitis. Individuals will be matched with others in the New England area who have experienced similar medical and personal concerns for the purpose of one-on-one phone conversations or e-mail support. Whether you are seeking support or are willing to help others by sharing your own experiences, please contact Barbara Tabak, Program Coordinator at btabakvol@ccfa.org or call CCFA's New England Education and Support Manager Kristin Armstrong at (800) 314-3459 x21 or at karmstrong@ccfa.org.

This program is open to adults with IBD and those with children, family members or other loved ones with IBD. Families will also be matched by way of the parents.


**If you are a first-time support group attendee,
please contact our Education and Support Manager, Kristin Armstrong 
at 781-449-0324x21 or karmstrong@ccfa.org before attending**

2009 Support Group Meeting Dates

Please note: We always are seeking individuals with a desire to become Support Group Leaders or co-leaders. If you, or someone you know, is interested in this opportunity, please feel free to call our ESM at 1-800-314-3459 or 781-449-0324x21, karmstrong@ccfa.org.
All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

*All attendees of CCFA support groups are strongly encouraged to become members of the organization. If you have any questions regarding this policy, please contact our ESM at: 781-449-0324x21 or at karmstrong@ccfa.org.

MASSACHUSETTS

Arlington
Arlington, MA public library
Contact: Kristin Armstrong
Phone: 781-449-0324 x 21
E-mail: karmstrong@ccfa.org 
    
Tues, May 19th - 6:30pm to 8:15pm
Tues, June 23rd - 6:30pm to 8:15pm

Location:
4th floor conference room
Robbins Library
700 Massachusetts Avenue
Arlington, MA 02476
directions: http://www.robbinslibrary.org/about/hours-directions

Berkshire
Location: Berkshire Medical Center, Dining Room A, 725 North Street, Pittsfield, MA
Leader: Faith Newmark
Phone: (413) 442-2276
Email: FNewmark@Berkshire.RR.com
Co-leader: Donna Volpi
Phone: (518) 733-0278
Email: donnavolpi@hotmail.com
Time: 5:30 p.m.
Dates: MONDAY EVENINGS

Boston
Children's Hospital Boston Parent & Family IBD Support Group
Location: Children's Hospital Boston, 300 Longwood Avenue, Boston, MA
Leader: Kate Donovan
Phone: 617-355-6416
Email: kate.donovan@childrens.harvard.edu
**Please check back for meeting updates**

Burlington
J-pouch support

Location: Lahey Clinic, 41 Mall Road, Burlington, MA
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Phone: 978-750-4225
Email: Donna.l.Loehner@lahey.org
Dates: SOME WEDNESDAY EVENINGS.(call for dates)

Burlington
Ostomy Association of Boston (OAB) Meetings

Location: 1st Floor Training Room, 31 Mall Road, Burlington, MA
(driving directions)
Leader: Kerry Casey, RN, CETN
Email: Kerry.M.Casey@lahey.org
Co-leader: Donna Loehner, RN, CETN
Time: 7:00 p.m. – 9:00 p.m.
Dates: WEDNESDAY EVENINGS EVERY OTHER MONTH (call for dates)

Martha's Vineyard
Location: Contact leaders for location of each meeting - call for details.
Leader: Kathy Chaves
Phone: (508) 693-5164
Email: Chavesvnyd@aol.com
Co-leader: Jen Combra Phone: (508) 696-0045
Time: 7:00 p.m.
Dates: 3rd TUESDAY OF EACH MONTH

Methuen
Location: Holy Family Hospital, 1st Floor Boardroom, 70 East Street, Methuen, MA
Leader: Judith Tompson
Time: 7:00 – 9:00 p.m.
Dates: 3rd WEDNESDAY OF EACH MONTH

**For more information regarding this group, please contact Kristin Armstrong, CCFA Education Manager at: 781-449-0324 ext. 21 or via email at: karmstrong@ccfa.org.**

Worcester
If you are interested in starting another support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.

MAINE

If you are interested in starting a support group in this area, please call Kristin Armstrong at 781-449-0324 ext. 21.

NEW HAMPSHIRE

Manchester
Location: Dartmouth Hitchcock Medical, East Conference Room, 100 Hitchcock Way, Manchester, NH 03104
Leader: Jade Riberdy, RN
Phone: (603) 630-7378
Email: peacecreek_jade@yahoo.com
Time: 6:20 p.m. - 7:50 p.m.
Dates: MONDAY EVENINGS - call for dates.
Dates: February 9, 2009.

If you are interested in starting another support group in this area, please call Kristin Patmos at 781-449-0324 ext. 21.

RHODE ISLAND

Providence
Support Group for Women with IBD
Location: Women and Infants' Hospital, 100 Dudley Street, Lower Level Classroom, Providence, RI  02903
Leader: Nancy Botelho, RNP
Phone: (401) 453-7953
Email: Kathleen Primo at kprimo@wihri.org
Co-leader: Sumona Saha, MD
Phone: (401) 453-7953
Email: ssaha@wihri.org
Time: 6:00 p.m. – 7:00 p.m.
Dates: 1st WEDNESDAY OF EACH MONTH

Providence
Support Group for Parents of Children with IBD
Location: Hasbro Children's Hospital IBD Support Group, Collis Board Room, 593 Eddy Street, Providence, RI 02903
Leaders: Pedi GI Nurses (leaders rotate)
Phone: Nurses Line: (401) 444-5805
Co-leader: Russell Vigliotti
Phone: (401) 831-7656
Email: mjrv184@worldnet.att.net
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

Providence
Pediatric Patient Support Group

Location: *Group meets simultaneously with Parent Support Group*
Collis Board Room, 593 Eddy Street, Providence, RI 02903
(driving directions)
Leader: Stephanie Atlas, LICSW (Clinical Social Worker)
Phone: (401) 444-3247
Co-leader: Karen Swartz, CCLS (Child Life Specialist)
Phone: (401) 444-5613
Time: 6:30 p.m. – 8:00 p.m.
Dates: Usually meets 2nd Wednesday of the Month.  Please contact leaders for specifics and to RSVP.

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MORE INFORMATION

CCFA ON FACEBOOK!

CCFA is pleased to announce our new pages available on Facebook

Add CCFA New England Chapter as a friend:
Click Here or search "Ccfa New England"

Become a fan of CCFA New England:
Click Here

Add CCFA's Application - Stay Informed!
Click Here or search "CCFA" in applications




New England Advocacy Efforts

A New England Chapter Advocacy Committee has been formed to support current local and national legislative efforts that will improve the lives of individuals living with inflammatory bowel disease. If you are interested in being a part of the New England Chapter Advocacy Committee, please contact Education and Support Manager, Kristin Armstrong by phone at: 781-449-0324 ext. 21 or via email: karmstrong@ccfa.org.

For more information on CCFA's national advocacy efforts, please go to http://www.ccfa.org/advocacy/?LMI=9



CCFA's New England Social Club!

CCFA Social Club Hikes the Blue Hills
Our mission is to plan social events that give CCFA patients and supporters a chance to get to know each other in a social environment and to fundraise for the CCFA.


Events are TBA - Please check back regularly.
Past events include a beer and cheese pairing at the Publick House, hiking the Blue Hills, trivia night at Clery's, and a Celtics game.



UPCOMING EVENTS:

Thursday, May 28 | 8 P.M.
Join us at
CitySide Bar & Grill!
1960 Beacon Street, Cleveland Circle, Brighton MA

This is a 21+ event
No cover charge - a $5.00 donation to CCFA is suggested

For more information, please contact:
Deanna:
risemand@yahoo.com 
Karen: bostonrg@hotmail.com
Patrick:
patrickeotoole@gmail.com 



Local & National IBD News!

* Falmouth Road Race success!
*
 Being open about Jewish diseases, by Shulamit Reinharz
Novel Intestinal E. Coli Linked to Crohn's Disease
Certolizumab pegol appears effective for Crohn's disease

Read more IBD news at www.ccfa.org

Donate Your Car

Thinking of selling or even junking your old car, RV, or boat?  Instead, you can donate it to CCFA.  With free towing, it's easy and you'll receive a tax deduction for your donation.  Please call our office to learn more about this wonderful program!  Or, you can donate your car online!


Become a CCFA Member today!

As a member of CCFA, you will help us further the cause while receiving special membership benefits.  Membership benefits include subscription to the chapter newsletter and national magazine, discounts on CCFA books, and invitations to participate in chapter events and programs. 

Individual memberships are only $30.  Join or renew today!


PLEASE NOTE:
Shaws Receipt Rewards is going electronic!

Paper receipts are no longer accepted.

To donate to CCFA, you now must register your Shaws Card online at:
http://www.albertsons.com/cp/shaws/

Once registered, please link your card number to our organization. CCFA's Community Rewards ID number is 49001018667.

You can earn rewards by making qualifying purchases at any Shaw's or Massachusetts Star Market on Tuesday, Wednesday, or Thursday. Shaw's will send a quarterly check to CCFA for 1% worth of qualifying purchases.

Download a Community Rewards Program flyer

If you know of any other local stores offering to donate a portion of their proceeds from collected receipts, please notify us at 800 314-3459, or by email at ne@ccfa.org and we will gladly participate in their program as well.




Honor A Loved One With A Tribute Donation

Making donations on behalf of others or in memory of others is a meaningful way of recognizing commitment to an important cause. 

You can make a tribute or memorial donation and have us send a tribute card (suggested minimum donation $25.00). 

Upon receipt of your donation, we will send a Tribute card to notify the specified individual of your kindness.

Please note if you would like us to send you free request envelopes for future tributes.

Your tribute gift can be mailed to our office or charged to a credit card by calling 1-800-314-3459 or at ne@ccfa.org
Or you can make a tribute donation quickly and easily using our online form.

Examples of our Tribute cards:
CCFA Purple
Kids Tribute

For Tribute card purchases:
* Tribute cards may be purchased at $5 per card.
* Please specify type: White, Purple, or Kids and also Honor, Memorial, or Blank


VOLUNTEERS NEEDED!

We are always looking for dedicated volunteers to help out at our events, with mailings and other office projects, and with our Take Steps walks.  Volunteers may register by completing the Volunteer Interest form and emailing it to ccomins@ccfa.org or faxing it to 781-449-0325: Attention Craig Comins.  We will contact you to discuss volunteer opportunities that meet your interests and availability.  Alternatively, you can call Craig Comins, Executive Director at 781-449-0324 ext. 13 or email ccomins@ccfa.org


Workplace Giving

The New England Chapter of CCFA is proud to participate in the workplace giving campaign of Community Health Charities.  At many workplaces throughout New England, employees can direct contributions to the charity of their choice.  Look for our name and agency code in your company campaign.  If you don't find us, please ask your employer to add CCFA.


Special Thanks to Mark Dilley for the top photo of Boston
http://www.markdilley.co.uk


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CONTACT INFO

New England Chapter

280 Hillside Avenue
Needham, MA 02494

Phone: (800) 314-3459 or (781) 449-0324
Fax: (781) 449-0325
Email: ne@ccfa.org

Craig Comins
Executive Director
Extension 13
Email: ccomins@ccfa.org 

Jess Adani
Development Manager
Extension 11
Email: jadani@ccfa.org

Kristin Armstrong
Education and Support Manager
Extension 21
Email: karmstrong@ccfa.org

Sarah Edwards
Administrative Coordinator
Extension 18
Email: sedwards@ccfa.org

Marianne Gibson
Walk Director, Take Steps
Extension 14
Email: mgibson@ccfa.org

Kellie LeRoux
Walk Manager, Take Steps
Extension 10
Email: kleroux@ccfa.org

Marisa Sarringhaus
Team Challenge Endurance Manager
Extension 12
Email: msarringhaus@ccfa.org

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