JACKSON PYPE INSPIRES METRO-DETROIT RESIDENTS TO TAKES STEPS TO FIGHT DIGESTIVE DISEASES
Crohn’s Disease Patient Enlists Others to Take Steps for Cures on June 20, 2015
Farmington Hills, MI –May 28, 2015 – Jackson Pype from Wixom is inspiring people in Metro-Detroit to participate in the Crohn’s & Colitis Foundation’s Metro-Detroit Take Steps Walk on June 20, 2015 at 9:00 am at Meininger Park in Royal Oak. Jackson, age 13, is living with Crohn’s disease which combined with ulcerative colitis, are painful, debilitating digestive diseases impacting over 1.6 million American adults and children, with as many as 150,000 under the age of 18.
Five days after Jackson was born he began to show signs that something was wrong. It took many different doctors until he was three years old to determine he had Crohn’s disease. After multiple ups and downs fighting and managing this disease Jackson is now a thriving teenager. Jackson and his family started to participate in Take Steps in 2011 to help support Camp Oasis (a camp for kids with Crohn’s or Colitis). During his first walk he began to see the sheer number of people who are diagnosed with Crohn’s and Colitis. He loves that his family & friends support him and CCFA through Take Steps and that the funds raised are to help find a cure and support those who have the diseases. He knows that someday there will be cures and he wants to be part of it.
Thousands of people will gather this spring at nearly 80 walk sites across the country to join the fight against Crohn’s disease and ulcerative colitis. The walks are family friendly festivals with activities for everyone including bands, games, activities, food and a leisurely walk through a community. Take Steps has raised over $60 million for research and patient support services and is committed to transforming the lives of those impacted by these diseases and leading them to a brighter future through well-funded, cutting-edge scientific research.
For more information on how to get involved with Take Steps and to find a 2015 walk site nearest you, please visit www.cctakesteps.org or contact Sarah Arminiak at 248-737-0900 Ext. 6 or firstname.lastname@example.org.
Thank you to, Medical Weight Loss Clinic, University of Michigan Crohn’s & Colitis Program, 99.5 WYCD, Beaumont Health, Colon Rectal Specialists, Henry Ford IBD Center, abbvie, Drip Drop, Jassen, Shire, Takeda and EY for sponsoring Metro-Detroit Takes Steps.
About Crohn's Disease and Ulcerative Colitis
Known collectively as inflammatory bowel diseases (IBD), Crohn’s disease and ulcerative colitis affects 1 in 200 people. They are painful, medically incurable diseases that attack the digestive system. Crohn's disease may attack anywhere along the digestive tract, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever and weight loss. Many patients require numerous hospitalizations and surgery. Most people develop the diseases between the ages of 15 and 35; however the incidence is increasing in children.
About Take Steps
Take Steps is the Crohn’s & Colitis Foundation of America’s national walk program. These walks raise funds for critical research and increase awareness of Crohn’s disease and ulcerative colitis, painful and unpredictable digestive diseases. Thousands of people will gather this year in more than 145 communities across the country. Our walks are family friendly festivals with activities for everyone including games, music, and great food. Funds raised through Take Steps will help transform the lives of those impacted by these diseases, and support CCFA’s critical research, education, and patient support programs. Walk with us today: get started at www.cctakesteps.org.
About the Crohn's & Colitis Foundation of America
The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD. For more information, visit www.ccfa.org, call 888-694-8872, join us on Facebook at www.facebook.com/ccfafb and www.facebook.com/ccfatakesteps, or follow CCFA and Take Steps on Twitter at www.twitter.com/ccfa and www.twitter.com/takesteps.
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Two years ago, Darlene Scully of Taylor, Mich., was struggling to manage her Crohn’s disease. She had undergone several surgeries to remove parts of her small bowel. Unable to digest a normal diet, she relied on a nightly infusion of total parental nutrition (TPN) to provide her calories and nutrients. She also received daily saline IVs to balance her hydration and electrolyte levels.
“I was losing a lot of weight, and I was scared,” recalls Scully. “But then doctors gave me hope.”
That hope came in the form of an intestine transplant, which now is an approved treatmentfor people with inflammatory bowel diseases, including Crohn’s disease and ulcerative colitis. An intestine transplant involves surgically removing the diseased intestine and replacing it with intestine from a compatible deceased donor.
Scully underwent a transplant in March 2013. While she admits her recovery was slow, she says she hasn’t looked back.
“My old days are gone, and my new life is beginning,” says Scully, whose new life includes eating the old-fashioned way – with a fork and a spoon.
Established in 2010, the Henry Ford Small Bowel and Multivisceral Transplant Programat Henry Ford Hospital is the first and only intestine transplant program in Michigan. Henry Ford surgeons perform intestine-only transplants, liver-intestine transplants, and transplants of the combined intestines, stomach, pancreas, and liver. Surgeries including multiple organs are possible because of the broader expertise of the Henry Ford Transplant Institute – one of the premier transplant programs in the United States.
“Over the last decade, advancements in surgical techniques and antirejection medications have allowed us to perform transplants for Crohn’s disease and ulcerative colitis,” says Marwan Kazimi, M.D., surgical director of Small Bowel and Multivisceral Transplant. “People with these conditions who choose intestine transplant generally live longer and healthier lives.”
Unlike TPN, which has a 60 percent survival rate after five years, intestine transplant increases thesurvival rate to 80 percent after five years,according to the Intestinal Transplant Registry. Furthermore, the majority of transplant patients no longer require TPN, thus eliminating related complications.
“Our goal is to provide highly coordinated care before, during, and following transplant, so our patients understand what’s happening every step of the way,” says Dr. Kazimi. A transplant nurse provides educational materials and support to patients and families, coordinates all testing and office appointments, and serves as the patient's liaison throughout the process.
“My transplant coordinator Nemie is my guardian angel,” says Scully. “She guided me through the process and helped me stay focused. She was with me all the time.”
For more information on intestinetransplants for Crohn’s disease and ulcerative colitis, go to www.henryford.com/transplant.