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Maryland / S. Delaware Chapter of CCFAAddress: 10400 Little Patuxent Parkway Suite 270 Columbia, MD 21044 | Phone, Fax, E-mail: Phone: (443) 276-0861 Fax: (443) 276-0865 Toll Free: (800) 618-5583 E-Mail: maryland@ccfa.org Alternate: rmilanchus@ccfa.org |

 
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Welcome to the Maryland / Southern Delaware Chapter. We have many new and exciting things happening in our chapter, and we want you to be a part of it all. In keeping with the mission of the organization, our chapter provides the best in educational offerings. It supports both local and national research projects through its fundraising efforts, and offers support to our patient and caregiver population. This year we have expanded the educational programming to three regional areas for the lay population and one major professional program for medical personnel. These educational efforts are being presented in the areas throughout the chapter's jurisdiction for the first time. This will enable our constituents from all locations to take part. Our national and international research efforts are making great headway in finding a cure for both Crohn's Disease and Ulcerative Colitis, but, all of these research efforts are extremely costly and require the help of our members to assure continued progress. Last year, our "Take Steps Walk" nationally raised over six million dollars to guarantee that the state-of-the-art research continues to narrow the gap between the diseases and the cure. You can help to advance that research success by joining one or both of your local chapter's Take Steps fundraisers being held at Sunset Park and the Boardwalk in Ocean City, MD on Saturday, May 1, 2010 or at Federal Hill Park, (overlooking the harbor), Baltimore, MD on Saturday, June 5, 2010. These two walks are slated to raise in excess of one quarter of a million dollars. Won't you help the cause by joining us? Details on how you can help are listed below. Until a cure is found, please know that we are here to provide you with support group involvement, research highlights and results.
 The Crohn's & Colitis Foundation of America Maryland/ South Delaware Chapter invites you to join us for: Understanding Inflammatory Bowel Diseases: What Every Patient Needs to Know Date: Tuesday, December 1, 2009 Time: 6:30 PM Registration 7 PM Program Place: University of Maryland Medical Center Shock Trauma Auditorium 22S. Greene Street Baltimore, MD 21201 Speaker: Dr. Raymond Cross Register: http://online.ccfa.org/site/Calendar?view=Detail&id=104181 ___________________________________________________________ Program topics include: • Overview of inflammatory bowel diseases • Review of current therapies and emerging research • Management of disease and treatment-related side effects • Question-and-answer session For more information, contact: Maryland@ccfa.org or (800) 618-5583 Supported by an educational grant from: 

The Crohn's & Colitis Foundation of America's Maryland/Southern Delaware Chapter is proud to announce that the Team Challenge half marathon endurance training fundraising program is now available locally in the Baltimore-Annapolis area! We are now beginning recruitment for our winter season for the Las Vegas Rock n' Roll Half Marathon. If you are interested in training locally for the Baltimore team, contact Jillian Griffin: email: jgriffin@ccfa.org phone: (646) 641-1427.
Viva Las Vegas!

SAVE THE DATE!  A co-ed residential camp for kids with Crohn's disease and Ulcerative Colitis Our 2010 session will be held at Camp Nock-A-Mixon located in Kintnersville, Bucks County, PA Applications will be available in January 2010 for campers (ages 9 -16), Leaders in Training (ages 17) and volunteers (19+) (Space is Limited) Click here to learn more about this exciting program, or contact Bob Milanchus, Executive Director at rmilanchus@ccfa.org or 443-276-0861
The chapter would like to offer it's heartfelt thanks and appreciation to the following pharmaceutical companies, who have graciously contributed to making our education programs possible. 




CCFA Community • Giving You the Tools to Cope Whether you're a newly diagnosed Crohn's or ulcerative colitis patient, or a friend or family member of someone with one of these diseases, join the thousands of others online at our online community and get the support you need.

Patient Support ProgramPower of TwoThe Power of Two program provides one-to-one support and compassion to patients and their families suffering from Crohn's disease and ulcerative colitis. Individuals participating in the program are matched to volunteers who have had similar challenges and experiences for phone or email conversations.This program is open to adults with IBD as well as parents of children with IBD. We are working to expand this program to serve spouses of people with IBD and teens.If you are seeking support, or if you are interested in volunteering to share your experiences with others, please contact Robert Milanchus at 443-276-0861 or at rmilanchus@ccfa.org

Clinical Trials
Protocol Number: 09-I-0175 Active Accrual, Protocols Recruiting New PatientsTitle: NIH Substudy for a Multicenter, Randomized, Double-Blind, Placebo-Controlled, Parallel-Group Proof-of-Concept Study to Assess the Efficacy, Safety, and Tolerability of Two Single IV Infusions of AIN457 10 mg/kg (Anti IL-17 Monoclonal Antibody) in Patients with Moderate to Severe Active Crohn's DiseasePurpose: Crohn's disease is an inflammatory bowel disease with major symptoms such as diarrhea and abdominal pain when the disease is in an active stage. AIN457 is a drug developed by NOVARTIS that is used to stop the action of Interleukin-17 (IL-17), a protein made by the body that contributes to many different kinds of inflammatory diseases, including Crohn's disease. AIN457 has not yet been approved by the Food and Drug Administration and is being developed for the potential treatment of various inflammatory diseases like rheumatoid arthritis and psoriasis, as well as Crohn's disease.Objectives: The main objective of the multicenter study (sponsored by NOVARTIS) is to determine whether AIN457 is safe and effective in the treatment of Crohn's disease, and if effective, how long the effect will remain. The main objective of the NIH sub-study is to obtain additional blood and gut biopsy tissue for monitoring biochemical changes in immune variables in response to study drug or placebo.Eligibility: Important eligibility criteria to consider for patients to be enrolled in the AIN457 trial include:Inclusion criteria:• Male or female; 18-75 years old • Diagnosis of Crohn's disease for at least 3 months prior to screening • Moderate to severe active Crohn's disease at baseline, defined as: CDAI ≥220 and ≤450 • Active disease despite prior treatment with stable dose of corticosteroids for 2 weeks, or immunosuppressant for at least 3 months (e.g. methotrexate, azathioprine).Exclusion criteria:• Subjects with symptoms associated with active bowel stricturing disease and pre-stenotic dilation on radiography. • Fistulizing disease if complicated by sepsis and/or untreated abscess. • Subjects with multiple bowel surgeries and clinically important short bowel syndrome defined as an inability to maintain caloric intake. • Prior therapy with rituximab. • Receiving corticosteroids dose equivalent to a >40mg dose of prednisone per day. • Subjects demonstrating clinical improvement due to other Crohn's therapy. • Subjects with active or history of clinically significant cardiac abnormalities.Design: The multicenter study plans to enroll seventy-two (72) subjects with moderate to severe active Crohn's disease that is not controlled by corticosteroids, immunosuppressant (e.g. methotrexate or purine metabolites) or anti-inflammatory treatment (e.g. 5-ASA). At baseline visit, if the eligibility of the subject is confirmed, the subject will be randomized (2:1 ratio) to receive either AIN457 or placebo administered as a 2 hours intravenous infusion. A total of 2 infusions will be given on day 1 and day 22 respectively. After infusions there will be a follow-up period of up to 18 weeks. For the NIH sub-study, additional blood will be drawn and a colonoscopy will be performed before the first infusion and after the second infusion.Once this study is completed, an extension study will be conducted that will offer access to AIN457. Patients who complete the current study may be eligible to enter the extension study and receive therapy with AIN457. Participating Site Contact Information: National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases (NIAID) Michael Yao, MD, NIH Principal Investigator • Tyra Estwick, RN, BSN, NIH Research Nurse
Building: 10 CRC, Room 6-3742 Building 10 CRC, Room 5-3750 Telephone: 301-594-0593 Telephone: 301-496-3429
The Home Telemanagement Trial (UC HAT) for Patients with Ulcerative ColitisThe purpose of the study is to determine if a home telemanagement system for patients with ulcerative colitis (UC HAT) improves clinical outcomes compared to routine care. A computer program will assign interested patients by chance to either the UC HAT or the routine care group.
Patients in the UC HAT group will be asked to complete self-testing each week at home using the system.
All patients will undergo research visits every 4 months for one year. Patients will complete a series of questionnaires at each visit that measure the patients disease activity, quality of life, IBD knowledge, medical compliance, and other parameters. Emergency room visits and hospitalizations will also be measured. A blood draw is required at each study visit.
A 5-Year, Registry Study of Humira (Adalimumab) in Patients with Moderately to Severely Active Crohn's Disease (CD) The proposed study will evaluate the safety of Humira (Adalimumab) in patients with moderately to severely active CD already receiving Humira as part of their medical treatment. Investigators will collect safety data over time in patients treated with Humira. This will assist in the clarification of the short and long-term safety profile of the medication. For more information, contact Lee Ann Pazulski at 410-706-4310
Oral and Rectal Budesonide for the Treatment of Extensive Ulcerative Colitis: A Pilot Study The purpose of this study is to evaluate whether the combination of oral and rectal budesonide is effective in the treatment of patients with moderately active ulcerative colitis (UC). In addition, the study will evaluate whether the combination of oral and rectal budesonide is better tolerated than conventional steroids. Tweny patients will be recruited in this open study. All eligible patients will receive a combination of oral budesonide and rectal budesonide for eight weeks. Both forms of budesonide will be tapered according to the investigators preference after week 8. Clinical visits will take place at bseline and 8 weeks. In addition, telephone follow up will take place at weeks 2, 4, 6, 10, 12, 26, and 52. Assessment of efficacy and safety will take place at the follow up clinic visit and at each telephone follow up. For more information, see trials.gov or call Nadia Cheevers at 410-706-3398

Challenge Yourself to Change a Life! Team challenge is the Crohn's & Colitis Foundation's new endurance training program. This exciting new fundraising program trains you to run or walk a half marathon while helping the Foundation raise funds to find a cure for ulcerative colitis and Crohn's Disease. Get More Information to find a Team in your Area.
For a list of doctors who have supported this chapter please see More Information below |
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Please note: All support group listings are subject to change. Please call the individual support group number or email listed below or call the chapter number above to confirm the meeting date, time, and place. ACTIVE SUPPORT GROUPS ANNE ARUNDEL COUNTY Annapolis Support Group Facilitator: Varda Amir-Orrel 1st Wednesday (monthly) 7 p.m. Sajak Pavilion (2nd Floor) next to Anne Arundel Medical Center 2002 Medical Parkway Annapolis, MD. 21401
We laugh, cry, vent and rant about our experiences with IBD (Inflammatory Bowel Diseases) We have facilitators who have lived with IBD for over 20 years! All ages, (including children) are welcome to attend. For more information please contact Varda at (410) 212-7755 or via email sam.i.colon@gmail.com BALTIMORE CITY The Herbert & Walter Samuelson Children's Hospital at Sinai New Adolescent Support Group for children ages 10 -15 and their Parents Facilitator: Michelle Fink Meets the 3rd Thursday of each month - 6:30p to 8:30p ** Holidays may cause rescheduling - please contact Michelle directly to confirm** Herbert & Walter Samuelson Children's Hospital at Sinai 2401 W. Bevedere Avenue Baltimore, MD 21215 Kids: This is your chance to share stories in confidence, make new friends, participate in kid friendly activities! Parents: This is your opportunity to meet and exchange ideas with other parents of kids with IBD!
For further information or questions please contact Michelle Fink at 410-375-2516
University of Maryland Medical Center Facilitator: Laura Stephens Meets on the 1st Thursday, Every Other Month, From: 6:30p to 7:30p 22 S. Greene Street Patient Resource Center 1st Floor Baltimore, MD The 1st meeting of 2009 will be held on January 8th, (the 1st is New Years Day) Featuring a presentation by Dr. Raymond Cross. Please RSVP to Laura Stephens: lauras@verizon.net
BALTIMORE COUNTY Towson Support Group Facilitators: Lori Gunning, RN and Nancy Dabkowski, RN Saint Joseph Medical Center 7601 Osler Drive Towson, MD 21204
This group is for Adult patients with Crohn's Disease and ulcerative colitis. Friends and Family are welcome to attend. The group meets Four times a year. Please call Community Outreach at 410- 337-1479 for more information. Pikesville Support Group Facilitator: Irene Blizzard Location: Woodholme Gastroenterology 1838 Greentree Road, Suite #400 Pikesville, MD 21208 Meetings will begin in September and meet every other month from 7:00 pm to 8:30 pm For exact dates, questions or additional information, please contact Irene Blizzard at ireneblizzard@msn.com HARFORD COUNTY Bel Air Support Group Facilitator: Denise Holcomb Meetings will begin in April 2008 No meetings during the summer months June - August Meetings will resume again on September 2nd. Christ Our King Presbyterian Church 10 Lexington Road Bel Air, MD 21014 (410) 838-4698 Come to share in the joy, pain, guts and glory of living with IBD! We meet from 7:30 p.m. to 9:00 p.m. in the Library on the 1st Tuesday of the month from September - May. No Summer Meetings, Patients with Crohn's and Ulcerative Colitis, Friends and Family are welcome to attend.
HOWARD COUNTY Columbia Support Group Facilitator: James Thomas Phone: (410) 750-7468 4th Tuesday monthly at 7 p.m. (no meeting in December or January) Wellness Center L-9 Columbia Medical Center 11055 Little Patuxent Parkway Columbia, MD WASHINGTON COUNTY Hagerstown Support Group Facilitator: Susan Wilson-Long & John Long Phone: (717) 762-0099 3rd Thursday of each month at 7:00 p.m. Washington County Free Library (2nd Floor Mezzanine, Elevator Available) 100 S. Potomac Street Hagerstown, MD For exact dates, questions or additional information please call the above number or email Susan or John at: ibdsupportgroup@gmail.com
SUPPORT GROUPS ON HOLD: CARROLL COUNTY Westminster Support Group On Hold GREATER BALTIMORE MEDICAL CENTER (GBMC) On Hold
ABINGDON ADOLESCENT SUPPORT GROUP On Hold FREDERICK COUNTY On Hold EASTERN SHORE On Hold ST. MARY COUNTY GROUP On Hold If you are interested in becoming a Support Group Facilitator for any of the groups listed above, or if you would like to start your own, please contact our office at 443.276.0861 or toll free 800.618.5583. |
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CHAPTER BOARD OF TRUSTEES Mary Glagola - President Mark Brodsky - President Elect Hank Campfield - Vice President Patrick Shurney - Treasurer Christine Lothen-Kline - Secretary Raymond Cross, MD - CMAC Chair BOARD MEMBERS Varda Amir-Orrel Roy Cubbler Denise Dory Jarrett Leeb Jon Martineau Michael Murphy Donna O'Neill Jerry Roschwalb Cynthia Rosenwald Tricia Wilson YOUTH ON BOARD Allie Rize
CHAPTER MEDICAL ADVISORY COMMITTEE | Theodore Bayless, M.D. Meyerhoff Digestive Disease Center JHH Blalock 4th Floor 600 North Wolfe Street Baltimore, MD 21287 410-955-4916 | Marshall Bedine, M.D. 10751 Falls Road, #301 Lutherville, MD 410-583-2633 | Steven Brant, M.D. (researcher IBD) 1503 East Jefferson Street Baltimore, MD 21231 410-614-0637 | Jerrold Canakis, M.D. 124 N. Main Street Berlin, MD 21811 410-641-2938 | Andrew Rosenstein, M.D. 7505 Osler Drive Suite #307 Towson, MD 21204 410-296-4210 | Raymond Cross, M.D. University of Maryland, IBD Program 22 S. Greene Street Suite N3W62 Baltimore, MD 21201 410-328-7244 | Carmen Cuffari, M.D. (pediatric) Johns Hopkins Hospital Division of Nutrition, Brady 320 600 Wolfe Street Baltore, MD 21287 410-955-8765 | Edward Wolf, M.D. Woodholme Gastroenterology and the Endocenters of Baltimore and Quarterfield Station 1838 Greene Tree Road, Suite 400 Baltimore, MD 21208 410-602-7782 | Mark Diamond, M.D. 9105 Franklin Square Drive Suite #308 Baltimore, MD 21237 410-574-5877 | Mark Flasar, M.D. University of Maryland, IBD Program 22 S. Greene Street, Suite #N3W62 Baltimore, MD 21201 410-328-5780
| Neil Goldberg, M.D. 7505 Osler Drive Suite #307 Towson, MD 21204 410-296-4210 | Mary Harris, M.D. Johns Hopkins Hospital Blalock 465 600 Wolfe Street Baltimore, MD 21287 410-955-4081 | Maria Oliva-Hemker, M.D. (pediatric) Johns Hopkins Hospital Pediatric GI, Grady 320 600 Wolfe Street Baltimore, MD 21287 410-614-2114
| Howard Kader, M.D.(pediatric) Pediatric Gastroenterology Sinai Hospital Medical Office Building, Suite #407 2411 West Belvedere Ave. Baltimore, MD 21229 410-601-8663
| Amin Khan, M.D. 7505 Osler Drive Suite #307 Towson, MD 21204 410-296-4210 | Stephen Kavic (surgeon) Maryland University Hospital 22 S. Greene Street Suite N3W62 Baltimore, MD 21201 410-328-6187 | Gerald Mullin, M.D. Johns Hopkins Hosptial 600 N. Wolfe Street Carnegie 464-B Baltimore, MD 21287 410-955-4910 | Kalpana Murthy, M.D. Pediatric Gastroenterology Sinai Hospital 2411 West Belvedere Ave, Suite #209 Baltimore, MD 21215 410-601-8663 | Adrian Park, M.D(G.I.surgeon). University of Maryland Medical Center 22 S. Greene Street, RM S4B14 Baltimore, MD 21201 410-328-7994
| Natarajan Ravendrhan, M.D. Digestive Diseases Associates 4660 Wilkens Ave, Suite #206 Baltimore, MD 21229 410-737-8490 | | David Tuchman, M.D. (pediatric) Pediatric Gastroenterology Sinai Hospital 2411 West Belvedere Ave, Suite#407 Baltimore, MD 21215 410-601-8663 | | |
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