new CCFA Community: Join the Discussion!
Sign up for CCFA's Free
E-mail Newsletter:
About CCFA
Living with IBD
Information Resource Center
CCFA Community
Disease Information
How You Can Help
Research
Chapters & Events
Take Steps
Team Challenge
Get Your Guts in Gear
CCFA Camp Oasis
IBD Support Services
Kids & Teens
Advocacy
Science & Professionals
Shop CCFA
Enter Keyword(s):
Google Custom Search

donate

join

find clinical trials

find physicians

corporate partners

contact us

press

site map

Maryland/S. Delaware Chapter

Address:
10400 Little Patuxent Parkway
Suite 270
Columbia, MD 21044

Phone, Fax, E-mail:
Phone: (443) 276-0861
Fax: (443) 276-0865
Toll Free: (800) 618-5583
E-Mail: maryland@ccfa.org
Alternate: lluther@ccfa.org
or rmilanchus@ccfa.org

 


SPECIAL HIGHLIGHTS

Take Steps logo

Saturday, June 14th started out beautifully, as the chapter set up for its inaugral "Take Steps" walk.  Over 300 eager walkers braved the heat and humidity, and arrived for the festivities, only to be turned away as an impending electrical storm approached and abruptly ended the event.

Our Chapter would like to extend its heartfelt thanks and appreciation to each individual who attended or raised funds for our mission.  Without your efforts, we would not have been able to raise in excess of $100,000!

We look forward to your involvement in our 2009 walk.  The date of that walk is May 23, 2009 and will take place at Federal Hill Park in Baltimore Maryland.

Once again, Thank you, Thank you, Thank you!

Your Maryland/Southern Delaware Chapter Staff


The Facts & Faces of Crohn's and Colitis

Free Educational Seminars

In 2008 and 2009 our chapter will be presenting a series of newly designed educational offerings that will span many topics regarding both pediatric and adult patient issues.  These programs will be described
as the planning for each is completed.

Keep a watchful eye on this site's Highlight Section for details of each seminar.

A Special "Thank You" is extended to all of the medical practitioners who are giving of their time and talents to present these educational programs.  In addition, the chapter would like to offer its heartfelt
thanks and appreciation to the following pharmaceutical companies, who have graciously contributed to making these programs possible, so that we may present them to you at no charge.

centocor

Elan   Osiris Therapeutics, Inc.

 Proctor and Gamble Pharmaceuticals

Salix Pharmaceuticals     

Shire      Sigma-Tau


Patient Education Event to Kick-Off
Bel Air (Harford County)
Support Group

September 2008
Date, place & time to be announced


Patient Education Event
 and Launch of NEW
Adolescent Support Group
that will meet at Sinai Hospital the 4th
Thursday of the Month

September 25, 2008

(Location to be announced at the end of August)


Frederick County Chamber of
Commerce Business Showcase

September 30, 2008
9:00am to 3:00pm

Holiday Inn & Conference Center
Frederick, Maryland

Come talk to us at our booth and learn
the latest information!


Patient Education Event
& Launch NEW Support
Group on Eastern Shore

October 2008


Sand Castle Hotel
Ocean City, Maryland

Presenters: Dr. Jerrold Cannakis & Associates


Patient Education Event & Launch
of NEW Support Group
in Frederick County

October 2008

Holiday Inn & Conference Center
Frederick, Maryland

More Information Forthcoming!


Support Group Facilitators
Training Meeting


October 23, 2008
6:30pm to 9:00pm

Sheraton Hotel
Columbia, Maryland


Pediatric Patient Education Event
National Aquarium in Baltimore


November 2, 2008
1:00pm Start

Details in the Calendar Section


General Patient Education Event
An Overview of IBD


November 8, 2008
Start time - 8:00am

Marriott Inner Harbor

Details in the Calendar Section


Patient Education Event


December 3, 2008
6:30pm to 9:30pm

Four Points Sheraton
Hagerstown, Maryland


Physician's CME Education Program
presented by the University of Maryland Hospital

April 2009

Marriott Inner Harbor
Baltimore, Maryland


Power of Two

Patient Support Program

Power of Two

The power of Two program provides one-to-one support and compassion to patients and their families suffering from Crohn's disease and ulcerative colitis.  Individuals participating in the program are matched to volunteers who have had similar challenges and experiences for phone or email conversations.

This program is open to adults with IBD as well as parents of children with IBD.  We are working to expand this program to serve spouses of people with IBD and teens.

If you are seeking support, or if you are interested in volunteering to share your experiences with others, please contact Laura Luther at 443-276-0861 or at lluther@ccfa.org


Young People

CLINICAL TRIALS

The Home Telemanagement Trial (UC HAT)
for Patients with Ulcerative Colitis

The purpose of the study is to determine if a home telemanagement system for patients with ulcerative colitis (UC HAT) improves clinical outcomes compared to routine care.  A computer program will assign interested patients by chance to either the UC HAT or the routine care group.

Patients in the UC HAT group will be asked to complete self-testing each week at home using the system.

All patients will undergo research visits every 4 months for one year. Patients will complete a series of questionnaires at each visit that measure the patients disease activity, quality of life, IBD knowledge,
medical compliance, and other parameters.  Emergency room visits and hospitalizations will also be measured.  A blood draw is required at each study visit.

If UC HAT is effective, the system could be used in the IBD community to improve clinical care or be used in patients with limited access to health care.

For further information, see:
http://clinicaltrials.gov/ct2/show/NCT00620126?term=telemanagement&rank=1
or call Nadia Cheevers at 410-706-3398


April 2009 is Restaurant
Fundraiser Month!

Dining Out

A simple way to
FUNdraise in your community.

Details in the Calendar Section


Team Challenge LA Team Photo

Challenge Yourself to Change a Life!

Team challenge is the Crohn's & Colitis Foundation's
new endurance training program.  This exciting
new fundraising program trains you to run or
walk a half marathon while helping the Foundation
raise funds to find a cure for ulcerative colitis

and Crohn's Disease. 

 

Team Challenge Rock 'n' Roll San Antonio
Half Marathon on November 16, 2008! 

CLICK HERE to find a Team in your Area
or for more informaton on joining the 
San Antonio Team Challenge Event.


For a list of doctors who have supported this chapter
please see More Information below






back to top


CALENDAR/EVENTS
November 2, 2008

Dolphin

PEDIATRIC PATIENT EDUCATION EVENT
Sunday, November 2, 2008 ~ 1:00pm

Spend a Sunday afternoon at the National Aquarium in Baltimore!
Refreshments & Aquarium visit and other surprises!

In partnership with Dr. Maria Oliva-Hemker,
Johns Hopkins Pediatric Gastroenterology
Program to feature presentations by:

Dr. Maria Oliva - Hemker of Johns Hopkins
Dr. Lynn Duffy - Innova Health Care
Dr. David Tuchman- Sinai Hospital
                        And
Dr. Carmen Cuffari of Johns Hopkins will
moderate a Youth Panel discussing IBD issues.
         

DIRECTIONS TO NATIONAL AQUARIUM

This Free of Charge program will start at 1:00pm.
Both patients and caregivers are welcome to attend.
Space is limited to the Pediatric patient and two
family members or caregivers.
To secure your reservation please call
the Crohn's & Colitis Foundation chapter office
at 443-276-0861 or toll-free 800-618-5583 by close
of business Thursday, October 30, 2008.

November 8, 2008

Family
Mom and KidsOlder Couple

GENERAL PATIENT EDUCATION EVENT
"An Overview of IBD"

Saturday, November 8, 2008
Marriott Inner Harbor Hotel
Start time - 8:00am

Dr. Raymond Cross, Patient Education Program Director
University of Maryland Medical System

Keynote Lecture: Dr. Ted Bayless - Johns Hopkins
"Updates in Medical Therapy for IBD"

Presentation #2 - Vicky Wilson, RN
"Coping with Chronic Illness"

Presentation #3 - Dr. Gerald Mullins - Johns Hopkins
"Alternative Medications & Nutritional Therapy in IBD"

Presentation #4 - Dr. Raymond Cross - University of Maryland
"Updates on Diagnostic Studies in IBD"

Presentations to be followed by a Question & Answer Period and Break

Break-Out Sessions Immediately Following Break:

                                  Session 1:
                           "Surgery in IBD"
Dr. Howard Berg - Sinai Hospital & St. Joseph Hospital
Dr. Stephen Kavic - University of Maryland Medical System

                                  Session 2:
                 "Women's Health Issues in IBD"
Dr. Aline Charabaty - Georgetown University Hospital
Dr. Mark Flasar - University of Maryland Medical System

                                  Session 3:
                     "Pediatric Issues in IBD"
Dr. Samra Blanchard - University of Maryland Medical System
Dr. Carmen Cuffari - Sinai Hospital

This free of charge program will start at 8:00am with a
Continental Breakfast, followed by a light Lunch. Both
patients and caregivers are welcome to attend.
Space is Limited. To secure your reservation, please call
the Crohn's & Colitis Foundation chapter office at
443-276-0861 or toll-free 800-618-5583 by close
of business Wednesday, November 5, 2008.

DIRECTIONS TO MARRIOTT INNER HARBOR HOTEL

April 1, 2009 - April 30, 2009

Dining Out

April 2009 is Restaurant Fundraiser Month!
A simple way to FUNdraise in your community.

A restaurant fundraiser requires very little planning or 
fundraising on your part.  Most restaurants participate
in this type of fundraiser because it increases their
community image and introduces their restaurant to
customers who might not otherwise eat there.  Check
with your local restaurants - many of them are encouraged
to support community events.

The restaurant gives back a percentage of sales on a designated
evening for all of the customers that you bring in.  Remember the
more people who know about your fundraiser, the more money
you will be able to raise.  Call Family, Friends and Co-workers
to let them know when and where your event will be held. Put
flyers up around your neighborhood, send emails to everyone in
your address book.
  
Let's do the math...the average amount raised from a Restaurant
Fundraiser is between $100 and $500.  If we can get just 100
people to do one, then there is the potential to raise between
$10,000 and $50,000 towards finding a cure!
 
All those participating in the Restaurant Fundraiser will be
entered into a drawing for a "Special Prize".  Please email
Laura at LLuther@ccfa.org or Bob at BMilanchus@ccfa.org
and let us know the date and location of your event by
March 31, 2009 to be included in the drawing. 
 
This is an easy way to get together with friends, raise funds and
awareness about Crohn's Disease and ulcerative colitis!

back to top


SUPPORT GROUPS

Please note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

ACTIVE SUPPORT GROUPS

ANNE ARUNDEL COUNTY
Annapolis Support Group
Facilitator: Varda Amir-Orrel
1st Wednesday (monthly) 7 p.m.
Sajak Pavilion (2nd Floor)
next to Anne Arundel Medical Center
2002 Medical Parkway
Annapolis, MD. 21401

We laugh, cry, vent and rant about our experiences
with IBD (Inflammatory Bowel Diseases)
We have facilitators who have lived with IBD for
over 20 years!   All ages, (including children)
are welcome to attend.  For more information please
contact Varda at (410) 212-7755 or via email
sam.i.colon@gmail.com

BALTIMORE CITY
University of Maryland Medical Center
Facilitator: Laura Stephens
Regular schedule will resume in September
on the 1st Thursday of each month - 6:30p to 7:30p
22 S. Greene Street
Patient Resource Center
1st Floor
Baltimore, MD

BALTIMORE COUNTY
Towson Support Group
Facilitators: Lori Gunning, RN and Nancy Dabkowski, RN
Saint Joseph Medical Center
7601 Osler Drive
Towson, MD 21204

This group is for Adult patients with Crohn's Disease and
ulcerative colitis.  Friends and Family are welcome to attend.
The group meets Four times a year.  Please call Community
Outreach at 410- 337-1479 for more information.

Pikesville Support Group
Facilitator: Irene Blizzard
Location: Woodholme Gastroenterology
               1838 Greentree Road, 
               Suite #400
               Pikesville, MD 21208

Meetings will begin in September and meet every other month
from 7:00 pm to 8:30 pm

The Schedule is as follows:
Monday      September 8, 2008
Monday      November 3, 2008
Monday      January      5, 2009
Monday      March       2,  2009
Monday      May          4,  2009

For questions or additional information, please contact
Irene Blizzard at ireneblizzard@msn.com

HARFORD COUNTY
Bel Air Support Group
Facilitator: Denise Holcomb
Meetings will begin in April 2008
No meetings during the summer months June - August
Meetings will resume again on September 2nd.
Christ Our King Presbyterian Church
10 Lexington Road
Bel Air, MD 21014
(410) 838-4698

Come to share in the joy, pain, guts and glory of living with IBD!
We meet from 7:30 p.m. to 9:00 p.m. in the Library on the 1st
Tuesday of the month from September - May.  No Summer Meetings,
Patients with Crohn's and Ulcerative Colitis, Friends
and Family are welcome to attend.

HOWARD COUNTY
Columbia Support Group
Facilitator: James Thomas
Phone: (410) 750-7468
4th Tuesday monthly at 7 p.m.
(no meeting in December or January)
Wellness Center L-9
Columbia Medical Center
11055 Little Patuxent Parkway
Columbia, MD
 

SUPPORT GROUPS ON HOLD:

CARROLL COUNTY
Westminster Support Group
On Hold

GREATER BALTIMORE MEDICAL CENTER (GBMC)
On Hold

ABINGDON ADOLESCENT SUPPORT GROUP
On Hold

FREDERICK COUNTY
On Hold

EASTERN SHORE
On Hold

ST. MARY COUNTY GROUP
On Hold

If you are interested in becoming a Support Group Facilitator
for any of the groups listed above, or if you would like to
start your own, please contact our office at 443.276.0861
or toll free 800.618.5583.

back to top


MORE INFORMATION

 

CHAPTER BOARD OF TRUSTEES

Mary Glagola - President
Mark Brodsky - President Elect
Hank Campfield - Vice President
Patrick Shurney - Treasurer
Christine Lothen-Kline - Secretary
Raymond Cross, MD - CMAC Chair

BOARD MEMBERS

Varda Amir-Orrel
Roy Cubbler
Denise Dory
Jarrett Leeb
Michael Murphy
Donna O'Neill
Jerry Roschwalb
Cynthia Rosenwald
Tricia Wilson

YOUTH ON BOARD

Allie Rize


CHAPTER MEDICAL ADVISORY COMMITTEE

Theodore Bayless, M.D.
Meyerhoff Digestive Disease Center
JHH Blalock 4th Floor
600 North Wolfe Street
Baltimore, MD 21287
410-955-4916
Marshall Bedine, M.D.
10751 Falls Road, #301
Lutherville, MD
410-583-2633
Howard Berg, M.D. (surgeon)
21 Crossroads, Suite 355
Owings Mills, MD
410-363-6664
Steven Brant, M.D.(researcher IBD)
1503 East Jefferson Street
Baltimore, MD 21231
410-614-0637
Jerrold Canakis, M.D.
124 N. Main Street
Berlin, MD  21811
410-641-2938
Raymond Cross, M.D.
University of Maryland, IBD Program
22 S. Greene Street
Suite N3W62
Baltimore, MD 21201
410-328-7244
Carmen Cuffari, M.D. (pediatric)
Johns Hopkins Hospital
Division of Nutrition, Brady 320
600 Wolfe Street
Baltore, MD 21287
410-955-8765
Edward Wolf, M.D.
Woodholme Gastroenterology and the Endocenters
of Baltimore and Quarterfield Station
1838 Greene Tree Road, Suite 400
Baltimore, MD 21208
410-602-7782
Mark Diamond, M.D.
9105 Franklin Square Drive
Suite #308
Baltimore, MD 21237
410-574-5877
Mark Flasar, M.D.
University of Maryland, IBD Program
22 S. Greene Street, Suite #N3W62
Baltimore, MD 21201
410-328-5780
Neil Goldberg, M.D.
7505 Osler Drive
Suite #307
Towson, MD 21204
410-296-4210
Mary Harris, M.D.
Johns Hopkins Hospital
Blalock 465
600 Wolfe Street
Baltimore, MD 21287
410-955-4081
Maria Oliva-Hemker, M.D. (pediatric)
Johns Hopkins Hospital
Pediatric GI, Grady 320
600 Wolfe Street
Baltimore, MD 21287
410-614-2114
Howard Kader, M.D.(pediatric)
Pediatric Gastroenterology Sinai Hospital
Medical Office Building, Suite #407
2411 West Belvedere Ave.
Baltimore, MD 21229
410-601-8663

Amin Khan, M.D.
7505 Osler Drive
Suite #307
Towson, MD 21204
410-296-4210

Stephen Kavic (surgeon)
Maryland University Hospital
22 S. Greene Street
Suite N3W62
Baltimore, MD 21201
410-328-6187

Gerald Mullin, M.D.
Johns Hopkins Hosptial
600 N. Wolfe Street
Carnegie 464-B
Baltimore, MD 21287
410-955-4910

Kalpana Murthy, M.D.
Pediatric Gastroenterology Sinai Hospital
2411 West Belvedere Ave, Suite #209
Baltimore, MD 21215
410-601-8663

Adrian Park, M.D(G.I.surgeon).
University of Maryland Medical Center
22 S. Greene Street, RM S4B14
Baltimore, MD 21201
410-328-7994
Natarajan Ravendrhan, M.D.
Digestive Diseases Associates
4660 Wilkens Ave, Suite #206
Baltimore, MD  21229
410-737-8490

Andrew Rosenstein, M.D.
7505 Osler Drive, Suite #307
Towson, MD 21204
410-296-4210

David Tuchman, M.D. (pediatric)
Pediatric Gastroenterology Sinai Hospital
2411 West Belvedere Ave, Suite#407
Baltimore, MD 21215
410-601-8663

 

 

back to top


CONTACT INFO

Maryland/S. Delaware Chapter

10400 Little Patuxent Parkway
Suite 270
Columbia, MD 21044

Phone: (443) 276-0861
Fax: (443) 276-0865
Toll Free: (800) 618-5583

Your Local Staff

Robert J. Milanchus- Executive Director rmilanchus@ccfa.org

Laura Luther- Development Manager  lluther@ccfa.org

Suellen Seigel - Development Manager  sseigel@ccfa.org 

back to top