If you have been diagnosed with IBD you are invited to join CCFA Partners - a patient powered research network brought to you by CCFA and the University of North Carolina School of Medicine. CCFA Partners is an internet-based study of patients with Crohn's disease or ulcerative colitis. By filling out a short survey twice a year, patients can have an active role in the research process.
But CCFA Partners is more than a survey - you will also have access to tracking tools and a community of thousands to help you manage your own health!
- Participate in ground breaking research
- Propose, discuss and vote on research questions and topics
- Connect your mobile health apps to better manage your disease
CCFA Partners Kids & Teens is a parallel study of childhood IBD. Nearly one fourth of individuals with IBD are diagnosed during childhood or teenage years. The needs of these young patients are different, as they are undergoing rapid physical and mental growth and development while coping with this illness. By joining, kids and their parents will complete online surveys twice a year, and receive feedback directed at the specific quality of life issues affecting kids and teens with IBD.
For more information and to register, click HERE