Help IBD Patients: Donate Now
Sign up for CCFA's Free
E-mail Newsletter:
About CCFA
Living with IBD
Information Resource Center
CCFA Community
IBD Management Choices
Disease Information
How You Can Help
Research
Chapters & Events
Take Steps
Team Challenge
Get Your Guts in Gear
CCFA Camp Oasis
IBD Support Services
Kids & Teens
Advocacy
Science & Professionals
Bookstore
Enter Keyword(s):
Google Custom Search

donate

join

find clinical trials

find physicians

corporate partners

contact us

press

site map

Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone:     (310) 478-4500
Fax:         (310) 478-4546
E-mail:
losangeles@ccfa.org 

 Follow the Greater Los Angeles/Orange County Chapter on facebook!

 


SPECIAL HIGHLIGHTS



SUMMER 2012

 

WalkDate
Santa Barbara Take Steps for Crohn's & ColitisMay 19, 2012
Los Angeles Take Steps for Crohn's & ColitisJune 23, 2012
Orange County Take Steps for Crohn's & ColitisJune 24, 2012
Long Beach Take Steps for Crohn's & ColitisFall 2012
Santa Clarita Take Steps for Crohn's & ColitisFall 2012



Join Team Challenge in Hawaii

or Wine Country in 2012!

Team Challenge Kona, Hawaii 2012 Team Challenge 2012 Team Challenge Napa to Sonoma - 2012

We're heading back to Kona, Hawaii for the Kona Half marathon on June 24th, and to Wine Country for the Napa to Sonoma Half marathon on July 15th. The Napa to Sonoma race is sold out - your only way in is with Team Challenge! We cover all your travel expenses and train to walk, run or jog a half marathon in these amazing destinations.

Would you like to be a part of the next Team Challenge season? We begin training soon for the Napa-to-Sonoma or Kona Half Marathon season!  

Train with us and see why we have a 100% success rate on race day. You can do it! (And for a great cause!) Click here to learn more, or RSVP to any of the following information meetings:

Thursday, February 16, 2012 at 7:30 p.m. – Runnergy
Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle
Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB
Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse
Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse
Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High
Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's
Sunday, March 11, 2012 at 4:00 p.m. – Piknic



Free Patient Education Program

Santa Barbara Patient Education Workshop

Preventive Health: Vaccinations and Cancer Screenings for IBD

CenCal Health
Saturday, February 18, 2012
12:00 - 2:00 PM

RSVP Online

Presented by

Thomas V. Aguirre, M.D.
Santa Barbara Gastroenterology Consultants Medical Group

For more information, call Iyad Zabaneh or Lindsay Brown
at toll free number (866) 831-9157 or (310) 478-4500.



PROGRAM SLIDES


Camp Oasis Applications Now Available

July 20-25, 2012

~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~

Our 2012 session will be held at The Painted Turtle in Lake Hughes, CA. Activities include water and land sports, visual and performing arts, climbing wall, horseback riding and much more!

Applications are now available for campers ages 7-16, Leaders in Training age 17, and volunteers (age 19+).

Contact Paddy Harrigan at pharrigan@ccfa.org or 310-694-3340 for more information.


The Voice

A bimonthly eNewsletter of The Greater Los Angeles/Orange County Chapter

February/March Issue           April/May Issue     
    

      June/July Issue              August/September Issue
    

October/November Issue              December Issue      
    



Need more Info on IBD?
Check Out Our Lending Library Collection

Our Lending Library features the latest publications on IBD. CCFA members can borrow books from our office collection via phone, e-mail, or in person. Call us at 310-478-4500, or e-mail losangeles@ccfa.org to borrow books today.

Lending Library Booklist



We Love Our Volunteers!

(Volunteer Form)

Would you enjoy

  • office work?
  • event preparation?
  • "day-of event" assistance?
  • special projects?

Join Our Star Volunteer Team. 

If you are interested in volunteering please contact CCFA at (310) 478-4500, or complete the online volunteer form.

back to top


CALENDAR/EVENTS
January 29, 2012

CCFA Orange County Youth Club Event
Let's Go Bowling!

Sunday, January 29, 2012
2:00 - 4:00 p.m.


3415 Michelson Drive
Irvine, CA 92612

Space is limited so, RSVP today!

Bowling is limited to kids and teens ages 7-18 with IBD.
Parents are welcome to accompany kids.

Pizza will be served

Come visit with old friends and meet some new ones!

For more info call Lindsay Brown, Regional Education and Support Manager
(310) 478-4500

February 18, 2012

Santa Barbara Patient Education Workshop

Preventive Health: Vaccinations and Cancer Screenings for IBD

Satruday, February 18, 2012
12:00 - 2:00 p.m.
Location: CenCal Health
Presented by
: Thomas V. Aguirre, M.D.

RSVP Online

March 31, 2012

Los Angeles Patient and Family Education Conference
Saturday, March 31, 2012
8:00 a.m. - 1:00 p.m.
Covel Commons, UCLA

Online Registration Available in February 2012

May 3, 2012


5th Annual Women of Distinction Luncheon

Thursday, May 3, 2012

HONORING

Jamie Lee Curtis · Barbara Herman · Pamela Pierce

Fashion show presented by Badgley Mischka

THE BEVELY HILLS HOTEL

Funds raised will support cutting-edge medical research and CCFA programs for those who suffer from Corhn's disease and ulcerative colitis

For more information: (310) 478-4500

May 19, 2012

Take Steps Santa Barbara Walk
Saturday, May 19, 2012, 4:00 p.m.
Chase Palm Park, Santa Barbara

Sign up today! www.cctakesteps.org/santabarbara

May 24, 2012

Orange County Treatments Program
Thursday, May 24, 2012
Location in Orange County TBD

Online RSVP Available April 2012

June 23, 2012

Take Steps Los Angeles Walk
Saturday, June 23, 2012, 4:00 p.m.
Santa Monica City Hall

Sign up today! www.cctakesteps.org/losangeles

June 24, 2012

Take Steps Orange County Walk
Sunday June 24, 2012, 4:00 p.m.
Aldrich Park, UCI Campus

Sign up today! www.cctakesteps.org/orangecounty

June 24, 2012

Team Challenge Kona Half Marathon
Sunday, June 24, 2012

Click here to learn more, or RSVP to any of the following information meetings:

  • Thursday, February 16, 2012 at 7:30 p.m. – Runnergy
  • Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle
  • Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB
  • Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse
  • Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse
  • Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High
  • Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's
  • Sunday, March 11, 2012 at 4:00 p.m. – Piknic
July 15, 2012

Team Challenge Napa Half Marathon
Sunday, July 15, 2012

Click here to learn more, or RSVP to any of the following information meetings:

  • Thursday, February 16, 2012 at 7:30 p.m. – Runnergy
  • Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle
  • Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB
  • Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse
  • Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse
  • Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High
  • Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's
  • Sunday, March 11, 2012 at 4:00 p.m. – Piknic
September 25, 2012

San Fernando Valley Treatments Program
Tuesday, September 25, 2012
Location in Burbank TBD

Online RSVP Available in August, 2012

October 1, 2012 - October 31, 2012
16th Annual CCFA Golf Classic
Date & Location TBD
October 13, 2012

Orange County Patient and Family Education Conference
Saturday, October 13, 2012
Orange County - TBD

Online Regsitration Available in September, 2012

December 1, 2012 - December 31, 2012

Team Challenge Last Vegas Half Marathon
Date TBD

Information Meetings Available in July/August 2012

December 8, 2012

Nutrition & IBD: Choices for Adults & Kids
Saturday, December 8, 2012
Riverside County - TBD

Online RSVP Available in November 2012

back to top


SUPPORT GROUPS

Please Note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

PLEASE JOIN US….
Our casual support group meetings are held in a warm, welcoming and safe atmosphere. All meetings are offered free of charge. People with IBD, their families and friends are encouraged to attend.

WHAT?! We don't have a support group in your area? Would you like to help us? Please contact our office at (310) 478-4500 to inquire about becoming a trained support group facilitator. Facilitator opportunities are also available for existing groups!


20-30s Social/Support Groups

To join the groups and participate in our monthly social gatherings, Yahoo groups email distribution, and guest speaker series, contact our office at (310) 478-4500.

LA 20-30s Social/Support Group Chair: Adina Bodenstein, adina.bodenstein@gmail.com
OC 20-30s Social/Support Group Chair: Amy Owens


Camp Oasis LogoCamp Oasis Youth Club
Connecting CCFA kids and families throughout
the year via weekend recreational activities!

To join the Youth Club and to participate in our monthly recreational therapy programs and guest speaker series, contact our office at (310) 478-4500.

LA Youth Club Chair: Stacy Dylan
OC Youth Club Chair: None; call our office if you're a parent of child with IBD, and are interested in becoming an OC Youth Club Chair.
(These Moms help organize events and run the parent discussion groups.)



Facilitator Guided Support Groups

Support Group Meeting Calendar
Support Groups Calendar

Click on Calendar above to view meeting times and dates, or check the Support Group list below.

Hawaii
Kaiser Permanente Honolulu Clinic
1010 Pensacola Street, Conference Room 2E
Honolulu, HI 96814
2nd Monday of every month, 7:00-8:30 PM
No Meeting in December

Facilitator: Robert Smith, ccfa_hawaii@yahoo.com

Los Angeles East J-Pouch Group*
USC Norris Cancer Hospital
1441 Eastlake Avenue
Los Angeles, CA 90033
Lobby Conference Room
Meets quarterly on the first Saturday of the month in March, June, September, and December.

Facilitators: Dorothy Rocha, MSW, LCSW & Yolee Casagrande, RN, (323) 865-3156
* We partner with this group.

Los Angeles-West
CCFA Greater Los Angeles/Orange County Chapter
1640 S. Sepulveda Blvd., Ste. 214
Los Angeles, CA 90025 
3rd Monday of every month, 6:30-8:30 PM (5th Monday in January due to MLK holiday)

Facilitator: Tillie Huber, R.N. (800) 677-5252

Greater San Gabriel Valley
Foothill Nursing Center
401 West Ada
Glendora, CA 91741
3rd Thursday of every month, 6:00 pm - 7:30 pm (no meeting in April)

Facilitator: Gwen Hards, (626) 335-6100, glhbeach@hotmail.com

Orange - UCI Medical Center*
H.H. Chao Comprehensive Digestive Disease Center
101 The City Drive S
Chao Comprehensive Cancer Center, 2nd Floor Lobby Area
Orange, CA 92868
1st Wednesday of every month, 6:30 - 8:30 PM

Facilitator: Kristin McMaster, MSW (714) 456-7057

* We partner with this group.

Orange*
Ostomy Association of Orange County
P.O. Box 7041
Orange, CA 92863

* We partner with this group.

North Orange
Los Alamitos Medical Center
3751 Katella Avenue
Los Alamitos, CA 90720
Last Monday of every month, 6:00 - 8:00 PM

Facilitator: Darrin Pagenkopp, MsEd, (714) 280-6377

Orange County Parent Network Group
Join parents whose children suffer from Crohn's and Colitis in sharing information and support. The group hosts guest speakers on request to discuss various topics that involve children's health with IBD.

The Bell Tower
22232 El Paseo
Rancho Santa Margarita, CA 92688
Meets quarterly on the 3rd Monday of the month in March, June, September, and December, 6:00 - 8:00 p.m.

2012 Guest Speakers:

  • March is TBD

Facilitator: Pamela George, pammyg05@att.net

South Orange County Young Adult Support Group
28281 Crown Valley Parkway Suite 202
Laguna Niguel, CA 92677
3rd Tuesday of every month,  from 6:30 - 8:00 PM

Facilitator: Jennifer Martin, (949) 916-5060, drjennifer.martin@yahoo.com

San Fernando Valley
Valley Beth Shalom
15739 Ventura Blvd.
Encino, CA 91436 
1st Tuesday of every month, 7:30-9:30 PM

Facilitators:
Bebe Shpall, (818) 349-3040
Sue Bagott, (818) 342-9972

Ostomy Association of Los Angeles*
P.O. Box
2077
Winnetka, CA 91306

For more information: contact Bob Hamburg, or Jesse Grazer (818) 337-8416 info@theoala.org - www.theOALA.org
* We partner with this group.


Santa Barbara
Santa Barbara Museum of Natural History 
2559 Puesta del Sol
in the "Leather Lounge"
Santa Barbara, CA 93105  
1st Monday of every month, 7:00 - 8:30 PM. Please call or email facilitator before attending.

Facilitator: Karen Clark, (805) 252-0491, redeyepix@cox.net 

San Luis Obispo - Inactive*

* Please call our chapter office at 310-478-4500 if you are interested in activating this group or receiving peer counseling from our Power of Two Program.  Currently, peer counseling is available from former facilitator Neal Webb, R.N.

South Bay 
Beach Cities Health District
Hermosa or Redondo Room
514 N. Prospect Avenue
Redondo Beach, CA 90277 
2nd Thursday of every month, 7:00-8:30 PM

2012 Guest Speakers:

  • February 9th (meeting in Redondo Room): Erin Feldman, R.D., C.S.P. will speak on nutrition & IBD.
  • March 8th: Patricia Sievers, General Practitioner in Traditional Chinese Medicine will speak on alternative medicine.
  • May 10th:  Psychologist Patricia Reece will speak on "Parenting a Crohn's Child."

Facilitator: Gary Hirschhorn, (310) 839-4981

Tehachapi - Inactive* 
Tehachapi Valley Hospital
115 West E Street
Tehachapi, CA 93561 
Conference Room
3rd Thursday of every month
*
Loretta Fleming, (661) 823-9448, is available for peer support until the group becomes active again.

UCLA* 
Undergrad and Grad Student Group
UCLA Medical Plaza 
200 Medical Plaza, Room 206A 
Los Angeles, CA 90095
Next meeting will be on Monday January 30th, between 6-8pm.

* Group is only for patients or caregivers

Facilitator: Nanae Takatori, ntakatori@mednet.ucla.edu 

Ventura County/Thousand Oaks Area
Los Robles Medical Center - East Campus
Rehabilitation Center - 1st Floor Conference Room
150 Via Merida
Westlake Village, CA 91362
Last Tuesday of every month, 7:00-9:00 PM
No meeting in December due to the Holidays

Facilitator: Lisa M., (805) 444-7977,
lee410@aol.com

Los Angeles West J-Pouch Group
Ronald Reagan UCLA Medical Center
757 Westwood Plaza
Los Angeles, CA 90095
Basement, room 124 A/B
Meets quarterly on the second Saturday of the month in February, May, August, November.

Facilitator: Michael May, mtmay42@yahoo.com or (310) 546-7927
Dr. Jonathan Sack, Colorectal Surgeon (UCLA) serves as the medical advisor.

Orange County J-Pouch Group*
St. Joseph's Hospital
1100 W. Stewart Drive
Orange, CA 92868
Basement, meeting rooms A & B
Meets quarterly on the third Saturday of the month in January, April, July, and October.

For more information: 714-771-8000 x7106
* We partner with this group.

back to top


CONTACT INFO

Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone: (310) 478-4500
Fax: (310) 478-4546
E-mail:
losangeles@ccfa.org

Staff Members & Contact Information

Regional Director of Development:
Ronni Epstein
REpstein@ccfa.org
Direct Line: (310) 478-4517

Regional Education and Support Manager:
Lindsay Brown
LBrown@ccfa.org
Direct Line: (310) 478-4523
Cell: (646) 623-3693

Community Development Manager (Orange County):
Sabrina Irsay
SIrsay@ccfa.org
Cell: (646) 942-3888

Walk Manager - Los Angeles & Santa Barbara Walks:
Amira Shaif
AShaif@ccfa.org
Direct Line (310) 478-4513

Endurance Manager, Half Marathon Training Program:
Jenni Erickson
JErickson@ccfa.org

Diect Line (310) 694-3343

Endurance Manager, Triathalon Training Program:
Rob Baird
RBaird@ccfa.org
Direct Line (310) 694-3341

Development Coordinator
Member Services (CCFA Headquarters):

Iyad Zabaneh
IZabaneh@ccfa.org
Direct Line: (310) 694-3344

Development Coordinator:
Paddy Harrigan
PHarrigan@ccfa.org
Direct Line: (310) 694-3340

Development Coordinator:
Megan Furst
MFurst@ccfa.org
Direct Line: (310) 478-4509

back to top
Follow us: