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Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone: (310) 478-4500
Fax: (310) 478-4546
E-mail: losangeles@ccfa.org

IBD Hot Topics 2008

Session presentations from the recent conference, IBD Hot Topics 2008, are available to download. Check conference sessions and download presentations from the list below.

If you would like to support our Chapter's future education initiatives, you can help by making a donation.

Keynote Lecture
"IBD Research: Look How Far We've Come"
Balfour Sartor, MD

1A
1B
1C
1D
1E
2A*
2007 Presentation
2B
2C
2D**
2E-LD, 2E-SP
3A
3B*
2007 Presentation
3C
3D***
3E
4A
4B
4C
4D
4E

Closing Lecture A
"Towards Finding a Cure:
What We Do Know"
Balfour Sartor, MD
Closing Lecture B
"Towards Finding a Cure:
What We Do Not Know"
Jonathon Braun, MD, PhD

We are still gathering the remaining presentations from the conference faculty. Please be patient while we retrieve this information.

* The presenter was unable to share his slides. Instead we provide our 2007 slides on this topic. The information is relevant and current.
** There are no slides for this session. The presenter spoke informally and used a flip chart.
*** The presenter is unable to share his slides at this time!

Download Spring 2008 Newsletter

Need more Info on IBD?
Check Out Our Lending Library Collection

Our Lending Library features the latest publications on IBD. CCFA members can borrow books from our office collection via phone, e-mail, or in person. Call us at 310-478-4500, or e-mail losangeles@ccfa.org to borrow books today.

Lending Library Booklist

The CCFA Greater LA/OC Chapter Launches New Support Services and Outreach Efforts.

Click here to learn more!

New support group has started in North Orange County at the Los Alamitos Center!

The LA J-Pouch Group meets every quarter on the second Saturday of the month and launched in February 2008.

The CCFA Greater LA/OC Chapter launches, "Savvy IBD Living," a monthly thought list. Join a support group to learn more and discuss these topics.

Savvy IBD Living Thought List: July 2008

Click here for all Support Groups listings.

Walk & Run Events
Date & Location

Los Angeles
June 22, 2008
Registration: 4PM
Program: 5 PM
Perloff Quad
UCLA
Download Photos

Orange County
June 29, 2008
Registration: 4 PM
Program: 5 PM
Aldrich Park
University of California, Irvine

July 20, 2008
Napa to Sonoma
Wine Country 1/2 Marathon
November 16, 2008
San Antonio
Rock 'n' Roll 1/2 Marathon

[See below for more details]

Now Available On MP3 Format Audio CD!

The 2007 Spring Patient and Family IBD Conference
"Latest Advances in IBD Diagnosis and Management: 2007"

Click on the CD image to download order form
(Microsoft Excel is Required)

(Image appears distorted)

We Love Our Volunteers!
(Our Thanks To All)

Would you enjoy

office work?
event preparation?
"day-of event" assistance?
special projects?

Join Our Star Volunteer Team.

If you are interested in volunteering please contact CCFA at (310) 478-4500, or complete and fax this volunteer form.

July 19, 2008 - August 5, 2008

2008 Summer Camp Oasis

Camp Oasis Logo

by CCFA and The Painted Turtle

CCFA Camp Oasis is a co-ed residential camp program whose mission is to enrich the lives of children with Crohn's disease and ulcerative colitis by providing a safe and supportive camp community.

Children living with IBD can enjoy the Camp Oasis experience – an experience rich with friendly faces and exciting activities, where everyday troubles take a backseat to fun.

To learn more about CCFA Camp Oasis click here.

Hawaii campers can ONLY apply for session 1. This is necessary in order to coordinate travel.

Session 1
Camp Site: The Painted Turtle at Lake Hughes
Dates: July 19-25, 2008
Age Range: 7-16
Capacity: 120 campers/session
Located at The Painted Turtle in Lake Hughes, CA
Participating Chapters: Los Angeles/Orange County, Northern California, San Diego, Southwest
Session 1 camp application deadline has passed.

Session 2
Camp Site: The Painted Turtle at Lake Hughes
Dates: July 30-August 5, 2008
Age Range: 7-16
Capacity: 120 campers/session
Participating Chapters: Los Angeles/Orange County, Northwest, Rocky Mountain, San Diego
Session 2 camp application deadline has passed.

The Fall Family Camp Weekend will be held from Oct 17 – 19. Please check the website in August 2008 to download application.

Thank-you for your interest in Camp Oasis.

For questions or requests contact Kerri Yoder at (310) 478-4523 or KYoder@ccfa.org

July 20, 2008

Train with Team Challenge for the
Napa to Sonoma * Wine Country Half Marathon

What: Team Challenge (TC) is an endurance sports training program. The program provides training to run or walk in the Napa to Sonoma * Wine Country Half Marathon. Participants raise funds for Crohn's & Colitis research and patient services in exchange for training, support and lodging and airfare to the event location.

When: Sunday, July 20, 2008

Where: Napa to Sonoma, California

For additional information and to register, contact
Endurance Managers:
Ashley Thompson at (310) 694-3343, or AThompson@ccfa.org
Meghan Neidhardt at (949) 216-9251, or MNeidhardt@ccfa.org

November 16, 2008

Train with Team Challenge for the
Inaugural San Antonio Rock 'n' Roll 1/2 Marathon

What: Team Challenge (TC) is an endurance sports training program. The program provides training to run or walk in the Inaugural San Antonio Rock 'n' Roll 1/2 Marathon. Participants raise funds for Crohn's & Colitis research and patient services in exchange for training, support and lodging and airfare to the event location.

When: Sunday, November 16, 2008

Where: San Antonio, Texas

San Antonio Rock 'n' Roll 1/2 Marathon

Information Meetings:

Los Angeles Area
Tuesday July 8th 7:00 pm
Runnergy
13541 Ventura Blvd
Sherman Oaks, CA 91423
Long Beach/Orange County
Thursday July 10th 7:00 pm
Laguna Hills Community
Center Room A
25555 Alicia Pkwy
Laguna Hills, CA 92653

Kick-Off Meeting Saturday July 12th 10:00 am
Kick-off Party to follow at 10:30 am!
Clover Park at 26th and Ocean Park
Santa Monica, CA 90405

For additional information and to register, contact Endurance Managers:

Ashley Thompson
(310) 694-3343 or AThompson@ccfa.org

Meghan Neidhardt
(949) 216-9251 or MNeidhardt@ccfa.org



		Please Note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place. PLEASE JOIN US…. Our casual support group meetings are held in a warm, welcoming and safe atmosphere. All meetings are offered free of charge. People with IBD, their families and friends are encouraged to attend. WHAT?! We don't have a support group in your area? Would you like to help us? Please contact our office at (310) 478-4500 to inquire about becoming a trained support group facilitator. Facilitator opportunities are also available for existing groups! 20's-30's Social/Support Group Meet other 20-30 somethings with IBD in a social setting and join our Yahoo Groups. Guest speakers are also invited on topics of interest. To join the 20-30s group or for more information, contact Kerri Yoder, Education Manager at KYoder@ccfa.org or (310) 478-4523 Camp Oasis Youth Club Connecting CCFA kids and families throughout the year via weekend recreational activities! LA Youth Club Chairperson: Stacy Dylan OC Youth Club Chairperson: Kristin Sweaza (These Moms help organize events and run the parent discussion groups.) To join the Youth Club or for more information, contact Kerri Yoder, Education Manager at KYoder@ccfa.org or (310) 478-4523 Facilitator Guided Support Groups Hawaii Kaiser Permanente Honolulu Clinic 1010 Pensacola Street, Conference Room 2E Honolulu, HI 96814 2nd Monday of every month, 7:00-8:30 PM No Meeting in December Nita Johnson, (808) 623-9303 Irvine Hoag Health Center 4870 Barranca Parkway, 3rd Floor Irvine, CA 3rd Wednesday of every month, 7:00-8:30 PM Matt Bays, (949) 923-5444 Los Angeles-East USC Norris Cancer Hospital 1441 Eastlake Avenue Los Angeles, CA 90033 Call for room number or check at security/info desk 3rd Tuesday of every month, 5:30-7:00 PM Carol Marcusen, MSW (323) 865-3151 Yolee Casagrande, RN (323) 865-3690 Los Angeles-West CCFA Greater Los Angeles Chapter 1640 S. Sepulveda Blvd., Ste. 214 Los Angeles, CA 3rd Monday of every month, 6:30-8:30 PM Tillie Huber, R.N. (800) 677-5252 Greater San Gabriel Valley Foothill Education Center 427 West Carroll Avenue Glendora, CA 91741 3rd Thursday of every month, 5:00-6:30 PM Gwen Hards, (626) 335-6100, glhbeach@hotmail.com Orange - UCI Medical Center H.H. Chao Comprehensive Digestive Disease Center 101 The City Drive S., Bldg 24 Orange, CA 92868 1st Wednesday of every month, 6:30 - 8:30 PM Lisa Dinglasan, MSW, MPA (714) 456-7057 Orange Ostomy Association of Orange County P.O. Box 7041 Orange, CA 92863 Dixie Bullington (562) 698-8039 For More information: dixiebullington@hotmail.com North Orange Los Alamitos Medical Center 3751 Katella Avenue Los Alamitos, CA 90720 Last Monday of every month, 6:00 - 8:00 PM Darrin Pagenkopp, MsEd, (714) 280-6377 San Fernando Valley Valley Beth Shalom 15739 Ventura Blvd. Encino, CA 1st Tuesday of every month, 7:30-9:30 PM Bebe Shpall, (818) 349-3040 Sue Bagott, (818) 342-9972 Ostomy Association of Los Angeles P.O. Box 2077 Winnetka, CA 91306 Bob Hamburg or Jesse Glazer, (818) 337-8416 For more information: info@theoala.org - www.theOALA.org Santa Barbara - Inactive Facilitator Opportunity Available Please call LA Chapter Office 310-478-4500 St. Francis Medical Center 601 E. Micheltorena Street Santa Barbara, CA Ground Floor Classroom San Luis Obispo French Hospital 1911 Johnson Avenue San Luis Obispo, CA 93401 Conference Room Last Wednesday of every month Neal Webb, R.N. (805) 547-1163 Santa Maria Marian Hospital 1400 E. Church Street, Santa Maria, CA 1st Floor Across Room B 2nd Wednesday of every month (No Meetings in June, Aug. & Dec.) 6:30pm to 8:00pm Phyllis Callen, (805) 929-5154 Lee (805) 922-6133 South Bay Beach Cities Health District 514 N. Prospect Avenue Redondo Beach, CA 90277 2nd Thursday of every month, 7:00-8:30 PM February meeting will be in the Hermosa Room March meeting will be in the Redondo Room Gary Hirschhorn, (310) 839-4981 Tehachapi Tehachapi Valley Hospital 115 West E Street Tehachapi, CA Conference Room 3rd Thursday of every month Loretta Fleming, (661) 823-9448 UCLA - Inactive Facilitator Opportunity Available Please call LA Chapter Office 310-478-4500 UCLA Medical Center 10822 LeConte Avenue Los Angeles, CA Brentwood Room (1st floor) Ventura County/Westlake Village Sage Publication 2455 Teller Rd., Conference Room Thousand Oaks, CA 91320 Last Tuesday of every month, 7:00-9:00 PM Lisa Myers, (805) 444-7977, lee410@aol.com Los Angeles J-Pouch Group The LA J-Pouch Group meets every quarter on the second Saturday of the month. The next meetings in 2008 are: May 10, August 9, and November 8. Meetings areheld at the CCFA office from 10:30 AM - 12:30 PM. Dr. Jonathan Sack, colorectal Surgeon (UCLA) serves as the medical advisor. For more information, contact Michael May, mtmay42@yahoo.com or (310) 546-7927 Orange County J-Pouch Group The OC J-Pouch Group meets every quarter on the third Saturday of the month. The next meetings in 2008 are: July 19 and Oct 18. Meetings are held at St. Joseph's Hospital (1100W. Stewart Drive, Orange, CA 92868) in Meeting Rooms A & B (basement). Please call 714-771-8000 x7106, for more information.
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		Greater Los Angeles / Orange County Chapter 1640 S. Sepulveda Blvd, Suite 214 Los Angeles, CA 90025 Toll Free: (866) 831-9157 Phone: (310) 478-4500 Fax: (310) 478-4546 E-mail: losangeles@ccfa.org Staff Members & Contact Information Executive Director: Ronni Epstein REpstein@ccfa.org Direct Line: (310) 478-4517 Education Manager: Kerri Yoder KYoder@ccfa.org Direct Line: (310) 478-4523 Take Steps Los Angeles Walk Manager: RJ DiCamillo RJDiCamillo@ccfa.org Direct Line: (310) 478-4513 Take Steps Orange County Walk Manager: Sarah Haney SHaney@ccfa.org Direct Line: (949) 280-5719 Fax: (949) 209-4213 Take Steps Assistant Angela Comer AComer@ccfa.org Direct Line: (310) 478-4559 Endurance Managers: Ashley Thompson AThompson@ccfa.org Direct Line: (310) 694-3343 Meghan Neidhardt MNeidhardt@ccfa.org Direct Line: (949) 216-9251 Development Coordinator: Iyad Zabaneh IZabaneh@ccfa.org Direct Line: (310) 694-3344 Gift Processing: Nancy Varat NVarat@ccfa.org Direct Line: (310) 478-4509 Development Assistant: Patricia (Paddy) Harrigan PHarrigan@ccfa.org Direct Line: (310) 694-3340
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Los Angeles / Orange County Chapter

Greater Los Angeles / Orange County Chapter