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Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone:     (310) 478-4500
Fax:         (310) 478-4546
E-mail:
losangeles@ccfa.org 

 Follow the Greater Los Angeles/Orange County Chapter on facebook!

 


SPECIAL HIGHLIGHTS



SUMMER AND FALL 2012

 

WalkDate
Santa Barbara Take Steps for Crohn's & ColitisMay 19, 2012
Los Angeles Take Steps for Crohn's & ColitisJune 23, 2012
Orange County Take Steps for Crohn's & ColitisJune 24, 2012
Long Beach Take Steps for Crohn's & ColitisSeptember 8,2012
Santa Clarita Take Steps for Crohn's & ColitisSeptember 15, 2012
Hawaii Take Steps for Crohn's & ColitisNovember 10, 2012



SPRINT TRIATHLON TRAINING PROGRAM

Tri a New Fitness Challenge!

Accomplish incredible! Train for sprint-distance TriRock San Diego with Team Challenge while you support CCFA! Team Challenge participants receive top-notch coaching over a 16-week training program that prepares them to conquer the race!

September 9, 2012

Join us at an upcoming info session to learn about the program:

  • Wednesday, May 2, 7:00 p.m.
    Road Runner Sports
    25359 Crenshaw Blvd
    Torrance, CA 90505
  • Thursday, May 3, 7:00 p.m.
    Runner's High
    5338 E 2nd Street
    Long Beach, CA 90803
  • Tuesday, May 8, 7:00 p.m.
    Runnergy
    14802 Ventura Blvd.
    Sherman Oaks, CA 91423
  • Saturday, May 12 - 10:00 a.m.
    TriLAB
    3328 Pico Blvd.
    Santa Monica, CA 90405
  • Wednesday, May 16 - 6:30 p.m
    El Cholo
    1025 Wilshire Blvd.
    Santa Monica, CA 90401

If you have questions about the program, want to RSVP for an info meeting, or want to set up a 1:1 meeting, please contact Endurance Manager Rob Baird at (310) 694-3341 or rbaird@ccfa.org. Also, lean more at http://www.raceinorange.com/!




Join Team Challenge in Hawaii

or Wine Country in 2012!

Team Challenge Kona, Hawaii 2012 Team Challenge 2012 Team Challenge Napa to Sonoma - 2012

We're heading back to Kona, Hawaii for the Kona Half Marathon on June 24th, and to Wine Country for the Napa to Sonoma Half Marathon on July 15th. The Napa to Sonoma race is sold out - your only way in is with Team Challenge! We cover all your travel expenses and train you to walk, run or jog a half marathon in these amazing destinations.

Would you like to be a part of the next Team Challenge season?  

Train with us and see why we have a 100% success rate on race day. You can do it! (And for a great cause!) Click here to learn more, or contact Jenni Flores at jflores@ccfa.org or (310) 694-3343.


Free Crohn's & Colitis Foundation Education Program


Thursday, May 24, 2012 | 6:30 to 8:30 PM

Sheraton Cerritos · Room Crystal C
12725 Center Court Drive
Cerritos, CA 90703

Presented by:

Doron Kahana, MD, CPNS
Center for Digestive Health & Nutritional Excellence (CDHNE)



RSVP

For more information, contact Iyad Zabaneh at the CCFA Greater Los Angeles/Orange County Chapter at:

Phone: (310) 694-3344
Email: izabaneh@ccfa.org



CCFA PATIENT EDUCATION

2012 Spring IBD Education Conference Slides


CCFA OC Youth Club
Pump it Up!

Wedneday, May 16, 2012
6:15 - 8:15 p.m.

 16871 Noyes Ave
Irvine, CA  92602


RSVP

Come visit with old friends and meet some new ones!

Parents are welcome to accompany kids.

For more info, contact Sabrina Irsay, Community Development Manager
646-942-3888 or
sirsay@ccfa.org


The Voice

A bimonthly eNewsletter of The Greater Los Angeles/Orange County Chapter

   Feb/Mar '11       Apr/May '11       Jun/Jul '11      
          

Aug/Sep '11      Oct/Nov '11       Dec '11        
     
    

Jan/Feb '12   
 



Need more Info on IBD?
Check Out Our Lending Library Collection

Our Lending Library features the latest publications on IBD. CCFA members can borrow books from our office collection via phone, e-mail, or in person. Call us at 310-478-4500, or e-mail losangeles@ccfa.org to borrow books today.

Lending Library Booklist



We Love Our Volunteers!

(Volunteer Form)

Would you enjoy

  • office work?
  • event preparation?
  • "day-of event" assistance?
  • special projects?

Join Our Star Volunteer Team. 

If you are interested in volunteering please contact CCFA at (310) 478-4500, or complete the online volunteer form.

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CALENDAR/EVENTS
May 19, 2012

Location: Chase Palm Park
Date: May 19, 2012
Check-in Start: 4:00 PM
Walk Start: 5:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Amira Shaif (310) 478-4513

  

May 24, 2012

Date: May 24, 2012
Time: 6:30 - 8:30 p.m.
Location: Sheraton Cerritos in the Crystal Ballroom
(More information in special highlights above, and on the program's RSVP page)


RSVP

Questions?
Conact Us Today

Regional Education & Support Manager: Lindsay Brown (310) 478-4523

June 23, 2012

Location: Santa Monica Civic Auditorium
Date: June 23, 2012
Check-in Start: 4:00 PM
Walk Start: 5:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Amira Shaif (310) 478-4513


June 24, 2012

Location: Aldrich Park
Date: June 24, 2012
Check-in Start: 4:00 PM
Walk Start: 5:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Sabrina Irsay (646) 942-3888

  

June 24, 2012


Half Marathon Training Program

Location: Kona, Big Island Hawaii
Date: June 24, 2012

Event Home | Team Challenge Home | Info Meeting

Questions?
Contact Us Today

Endurance Manager: Jenni Flores (310) 694-3343

July 15, 2012


Half Marathon Training Program

Location: Napa to Sonoma Wine Country
Date: July 15, 2012

Event Home | Team Challenge Home | Info Meeting

Questions?
Contact Us Today

Endurance Manager: Jenni Flores (310) 694-3343

September 8, 2012

Location: El Dorado West - Willow Grove Park
Date: September 8, 2012
Check-in Start: 3:00 PM
Walk Start: 4:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Megan Furst (310) 478-4509

  

September 9, 2012


Sprint Triathlon Training Program

Location: San Diego
Date: September 9, 2012

Event Home | Team Challenge Home | Info Meeting

Questions?
Contact Us Today

Endurance Manager: Rob Baird (310) 694-3341

September 15, 2012

Location: Chick-fil-A Valencia Town Center

Date: September 15, 2012
Check-in Start: 3:00 PM
Walk Start: 4:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Megan Furst (310) 478-4509

  

September 25, 2012

Location: Burbank
Date: September 25, 2012
Time: 6:30 - 8:30 PM

Stay Tuned!
Online RSVP Available August, 2012

Questions?
Contact Us Today

Regional Education & Support Manager: Lindsay Brown (310) 478-4523

October 13, 2012

Orange County Patient and Family Education Conference
Saturday, October 13, 2012
Orange County - TBD

Online Regsitration Available in September, 2012

October 22, 2012

16th Annual CCFA Golf Classic
Monday, October 22, 2012 | 9:00 AM
El Caballero Country Club, Tarzana

October 30, 2012

Inagural CCFA Orange County Golf Classic
Tuesday, October 30, 2012 | 11:00 AM
Pelican Hill, Newport Beach

November 10, 2012

Location: Magic Island
Date: November 10, 2012
Check-in Start: 2:00 PM
Walk Start: 3:00 PM
Event Home | More Walk Details | Sponsors | Volunteer

Questions?
Contact Us Today

Walk Manager: Jackie Peterson (646) 430-4841

 

December 2, 2012


Half Marathon Training Program

Location: Las Vegas
Date: December 2, 2012

Stay Tuned!
More information coming in August

December 8, 2012

Date: December 8, 2012
Time: 6:30 - 8:30 PM

Location: Riverside County - TBD

Stay Tuned!
Online RSVP Available November 2012

Questions?
Contact Us Today

Regional Education & Support Manager: Lindsay Brown (310) 478-4523

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SUPPORT GROUPS

Please Note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

PLEASE JOIN US….
Our casual support group meetings are held in a warm, welcoming and safe atmosphere. All meetings are offered free of charge. People with IBD, their families and friends are encouraged to attend.

WHAT?! We don't have a support group in your area? Would you like to help us? Please contact our office at (310) 478-4500 to inquire about becoming a trained support group facilitator. Facilitator opportunities are also available for existing groups!


20-30s Social/Support Groups

To join the groups and participate in our monthly social gatherings, Yahoo groups email distribution, and guest speaker series, contact our office at (310) 478-4500.

LA 20-30s Social/Support Group Chair: Sarah Kogeman
OC 20-30s Social/Support Group Chair: Amy Owens


Camp Oasis LogoCamp Oasis Youth Club
Connecting CCFA kids and families throughout
the year via weekend recreational activities!

To join the Youth Club and to participate in our monthly recreational therapy programs and guest speaker series, contact our office at (310) 478-4500.

LA Youth Club Chair: Stacy Dylan
OC Youth Club Chair: None; call our office if you're a parent of child with IBD, and are interested in becoming an OC Youth Club Chair.
(These Moms help organize events and run the parent discussion groups.)



Facilitator Guided Support Groups

Support Group Meeting Calendar
Support Groups Calendar

Click on Calendar above to view meeting times and dates, or check the Support Group list below.

Hawaii
Kaiser Permanente Honolulu Clinic
1010 Pensacola Street, Conference Room 2E
Honolulu, HI 96814
2nd Monday of the month, 7:00-8:30 PM
Exceptions: 3rd Monday of the month in June, October & November. No Meeting in December.

Facilitator: Robert Smith, ccfa_hawaii@yahoo.com

Burbank Support Group
Burbank Medical Plaza
191 South Buena Vista Street
Burbank, CA 91505
2nd Wednesday of every month, 6:30 - 8:30 PM

Facilitator: Douglas Yakich, (818) 516-9847 or CCFABurbankSupport@me.com

Los Angeles East J-Pouch Group*
USC Norris Cancer Hospital
1441 Eastlake Avenue
Los Angeles, CA 90033
Lobby Conference Room
Meets quarterly on the first Saturday of the month in March, June, September, and December.

Facilitators: Dorothy Rocha, MSW, LCSW & Yolee Casagrande, RN, (323) 865-3156
* We partner with this group.

Los Angeles-West
CCFA Greater Los Angeles/Orange County Chapter
1640 S. Sepulveda Blvd., Ste. 214
Los Angeles, CA 90025 
3rd Monday of every month, 6:30-8:30 PM (no Meeting in June)

Facilitator: Tillie Huber, R.N. (800) 677-5252

Greater San Gabriel Valley
Foothill Nursing Center
401 West Ada
Glendora, CA 91741
3rd Thursday of every month, 6:00 pm - 7:30 pm (no meeting in April)

Facilitator: Gwen Hards, (626) 335-6100, glhbeach@hotmail.com

Orange - UCI Medical Center*
H.H. Chao Comprehensive Digestive Disease Center
101 The City Drive S
Chao Comprehensive Cancer Center, 2nd Floor Lobby Area
Orange, CA 92868
1st Wednesday of every month, 6:30 - 8:30 PM

Facilitator: Annie Huhnerkoch, LCSW (714) 456-7057 or ahuhnerk@uci.edu

* We partner with this group.

Orange*
Ostomy Association of Orange County
P.O. Box 7041
Orange, CA 92863

* We partner with this group.

North Orange
Los Alamitos Medical Center
3751 Katella Avenue
Los Alamitos, CA 90720
Last Monday of every month, 6:00 - 8:00 PM

Facilitator: Darrin Pagenkopp, MsEd, (714) 280-6377

Orange County Parent Network Group
Join parents whose children suffer from Crohn's and Colitis in sharing information and support. The group hosts guest speakers on request to discuss various topics that involve children's health with IBD.

567 San Nicolas Drive, Suite 360
Newport Beach, CA 92660
Meets quarterly, meetings are in March, June, September, and December. 6:30 - 8:30 p.m. RSVP to pammyg@cox.net

2012 Meeting Dates and Guest Speakers:

  • March 21st, 6:30 - 8:30 p.m. Dr. Grant, Children's Hospital of Orange County (CHOC) will be speaking.
  • June TBD
  • September TBD
  • December TBD

Facilitator: Pamela George, pammy@cox.net

South Orange County Young Adult Support Group
28281 Crown Valley Parkway Suite 202
Laguna Niguel, CA 92677
3rd Tuesday of every month,  from 6:30 - 8:00 PM

Facilitator: Jennifer Martin, (949) 916-5060, drjennifer.martin@yahoo.com

San Fernando Valley
Valley Beth Shalom
15739 Ventura Blvd.
Encino, CA 91436 
1st Tuesday of every month, 7:30-9:30 PM

Facilitators:
Bebe Shpall, (818) 349-3040
Sue Bagott, (818) 342-9972

Tarzana Parent Support Group
"IBD and Our Kids"
Tarzana Hospital - North Conference Room
18321 Clark St
Tarzana, CA 91356
3rd Monday of every month, starting April 16th, 7:00-8:30 PM

Facilitators: Anne House, anne@ibdkidtalk.com, & Negeen Papehn, negeen@ibdkidtalk.com

Ostomy Association of Los Angeles*
P.O. Box
2077
Winnetka, CA 91306

For more information: contact Bob Hamburg, or Jesse Grazer (818) 337-8416 info@theoala.org - www.theOALA.org
* We partner with this group.


Santa Barbara
Santa Barbara Museum of Natural History
Broder Building
 
2559 Puesta del Sol
Santa Barbara, CA 93105  
1st Monday of every month, 7:00 - 8:30 PM. Please call or email facilitator before attending.

Facilitator: Karen Clark, (805) 252-0491, redeyepix@cox.net 

San Luis Obispo - Inactive*

* Please call our chapter office at 310-478-4500 if you are interested in activating this group or receiving peer counseling from our Power of Two Program.  Currently, peer counseling is available from former facilitator Neal Webb, R.N.

South Bay 
Beach Cities Health District
Hermosa or Redondo Room
514 N. Prospect Avenue
Redondo Beach, CA 90277 
2nd Thursday of every month, 7:00-8:30 PM

Next Meeting Date: Thursday, April 12th

2012 Guest Speakers:

  • May 10th:  Check with co-facilitator. The speaker will be discussing "Alternative Therapies"

Facilitator: Gary Hirschhorn, (310) 839-4981, garylilia@mindspring.com
Co-facilitator: Janet Jones, (310) 872-9686, jjanetzzz@aol.com

Tehachapi - Inactive* 
Tehachapi Valley Hospital
115 West E Street
Tehachapi, CA 93561 
Conference Room
3rd Thursday of every month
*
Loretta Fleming, (661) 823-9448, is available for peer support until the group becomes active again.

UCLA* 
Undergrad and Grad Student Group
UCLA Medical Plaza 
200 Medical Plaza, Room 206A 
Los Angeles, CA 90095
Next meeting will be on Monday January 30th, between 6-8pm.

* Group is only for patients or caregivers

Facilitator: Nanae Takatori, ntakatori@mednet.ucla.edu 

Ventura County/Thousand Oaks Area
Los Robles Medical Center - East Campus
Rehabilitation Center - 1st Floor Conference Room
150 Via Merida
Westlake Village, CA 91362
Last Tuesday of every month, 7:00-9:00 PM
No meeting in December due to the Holidays

Facilitator: Lisa M., (805) 444-7977, LAMyers66@Yahoo.com

Los Angeles West J-Pouch Group
Ronald Reagan UCLA Medical Center
757 Westwood Plaza
Los Angeles, CA 90095
Basement, room 124 A/B
Meets quarterly on the second Saturday of the month in February, May, August, November.

Facilitator: Michael May, mtmay42@yahoo.com or (310) 546-7927
Dr. Jonathan Sack, Colorectal Surgeon (UCLA) serves as the medical advisor.

Orange County J-Pouch Group*
St. Joseph's Hospital
1100 W. Stewart Drive
Orange, CA 92868
Basement, meeting rooms A & B
Meets quarterly on the third Saturday of the month in January, April, July, and October.

For more information: 714-771-8000 x7106
* We partner with this group.

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CONTACT INFO

Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone: (310) 478-4500
Fax: (310) 478-4546
E-mail:
losangeles@ccfa.org

Staff Members & Contact Information

Regional Director of Development:
Ronni Epstein
REpstein@ccfa.org
Direct Line: (310) 478-4517

Regional Education and Support Manager:
Lindsay Brown
LBrown@ccfa.org
Direct Line: (310) 478-4523
Cell: (646) 623-3693

Community Development Manager (Orange County):
Sabrina Irsay
SIrsay@ccfa.org
Cell: (646) 942-3888

Walk Manager - Los Angeles & Santa Barbara Walks:
Amira Shaif
AShaif@ccfa.org
Direct Line (310) 478-4513

Endurance Manager, Half Marathon Training Program:
Jenni Flores
JFlores@ccfa.org

Diect Line (310) 694-3343

Endurance Manager, Triathalon Training Program:
Rob Baird
RBaird@ccfa.org
Direct Line (310) 694-3341

Development Coordinator
Member Services (CCFA Headquarters):

Iyad Zabaneh
IZabaneh@ccfa.org
Direct Line: (310) 694-3344

Development Coordinator:
Paddy Harrigan
PHarrigan@ccfa.org
Direct Line: (310) 694-3340

Development Coordinator:
Megan Furst
MFurst@ccfa.org
Direct Line: (310) 478-4509

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