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Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone:     (310) 478-4500
Fax:         (310) 478-4546
E-mail:
losangeles@ccfa.org 
 


SPECIAL HIGHLIGHTS


** SAVE THE DATE **

Camp Oasis Logo


July 7-13, 2010

Applications available now!

CCFA Camp Oasis is a co-ed residential camp for kids with Crohn's disease and ulcerative colitis. Our 2010 session will be held at The Painted Turtle in Lake Hughes, CA.

The Painted Turtle Requirements:

  • Every camper must have had a physical exam in 2010.
  • An official immunization record must be submitted.  There will be no waiver of shots, except by doctors' orders.
  • All campers must be covered by health insurance.  If you do not have coverage, please contact the Painted Turtle at 661-724-1768 and they can help you locate insurance.

Camp applications are available as of mid-January 2010 for campers (entering 2nd -11th grade*), Leaders in Training (entering 12th grade*), and volunteers (age 19+).

Click here to learn about this exciting program, or contact Paddy Harrigan, Development Assistant at PHarrigan@ccfa.org or 310-478-4500.

* Grade based on September 2010 school year

 

NOW RECRUITING!

Take Steps Logo
Santa Barbara
June 6, 2010
Los Angeles
June 13, 2010
Irvine      
June 27, 2010

 

Team Challenge Logo      Napa to Sonoma Wine Country Half Marathon Logo
July 18, 2010

Take Steps and Team Challenge event details, and a list of upcoming Team Challenge information meetings are in in the events' Calendar/Events listing below.

 


 


Need more Info on IBD?
Check Out Our Lending Library Collection

Our Lending Library features the latest publications on IBD. CCFA members can borrow books from our office collection via phone, e-mail, or in person. Call us at 310-478-4500, or e-mail losangeles@ccfa.org to borrow books today.

Lending Library Booklist


The CCFA Greater LA/OC Chapter Launches New Support Services and Outreach Efforts.

Click here to learn more!


 Support Groups Highlights

Click here for all Support Groups listings.

  • The CCFA Greater LA/OC Chapter launches, "Savvy IBD Living," a monthly thought list. Join a support group to learn more and discuss these topics.

Savvy IBD Living Thought List: January 2009

  



We Love Our Volunteers!
(
Volunteer Form)

Would you enjoy

  • office work?
  • event preparation?
  • "day-of event" assistance?
  • special projects?

Join Our Star Volunteer Team. 

If you are interested in volunteering please contact CCFA at (310) 478-4500, or complete and fax the volunteer form. 

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CALENDAR/EVENTS
March 9, 2010 - March 23, 2010

Team Challenge Logo

NOW RECRUITING FOR

Napa to Sonoma * Wine Country Half Marathon Logo

Sunday, July 18, 2010

Take the Challenge! Change a Life!

 We will train you to walk or run in the Napa to Sonoma Wine Country Half Marathon. Attend any of the upcoming information meetings to learn more.

Sign up for an upcoming Team Challenge information meetings:

  • Tuesday, March 9, 2010 – 7:00 p.m.
    A Runner's Circle (map)
    3216 Los Feliz Blvd
    Los Angeles, CA 90039
  • Saturday, March 13, 2009 – 9:00 a.m.
    Lululemon Athletica (map)
    331 Santa Monica Blvd
    Santa Monica, CA 90401
  • Tuesday, March 16, 2010 – 7:00 a.m.
    Runnergy (map)
    14082 Ventura Blvd
    Sherman Oaks, CA 91423
  • Thursday, March 18, 2010 – 7:30 p.m.
    A Snail's Pace (map)
    8840 Warner Ave
    Fountain Valley, CA 92708
  • Tuesday, March 23, 2010 - 7:00 p.m.
    Run With Us (map)
    235 N Lake Ave
    Pasadena, CA 91101

Looking Forward to Seeing You
If you are unable to attend any of the information meetings, or if you need more information, please call or email
Reed Pellett, Endurance Manager
RPellett@ccfa.org – (310) 694-3343

April 29, 2010

WOD Logo

Honoring

Joyce Brandman  •  Vicky Goodman


To benefit Camp Oasis and pediatric research for Crohn's disease and ulcerative colitis

Fashion show presented by

Save the Date

Thursday, April 29, 2010

The Beverly Hills Hotel


For more information call CCFA office at (310) 478-4500

June 6, 2010 - June 27, 2010

Take Steps. Be Heard for Crohn's and ColitisJoin the Walk for a Cure!

This June hundreds of people will  join the Greater Los Angeles/Orange County Chapter in the Crohn's and Colitis Foundation's fight against Crohn's disease and ulcerative colitis. Together we'll raise money for crucial research and raise awareness of these painful and unpredictable digestive diseases that afflict millions of people.

  • June 6, 2010 - Take Steps Santa Barabara

    Walk Location:
    Santa Barbara City College
    Time: 4:00 PM

Make Noise and Be Heard! Register today

 

  • June 13, 2010 - Take Steps Los Angeles

    Walk Location: Griffith Park
    Time: 4:00 PM

Make Noise and Be Heard! Register today

 

  • June 27, 2010 - Take Steps Orange County

    Walk Location: Aldrich Park, University or California Irvine
    Time: 5:00 PM

Make Noise and Be Heard! Register today

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SUPPORT GROUPS

Please Note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.

PLEASE JOIN US….
Our casual support group meetings are held in a warm, welcoming and safe atmosphere. All meetings are offered free of charge. People with IBD, their families and friends are encouraged to attend.

WHAT?! We don't have a support group in your area? Would you like to help us? Please contact our office at (310) 478-4500 to inquire about becoming a trained support group facilitator. Facilitator opportunities are also available for existing groups!


20-30s Social/Support Groups

To join the groups and participate in our monthly social gatherings, Yahoo groups email distribution, and guest speaker series, contact our office at (310) 478-4500.

LA 20-30s Social/Support Group Chair: Shelby Lee Jenkins
OC 20-30s Social/Support Group Chair: Amy Owens


Camp Oasis LogoCamp Oasis Youth Club
Connecting CCFA kids and families throughout
the year via weekend recreational activities!

To join the Youth Club and to participate in our monthly recreational therapy programs and guest speaker series, contact our office at (310) 478-4500.

LA Youth Club Chair: Stacy Dylan
OC Youth Club Chair: Kristin Sweaza
(These Moms help organize events and run the parent discussion groups.)



Facilitator Guided Support Groups

Support Group Meeting Calendar
Support Groups Calendar

Click on Calendar above to view meeting times and dates, or check the Support Group list below.

Hawaii
Kaiser Permanente Honolulu Clinic
1010 Pensacola Street, Conference Room 2E
Honolulu, HI 96814
2nd Monday of every month, 7:00-8:30 PM
No Meeting in December

Facilitator: Nita Johnson, (808) 623-9303

Irvine
Hoag Health Center
4870 Barranca Parkway, 3rd Floor
Irvine, CA 92604 
3rd Wednesday of every month, 7:00-8:30 PM

Facilitator: Matt Bays, (949) 923-5444

Los Angeles East J-Pouch Group*
USC Norris Cancer Hospital
1441 Eastlake Avenue
Los Angeles, CA 90033
Lobby Conference Room
Meets quarterly on the first Saturday of the month.
Meetings in 2010 are January 2, April 3, July 3, and October 2.

Facilitators: Dorothy Rocha, MSW, LCSW & Yolee Casagrande, RN, (323) 865-3156
*We partner with this group.

Los Angeles-West
CCFA Greater Los Angeles/Orange County Chapter
1640 S. Sepulveda Blvd., Ste. 214
Los Angeles, CA 90025 
3rd Monday of every month, 6:30-8:30 PM
Due to holidays, no Meeting in January 2010, & February's meeting will be February 1st.

Facilitator: Tillie Huber, R.N. (800) 677-5252

Greater San Gabriel Valley
Foothill Nursing Center
401 West Ada
Glendora, CA 91741
3rd Thursday of every month, 5:00 pm - 6:30 pm 

Facilitator: Gwen Hards, (626) 335-6100,
glhbeach@hotmail.com

Orange - UCI Medical Center
H.H. Chao Comprehensive Digestive Disease Center
101 The City Drive S
Chao Comprehensive Cancer Center, 3rd Floor Lobby Area
Orange, CA 92868
1st Wednesday of every month, 6:30 - 8:30 PM

Facilitator: Kristin McMaster, MSW (714) 456-7057

Orange*
Ostomy Association of Orange County
P.O. Box 7041
Orange, CA 92863

For More information: contact Dixie Bullington (562) 698-8039, dixiebullington@hotmail.com
*We partner with this group.

North Orange
Los Alamitos Medical Center
3751 Katella Avenue
Los Alamitos, CA 90720
Last Monday of every month, 6:00 - 8:00 PM

Facilitator:
Darrin Pagenkopp, MsEd, (714) 280-6377

San Fernando Valley

Valley Beth Shalom
15739 Ventura Blvd.
Encino, CA 91436 
1st Tuesday of every month, 7:30-9:30 PM

Facilitators:
Bebe Shpall, (818) 349-3040
Sue Bagott, (818) 342-9972

Ostomy Association of Los Angeles*
P.O. Box
2077
Winnetka, CA 91306

For more information: contact Bob Hamburg, or Jesse Grazer (818) 337-8416 info@theoala.org - www.theOALA.org
*We partner with this group.


Santa Barbara
Santa Barbara Museum of Natural History 
2559 Puesta del Sol
in the "Leather Lounge"
Santa Barbara, CA 93105  
1st Monday of every month, 7:00 - 8:30 PM

Facilitator: Karen Clark, (805) 252-0491 

San Luis Obispo - Inactive*
French Hospital
1911 Johnson Avenue
San Luis Obispo, CA 93401
Conference Room

*Please call our chapter office at 310-478-4500 if you are interested in activating this group or receiving peer counseling from our Power of Two Program.  Currently, peer counseling is available from former facilitator Neal Webb, R.N.

South Bay
Beach Cities Health District
514 N. Prospect Avenue
Redondo Beach, CA 90277
2nd Thursday of every month, 7:00-8:30 PM
February meeting will be in the Hermosa Room
March meeting will be in the Redondo Room

Facilitator: Gary Hirschhorn, (310) 839-4981

Tehachapi - Inactive* 
Tehachapi Valley Hospital
115 West E Street
Tehachapi, CA 93561 
Conference Room
3rd Thursday of every month
*
Loretta Fleming, (661) 823-9448, is available for peer support until the group becomes active again.

UCLA - Coming Soon! 
Undergrad and Grad Student Group
Ronald Reagan UCLA Medical Center 
757 Westwood Plaza 
Los Angeles, CA 90095 
Location TBD
Facilitator: Nanae Takatori, (916) 207-1805 

Ventura County/Thousand Oaks Area
Los Robles Medical Center - East Campus
Rehabilitation Center - 1st Floor Conference Room
150 Via Merida
Westlake Village, CA 91362
Last Tuesday of every month, 7:00-9:00 PM

Facilitator: Lisa M., (805) 444-7977,
lee410@aol.com

Los Angeles West J-Pouch Group
Ronald Reagan UCLA Medical Center
757 Westwood Plaza
Los Angeles, CA 90095
Basement, room 124 A/B.
Meets quarterly on the second Saturday of the month. Meetings in 2010 are February 13, May 8, August 14, and November 13. Dr. Jonathan Sack, Colorectal Surgeon (UCLA) serves as the medical advisor.

Facilitator: Michael May, mtmay42@yahoo.com or (310) 546-7927


Orange County J-Pouch Group*
St. Joseph's Hospital
1100 W. Stewart Drive
Orange, CA 92868
Basement, meeting rooms A & B
Meets quarterly on the third Saturday of the month. The meetings in 2010 are January 16, April 17, July 17, and October 16.

For more information: 714-771-8000 x7106
* We partner with this group.

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CONTACT INFO

Greater Los Angeles / Orange County Chapter

Address:
1640 S. Sepulveda Blvd, Suite 214
Los Angeles, CA 90025

Phone, Fax, E-mail:
Toll Free: (866) 831-9157
Phone: (310) 478-4500
Fax: (310) 478-4546
E-mail:
losangeles@ccfa.org

Staff Members & Contact Information

Executive Director:
Ronni Epstein
REpstein@ccfa.org
Direct Line: (310) 478-4517

Community Development &
Orange County Walk Manager:
Joslynn Sielaff
JSielaff@ccfa.org

Greater Los Angeles Walk Manager:
Jo Bender
JBender@ccfa.org
Direct Line: (310) 478-4513

Endurance Manager:
Reed Pellett
RPellett@ccfa.org
Direct Line: (310) 694-3343

Development Coordinator:
Iyad Zabaneh
IZabaneh@ccfa.org
Direct Line: (310) 694-3344

Development Assitant & Gift Processing:
Nancy Varat
NVarat
@ccfa.org
Direct Line: (310) 478-4509

Development Assistant:
Paddy Harrigan
PHarrigan@ccfa.org
Direct Line: (310) 694-3340

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