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Greater Los Angeles / Orange County ChapterAddress: 1640 S. Sepulveda Blvd, Suite 214 Los Angeles, CA 90025 | Phone, Fax, E-mail: Toll Free: (866) 831-9157 Phone: (310) 478-4500 Fax: (310) 478-4546 E-mail: losangeles@ccfa.org |
Follow the Greater Los Angeles/Orange County Chapter on facebook!

 
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SUMMER 2012

Join Team Challenge in Hawaii
or Wine Country in 2012!

We're heading back to Kona, Hawaii for the Kona Half marathon on June 24th, and to Wine Country for the Napa to Sonoma Half marathon on July 15th. The Napa to Sonoma race is sold out - your only way in is with Team Challenge! We cover all your travel expenses and train to walk, run or jog a half marathon in these amazing destinations. Would you like to be a part of the next Team Challenge season? We begin training soon for the Napa-to-Sonoma or Kona Half Marathon season! Train with us and see why we have a 100% success rate on race day. You can do it! (And for a great cause!) Click here to learn more, or RSVP to any of the following information meetings: | Thursday, February 16, 2012 at 7:30 p.m. – Runnergy | | Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle | | Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB | | Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse | | Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse | | Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High | | Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's | | Sunday, March 11, 2012 at 4:00 p.m. – Piknic |
 Free Patient Education Program
Santa Barbara Patient Education Workshop Preventive Health: Vaccinations and Cancer Screenings for IBD CenCal Health Saturday, February 18, 2012 12:00 - 2:00 PM RSVP Online Presented by 
Thomas V. Aguirre, M.D. Santa Barbara Gastroenterology Consultants Medical Group For more information, call Iyad Zabaneh or Lindsay Brown at toll free number (866) 831-9157 or (310) 478-4500.
 PROGRAM SLIDES
Camp Oasis Applications Now Available 
July 20-25, 2012 ~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~ Our 2012 session will be held at The Painted Turtle in Lake Hughes, CA. Activities include water and land sports, visual and performing arts, climbing wall, horseback riding and much more!
Applications are now available for campers ages 7-16, Leaders in Training age 17, and volunteers (age 19+). Contact Paddy Harrigan at pharrigan@ccfa.org or 310-694-3340 for more information.
The Voice A bimonthly eNewsletter of The Greater Los Angeles/Orange County Chapter February/March Issue April/May Issue
 June/July Issue August/September Issue
 October/November Issue December Issue

Need more Info on IBD? Check Out Our Lending Library Collection
Our Lending Library features the latest publications on IBD. CCFA members can borrow books from our office collection via phone, e-mail, or in person. Call us at 310-478-4500, or e-mail losangeles@ccfa.org to borrow books today. Lending Library Booklist
We Love Our Volunteers!

(Volunteer Form) Would you enjoy Join Our Star Volunteer Team. If you are interested in volunteering please contact CCFA at (310) 478-4500, or complete the online volunteer form. |
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January 29, 2012
CCFA Orange County Youth Club Event Let's Go Bowling! 
Sunday, January 29, 2012 2:00 - 4:00 p.m.  3415 Michelson Drive Irvine, CA 92612
Space is limited so, RSVP today! Bowling is limited to kids and teens ages 7-18 with IBD. Parents are welcome to accompany kids. Pizza will be served Come visit with old friends and meet some new ones! For more info call Lindsay Brown, Regional Education and Support Manager (310) 478-4500
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February 18, 2012
Santa Barbara Patient Education Workshop Preventive Health: Vaccinations and Cancer Screenings for IBD Satruday, February 18, 2012 12:00 - 2:00 p.m. Location: CenCal Health Presented by: Thomas V. Aguirre, M.D. RSVP Online
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March 31, 2012
Los Angeles Patient and Family Education Conference Saturday, March 31, 2012 8:00 a.m. - 1:00 p.m. Covel Commons, UCLA Online Registration Available in February 2012
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May 3, 2012
 5th Annual Women of Distinction Luncheon
Thursday, May 3, 2012 HONORING Jamie Lee Curtis · Barbara Herman · Pamela Pierce Fashion show presented by Badgley Mischka THE BEVELY HILLS HOTEL Funds raised will support cutting-edge medical research and CCFA programs for those who suffer from Corhn's disease and ulcerative colitis For more information: (310) 478-4500
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May 19, 2012
Take Steps Santa Barbara Walk Saturday, May 19, 2012, 4:00 p.m. Chase Palm Park, Santa Barbara Sign up today! www.cctakesteps.org/santabarbara
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May 24, 2012
Orange County Treatments Program Thursday, May 24, 2012 Location in Orange County TBD Online RSVP Available April 2012
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June 23, 2012
Take Steps Los Angeles Walk Saturday, June 23, 2012, 4:00 p.m. Santa Monica City Hall Sign up today! www.cctakesteps.org/losangeles
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June 24, 2012
Take Steps Orange County Walk Sunday June 24, 2012, 4:00 p.m. Aldrich Park, UCI Campus Sign up today! www.cctakesteps.org/orangecounty
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June 24, 2012
Team Challenge Kona Half Marathon Sunday, June 24, 2012 Click here to learn more, or RSVP to any of the following information meetings: - Thursday, February 16, 2012 at 7:30 p.m. – Runnergy
- Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle
- Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB
- Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse
- Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse
- Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High
- Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's
- Sunday, March 11, 2012 at 4:00 p.m. – Piknic
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July 15, 2012
Team Challenge Napa Half Marathon Sunday, July 15, 2012 Click here to learn more, or RSVP to any of the following information meetings: - Thursday, February 16, 2012 at 7:30 p.m. – Runnergy
- Tuesday, February 21, 2012 at 7:00 p.m. – A Runner's Circle
- Wednesday, February 22, 2012 at 7:30 p.m. – Triathlon LAB
- Saturday, February 25, 2012 at 10:30 a.m. – BJ's Brewhouse
- Saturday, March 3, 2012 at 11:00 a.m. – BJ's Brewhouse
- Tuesday, March 6, 2012 at 7:00 p.m. – Runner's High
- Saturday, March 10, 2012 at 11:00 a.m. – Dave & Buster's
- Sunday, March 11, 2012 at 4:00 p.m. – Piknic
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September 25, 2012
San Fernando Valley Treatments Program Tuesday, September 25, 2012 Location in Burbank TBD Online RSVP Available in August, 2012
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October 1, 2012 - October 31, 2012
16th Annual CCFA Golf Classic Date & Location TBD
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October 13, 2012
Orange County Patient and Family Education Conference Saturday, October 13, 2012 Orange County - TBD Online Regsitration Available in September, 2012
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December 1, 2012 - December 31, 2012
Team Challenge Last Vegas Half Marathon Date TBD Information Meetings Available in July/August 2012
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December 8, 2012
Nutrition & IBD: Choices for Adults & Kids Saturday, December 8, 2012 Riverside County - TBD Online RSVP Available in November 2012
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Please Note: All support group listings are subject to change. Please call the chapter number above to confirm the meeting date, time, and place.
PLEASE JOIN US…. Our casual support group meetings are held in a warm, welcoming and safe atmosphere. All meetings are offered free of charge. People with IBD, their families and friends are encouraged to attend.
WHAT?! We don't have a support group in your area? Would you like to help us? Please contact our office at (310) 478-4500 to inquire about becoming a trained support group facilitator. Facilitator opportunities are also available for existing groups!
20-30s Social/Support Groups
To join the groups and participate in our monthly social gatherings, Yahoo groups email distribution, and guest speaker series, contact our office at (310) 478-4500.
LA 20-30s Social/Support Group Chair: Adina Bodenstein, adina.bodenstein@gmail.com OC 20-30s Social/Support Group Chair: Amy Owens
Camp Oasis Youth Club Connecting CCFA kids and families throughout the year via weekend recreational activities!
To join the Youth Club and to participate in our monthly recreational therapy programs and guest speaker series, contact our office at (310) 478-4500. LA Youth Club Chair: Stacy Dylan OC Youth Club Chair: None; call our office if you're a parent of child with IBD, and are interested in becoming an OC Youth Club Chair. (These Moms help organize events and run the parent discussion groups.)
Facilitator Guided Support Groups
 Support Groups Calendar Click on Calendar above to view meeting times and dates, or check the Support Group list below. Hawaii Kaiser Permanente Honolulu Clinic 1010 Pensacola Street, Conference Room 2E Honolulu, HI 96814 2nd Monday of every month, 7:00-8:30 PM No Meeting in December
Facilitator: Robert Smith, ccfa_hawaii@yahoo.com Los Angeles East J-Pouch Group* USC Norris Cancer Hospital 1441 Eastlake Avenue Los Angeles, CA 90033 Lobby Conference Room Meets quarterly on the first Saturday of the month in March, June, September, and December. Facilitators: Dorothy Rocha, MSW, LCSW & Yolee Casagrande, RN, (323) 865-3156 * We partner with this group.
Los Angeles-West CCFA Greater Los Angeles/Orange County Chapter 1640 S. Sepulveda Blvd., Ste. 214 Los Angeles, CA 90025 3rd Monday of every month, 6:30-8:30 PM (5th Monday in January due to MLK holiday)
Facilitator: Tillie Huber, R.N. (800) 677-5252 Greater San Gabriel Valley Foothill Nursing Center 401 West Ada Glendora, CA 91741 3rd Thursday of every month, 6:00 pm - 7:30 pm (no meeting in April) Facilitator: Gwen Hards, (626) 335-6100, glhbeach@hotmail.com
Orange - UCI Medical Center* H.H. Chao Comprehensive Digestive Disease Center 101 The City Drive S Chao Comprehensive Cancer Center, 2nd Floor Lobby Area Orange, CA 92868 1st Wednesday of every month, 6:30 - 8:30 PM
Facilitator: Kristin McMaster, MSW (714) 456-7057 * We partner with this group.
Orange* Ostomy Association of Orange County P.O. Box 7041 Orange, CA 92863
* We partner with this group.
North Orange Los Alamitos Medical Center 3751 Katella Avenue Los Alamitos, CA 90720 Last Monday of every month, 6:00 - 8:00 PM Facilitator: Darrin Pagenkopp, MsEd, (714) 280-6377 Orange County Parent Network Group Join parents whose children suffer from Crohn's and Colitis in sharing information and support. The group hosts guest speakers on request to discuss various topics that involve children's health with IBD. The Bell Tower 22232 El Paseo Rancho Santa Margarita, CA 92688 Meets quarterly on the 3rd Monday of the month in March, June, September, and December, 6:00 - 8:00 p.m. 2012 Guest Speakers: Facilitator: Pamela George, pammyg05@att.net South Orange County Young Adult Support Group 28281 Crown Valley Parkway Suite 202 Laguna Niguel, CA 92677 3rd Tuesday of every month, from 6:30 - 8:00 PM Facilitator: Jennifer Martin, (949) 916-5060, drjennifer.martin@yahoo.com San Fernando Valley Valley Beth Shalom 15739 Ventura Blvd. Encino, CA 91436 1st Tuesday of every month, 7:30-9:30 PM
Facilitators: Bebe Shpall, (818) 349-3040 Sue Bagott, (818) 342-9972 Ostomy Association of Los Angeles* P.O. Box 2077 Winnetka, CA 91306
For more information: contact Bob Hamburg, or Jesse Grazer (818) 337-8416 info@theoala.org - www.theOALA.org * We partner with this group.
Santa Barbara Santa Barbara Museum of Natural History 2559 Puesta del Sol in the "Leather Lounge" Santa Barbara, CA 93105 1st Monday of every month, 7:00 - 8:30 PM. Please call or email facilitator before attending. Facilitator: Karen Clark, (805) 252-0491, redeyepix@cox.net
San Luis Obispo - Inactive*
* Please call our chapter office at 310-478-4500 if you are interested in activating this group or receiving peer counseling from our Power of Two Program. Currently, peer counseling is available from former facilitator Neal Webb, R.N. South Bay Beach Cities Health District Hermosa or Redondo Room 514 N. Prospect Avenue Redondo Beach, CA 90277 2nd Thursday of every month, 7:00-8:30 PM 2012 Guest Speakers: - February 9th (meeting in Redondo Room): Erin Feldman, R.D., C.S.P. will speak on nutrition & IBD.
- March 8th: Patricia Sievers, General Practitioner in Traditional Chinese Medicine will speak on alternative medicine.
- May 10th: Psychologist Patricia Reece will speak on "Parenting a Crohn's Child."
Facilitator: Gary Hirschhorn, (310) 839-4981 Tehachapi - Inactive* Tehachapi Valley Hospital 115 West E Street Tehachapi, CA 93561 Conference Room 3rd Thursday of every month * Loretta Fleming, (661) 823-9448, is available for peer support until the group becomes active again. UCLA* Undergrad and Grad Student Group UCLA Medical Plaza 200 Medical Plaza, Room 206A Los Angeles, CA 90095 Next meeting will be on Monday January 30th, between 6-8pm. * Group is only for patients or caregivers Facilitator: Nanae Takatori, ntakatori@mednet.ucla.edu
Ventura County/Thousand Oaks Area Los Robles Medical Center - East Campus Rehabilitation Center - 1st Floor Conference Room 150 Via Merida Westlake Village, CA 91362 Last Tuesday of every month, 7:00-9:00 PM No meeting in December due to the Holidays
Facilitator: Lisa M., (805) 444-7977, lee410@aol.com Los Angeles West J-Pouch Group Ronald Reagan UCLA Medical Center 757 Westwood Plaza Los Angeles, CA 90095 Basement, room 124 A/B Meets quarterly on the second Saturday of the month in February, May, August, November. Facilitator: Michael May, mtmay42@yahoo.com or (310) 546-7927 Dr. Jonathan Sack, Colorectal Surgeon (UCLA) serves as the medical advisor. Orange County J-Pouch Group* St. Joseph's Hospital 1100 W. Stewart Drive Orange, CA 92868 Basement, meeting rooms A & B Meets quarterly on the third Saturday of the month in January, April, July, and October. For more information: 714-771-8000 x7106 * We partner with this group. |
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