In 2015, we directed $28.4 million to research — a 21% year-over-year increase – bringing CCFA’s total research investment from inception to $267.1 million. Because of our investment, CCFA has been and will continue to be a part of every major scientific breakthrough in IBD research – a fact we should all be very proud of.
Below are just a few more highlights of our 2015 accomplishments:
• We served 600,000 participants through our education programs, a 105% year-over-year increase!
• Team Challenge engaged 1,724 participants nationwide.
• Take Steps held 140 walks in 41 states, engaging more than 60,000 participants and 220 corporate partners.
Click here to read more about our accomplishments.
IMMUNE RESPONSE RESEARCH CRITICAL TO UNDERSTANDING PATHOLOGY OF CROHN'S DISEASE & ULCERATIVE COLITIS
Crohn’s & Colitis Foundation of America funding millions in research of immune response in IBD patients
While the causes of Crohn’s disease and ulcerative colitis are unknown, several factors play into the development of these diseases – environment, genetics, microbiome, and the immune system. In some patients, the immune system reacts to bacteria in a way that can do harm, causing inflammation and ulceration of the digestive tract and a variety of other debilitating symptoms.
“The study of inflammatory pathways, and the microbes, genes and cells that regulate these pathways, is crucial to our understanding of what leads to excessive inflammation and the factors that maintain immune balance and gut health” said Dr. Scott Snapper, chair of CCFA’s National Scientific Advisory Committee, Associate Professor of Medicine at Harvard Medical School, and Wolpow Family Chair and Director of the Inflammatory Bowel Disease Center at Children’s Hospital Boston. “The immune response is the target for almost all existing IBD treatments and the vast majority of new drugs under investigation. Better understanding of immunologic pathways will lead to novel therapies.”
The Crohn’s & Colitis Foundation of America (CCFA) is funding ground-breaking research to find the root cause of the inappropriate immune response in IBD patients. Understanding why the immune system responds in certain ways will yield to better treatments, new medication options, and help find cures for Crohn’s disease and ulcerative colitis.
In 2015, CCFA provided more than $7 million in grants to support research to understand what is causing the unhealthy immune response in patients with IBD. Close to 70 percent of CCFA’s current investigator-initiated grants are focused on understanding the role of the immune system. Additionally, CCFA’s major research initiatives - Microbiome, Genetics, and Pediatric RISK Stratification Study - are working concurrently to look at different aspects of the immune system’s role in IBD.
For more information about IBD immune response research, watch CCFA’s new video here.
Champions for Charity - Record Breaking Week
From Thursday December 4th through Sunday December 7th several hundred CCFA supporters partied and shopped their way through the Americana and Wheatley Plaza Shopping Centers, led by Chairwoman-extraordinaire, Pauline Olsten and hosted by Nicole Mancini and the fabulous staff of the Michael Kors store, all to raise an astounding and record breaking $81, 900 for CCFA, making us the #1 charity at Champions this year! Champions for Charity is the finest charity shopping program in the country, raising over $1 million dollars every year for local organizations. A special thank you to the Americana Manhasset and Wheatley Plaza Shopping Center, Rita and Frank Castagna and Rebecca Hollander.
4 Stars - Four Years in a Row
We are proud to announce that for the fourth year in a row, CCFA has achieved the coveted 4- star rating for sound fiscal management, commitment to accountability and transparency from Charity Navigator -- America's premier charity evaluator. Charity Navigator highlights the fine work of efficient, ethical and open charities with the goal of providing donors with essential information needed to give them greater confidence in the charitable choices they make.
Receiving four out of a possible four stars indicates that CCFA adheres to good governance and other best practices and that we consistently execute our mission in a fiscally responsible way. Only 8% of the charities rated have received at least 4 consecutive 4-star evaluations which indicates that we outperform most other charities in America.
Julia's Sweet Sixteen benfitting CCFA
On January 31, 2016 Julia Guiffre celebrated her Sweet 16 with friends and family at a spectacular party at the Paramount in Huntington. Because Julia's cousin, Arianna and other family friends have suffered from Crohn's or colitis, Julia decided to use this opportunity to raise funds and awareness for a cure for Crohn's and colitis, rather than receive gifts herself. All in all, Julia's guests donated over $5,000 in her name which will go to fund activities at CCFA's Camp Oasis, among other programs.
UPDATE: New York State Crohn's & Colitis Fairness Act
As part of the advocacy efforts in New York State in 2016 we are focusing on Bill no A277/S4918 - amending the public health law to enact the Crohn's & Colitis Fairness Act into New York State law. This bill addresses restroom access for those with eligible medical conditions. We have some good traction on this bill, which is sponsored by Assemblywoman Amy Paulin (Passed in 2015 in the Assembly last session) and Senator Kemp Hannon. We are trying to build support over the next few months among the NY State Senate in advance of the bill coming up for a vote. The legislators are in their home offices over the next few weeks. We are planning local visits and email campaigns to legislators all over the state. You can help in one of several ways.
- Please thank your Assembly member for their support of this bill
- Please contact your State Senator and let them know you would love for them to support this bill when it comes up for a vote
I am a voter/constituent in your district and I am asking for your support on Bill A277/S4918, which enacts the "Cohn's and Colitis Fairness Act" providing Restroom Access. This bill would allow people with medical conditions that require urgent restroom use--such as inflammatory bowel diseases (IBD) Crohn's disease and ulcerative colitis--to use an employee's-only restroom when a public one is not available and it is safe for the business to do so. In NY State there are more than 100,000 people with these debilitating diseases. I am sure you can imagine how it must feel to be denied access to a bathroom when you so desperately need one. This Bill is important to me because...(I have IBD or am related to or friend's with - whatever personal connection you wish to share).
Please support this bill and vote for it when it comes before you. If you need more information please feel free to visit the website http://www/ccfa.org/
Medication Co-Pay Help is HERE!
As a result of the Affordable Care Act and many health insurers increasing Co-Pay amounts for IBD medications, many of the pharmaceutical companies have instituted programs for which there are no low-income thresholds, but may require you to be insured. Below is a partial list of programs for commonly prescribed medications for IBD patients. Please consult the CCFA IBD Help Center (888-694-8872) and speak to one of our information specialist or ask your physician for more information on how you can save.
Crohn's & Colitis Foundation of America Announces New President & CEO
Michael Osso Appointed
The National Board of Trustees announced that Michael Osso has been selected as the next President & CEO of the Crohn's & Colitis Foundation of America. For the past two years, Osso has served as the Foundation's Chief Business Development Officer where her has been instrumental in expanding CCFA's revenue portfolio and has been as integral member of the senior leadership team.
"Michael's passion for our mission and commitment to the patients we serve, coupled with his proven success and vast experience, make him the ideal person to lead CCFA into the future," said Richard J. Geswell, President & CEO. "I will head into retirement knowing that we have the right leader in place to take CCFA to the next level."
Osso has spent his entire professional; career in the non-profit sector. His background in staff and volunteer development; fundraising and marketing; strategy development and implementation; financial management and operations; and community-outreach and board development has benefited a variety if nonprofits over the last 25 years.
Prior to joining CCFA, Osso spent seven years at The Leukemia & Lymphoma Society (LLS) - first as the Executive DIrector of its New York City Chapter and then as SVP of Revenue at the national office. His responsibilities include oversight of LLS's national fundraising campaigns including Team In Training and Light The Night Walk. as well as its major and planned giving efforts. Osso is a graduate of the Wharton School at The University of Pennsylvania.
"There has never been a more exciting time in CCFA history than nor," said Michael Osso, CCFA's President & CEO elect. "The progress we have made over the past ten years under Rick's leadership has been tremendous, and I look forward to being able to build upon that success. I believe the Foundation is on the brink of game-changing breakthroughs for our patients."
Osso will assume the role of President & CEO on August 1, 2015. He is a native New Yorker and currently resides in Manhattan with his partner of 12 years. An avid singer, he is a member of the performing group Forte. This summer, he is showing his personal commitment to the cause br participating in the Napa-to Sonoma Half marathon as part of CCFA's endurance and training fundraising, Team Challenge.
U.S. Limousine is a proud supporter of the Crohn's & Colitis Foundation of America. U.S. limo is graciously offering 10% off any limousine service and 10% of all sales from this promotion will go directly to CCFA.
When you book your limo please mention code CCFA.
Check out CCFA Long Island's E-Newsletters
♦ February 2016 |
Find a clinical trial
CCFA maintains a comprehensive database of studies, clinical trials, and other research into Crohn's Disease and Ulcerative Colitis. You can use our search tool to access listings for current and upcoming opportunities to participate in this research.