Federal Advocacy Update
The Congressional Crohn's & Colitis Caucus continues to grow thanks to the incredible work of our local volunteers. In the last 2 months Representatives King (NY-R), Hasting (D-FL), and Rigell (VA-R) have all joined the Caucus. Special thanks to all volunteers that sent letters and scheduled local meetings. We currently have 55 members in the caucus and we need your help to engage more representatives. By the end of 2016, we hope to have 100 members in the caucus. With your help, we can reach this goal! It's easy to ask your representative to join the caucus. Simply visit CCFA's advocacy website and complete the Join the Caucus action letter. The letter will automatically be sent to your local congress person.
Spin4 crohn's & colitis cures...
Spin4 crohn's & colitis cures is an indoor cycling relay that raises funds for the Crohn's & Colitis Foundation of America. Participating during Crohn's & Colitis Awareness Week in our inaugural indoor cycling event on December 5th. You can ride solo for the entire 2 hours, if you're tough enough, or grab some friends to form a team. More teammates = less sweat for you! Each bike has a commitment of $1,000, but you can raise more to get VIP perks and help fund cures faster! You'll even receive access to fundraising tips, tricks & tools to help along the way. Join the movement, and reserve your bike at www.spin4.org. Check it out here
For more information, contact Jessica Dean, National Program manager at 310-694-3343 or firstname.lastname@example.org.
Medication Co-Pay Help is HERE!
As a result of the Affordable Care Act and many health insurers increasing Co-Pay amounts for IBD medications, many of the pharmaceutical companies have instituted programs for which there are no low-income thresholds, but may require you to be insured. Below is a partial list of programs for commonly prescribed medications for IBD patients. Please consult the CCFA IBD Help Center (888-694-8872) and speak to one of our information specialist or ask your physician for more information on how you can save.
Crohn's & Colitis Foundation of America Announces New President & CEO
Michael Osso Appointed
The National Board of Trustees announced that Michael Osso has been selected as the next President & CEO of the Crohn's & Colitis Foundation of America. For the past two years, Osso has served as the Foundation's Chief Business Development Officer where her has been instrumental in expanding CCFA's revenue portfolio and has been as integral member of the senior leadership team.
"Michael's passion for our mission and commitment to the patients we serve, coupled with his proven success and vast experience, make him the ideal person to lead CCFA into the future," said Richard J. Geswell, President & CEO. "I will head into retirement knowing that we have the right leader in place to take CCFA to the next level."
Osso has spent his entire professional; career in the non-profit sector. His background in staff and volunteer development; fundraising and marketing; strategy development and implementation; financial management and operations; and community-outreach and board development has benefited a variety if nonprofits over the last 25 years.
Prior to joining CCFA, Osso spent seven years at The Leukemia & Lymphoma Society (LLS) - first as the Executive DIrector of its New York City Chapter and then as SVP of Revenue at the national office. His responsibilities include oversight of LLS's national fundraising campaigns including Team In Training and Light The Night Walk. as well as its major and planned giving efforts. Osso is a graduate of the Wharton School at The University of Pennsylvania.
"There has never been a more exciting time in CCFA history than nor," said Michael Osso, CCFA's President & CEO elect. "The progress we have made over the past ten years under Rick's leadership has been tremendous, and I look forward to being able to build upon that success. I believe the Foundation is on the brink of game-changing breakthroughs for our patients."
Osso will assume the role of President & CEO on August 1, 2015. He is a native New Yorker and currently resides in Manhattan with his partner of 12 years. An avid singer, he is a member of the performing group Forte. This summer, he is showing his personal commitment to the cause br participating in the Napa-to Sonoma Half marathon as part of CCFA's endurance and training fundraising, Team Challenge.
Find a clinical trial
CCFA maintains a comprehensive database of studies, clinical trials, and other research into Crohn's Disease and Ulcerative Colitis. You can use our search tool to access listings for current and upcoming opportunities to participate in this research.