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SPECIAL HIGHLIGHTS

Upcoming Chapter Events (scroll down for more information)

See below for all event details as they are announced: 

GOLF AT THE CREEK POSTPONED-SEE BELOW FOR NEW DATE AND OTHER INFORMATION     

  • TEAM CHALLENGE
  • LAS VEGAS - Informational Meetings begin in August.                          
  • NAPA TO SONOMA -- JULY 18, 2010
  • RESEARCH ALLIANCE ANNUAL
    MEETING
     --July 21, 2010

  • CAMP OASIS--August 17-22, 2010
  • UNDERSTANDING IBD:  What Every Patient
    Needs to Know
    - -Nov. 18, 2010


Volunteers Needed

The Long Island Chapter is always in need of some helping hands! Please contact the Chapter office if you are interested in volunteering by emailing us at longisland@ccfa.org or calling us at 516-222-5530.

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CALENDAR/EVENTS
September 12, 2010

Animated Baseball Player

Mets Strike Out
Crohn's & Colitis Day

Help Create CCFA History—Be part of an "Amazing" Day at Citifield!

Mets Logo

Bring your family and friends to the Fourth Mets Strike Out Crohn's & Colitis Day.

Sunday, September 12, 2010
The New York Mets vs. The Philadelphia Phillies
Pre-game Ceremonies 12:30PM
Game Start: 1:10 PM

The METS will welcome all "CCFA"ers with specially designated seating, announcements on the PA system, on the scoreboard and in pre-game ceremonies.  A portion of ticket proceeds will benefit CCFA.

  Every person who orders their tickets online will receive a Skyline Keychain.

 Ordering tickets is easy! 

Order online (ID=CCFA, password=METS)

To order by mail or fax, download the order form and submit by mail or fax as instructed (will need Adobe Acrobat Reader in order to download, available free at www.adobe.com).

For more information, call Susan Gomberg, CCFA, Long Island Chapter, 516-222-5530 or John Hazelett, New York Mets, 718-803-4037.

September 30, 2010

CCFA Long Island Chapter

ANNUAL GOLF OUTING


Golf at The Creek

NEW DATE!!!

THURSDAY, SEPTEMBER 30TH
Locust Valley, New York

SPECIAL PRICING NOW AVAILABLE
FOR PLAY AND SPONSORSHIPS.

ENJOY A GREAT DAY OF EARLY FALL GOLF ON ONE OF
LONG ISLAND'S MOST PRESTIGIOUS COURSES.


RAFFLE! AUCTION! AND FUN CONTESTS!

 Please call the Chapter office at 516-222-5530 for corporate
sponsorship opportunities and play details.

October 2, 2010

NEW FALL WALK FOR EASTERN LONG ISLAND!

Saturday, October 2nd
3PM Registration
Riverhead Campus Suffolk County Community College

Help CCFA Take Steps and Be Heard at "Take Steps 2010"
 

Join CCFA as we make noise "Out East"

Register today, visit www.cctakesteps.org/riverhead or for information about the benefits of becoming a Team Captain, A Corporate Sponsor or a Refreshment Provider contact Walk Manager, Kate Butler, at (516) 222-5530 or at kbutler@ccfa.org




November 18, 2010

Understanding Inflammatory Bowel Diseases:
  What Every Patient Needs to Know

A FREE educational program for patients,
families and caregivers living with
Crohn's disease and ulcerative colitis.

Date:  Thursday, November 18, 2010

Time:  7:00PM - 9:00PM

Location:  Islandia Marriott
3635 Express Drive North
Islandia, NY  11749

Register today!! 

Speaker:  Dr. Robert Tepper
Associate Attending Physican, North Shore/LIJ Health System
Co-Chairman, Long Island Chapter Medical Advisory Committee

Program Topics include:

  • Overview of inflammatory bowel diseases
  • Review of current therapies and emerging research
  • Management of disease and treatment-related side effects
  • Question-and-answer session

This program is supported by educational grants from



Please call the Chapter Office with any questions
(516) 222-5530 or email Amy Padva at apadva@ccfa.org

December 5, 2010



Team Challenge Long Island is heading to Vegas...Join Us!

You Can...

  • Make a Change
  • Help Find Cures
  • Run or Walk 13.1 Miles

Las Vegas Rock 'n' Roll Half Marathon -- (Dec 5, 2010) -- Information Meetings begin in August. 

        Join Team Long Island and train locally for a 13.1 mile walk/run to raise awareness and funds for Crohn's disease and ulcerative colitis.  Team Challenge events are in exciting locations nationwide - next stop is the Vegas Strip! 

Learn More about how YOU can join the team at an upcoming information meeting.

For more details and to RSVP, visit:

http://www.ccteamchallenge.org/teams/Long_Island_chapter.htm 

Contact Stacey Clark/CCFA at 516-222-5530 or sclark@ccfa.org.

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SUPPORT GROUPS
  • CCFA Long Island
    Patient & Family Services Program

To participate in any Support Group Program, you must be a current, paid member of CCFA and pre-registered for the specific group you wish to be a part of.  When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees.

If not a member, please pay $30 to cover membership dues for one year,
along with $15 per person, semi-annual support group fee.

Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday.

If you are attending a group for the first time, or have any doubts about the schedule, please contact the CCFA Office at 516-222-5530.

IBD 101  Spring 2010

Strongly recommended for the newly diagnosed or someone who has never attended a CCFA support group.  Topics include facts about Crohn's disease and ulcerative colitis, medications, nutrition, doctor/patient relationship and more.  Upon conclusion, participants are encouraged to join a monthly support group.

IBD 101 NassauIDB 101 Suffolk

Duration:  4 week session beginning
Date:  Tuesday evenings, April 6,13,20, 27 2010
Pre-registration Required--Not a Drop-In Group

Duration:  4 week session beginning
Date:  Wednesday evenings, April 7,14, 21, 28, 2010
Pre-registration Required.  Not a Drop-In Group
Time:  7:30PMTime:  7:30PM
Location:  Garden City, Chapter OfficeLocation:  Commack

Ongoing, Monthly, Specialized Support Groups:

 **New Teen Girl's Program

Are you a teenage girl (age 14-18) with IBD?  Want to meet   other young woman who share your concerns?  The group is  facilitated by trained volunteers and will take the direction the group determines.  Serious or social - majority rules.  Meets in Garden City - and what happens in Garden City, stays in Garden City!

  Where:  Chapter Office, Garden City
  When:  June TBD
  Time:  5:30 PM

Couple's Program
This program provides couples an opportunity to meet, in an informal and supportive setting, to discuss living and coping with chronic disease.  Participants will be given the support and encouragement needed to work on the challenges couples face.

Nassau Couples Support  
Where: Dix Hills, NY
When:  Monday's TBD
Time:   7:30 pm
 
Suffolk Couples Support
Pending Registration
 
Parent's Program
The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves.

Nassau Parent's Support 
Where:  Chapter Office, Garden City
When:  1st Tuesday of each month
Time:   7:30 PM 

Suffolk Parent's Support
Where:  Mather Hospital, Pt. Jeff
OR Classroom, Out-Patient Ambulatory Building
When:   1st Tuesday of each month
Time:    7:30 PM

Women's Program
As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD.  These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully. 

Nassau Women's Support  
Where:  Chapter Office, Garden City
When:   1st Wednesday of each month
Time:   7:00 PM  

Suffolk Women's Support
Where:  Mather Hospital
OR Classroom, Out-Patient Ambulatory Building
When:  Last Tuesday of the month
Time:  7:30PM

Men's Program
Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness.

Men's Support
Where: Syosset Hospital
Conference Room B
When:  Last Tuesday of each month
Time:   7:15 PM

To register or for more information on registration and locations,
please contact Mary or Susan at (516) 222-5530.

All dates and locations are subject to change. 


Couple's Program
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MORE INFORMATION

New Patient "Buddy" Connection
Looking to find support and comfort by talking to someone one on one who knows the challenges of living with Crohn's disease or ulcerative colitis? We'll connect you to a trained volunteer, based on your needs – to help answer questions, visit someone in the hospital, or just be there to listen.  If you want a "Buddy", please contact Susan Gomberg at 516-222-5530 or
sgomberg@ccfa.org 

Workplace Giving
Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. Employees in corporations, federal agencies, and state/municipal governments nationwide give to CCFA through Community Health Charities. CHC has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at 516-222-5530

Donate Your Car, Boat or R.V.
Before you sell your vehicle, consider donating it to CCFA. Our vehicle donation program helps to raise needed funds for research and community-based education programs. Our vehicle donation program makes it easy and you will also receive a tax deduction. Call Susan Gomberg at 516-222-5530 for more information or email
sgomberg@ccfa.org.


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CONTACT INFO

Long Island Chapter

Crohn's & Colitis Foundation of America
585 Stewart Avenue
Suite 580
Garden City, NY 11530

Phone: (516) 222-5530
Fax: (516) 222-5535
Email:
longisland@ccfa.org 

Staff Contacts

Edda Ramsdell
Executive Director
eramsdell@ccfa.org

Susan Gomberg
Director of Development
sgomberg@ccfa.org

Kate Butler
Development Manager - Take Steps Walk
kbutler@ccfa.org

Stacey Clark
Endurance Manager - Team Challenge
sclark@ccfa.org

Amy Padva
Administrative Coordinator
Education and Development
apadva@ccfa.org

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