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SPECIAL HIGHLIGHTS

Upcoming chapter events
(scroll down for more information) 

Laugh 'til it Stops Hurting: Spring Comedy Event will be held on Friday, May 18, 2012.  Honoring Ilise, Craig, David and Jonathan Cohen with the Mission Award and featuring a hilarious comedy performance by Susie Essman, co-star of HBO's hit series Curb Your Enthusiasm, this event will be held at the beautiful Glen Oaks Country Club and includes dinner and a luxurious live and silent auction.  Click here for more information.

Education and Support Programs Are you or a family member newly diagnosed with Crohn's disease or ulcerative colitis? Thinking about joining a support group? CCFA offers one-night and four-week education programs, as well as ongoing support groups.

Take Steps for Crohn's & Colitis - Join us on June 9 in Massapequa and October 14 in Stony Brook for the 2012 walks. Learn more about starting a team and sponorship opportunities and meet our 2012 Corporate Chairperson, Mark Puccio.

Golf at the Creek:  Thursday, July 19, 2012.  Join us for a great day of golf for a great cause -- a cure for IBD.  Enjoy brunch, contests, auctions, raffles and dinner at The Creek's beautiful new beach pavilion.  Click here for sponsorship and play opportunities. 

Team Challenge is the CCFA's endurance training and fundraising program.  It's the perfect way to improve your fitness while making a difference.  If you are a novice, you will do what you never thought possible.  If you are enxeprienced runner or walker, you will reach a new personal best!  Go to Team Challenge Long Island! to learn how you can: challenge, change, CURE!

Volunteers Needed

The Long Island Chapter is always in need of some helping hands! Please contact the Chapter office if you are interested in volunteering by emailing us at longisland@ccfa.org or calling us at 516-222-5530.


Upcoming Third-party Events to Benefit the Long Island Chapter

June 11, 2012
Kiwanis of Patchogue Golf Outing to Benefit Pediatric Programs and Research
Rock Hill Country Club, Manorville, NY

Lots of prizes, raffles, and a fun day of golf! For more information, call Phil Muller, Event Chairman, 516-576-0176



The Chapter is proud to announce the creation of a Young Professionals Group.
All interested patients, friends and family members between the ages 22 and 40 who live or work on Long  Island are welcome to join and become involved.  See the events section below for next meeting date and other information or "like" us on Facebook at the CCFA Young Professionals of Long Island page.



Get up-to-the-minute news and events from the Long Island Chapter on our Facebook Page


INTRODUCING THE KEYHOLDER'S CIRCLE
The Keyholder's Circle members are stakeholders who, by possessing the resources to make a significant gift to research, "hold the key" to a cure. The Keyholder's Circle meets four times a year, in small private settings, with leading IBD experts, to learn about the latest in scientific research and how the members, by pooling their resources as a group, can support CCFA's scientific agenda.  For more information on membership in the Circle, please contact Susan Gomberg, Development Director at (516) 222-5530 or by email at: sgomberg@ccfa.org

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CALENDAR/EVENTS
May 18, 2012


Comedy Masks     Laugh 'til It Stops Hurting
 
-A Mission Critical Event-

Honoring

Ilise, Craig, David and Jonathan Cohen
with the Mission Award

Featuring a hilarious performance by

 Susie Essman

Date:  Friday, May 18, 2012

Location:  Glen Oaks Country Club
              Old Westbury, NY

Cocktails and Strolling Supper 7:30PM

Performance 9:00PM

Attire: Business Casual

Visit the event website for information on Underwriting 
Packages,Sponsorships Leadership Packages and Reservations.
Contact Susan Gomberg, Development Director or
Sandra Ehrlich, Development Coordinator 
at (516) 222-5530 for more information.  

June 5, 2012

A one-night program for IBD patients, their families and caregivers.

Tuesday, June 5 ~ 7:30pm
Golf Club Lane Senior Center
6 Golf Club Lane, Garden City

In one night participants will receive an introduction to a variety of IBD topics and meet with CCFA support group leaders.

No cost to attend - registration is required.
Call 516-222-5530 or go to http://online.ccfa.org/askibd to sign up.

June 9, 2012 - October 14, 2012

 

Mark your calendars for the 2012 Take Steps Walks!

Saturday, June 9, 2012 
Marjorie Post Park, Massapequa, NY

Sunday, October 14, 2012
Stony Brook University, Stony Brook, NY

For more details on becoming a fundraising team or individual, corporate sponsor, volunteer, as well as event details, visit:
www.cctakesteps.org/longisland

We are pleased to announce Mark Puccio of Puccio Electric Contracting in Center Moriches has signed on to be the 2012 Corporate Chairperson for Take Steps.
In 2011, Mark's leadership of the Puccio Electric Team raised over $10,000!  This year, setting sights even higher, Puccio Electric, definitely LOUD and PROUD, have set a GOAL of $15,000! Read more about Mark's Take Steps team and Puccio Electric Contracting.
 
Contact Suzanne Beck, Walk Manager at sbeck@ccfa.org or call the chapter office at (516) 222-5530

July 19, 2012

CCFA Long Island Chapter

ANNUAL GOLF OUTING


Golf at The Creek

THURSDAY, July 19, 2012
Locust Valley, New York

Click here for Directions to The Creek

Now taking reservations for sponsorships and play opportunities

ENJOY A GREAT DAY OF GOLF ON ONE OF
LONG ISLAND'S MOST PRESTIGIOUS COURSES.


RAFFLE! AUCTION! AND FUN CONTESTS!

 Please call the Chapter office at 516-222-5530 for corporate
sponsorship opportunities and play details.

August 18, 2012 - August 23, 2012

August 18th - 23rd

~A co-ed residential camp for kids with Crohn's disease and ulcerative colitis~

Our 2012 session will be held at Camp Scatico in Elizaville, New York from August 18-23.

The deadline for camper applications has passed. If you have completed an application, please make sure to send the required forms at your earliest convenience. If you have any questions about the Wait List for the 2012 season, please contact the chapter office at 516-222-5530.

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SUPPORT GROUPS

CCFA Long Island Patient & Family Services Program

To participate in any Support Group Program, you must be a current, paid member of CCFA and pre-registered for the specific group you wish to be a part of (A.S.K. IBD is free and open to non-members).  When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees.

If not a member, please pay $30 to cover membership dues for one year, along with $15 per person, semi-annual support group fee.

Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday.

Prior to attending a support group meeting, please contact the CCFA Office at 516-222-5530 to confirm.


A.S.K. IBD - Answers, Support & Knowledge
One-night education and support program

A new program for those who cannot attend a four-week session. Recommended for newly-diagnosed IBD patients, their families and caregivers. Participants will receive an introduction to a variety of IBD topics and have an opportunity to meet with support group facilitators

A.S.K. IBD is free and open to both CCFA members and non-members.

Tuesday, June 5 - 7:30 pm
Golf Club Lane Senior Center, Garden City
To register call 516-222-5530 or go to http://online.ccfa.org/askibd

IBD 101
Four-week introductory program

Strongly recommended for the newly-diagnosed and those who have never attended a CCFA support group. Topics include facts about Crohn's disease and ulcerative colitis, medications, nutrition, doctor/patient relationship and more. Upon conclusion, participants are encouraged to join a monthly support group.

IBD 101 will next be held in the Fall. Dates and locations to be announced soon.


Ongoing, Monthly, Specialized Support Groups:

Teen Girl's Group

Are you a teenage girl (age 14-18) with IBD?  Want to meet other young women who share your concerns?  The group is  facilitated by trained volunteers and will take the direction the group determines.  Serious or social - majority rules.  Meets in Garden City - and what happens in Garden City, stays in Garden City!

Where: Chapter Office, Garden City
When:  Last Wednesday of each month
Time:  7:00 pm

Parent's Group

The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves.

Nassau Parent's Support
Where:
  Chapter Office, Garden City
When:  1st Tuesday of each month
Time:   7:30 PM

Suffolk Parent's Support
Where:
  Mather Hospital, Pt. Jefferson -- OR Classroom, Out-Patient Ambulatory Building
When:   1st Tuesday of each month
Time:    7:30 PM

Women's Group

As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD.  These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully. 

Nassau Women's Support Group 
Where:
  Chapter Office, Garden City
When:   1st Wednesday of each month
Time:   7:00 PM 

Suffolk Women's Support Group
Now forming - Date, time and location TBD

Men's Group

Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness.

Men's Support Group
Where: Chapter office, Garden City
When:  Last Monday of each month
Time:   7:30 PM

To register or for more information on registration and locations, please contact Amy or Susan at (516) 222-5530.

All dates and locations are subject to change. 


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MORE INFORMATION

New Patient "Buddy" Connection
Looking to find support and comfort by talking to someone one on one who knows the challenges of living with Crohn's disease or ulcerative colitis? We'll connect you to a trained volunteer, based on your needs – to help answer questions, visit someone in the hospital, or just be there to listen.  If you want a "Buddy", please contact Susan Gomberg at 516-222-5530 or
sgomberg@ccfa.org 

Workplace Giving
Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. Employees in corporations, federal agencies, and state/municipal governments nationwide give to CCFA through Community Health Charities. CHC has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at 516-222-5530

Donate Your Car, Boat or R.V.
Before you sell your vehicle, consider donating it to CCFA. Our vehicle donation program helps to raise needed funds for research and community-based education programs. Our vehicle donation program makes it easy and you will also receive a tax deduction. Call Susan Gomberg at 516-222-5530 for more information or email
sgomberg@ccfa.org.


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CONTACT INFO

Long Island Chapter

Crohn's & Colitis Foundation of America
585 Stewart Avenue
Suite 580
Garden City, NY 11530

Phone: (516) 222-5530
Fax: (516) 222-5535
Email:
longisland@ccfa.org 

Staff Contacts

Edda Ramsdell
Executive Director
eramsdell@ccfa.org

Susan Gomberg
Director of Development
sgomberg@ccfa.org

Brian Crocitto
Endurance Manager - Team Challenge
bcrocitto@ccfa.org

Suzanne Beck
Walk Manager - Take Steps
sbeck@ccfa.org

Amy Padva
Administrative Coordinator
Education and Development
apadva@ccfa.org

Sandra Ehrlich
Development Coordinator
Education and Development
sehrlich@ccfa.org

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