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Upcoming Chapter Events (scroll down for more information)
See below for all event details as they are announced:
GOLF AT THE CREEK POSTPONED-SEE BELOW FOR NEW DATE AND OTHER INFORMATION
- TEAM CHALLENGE
- LAS VEGAS - Informational Meetings begin in August.
- NAPA TO SONOMA -- JULY 18, 2010
- RESEARCH ALLIANCE ANNUAL
MEETING --July 21, 2010
- CAMP OASIS--August 17-22, 2010
- UNDERSTANDING IBD: What Every Patient
Needs to Know - -Nov. 18, 2010
Volunteers Needed The Long Island Chapter is always in need of some helping hands! Please contact the Chapter office if you are interested in volunteering by emailing us at longisland@ccfa.org or calling us at 516-222-5530.
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September 12, 2010
Mets Strike Out
Crohn's & Colitis Day Help Create CCFA History—Be part of an "Amazing" Day at Citifield! 
Bring your family and friends to the Fourth Mets Strike Out Crohn's & Colitis Day. Sunday, September 12, 2010
The New York Mets vs. The Philadelphia Phillies
Pre-game Ceremonies 12:30PM
Game Start: 1:10 PM The METS will welcome all "CCFA"ers with specially designated seating, announcements on the PA system, on the scoreboard and in pre-game ceremonies. A portion of ticket proceeds will benefit CCFA. Every person who orders their tickets online will receive a Skyline Keychain.
Ordering tickets is easy!
Order online (ID=CCFA, password=METS)
To order by mail or fax, download the order form and submit by mail or fax as instructed (will need Adobe Acrobat Reader in order to download, available free at www.adobe.com). For more information, call Susan Gomberg, CCFA, Long Island Chapter, 516-222-5530 or John Hazelett, New York Mets, 718-803-4037.
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September 30, 2010
CCFA Long Island Chapter ANNUAL GOLF OUTING
Golf at The Creek NEW DATE!!!
THURSDAY, SEPTEMBER 30TH
Locust Valley, New York SPECIAL PRICING NOW AVAILABLE
FOR PLAY AND SPONSORSHIPS. ENJOY A GREAT DAY OF EARLY FALL GOLF ON ONE OF
LONG ISLAND'S MOST PRESTIGIOUS COURSES.
RAFFLE! AUCTION! AND FUN CONTESTS!
Please call the Chapter office at 516-222-5530 for corporate
sponsorship opportunities and play details.
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October 2, 2010
NEW FALL WALK FOR EASTERN LONG ISLAND! Saturday, October 2nd
3PM Registration
Riverhead Campus Suffolk County Community College
Help CCFA Take Steps and Be Heard at "Take Steps 2010"
Join CCFA as we make noise "Out East"
Register today, visit www.cctakesteps.org/riverhead or for information about the benefits of becoming a Team Captain, A Corporate Sponsor or a Refreshment Provider contact Walk Manager, Kate Butler, at (516) 222-5530 or at kbutler@ccfa.org
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November 18, 2010
Understanding Inflammatory Bowel Diseases:
What Every Patient Needs to Know A FREE educational program for patients,
families and caregivers living with
Crohn's disease and ulcerative colitis.
Date: Thursday, November 18, 2010 Time: 7:00PM - 9:00PM Location: Islandia Marriott
3635 Express Drive North
Islandia, NY 11749
Register today!!
Speaker: Dr. Robert Tepper
Associate Attending Physican, North Shore/LIJ Health System
Co-Chairman, Long Island Chapter Medical Advisory Committee
Program Topics include: Overview of inflammatory bowel diseases Review of current therapies and emerging research Management of disease and treatment-related side effects Question-and-answer session
This program is supported by educational grants from
Please call the Chapter Office with any questions
(516) 222-5530 or email Amy Padva at apadva@ccfa.org
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December 5, 2010
Team Challenge Long Island is heading to Vegas...Join Us!
You Can... Make a Change Help Find Cures Run or Walk 13.1 Miles
Las Vegas Rock 'n' Roll Half Marathon -- (Dec 5, 2010) -- Information Meetings begin in August.
Join Team Long Island and train locally for a 13.1 mile walk/run to raise awareness and funds for Crohn's disease and ulcerative colitis. Team Challenge events are in exciting locations nationwide - next stop is the Vegas Strip!
Learn More about how YOU can join the team at an upcoming information meeting. For more details and to RSVP, visit: http://www.ccteamchallenge.org/teams/Long_Island_chapter.htm Contact Stacey Clark/CCFA at 516-222-5530 or sclark@ccfa.org.
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- CCFA Long Island
Patient & Family Services Program
To participate in any Support Group Program, you must be a current, paid member of CCFA and pre-registered for the specific group you wish to be a part of. When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees. If not a member, please pay $30 to cover membership dues for one year,
along with $15 per person, semi-annual support group fee. Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday. If you are attending a group for the first time, or have any doubts about the schedule, please contact the CCFA Office at 516-222-5530. IBD 101 Spring 2010 Strongly recommended for the newly diagnosed or someone who has never attended a CCFA support group. Topics include facts about Crohn's disease and ulcerative colitis, medications, nutrition, doctor/patient relationship and more. Upon conclusion, participants are encouraged to join a monthly support group. | IBD 101 Nassau | IDB 101 Suffolk | Duration: 4 week session beginning
Date: Tuesday evenings, April 6,13,20, 27 2010
Pre-registration Required--Not a Drop-In Group | Duration: 4 week session beginning
Date: Wednesday evenings, April 7,14, 21, 28, 2010
Pre-registration Required. Not a Drop-In Group | | Time: 7:30PM | Time: 7:30PM | | Location: Garden City, Chapter Office | Location: Commack |
Ongoing, Monthly, Specialized Support Groups: **New Teen Girl's Program 
Are you a teenage girl (age 14-18) with IBD? Want to meet other young woman who share your concerns? The group is facilitated by trained volunteers and will take the direction the group determines. Serious or social - majority rules. Meets in Garden City - and what happens in Garden City, stays in Garden City!
Where: Chapter Office, Garden City
When: June TBD
Time: 5:30 PM Couple's Program
This program provides couples an opportunity to meet, in an informal and supportive setting, to discuss living and coping with chronic disease. Participants will be given the support and encouragement needed to work on the challenges couples face. Nassau Couples Support
Where: Dix Hills, NY
When: Monday's TBD
Time: 7:30 pm
Suffolk Couples Support
Pending Registration
Parent's Program
The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves. Nassau Parent's Support
Where: Chapter Office, Garden City
When: 1st Tuesday of each month
Time: 7:30 PM Suffolk Parent's Support
Where: Mather Hospital, Pt. Jeff
OR Classroom, Out-Patient Ambulatory Building
When: 1st Tuesday of each month
Time: 7:30 PM Women's Program
As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD. These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully. Nassau Women's Support
Where: Chapter Office, Garden City
When: 1st Wednesday of each month
Time: 7:00 PM Suffolk Women's Support
Where: Mather Hospital
OR Classroom, Out-Patient Ambulatory Building
When: Last Tuesday of the month
Time: 7:30PM
Men's Program
Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness. Men's Support
Where: Syosset Hospital
Conference Room B
When: Last Tuesday of each month
Time: 7:15 PM To register or for more information on registration and locations,
please contact Mary or Susan at (516) 222-5530. All dates and locations are subject to change.
Couple's Program |
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