CCFA Long Island Patient & Family Services Program
To participate in any Support Group Program, you must be a current, paid member of CCFA and pre-registered for the specific group you wish to be a part of (A.S.K. IBD is free and open to non-members). When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees.
If not a member, please pay $30 to cover membership dues for one year, along with $15 per person, semi-annual support group fee.
Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday.
Prior to attending a support group meeting, please contact the CCFA Office at 516-222-5530 to confirm.
IBD 101
Four-week introductory program
Strongly recommended for the newly-diagnosed and those who have never attended a CCFA support group. Topics include facts about Crohn's disease and ulcerative colitis, medications, nutrition, doctor/patient relationship and more. Upon conclusion, participants are encouraged to join a monthly support group.
Dates: Tuesdays, March 6, 13, 20 & 27
Time: 7:30 pm
Location: Commack, NY
To register for IBD 101, please call the chapter office at 516-222-5530 or email apadva@ccfa.org
A.S.K. IBD - Answers, Support & Knowledge
One-night education and support program
A new program for those who cannot attend a four-week session. Recommended for newly-diagnosed IBD patients, their families and caregivers. Participants will receive an introduction to a variety of IBD topics and have an opportunity to meet with support group facilitators
A.S.K. IBD is free and open to both CCFA members and non-members.
To register go to http://online.ccfa.org/askibd or call 516-222-5530
Thursday, February 9 - 7:30pm
North Merrick Public Library
1691 Meadowbrook Road, North Merrick
More locations in Nassau and Suffolk Counties to be announced soon.
Ongoing, Monthly, Specialized Support Groups:
Teen Girl's Group
Are you a teenage girl (age 14-18) with IBD? Want to meet other young women who share your concerns? The group is facilitated by trained volunteers and will take the direction the group determines. Serious or social - majority rules. Meets in Garden City - and what happens in Garden City, stays in Garden City!
Where: Chapter Office, Garden City
When: Last Wednesday of each month
Time: 7:00 pm
Parent's Group
The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves.
Nassau Parent's Support
Where: Chapter Office, Garden City
When: 1st Tuesday of each month
Time: 7:30 PM
Suffolk Parent's Support
Where: Mather Hospital, Pt. Jefferson -- OR Classroom, Out-Patient Ambulatory Building
When: 1st Tuesday of each month
Time: 7:30 PM
Women's Group
As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD. These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully.
Nassau Women's Support Group
Where: Chapter Office, Garden City
When: 1st Wednesday of each month
Time: 7:00 PM
Suffolk Women's Support Group
Now forming - Date, time and location TBD
Men's Group
Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness.
Men's Support Group
Where: Chapter office, Garden City
When: Last Tuesday of each month
Time: 7:30 PM
To register or for more information on registration and locations, please contact Amy or Susan at (516) 222-5530.
All dates and locations are subject to change.
