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View the latest Chapter Newsletter

 


SPECIAL HIGHLIGHTS

Upcoming Chapter Events (scroll down for more information)

See below for all event details as they are announced

 

  • TEAM CHALLENGE KONA ~ June 28th, 2009
  • TEAM CHALLENGE NAPA ~ July 19th, 2009
  • RESEARCH ALLIANCE - July 22, 2009
  • GOLF AT THE CREEK - July 27, 2009


Volunteers Needed

The Long Island Chapter is always in need of some helping hands! Please contact the Chapter office if you are interested in volunteering by emailing us at longisland@ccfa.org or calling us at 516-222-5530.


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CALENDAR/EVENTS
July 22, 2009

The Research Alliance of the Long Island Chapter of the Crohn's and Colitis Foundation of America, Inc. (CCFA) will meet Wednesday, July 22, 2009 at the Carltun, Eisenhower Park, East Meadow, NY

Moderated by Robert Tepper, MD and Robbyn Sockolow, MD Co-Chairpersons of the Long Island Chapter Medical Advisory Committee

Presenters for the program are:

James Marion, MD, Assistant Clinical Professor, Mt. Sinai School of Medicine, New York City.  Dr. Marion will present an update on gaining control of IBD-new and potential treatments and strategies.

David Rubin, MD, The University of Chicago Medical Center, Associate Professor Medicine, Co-Director, Inflammatory Bowel Disease Center Program.  An avid researcher, Dr. Rubin's interests include clinical outcomes of inflammatory bowel disease (IBD), colon cancer screening and prevention and clinical medical ethics.  Currently the principal investigator for several research projects, Dr. Rubin has contributed numerous peer-review publications and abstracts to the IBD medical literature.

Download Registration / Pledge Form

July 27, 2009

CCFA Long Island Chapter

Golf at The Creek

Monday, July 27, 2009
Locust Valley, New York

Double Shot-Gun
Tee-Off at 8AM or 1PM

 Lunch 11:30-2:00 PM

Dinner and Awards Ceremony on the beach at 6:00 PM

RAFFLE! AUCTION! AND FUN CONTESTS!

 Please call the Chapter office at 516-222-5530 for corporate
sponsorship opportunities and play details.

Check back soon for the Invitation and Registration documents.

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SUPPORT GROUPS

CCFA Long Island
Patient & Family Services Program

To participate in any Support Group Program, you must be a current, paid member of CCFA and
pre-registered for the specific group you wish to be a part of.  When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees.

If not a member, please pay $30 to cover membership dues for one year, along with $15 per person, semi-annual support group fee.

Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday.

If you are attending a group for the first time, or have any doubts about the schedule, please contact the CCFA Office at 516-222-5530.

Download our spring brochure

IBD 101 Spring Session

IBD 101 NassauIDB 101 Suffolk

Duration:  4 week session beginning
March 10, 2009

Duration:  4 week session beginning
March 11, 2009
Time:  7:30PMTime:  7:30PM
Location:  Garden City, Chapter OfficeLocation:  Commack

Ongoing, Monthly, Specialized Support Groups:

Couple's Program
This program provides couples an opportunity to meet, in an informal and supportive setting, to discuss living and coping with chronic disease.  Participants will be given the support and encouragement needed to work on the challenges couples face.

Nassau Couples Support  
Where: Woodbury, NY
When:  4th  Monday of each month
Time:   7:30 pm
 
Suffolk Couples Support
Pending Registration
 
Parent's Program
The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves.

Nassau Parent's Support 
Where:  Chapter Office, Garden City
When:  1st Tuesday of each month
Time:   7:30 pm  

Suffolk Parent's Support
Where:  Mather Hospital, Pt. Jeff
When:   1st Tuesday of each month
Time:    7:30 pm

Women's Program
As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD.  These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully. 

Nassau Women's Support  
Where:  Chapter Office, Garden City
When:   1st Wednesday of each month
Time:   7:00 pm  

Suffolk Women's Support
Dates and Time TBD
Call the Chapter office

Men's Program
Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness.

Men's Support
Where: Syosset Hospital
When:  Last Tuesday of each month
Time:   7:00 pm

To register or for more information on registration and locations,
please contact Mary or Susan at (516) 222-5530.

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MORE INFORMATION

TD BANK AND CCFA—A WORKING PARTNERSHIP TO RAISE FUNDS FOR CCFA'S MISSION

DO YOU BANK WITH TD BANK?

If you are a TD Bank customer or become one, it's as easy as 1-2-3 to help raise funds for CCFA. 

TD Bank's affinity program helps charities by donating ½ of one percent of the average balance on all checking accounts and ¼ of one percent of the average balance of all savings, money market and retirement accounts, as well as other interest bearing instruments to the customer's participating organization.

All you have to do is visit your branch and ask a representative to enroll you.  It doesn't cost a thing and should take only a few minutes of your time.

If you are saving funds for children or grandchildren with Crohn's or colitis, what a wonderful way to make that money even more meaningful!

New Patient "Buddy" Connection
Looking to find support and comfort by talking to someone one on one who knows the challenges of living with Crohn's disease or ulcerative colitis? We'll connect you to a trained volunteer, based on your needs – to help answer questions, visit someone in the hospital, or just be there to listen.  If you want a "Buddy", please contact Susan Gomberg at 516-222-5530 or
sgomberg@ccfa.org 

Workplace Giving
Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. Employees in corporations, federal agencies, and state/municipal governments nationwide give to CCFA through Community Health Charities. CHC has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at 516-222-5530

Donate Your Car, Boat or R.V.
Before you sell your vehicle, consider donating it to CCFA. Our vehicle donation program helps to raise needed funds for research and community-based education programs. Our vehicle donation program makes it easy and you will also receive a tax deduction. Call Susan Gomberg at 516-222-5530 for more information or email
sgomberg@ccfa.org.


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CONTACT INFO

Long Island Chapter

585 Stewart Avenue
Suite 580 (Please note New Suite #) 
Garden City, NY 11530

Phone: (516) 222-5530
Fax: (516) 222-5535
Email:
longisland@ccfa.org 

Staff Contacts

Edda Ramsdell
Executive Director
eramsdell@ccfa.org

Susan Gomberg
Director of Development
sgomberg@ccfa.org

Linda Berman
Development Manager - Take Steps Walk
lberman@ccfa.org

Stacey Clark
Endurance Manager - Team Challenge
sclark@ccfa.org

Mary Campanella
Administrative Coordinator - Education and Development
mcampanella@ccfa.org

Shakena Cole
Development Assistant
scole@ccfa.org

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