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SPECIAL HIGHLIGHTS

Upcoming Chapter Events (scroll down for more information)

See below for all event details as they are announced:     

  • TOAST TO TOMORROW - February 1, 2009

  • IBD EDUCATION DAY:  It's a Family Affair - April 18, 2010

The Long Island Chapter is proud to announce its most ambitious education program to date--a combination of our adult and pediatric programs in one day program addressing all concerns and featuring special tracks for Medical, Surgical, Lifestyle, Parents and Children's interests.

  • LAUGH TIL IT STOPS HURTING SPRING COMEDY EVENT-- May 14, 2010

  • TAKE STEPS WALK -- Saturday, June 5, 2010 * 5pm Food & Fun; 7pm Walk
             
           
  • TEAM CHALLENGE BOSTON -- (June 27, 2010) and NAPA to SOMOMA (July 18, 2010)
           


Volunteers Needed

The Long Island Chapter is always in need of some helping hands! Please contact the Chapter office if you are interested in volunteering by emailing us at longisland@ccfa.org or calling us at 516-222-5530.

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CALENDAR/EVENTS
February 2, 2010 - December 30, 2010

Help CCFA Take Steps and Be Heard at "Take Steps 2010"

Join the "Take Steps for Crohn's & Colitis" Long Island Walk in 2010! 

Join more than 2,500 participants on
Saturday, June 5th at Marjorie Post Park, Massapequa
for a fun-filled evening of raising awareness and funds for IBD. 

Register today, visit www.cctakesteps.org/longisland or contact Linda Berman,
Long Island Walk Manager, at (516) 222-5530 or at
lberman@ccfa.org

SAVE THE DATES!!

Take Steps 2010 Corporate Breakfast
Long Island business leaders are invited to learn more
about becoming a corporate partner for Take Steps. 

Date:  Tuesday, February 9, 2010
Time:  8:00-9:00am
Four Food Studio, 515 Broadhollow Road, Melville
RSVP to Linda Berman/CCFA at 516-222-5530
or lberman@ccfa.org.


CCFA Night with the New York Knicks

(Event benefits Take Steps)
Enjoy a spirited evening of sports entertainment
as the NY Knicks take on the Philadelphia '76ers
in basketball action at Madison Square Garden! 
A portion of ticket proceeds benefits CCFA.
Date:  Friday, March 19, 2010
Time: 7:30pm game (gates open at 6:30pm)
To purchase tickets, contact Linda Berman at 516-222-5530.


Take Steps 2010 Team Captain Kickoff Party
Meet other WALK Team Captains
 Pick up WALK materials, and
Receive team building and fundraising ideas and materials.

Date:  Wednesday, April 7, 2010
Time:  4:30pm - 5:30pm
T.G.I. Friday's/Huntington

RSVP to Linda Berman/CCFA 516-222-5530
or
lberman@ccfa.org




February 3, 2010 - December 30, 2010



Join Now!  Team Challenge Half Marathon
Training Program

You Can...

  • Make a Change
  • Help Find Cures
  • Run or Walk 13.1 Miles

TEAM CHALLENGE BOSTON -- (June 27, 2010) and


TEAM CHALLENGE NAPA to SOMOMA (July 18, 2010)


        Join Team Long Island and train locally for a 13.1 mile walk/run to raise awareness and funds for Crohn's disease and ulcerative colitis.  Team Challenge events are in exciting locations nationwide - next stops, Boston and California!  To learn more, RSVP to Stacey Clark/CCFA at 516-222-5530 or sclark@ccfa.org 

To attend a Team Challenge Information Meeting in your area:


Hauppauge:  Tuesday, Feb. 9th at 7pm (Holiday Inn Express, Hauppauge)
Massapequa: Thursday, Feb. 11th at 7pm (Massapequa Public Library, Bar Harbor)
New Hyde Park:  Wednesday, Feb. 17th at 7pm: (Hillside Public Library, New Hyde Park)
East Northport:  Tuesday, Feb. 23rd at 7pm (Elwood Public Library)
Melville:  Thursday, Feb. 25th at 6:30pm (Bertucci's, Melville)

Join Today: 

http://www.ccteamchallenge.org/teams/Long_Island_chapter.htm 

Contact:  Stacey Clark 516-222-5530

April 18, 2010

   

Announcing a New Era in IBD Education

Save the Date, Sunday, April 18, 2010

IBD Education Day:  "It's a Family Affair"

CCFA Long Island Chapter's First Annual Comprehensive IBD
Education Day for adults, children, families, physicians,
and other health-care professionals.

Marriott Long Island Hotel & Conference Center
Uniondale, NY

Registration to begin shortly. 

Sponsored by:

   

      

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SUPPORT GROUPS

CCFA Long Island
Patient & Family Services Program

To participate in any Support Group Program, you must be a current, paid member of CCFA and
pre-registered for the specific group you wish to be a part of.  When paying for a group, please check your membership status with the CCFA office and send a check with your registration to cover appropriate fees.

If not a member, please pay $30 to cover membership dues for one year, along with $15 per person, semi-annual support group fee.

Please note that locations and times are subject to change, especially on weeks containing a civil or religious holiday.

If you are attending a group for the first time, or have any doubts about the schedule, please contact the CCFA Office at 516-222-5530.

IBD 101  Spring 2010.  Dates TBD.

IBD 101 NassauIDB 101 Suffolk

Duration:  4 week session beginning
Date:  TBD

Duration:  4 week session beginning
Date:  TBD
Time:  7:30PMTime:  7:30PM
Location:  Garden City, Chapter OfficeLocation:  Commack

Ongoing, Monthly, Specialized Support Groups:

Couple's Program
This program provides couples an opportunity to meet, in an informal and supportive setting, to discuss living and coping with chronic disease.  Participants will be given the support and encouragement needed to work on the challenges couples face.

Nassau Couples Support  
Where: Woodbury, NY
When:  4th  Monday of each month
Time:   7:30 pm
 
Suffolk Couples Support
Pending Registration
 
Parent's Program
The purpose of this program is to provide parents of children with IBD (young and adult) an opportunity to meet other parents in a supportive setting to learn and share parenting skills to help their children and themselves.

Nassau Parent's Support 
Where:  Chapter Office, Garden City
When:  1st Tuesday of each month
Time:   7:30 PM 

Suffolk Parent's Support
Where:  Mather Hospital, Pt. Jeff
OR Classroom, Out-Patient Ambulatory Building
When:   1st Tuesday of each month
Time:    7:30 PM

Women's Program
As workers, wives, mothers and caretakers, women face special issues in coping with the symptoms and side effects of their IBD.  These diseases are chronic, painful conditions that have debilitating physical and psychological effects. One of the goals of this program is to empower women to manage their disease more successfully. 

Nassau Women's Support  
Where:  Chapter Office, Garden City
When:   1st Wednesday of each month
Time:   7:00 PM  

Suffolk Women's Support
Where:  Mather Hospital
OR Classroom, Out-Patient Ambulatory Building
When:  Last Tuesday of the month
Time:  7:30PM

Men's Program
Although stress does not cause IBD, significant stress may aggravate the symptoms of disease. Many men find that joining a support group devoted to inflammatory bowel disease (IBD) is beneficial because they can share their experiences and concerns with other men, and learn to understand how to deal with the additional pressures of illness.

Men's Support
Where: Syosset Hospital
Conference Room B
When:  Last Tuesday of each month
Time:   7:15 PM

To register or for more information on registration and locations,
please contact Mary or Susan at (516) 222-5530.

All dates and locations are subject to change. 

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MORE INFORMATION

New Patient "Buddy" Connection
Looking to find support and comfort by talking to someone one on one who knows the challenges of living with Crohn's disease or ulcerative colitis? We'll connect you to a trained volunteer, based on your needs – to help answer questions, visit someone in the hospital, or just be there to listen.  If you want a "Buddy", please contact Susan Gomberg at 516-222-5530 or
sgomberg@ccfa.org 

Workplace Giving
Choosing CCFA as the recipient of your workplace giving campaign is one very important way you can help to find a cure for Crohn's disease and ulcerative colitis. Employees in corporations, federal agencies, and state/municipal governments nationwide give to CCFA through Community Health Charities. CHC has more than 50 years of experience in workplace giving. Touch the lives of people you know and help someone you don't know. If you would like information on how to bring Community Health Charities to your workplace, please call us at 516-222-5530

Donate Your Car, Boat or R.V.
Before you sell your vehicle, consider donating it to CCFA. Our vehicle donation program helps to raise needed funds for research and community-based education programs. Our vehicle donation program makes it easy and you will also receive a tax deduction. Call Susan Gomberg at 516-222-5530 for more information or email
sgomberg@ccfa.org.


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CONTACT INFO

Long Island Chapter

585 Stewart Avenue
Suite 580
Garden City, NY 11530

Phone: (516) 222-5530
Fax: (516) 222-5535
Email:
longisland@ccfa.org 

Staff Contacts

Edda Ramsdell
Executive Director
eramsdell@ccfa.org

Susan Gomberg
Director of Development
sgomberg@ccfa.org

Linda Berman
Development Manager - Take Steps Walk
lberman@ccfa.org

Stacey Clark
Endurance Manager - Team Challenge
sclark@ccfa.org

Mary Campanella
Administrative Coordinator
Education and Development
mcampanella@ccfa.org

Shakena Cole
Development Assistant
scole@ccfa.org

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