Hampton Roads Take Steps


Start Date: September 21, 2014
Time: 3PM

Hampton Roads Take Steps for Crohn's & Colitis

Walk with us! Many patients feel that they are alone in their struggle with IBD, not knowing how to explain to others what they go through. Take Steps provides the perfect environment for patients and their families to come together and know they are not alone in this fight. The afternoon is filled with music, food, kid’s activities, local entertainment and most importantly, the company of hundreds of people who truly understand the impact of IBD.
All walkers are encouraged to raise donations towards research, education, and the search for cures. There are prizes at higher levels of fundraising, plus we recognize our $1,000 plus fundraisers as our "Loud and Proud" club. We hope you will be part of the club this year!

Event Details:

Location: Mt. Trashmore Park

Date: September 21, 2014
Check-in and Festival Start: 3:00 PM
Walk Start: 4:00 PM

Questions?

Walk Coordinator:
Jamie Pugh
jpugh@ccfa.org

Phone: 804-931-9022


Meet our 2014 Honored Hero, Macey Stephen!!!

In August 2012, when I was 15, I was diagnosed with Ulcerative Colitis. My doctor, Dr. Tsou and his nurse, Terri gave us information and recommended we visit the Crohn's and Colitis Foundation of America's website to gain more understanding of the disease. When I was first diagnosed, I was scared because I did not know much about the disease. Over the next few months, although not in remission, I was starting to feel better. However, in late December around Christmas, I started experiencing more symptoms. In mid January, after missing a lot of school due to not feeling well, I went to the hospital and was admitted after Dr. Tsou recommended we do so. What we thought would be a couple of days turned into a couple of weeks. My iron was very low and I had an infection while in a bad flare.

Although my school was very understanding, I couldn't help but stress knowing that I was missing all of my semester exams while in the hospital. The doctors and nurses at CHKD were wonderful. They were willing to meet my requests such as being able to walk outside and get some fresh air. I was extremely grateful for that since I had been cooped up for so long. Through a lot of prayers, antibiotics, and steroids, I was finally able to be released. I was so relieved to be able to eat something other than hospital food, but I still had to be very cautious with what I ate. The steroids made my face become fuller, also known as "moon face". It also caused me to break out in acne on my forehead.

But about two weeks after being released, I started experiencing symptoms again. Lab work confirmed that my infection was back. I was then admitted back into the hospital for four days. I was re-scoped to see what was going on. Dr. Tsou said that I have Crohn's. When he told me that, I felt discouraged because I had no control over this disease and I knew that it would be a disease that I would have to live with until a cure can be found. After discussing what to do next, I was given my first Remicade infusion that same day. The next day, I started feeling much better and I was able to be released from the hospital. In total, I missed about 5 or 6 weeks of my sophomore year. I'm thankful I go to a private school where the teachers and administrators are so supportive. They worked with me over the summer with making up my exams. It was hard work, but I was able to get it done!

My Junior year has been much better. It's still a struggle, but with my Remicade, azathioprine, protein shakes, juices and just a knowledge of what I can and cannot eat, I've been able to get to remission and miss much less school this year. The funds that CCFA raise go toward research to find better treatments-and maybe one day a cure for Inflammatory Bowel disease, including Crohn's disease and ulcerative colitis. I am thankful for the educational programs we have been able to attend. I know I am not alone in this struggle, and I am looking toward the day when a cure is discovered for the sufferers of this disease!

Register

Location

Mt. Trashmore Park
310 Edwin Drive, Virginia Beach, VA 23462, USA
Virginia Beach, VA, 23462

For more information

301-287-8494
jpugh@ccfa.org
http://www.cctakesteps.org/hamptonroads