Science & Professionals

CCFA's New Webcast Series - Now Available On Demand

CCFA is excited to present Optimizing Care for Patients with IBD: Highlights from the "Advances in IBD" Conference Webcast Series.  The archived accredited webcasts stem from the live CCFA webinar series hosted in Spring 2011, and serves as part of CCFA's commitment to furthering professional IBD education year-round.  Series topics include:

Challenges in the Clinical Management of IBD Patients
Current Controversies in IBD Treatment
The Latest in Genetics, Risks, and Therapy Management in IBD

Learn more at: www.ccfaibdwebinars.org

DNA Bank

Inflammatory bowel disease (IBD), including Crohn's disease and ulcerative colitis, affects approximately 1.4 million Americans of all ages. Although fewer than 20% of individuals with IBD have a close relative who is also affected, the lifetime risk for developing IBD is 10 to 20 times higher for close family members (siblings or offspring) of persons with IBD than it is for the general population. This strongly suggests that genetic factors may play an important role in determining whether an individual develops IBD. Identifying specific genes that affect risk is a priority for researchers seeking to understand the underlying disease process in order to improve the treatment and prevention of IBD.

To facilitate this research goal, the Crohn's & Colitis Foundation of America (CCFA) has created an IBD DNA Data bank resource, containing DNA samples and detailed phenotype data on a large number of IBD patients. Blood samples were obtained from patients with well-characterized Crohn's disease or ulcerative colitis. Samples were then collected from each patient's parents, or, if one or both parents were deceased, from unaffected age- and sex-matched controls sampled from the general population. Immortalized cell lines were produced from most of the blood samples and high-quality DNA was derived primarily from those cell lines.  For a small proportion of the samples the patient's cell line immortalization failed and whole genome amplified (WGA) DNA is available instead. This resource is available to qualified investigators in the scientific community for innovative studies of genetic markers related to IBD.  At CCFA we believe that genetic research has the potential to advance our understanding of the etiologies and natural histories of the various forms of IBD, with the long term goal of improving treatment and minimizing the overall impact of IBD.

Interested investigators may view available phenotype data elements, obtain summaries of the numbers of affected patients and family or population controls, and submit research proposals at the DNA Data bank website, www.CCFADatabank.org.

Appeal letters are valuable new resources for physicians and other health care professionals to utilize.  We have created these letters and templates to assist in appealing insurance decisions, requesting school accommodations and other services and/or resources for your patients.  A sampling of topics are: 

   *School Accommodations          *Private dorm & bath room
   *Infliximab & HACA                  *Adalimumab for UC
   *Free & Low Cost Medicine      *Mental Health Benefits
   *Capsule Endoscopy                  *TPMT                 

The sample appeal letters available to prescribing physicians on this website may include use of agents for conditions other than their FDA indications.  CCFA does not endorse the use of any pharmaceutical agent including any use which is outside the labeled indication.  CCFA provides this service for informational purposes only.  CCFA, its agents, officers, employees and volunteers shall not be liable for any claims, damages or actions whatsoever which may arise from the use of this information.

Download Appeal Letters

ONLINE GRANT SUBMISSION PROGRAM

Research Grant Opportunities-
We are excited to announce CCFA has initiated an online grant submission program.  This user-friendly system will streamline the process for applicants and will help cut down the amount of time and paper required to submit an application.  Further details and appropriate links for online submission of letters of intent and research grant applications click here.

If you have any questions, do not hesitate to contact us.

IBD Journal - View latest selections

Education Opportunities
Participate in the archive of "IBD & She: Focusing on Living While Managing IBD" with Sunanda Kane, MD & Uma Mahadevan-Velayos, MD.  1.5 CNE credit available.  

Additional resources for women & IBD.

Other educational programs can be found here.

Pete Learns All About Crohn's and Colitis

The comic Pete Learns All About Crohn's and Colitis is once again available to educate your pediatric or lower literacy patients.  Order patient education materials or download factsheets.

updated 2/22/12