Take Steps for Crohn's & Colitis is the Crohn's & Colitis Foundation's walk for a cure. In this video, participants talk about how these diseases have affected their lives, and why they're taking steps toward a future without them.
Living with IBD is difficult, and I have learned that honesty and openness, and trusting friends and family, will help me live with this disease.
My experience with Crohn’s disease has been anything but typical. The disease was discovered not because I showed symptoms, but because in seventh grade when I got my appendix out, doctors happened to discover an inflammation in the same area. After several tests, Crohn's was diagnosed, but the disease remained in a dormant state until November of eleventh grade, when it flared...
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Cheering on the crowd at a recent Take Steps walk in NYC
Take Steps is the CCFA of America’s largest fundraising event. We raise funds and awareness while we come together to celebrate the steps that have been taken toward cures!
The support and advice from other teens fighting IBD is exactly what could have lifted my morale.
I am a junior nursing major at Villanova University, and I am from Bethesda, MD. I’m involved in both the Washington D.C. and Philadelphia chapters. The past four years, I have participated in the DC chapter’s Take Steps walk, which is one of my favorite awareness and fundraising events. I also participated in my first Day on the Hill in May, where we lobbied to congressmen and...
I am proud to say I am living a healthy and normal college life, well as normal as any IBD patient can have, and am so grateful to be where I am today.
My name is Monica Johnson and I am currently a sophomore electrical engineering major at The University of Texas at Austin. I was born in Chicago, IL and moved to Allen,TX when I was seven years old. I have a younger sister who's 15 and a younger brother who's 9.
I was diagnosed with Crohn's disease when I was just 5...
I was diagnosed with Crohn's Disease in the second grade so I don't quite remember life without it. I go to the University of Pennsylvania; class of 2014. I am majoring in History with an American History concentration and minoring in American Sign Language. My long time girlfriend Jessica Leva also has Crohn's Disease. She is a great support system for me when I'm not feeling great and I'd like to think I am a good support system for her as well!
I have been an athlete all my life and my life basically revolves around my rowing at this point. I was recruited by the Lightweight Rowing team at the University of Pennsylvania and love it. It is hard with my Crohn's because I have to diet pretty hard and suck weight to be able to weigh in at 160 pounds to race (naturally, my weight is around 183). The extreme dieting, weight loss, dehydration on weigh in day (every Friday in the Spring; less frequently throughout the rest of the year), and the general stress and lack of sleep that comes with college cause my Crohn's to act up. Staying in peak physical condition all year round is tough while trying to keep my disease in check, but being a Junior, I feel like at this point I have figured out a pretty good system that works for me.
That being said, if anyone has any questions or needs advice on dealing with athletics and IBD, especially sports that require fairly strict diets and especially at the collegiate level and beyond, feel free to ask!