Take Steps for Crohn's & Colitis is the Crohn's & Colitis Foundation's walk for a cure. In this video, participants talk about how these diseases have affected their lives, and why they're taking steps toward a future without them.
Living with IBD is difficult, and I have learned that honesty and openness, and trusting friends and family, will help me live with this disease.
My experience with Crohn’s disease has been anything but typical. The disease was discovered not because I showed symptoms, but because in seventh grade when I got my appendix out, doctors happened to discover an inflammation in the same area. After several tests, Crohn's was diagnosed, but the disease remained in a dormant state until November of eleventh grade, when it flared...
Join this life-changing community of dynamic, young leaders!
Cheering on the crowd at a recent Take Steps walk in NYC
Take Steps is the CCFA of America’s largest fundraising event. We raise funds and awareness while we come together to celebrate the steps that have been taken toward cures!
The support and advice from other teens fighting IBD is exactly what could have lifted my morale.
I am a junior nursing major at Villanova University, and I am from Bethesda, MD. I’m involved in both the Washington D.C. and Philadelphia chapters. The past four years, I have participated in the DC chapter’s Take Steps walk, which is one of my favorite awareness and fundraising events. I also participated in my first Day on the Hill in May, where we lobbied to congressmen and...
I am proud to say I am living a healthy and normal college life, well as normal as any IBD patient can have, and am so grateful to be where I am today.
My name is Monica Johnson and I am currently a sophomore electrical engineering major at The University of Texas at Austin. I was born in Chicago, IL and moved to Allen,TX when I was seven years old. I have a younger sister who's 15 and a younger brother who's 9.
I was diagnosed with Crohn's disease when I was just 5...
Major: Elementary Education- English/Language Arts
Hometown: Birmingham, Michigan
Hi! I was diagnosed with Crohn's Disease in July of 2007, and was able to manage it prettty well up until two years ago. Since then, it's been a roller coaster of physical and emotional issues. I was in and out of the hospital, on and off of prednizone, and just about anything imagineable that we all go through when enduring a flare up! YAY! Through holistic and western medicine practices, I've been able to somewhat get a handle on my health. I'm fortunate enough to say I'm not on any strong prescription meds, just Asacol. I really began struggling with the disease in terms of feeling embarassed and so alone. No one understood my struggle. I didn't have any friends who had Crohn's or Colitis, and I felt so ashamed of what my disease had become: constantly having to worry about where the bathroom is, if I will have to go to the bathroom, if people hear me go to the bathroom, how long I'd be in the bathroom...you get the point. It took a lot for me to grasp what had changed with my health, and I still to this day will never know what or why, but I've stopped searching for the why, and started doing something about it. I got more involved with our group on campus, and am now the president! I also had the opportunity to be a counselor at Camp Oasis this past summer where I literally had the time of my life, and was changed. I met some of the most incredible people who have become my life-long friends and guided me through this battle. I've become so passionate about advocating and raising awareness for IBD! I've gotten a better handle on my disease, both physically and emotionally, and realized that sometimes we will NEVER know the 'why'... It just is what it is. Everytime I meet someone with IBD I get so ecstatic! I want to help everyone, although I realize that's not possible; but this has become my passion and I could not be happier. Please feel free to get in touch with me :)