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I am currently a junior at UConn in the NEAG School of Education studying Special Education, and am just finishing up my first year as a member of the . Much of my childhood was spent in Naperville, Illinois, but since the beginning of high school I have called Ridgefield, Connecticut my home with my parents and two younger sisters, Sarah who is 15 and Jane who is 13.
After being involved with everything and anything growing up, my time and priorities are now split between teaching and community service, my love for basketball, and working with the council. I came across CCFA my freshman year of college, and it has totally changed my life since then. When I was in fifth grade, my dad became extremely sick and was diagnosed with Crohn’s Disease, which really affected my family. But then, in my senior year of high school I received the same diagnosis and was completely devastated. Within the following 6 months I had an ileosesectomy, Sarah was diagnosed, and then Jane was diagnosed. Just like that, four out of the five members of my family had received the same diagnosis of Crohn’s Disease.
When I went to college that spring I was still uncomfortable with my IBD and didn’t really know how to deal with it, especially away from home. It wasn’t until the middle of my freshman year that I found CCFA and signed up for Team Challenge in Virginia. I had never run before, and never really met anybody with Crohn’s or colitis outside of my family. I could never have anticipated the support, love, and relationships that came from those long training runs and our adventure running 13.1 miles together on race day. This was the turning point for me, because it was after this that I found the National Youth Leadership Council and met some of the greatest people I know.
Crohn’s Disease suddenly started bringing me opportunities, and CCFA has been the door to those experiences. My sister now goes to Camp Oasis, and I continually talk to her about how cool it is to have friends that “get it.” I think that’s the best part for kids, teenagers, and young adults about CCFA, that it allows us to interact with people who understand what we’re all going through, hear their stories, and work together to find a cure.
I have had Crohns/Colitis since January 2002.
Hello! I am currently a second year nursing major at Becker College in Worcester, MA. I was diagnosed with Ulcerative Colitis in August 2011, and this summer (July 2013) I had step one of the J-Pouch surgery done. Step two is scheduled to be in May 2014. If anyone has any questions about the surgery or life with an ileostomy I would be happy to talk!
My name is Amanda and I am a 21 year old college student at Temple University. I was diagnosed with Crohn's Disease in 2003 and have recently been experiencing my second flare up after 10 years of remission. Looking for others to help me meet students/people that have been through or are experiencing similar things as I am.
I am a junior at the University of Pittsburgh studying neuroscience in hopes of pursuing a career in healthcare focused specifically on inflammatory bowel disease and the search for a cure. On campus I am involved with Student Government as well as Colleges Against Cancer, Relay for Life and my sorority, Alpha Delta Pi. In addition, I am a proud advocate for CCFA and the NCCL. I also perform research at the Arthritis Institute of the University of Pittsburgh Medical Center. It is incredibly interesting as many of the drugs that we study are ones that are used to treat Crohn's Diseaes and Ulcerative Colitis. This has fueled my interest in potentially working on research specifically related to IBD.
I was diagnosed with Crohn's Disease at the age of nine and was immediately put in contact with my local CCFA chapter. Over the past ten years, CCFA has had an incredible impact on my life in ways I could not have anticipated. I have run Team Challenge, been both a camper and counselor at Camp Oasis, walked for Take Steps, and attended numerous events in both Pittsburgh and my home state of New Jersey. As I entered my freshman year of college I was so excited with the opportunity to be a member of the NCCL. The past two years on the council have proved to be an incredible experience. Not only have I been able to meet an incredible group of people who are passionate about finding a cure as well, I have also been a part of many projects and initiatives that align with CCFA's mission.
Working closely with CCFA for the past ten years as well as being an active member on the NCCL has motivated me to always be a part of the fight for a cure. I have met so many people; many now close friends, who have had a great deal of impact on my life. Although I have faced struggles, I have met others who have struggled more, and I am determined to work hard to put an end to Inflammatory Disease in my lifetime so no one else has to know such struggles.
Sophomore at the University of Wisconsin-Green Bay. Diagnosed with Crohn's Disease at age 15 and am currently taking Humira. Past participant in Team Challenge half marathon Napa to Sonoma.
Ashton was diagnosed with Crohn’s disease at age 10. “For me it was and is never about being a patient, it’s about living my life to the fullest and never holding my disease responsible for missing out on one thing or another”, said Ashton. Since then, empowerment has been her key to find her own success and help others to do the same.
As a UCLA junior with a strong GPA, she’s empowering others. On the local level, she has created support groups and a forum for UCLA students to meet monthly and share their experiences with Crohn’s and ulcerative colitis, she is also a member of CCFA’s National Council of College Leaders. In addition, she is making an impact internationally. Ashton was chosen to lead the Jacobs International Teen Leadership Institute (JITLI), a dialogue and cultural awareness program, JITLI brings together Jews and Muslims from the US and Israel for a year-long program that ends with a trip to Israel. “Despite my fears of being in a foreign country and the necessity to embrace such a great sense of responsibility, I refused to let my Crohn’s stand in the way of such a compelling experience,” said Ashton. “Discovering my sense of empowerment has been essential to actively creating the life I choose to live. I have chosen to let Crohn’s Disease be a part of my definition, but I vowed to never let it define me.”
My name is Ben and I am a senior at Kettering University. I was diagnosed with a "mild" case of Ulcerative Colitis in December of 2009 which was during my senior year of High School. It has definitely been a life-changing diagnosis. I really look forward to meet others around my age that deal with IBD as well. Feel free to contact me through email.
My name is Brandon Gillman and I am currently a junior at Washington University in St. Louis. I grew up and went to high school in Livingston, New Jersey and now I live in Boca Raton, FL. I am studying systems engineering, with a minor in operations and supply chain management and am a brother in the Sigma Phi Epsilon fraternity.
I actually took a year off between high school and college in my battle with Crohn’s Disease, a year in which I had multiple surgeries, spent countless days in the hospital, and saw my weight drop by more than 40 pounds. Now, I am back at school and feeling as healthy as ever, although I do take my fair share of pills.
I was diagnosed with Crohn’s twelve years ago at the age of ten. It has become a really important part of my life and I truly believe it has helped shape the person that I am today. I embrace having Crohn's Disease. I love when people ask me about it and I am completely open about telling them my story. I just want to get the word out about these terrible diseases! I went to Camp Oasis as a camper and am now a counselor, I have run a half marathon as a part of the Team Challenge program, and I speak at CCFA events for my local chapter. I am doing everything I can to help find a cure and am looking forward to where the NCCL will take me!
I'm currently in my second year of the Veterinary Science program at Delhi in hopes of becoming a licensed veterinary technician when I graduate in May. I'm adventurous and out for a good time, never letting UC/Crohn's get in the way of anything I've wanted to do.
I have had Crohn's since I was 15. I have had 2 bowel resections and recently had my colon removed. I have a temporary iliostomy, and am getting more comfortable with it every day, I would like to talk to someone else who has Crohn's or IBD and pontificate about Prednisone and biologics. I would love to answer the questions about surgery, ostomy care, stress reduction, prednisone, etc., that I never got answered for myself.
I am an assistant professor in the Education department at MWSU. I was diagnosed with Crohn's 18 years ago.
My experience with Crohn’s disease has been anything but typical. The disease was discovered not because I showed symptoms, but because in seventh grade when I got my appendix out, doctors happened to discover an inflammation in the same area. After several tests, Crohn's was diagnosed, but the disease remained in a dormant state until November of eleventh grade, when it flared up.
Despite knowing that I had Crohn’s for several years, I found myself completely unprepared for how it would affect my life. During the most difficult year of high school, when most kids were worrying about the SATs, ACTs, choosing and visiting colleges, and finding a date for the Junior Prom, I found myself worrying about feeling well enough to just go to school, and if I did, making it to the bathroom on time. Now that Crohn’s had reared its ugly head, I was forced to recognize that I did, in fact, have a disease, and I was finally honest with myself, as well as with my teachers, peers, and especially my friends. I realized that this honesty was the only way to keep the disease from controlling my life. Eventually, thanks to the support of my family and friends, and personal perseverance, I was able to overcome the challenges I faced while Crohn’s tried to control my life.
Luckily, due to Humira, I have been in remission for a little over a year, so my disease does not impact my everyday life. However, I still remember what the daily struggles were like. Living with IBD is difficult, and I have learned that honesty and openness, and trusting friends and family, will help me live with this disease.
I was diagnosed with Crohn's in 2009, when I was 20 years old. Since then, there have been lots of ups and downs. I've had to take about a year off total of school due to issues of Crohn's. It's been a struggle and still is, I'm looking for support and people who understand how hard it is to complete school while dealing with Crohn's and its symptoms and complications. I'm looking forward to also providing support and compassion for others in similar positions.
I was diagnosed with Ulcerative Colitis in 1997 at the age of 14. Around five years ago I was diagnosed with Crohn's disease. I have, like many others with IBD had many stuggles along the way but pray there will be a day when there will be a cure. Until then I continue to do the best I can to live life to the fullest every day! :)
I'm 23, gonna be starting school at SLCC as an undergrad going into Social Work, got diagnosed 5/29/09, married 11/11/11 .
I am a student at the University of Tennessee. My major is Microbiology and my minor is History. My experience with Crohn’s Disease has deeply impacted my life. I was diagnosed with Crohn's in 2009 and eventually hospitalized for around 3 weeks where I underwent surgery, (removal of 1.5 ft of small intestine). 2009/2010 was marked by continued hospital visits and severe Crohn’s symptoms/pain. I began taking anti-TNF medicine in 2010 and my Crohn’s symptoms have been significantly alleviated since then. Crohn's Disease erased my high school football career yet it has taught me life lessons I would not trade for anything. Crohn’s changed my view on weakness and strength. I have found that instead of running from my weakness, instead of trying to deny it, I can turn it into something fruitful. My experience with Crohn's enabled me to help two of my friends who were diagnosed with Crohn’s. I realized that it was our shared "weakness" that allowed me to bring genuine compassion to them. Crohn’s continues to teach me that our weaknesses can be turned into gifts of healing for others. That there is a compassion and an understanding that is dependent on our own experience of brokenness. That the primary way we bring emotional healing to others is from our own wounds. Thus Crohn’s has taught me that our hindrances can be turned into our strengths. This spring (2013), I did an Independent Study in Microbiology on Crohn’s Disease. My study was writing a review article on the relationship/linkage between Crohn’s Disease linked genes and a newly discovered microbial process called Autophagy. I am hoping to publish my research in a minor immunological journal. I plan on applying to medical school and pursuing a career in Gastroenterology. I hope to be able to help those suffering from IBD. In my free time I love hiking, biking, baking and piano.
I am a student at the University of Tennessee. My major is Microbiology and my minor is History. My experience with Crohn’s Disease has deeply impacted my life. I was diagnosed with Crohn's in 2009 and eventually hospitalized for around 3 weeks where I underwent surgery, (removal of 1.5 ft of small intestine). 2009/2010 was marked by continued hospital visits and severe Crohn’s symptoms/pain. I began taking anti-TNF medicine in 2010 and my Crohn’s symptoms have been significantly alleviated since then. Crohn's Disease erased my high school football career yet it has taught me life lessons I would not trade for anything. Crohn’s changed my view on weakness and strength. I have found that instead of running from my weakness, instead of trying to deny it, I can turn it into something fruitful. My experience with Crohn's enabled me to help two of my friends who were diagnosed with Crohn’s. I realized that it was our shared "weakness" that allowed me to bring genuine compassion to them. Crohn’s continues to teach me that our hindrances can be turned into gifts of healing for others. That there is a compassion and an understanding that is dependent on our own experience of brokenness. That the primary way we bring emotional healing to others is from our own wounds. Thus Crohn’s has taught me that our weakness can be turned into our strengths. This spring (2013), I did an Independent Study in Microbiology on Crohn’s Disease My study was writing a review article on the relationship/linkage between Crohn’s Disease linked genes and a newly discovered microbial process called Autophagy. I am hoping to publish my research in a minor immunological journal. I plan on applying to medical school and pursuing a career in Gastroenterology. I hope to be able to help those suffering from IBD. In my free time I love hiking, biking, baking and piano.
I am Danielle Ferestad and I am a co-founder for the support group for IBS, Crohns, and Colitis on campus at the University of Wisconsin- Eau Claire. We are always looking for new people to join our support group. You can e-mail me if you have any questions!
I am a sophomore at the University of Wisconsin-Eau Claire. I am trying to start a support group on campus with people that have UC and Crohn's.
Hi! My name is Danielle Leavitt. I am a freshman at Harvard University. I was diagnosed with Crohn's disease when I was ten years old. At first, I was really scared because I had never heard of the disease, and I found out that currently there was no cure. However, my GI doctor helped get me involved in CCFA. I have participated in the Take Steps walk in Orlando, Florida every year and have helped manage the website and raise funds for Team Challenge. After my first semester in college, I had my first bowel resection. Dealing with IBD can be a struggle in college, but it can also be very rewarding to learn how to take control over your disease. Although I have never fully been in remission, I have continued to participate in sports at a high level, excel in school, and find time to have fun doing things I enjoy. Through CCFA, I have met so many incredible people and made lifelong friends. Crohn's does not define me, but is a part of me. I am so happy to be on the NCCL, and I would love to have others talk to me about IBD. Please feel free to reach out!
VCUarts student from Maryland.
I am a freshman at Muhlenberg College, double majoring in Musical Theatre and Media Communications, and minoring in Computer Science. On campus, I am a member of Muhlenberg’s Theatre and Dance Associations, Chamber Singers, Show Choir, and serve as the Public Relations Officer for the Catholic Campus Ministry. In addition, I am a mentor for my high school’s FIRST Robotics Team. I grew up in Blue Bell, PA, and am a proud member of the Philadelphia/Delaware Valley Chapter of the CCFA.
With the help of the CCFA, I have thrived through the most difficult period of my life. At age ten, I began to experience symptoms of extreme nausea, fatigue, and lost 20 pounds in a matter of weeks. The answer, Crohn’s Disease, came about 6 months later following a battery of tests and hospital visits. One of my first adventures following the diagnosis was CCFA’s Camp Oasis. From my first day at camp, I realized it was a place to spend time without worry, and an opportunity to make meaningful, lasting friendships with people I would have never met otherwise. Summer 2012 was my 7th summer at Camp Oasis. I was a Leader-in-Training along with many of my friends and am now hoping to continue this amazing experience as a counselor. My goal is to be able to give back to others what Camp Oasis and the CCFA have given me. I also captain Team Tiffany for the Take Steps Walk in order to encourage others to fight for a cure.
During my time with the CCFA, I have become an advocate for adults and children living with Crohn’s and UC, serving as the 2007 Youth Ambassador, the 2013 Honored Hero, and now as a member of the College Council. Having an outlet to help deal with a potentially debilitating disease while serving others is a tremendous honor. The CCFA has been there for me since my diagnosis, helping me along the path of turning a challenge into an opportunity.
I love sharing my story and speaking with others so please reach out if you have any questions or just want to talk!
My name is Ginjer. I am 22 years old. I was diagnosed with Ulcerative Colitis at the age of 18. After my initial treatment I was symptom free for about a year and a half. For the past couple of years I have been battling with symptoms on and off. Last month, my disease decided that it was going to be stubborn and I experienced a really bad flare up. I left it alone for about a week and lost about 7 lbs. in 10 days. I could hardly eat anything and completely lost my appetite. I started getting really bad abdominal cramping and was running to the restroom about 10 times a day. After seeing my doctor I had to get blood work done which indicated that the disease had spread. I was put on Prednisone and Asacol (previously treated with Rowasa). I am on my last week of the steroids and I am hoping this will put me back into remission for a long period of time. I am ready to take this disease head on and I want to help other people who are experiencing the same issues. Aside from having an IBD, I am very adventurous, I enjoy being active and just enjoying life itself.
I have been living with Colitis since 2008 and have been hospitalized twice. I am now taking Azothioprine, Asocol, and Folic Acid and have been symptom free for a year and a half! I've had to go on TPN for 2 weeks while in the hospital and have been through all the ups and downs of Colitis! Aside from dealing with Colitis, I am a sophomore studying exercise science, pre-Physical Therapy at Carroll University and play tennis on the women's team. I always love meeting people with IBD!
I am a freshman at Skidmore College considering a major in biology and a minor in spanish. I was diagnosed with Crohn's disease in 2010. I am currently trying to deal with the stresses of the college transition, both as a normal student and as a person with IBD.
Hi :D My name is Jacqueline and I was diagnosed with Crohn's disease on January 3rd, 2011. I have been through many different treatments and medications to treat this disease. I am happy to talk with anybody about IBD, CD, or UC. I am familiar with all of them. Please feel free to contact me, I would love to hear from you. I also would like to connect with some people in the area. Don't give up. I'm fighting for a cure!
I've had severe Ulcerative Colitis for five years...my entire college career. I will finally be graduating in the summer of 2013. I'm still undecided about graduate school. Despite being in and out of the hospital about every six months, I've been able to travel the world a little bit and had the experience of a lifetime in Berlin, Germany not too long ago. I come from a large family (11 kids) and both my mom and little brother also have either IBS or Colitis (luckily neither severe). I was on prednisone for almost four years and have taken multiple other medications to try and help. I've recently begun using essential oils in conjunction with my medication and feel better then I have in six years. I enjoy helping other people and finding those who have similar problems as me - strength in numbers! I think I've finally learned that I don't have to let UC control my life.
I recently moved to Moscow, Idaho from Southern California to attend the University of Idaho. My ulcerative colitis diagnosis came two years ago after a few years of debilitating cramping. Since that time, I have altered my diet significantly, cut out dairy products, and researched the up and coming treatments using helminths. I'm eager to meet like-gutted individuals.
I've recently transferred to Philadelphia University from the Art Institute of Philadelphia to finish my schooling on a high note while majoring in Animation. I was diagnosed with Crohn's just after I turned 14 and struggled with it throughout all of high school, never really entering remission until after I graduated. I still struggle with my Crohn's on a regular basis, but I definitely haven't let it hold me back from going for what I want, including following my dream to go to school, and applying as much of myself as I can into becoming an animator. I've always had my mom as support through my Crohn's, as she also has it, but I love to talk to and meet others with the same problems and learn their stories and share support. College is hard enough without the added stress of health problems, and having a strong support group behind you is so important.
I was diagnosed four years ago with Crohn's disease and am going to medical school to hopefully become a gastroenterologist.
I was diagnosed at age 12. I love meeting new people and would love to answer questions/meet new friends (:
Hey! I'm Jennifer, a public relations senior at ASU. I'll have minors in U.S. history and religious studies when I'm done in May as well. I enjoy reading, running, and photography. I work for an elementary school district as a PR intern, and also with international students at ASU. I was diagnosed with ulcerative colitis in Oct. 2006, and after a year of being on Prednisone, Asacol and 6MP, I've been on Remicade ever since and have been healthy! Currently, I'm transitioning from my pediatric doctor at Phoenix Children's to an adult GI - which is kind of a traumatic experience. I'm just not ready to switch doctors!
I love to travel, speak spanish, and meet people. I was diagnosed with Crohn's in 7th grade. I have had mild to moderate flare ups. I am trying to get into remission through diet and probiotics because I don't want to begin Humira.
My name is Jessica, and I'm a junior at Montgomery County College. I just turned 21 this past August! I have Crohn's disease and was diagnosed in 6th grade.
Hi I'm Jessica! I was diagnosed with Crohn's disease in 2010 and was diagnosed with another autoimmune disease in 2012. I hope to one day become a physician assistant and help people lead healthier lives. I have a passion for being an advocate for IBD. Please do not hesitate to email me with any questions or to just talk. :)
Buckeye with Crohn's disease
Senior at Naz studying Psychology and Gerontology. Diagnosed with Crohn's in May 2008, still waiting for remission :)
I am not exactly sure how long I have had Crohn's. I have been through a lot, but I won't let that stop me from helping others and living my dreams! I don't let Crohn's control me and I want to help others if I can :) I am a nerdy guy (I will make many nerdy jokes). I was born May 26th, 1994 (but wise like Yoda); I am open-minded, love life, will talk to anyone, and would love to get to know everyone :) I have a lot of interesting facts about me, but I don't want to bore you. Remember you can do anything you put your mind to!
Aloha from Hawaii! I was diagnosed with Crohn's 6 years ago. I'm very active, and I have run two fundraiser races for CCFA. I'm studying nutrition in grad school, and I hope to one day help others with IBD as a Registered Dietitian. IBD is not quite as prevalent among Hawaiians as it is in other states. But there are still many students who suffer with Crohn's or Colitis here, and it would be great to raise the public awareness of IBD on the islands! I hope you will email me if you need a supportive fellow Crohnee. :)
I am a junior nursing major at Villanova University, and I am from Bethesda, MD. I’m involved in both the Washington D.C. and Philadelphia chapters. The past four years, I have participated in the DC chapter’s Take Steps walk, which is one of my favorite awareness and fundraising events. I also participated in my first Day on the Hill in May, where we lobbied to congressmen and women on behalf of the CCFA. I strongly encourage anyone to join us this coming May, because the experience was extremely eye opening and I learned so much about CCFA, research on IBD, and legislation!
Now for a little about myself, I was diagnosed with Crohn’s disease as a junior in high school. While my case of Crohn’s is very severe, I have been lucky to avoid surgery, and have had great success with my Remicade infusions. The first six months after being diagnosed were the hardest, as it is with many IBD patients. I missed too much school, could hardly walk because of the constant pain, dropped a lot of weight, and was waiting for my doctor to pick a treatment (other than Prednisone) that worked.
I know that a place like Campus Connections would have helped me a lot. The support and advice from other teens fighting IBD is exactly what could have lifted my morale. Since then, I’ve realized how precious good health is, and I’ve decided that IBD won’t rule over me as it once did. I know how strong I’ve become from the fight against Crohn’s, and as youth, I know we all have the ability to help each other fight and become stronger, and make a different in the world of IBD. This is my second year on the National Youth Council and I am excited to work with the amazing group of NCCL members as advocates for the CCFA, to form a community for the youth suffering from IBD, and to spread awareness about Crohn’s and colitis!
I was only just diagnosed with Crohn's disease in June 2013. I'm a senior in college, hoping to become an early intervention specialist. After graduation I will be attending graduate school at San Francisco State University.
I am a college student getting my administrative assistant certification and then hopefully moving on to get a patient care specialist certification. I was diagnosed with UC in 2009. I love to meet new people and am always looking to meet new people all over. Please feel free to message me.
Senior in college living with ulcerative colitis.
I'm currently a sophomore at NAU, pre-med, and majoring in Biology with a minor in math and chemistry. I'm in my second year as an undergraduate, and I was diagnosed with Crohn's about 2 months ago.
My husband John and I are both students at BYU Idaho and we can see the light at the end of the tunnel. We both graduate in April. I am studying Child Development and he is studying Animal Science. After graduation we will go to Ephraim, UT where his family raises beef cows and turkeys. I started having symptoms of Crohn's last summer when I was pregnant with our sweet little boy. After giving birth, having my gall bladder removed, and then staying 4 nights in the hospital with a bowel obstruction they finally attributed my pain to Crohn's in February 2012. Then in August I had a right hemicolectomy where they removed a portion of my colon, small bowel, and a deep penetrating fistula. Three days after returning home, I went back to hospital with a leak at the connection and they had to go back in and give me a temporary ileostomy. I've been on 60 mg of Prednisone for so long my tissues were just too weak to hold up. But I just started Humira and am getting off face bulging Prednisone. Despite everything I have been through life is great and I have grown immensely and learned tons about myself. I am grateful for the experiences I have and the amazing family support that I have. I have been so blessed!
I'm 23 years old and have been living with Crohn's disease since I was 15. I am currently a student, but also work at a music school in Glendora, as the office manager and also part time nanny when I have time. In my free time, I enjoy spending time with my family, friends, and boyfriend. I like going to the beach, wake-boarding, snowboarding, camping, and hiking- so I live a pretty active life despite my disease. I enjoy going to hockey and baseball games and I love trying new places to eat. Although I live with a severe case of Crohn's disease I am always determined to never allow my disease get in the way of my dreams and I am on a mission to erase the stigma attached to those living with IBD as well as those who live with an ostomy! :)
I have been suffering from Colitis since I was 7, and I just started college. I love corny jokes, and shows like How I Met Your Mother and The Office. I am currently procrastinating studying because I have been studying since 10 am today. I am super goofy and get distracted super easily. But I am fun to be around and love helping others!
My Name is Kelly McMahon, and I am a freshman at The University of Mount Union. I am a majorette and a sister of Alpha Xi Delta. I am double majoring in Communications and Sociology, and I hope to someday become a social worker. I love helping people every chance I get. :)
I am 19 years old and have had ulcerative colitis for about 3 years. However, ulcerative colitis does not define me. I will admit, I have struggled a lot dealing with having this horrible disease, but thankfully I have an amazing support system behind me. My family and friends have been my strength throughout all of the good times and bad and I can't thank them enough. I have not let UC stop me from living my life the way every other college student does. I am currently a sophomore and a sister of the Theta Beta Chapter of Delta Gamma at Case Western Reserve University. I love running and staying in shape in my free time. I have hope that one day a cure will be found for Crohn's and Colitis, but until then, never give up. :)
I am in my fourth year of college, and I have Crohn's disease. I was diagnosed on the day before my sweet 16. I have had a lot of ups and downs, but I have learned a lot along the way.
I was diagnosed with Crohn's disease when I was 8. I am now 19 years old, so I have been battling this disease for the past 11 years but I definitely do not let it define who I am. I am currently a freshman in college and I love it. I really enjoy performing (singing and acting). I love hanging out with my friends and just having a good time. I love skiing in the winter and spending my summers at the beach.
Hey! My name is Kira and I am a freshman at Oberlin College. I am studying neuroscience and Middle East and North African studies. My life with Crohn's began when I was 10 and since I was twelve I have been lucky enough to be in remission thanks to Humira. When I was younger, no one besides my family and doctor knew about my diagnosis. However after becoming involved with Get Your Guts in Gear, a 3 day charity bike ride that raises awareness for IBD, I saw adults living successful and happy lives with IBD. I began to learn more about being a teenager with IBD by reading blogs and articles. When I was 16, I attended Camp Oasis for the first time as a LIT (Leader in Training) and saw kids for the first time with CD or UC which made me realize how important support at a young age is for accepting Crohn's or Ulcerative Colitis. I am now a part of the NCCL and love to talk about my experiences and hear about other's stories!
Senior Pharmacy major diagnosed with Crohn's disease in 8th grade. I enjoy the outdoors including biking, boating, fishing, skiing, and just about everything else.
I was diagnosed with Crohn's disease when I was 9 years old. I've had active disease in my colon, small intestine, bones, joints and trachea (yes—trachea. Weird, I know). My involvement with the CCFA has taken many forms over the years. Right now, I'm working on a series of vlogs about life as a college student with a chronic disease and disability culture on campus. I am currently a sophomore at Scripps College, The Women's College of The Claremont College Consortium. On campus, I am involved in college radio, student government, admission advocacy, diversity organizations, disability awareness, advocacy groups and research assistance for an American Studies professor. I hope to go into broadcast journalism when I graduate.
I was diagnosed with ulcerative colitis in the fall of my junior year of high school. I am now 18 years old and entering my first year of college at De Anza Community College. I've been struggling with the best diet to not irritate my disease and also with combinations of medicine.
Diagnosed 10 years ago this May! Microbiology student at NAU with hopes of getting into research for Crohn's disease. This fall I will be starting my last year of college. Amazing support network, couldn't have gotten this far without them.
I was diagnosed with Crohn's disease at age 14 and decided I wanted to be a nurse to help others who are ill. I am in my second year of nursing and will graduate in May. It is so exciting knowing that I will have a career in something I am most passionate about.
I am a 20 year old college student. I attend the University of South Alabama and major in Therapeutic Recreation. I absolutely love life and love to have fun. I have high energy and go non stop. I am known for being super busy and extremely involved. I love to be active and am very much a people person. I am known as the social butterfly of the family that does not stop talking. I was diagnosed with Crohn's Disease during Spring Semester of my freshman year. I am new to the disease and learning to handle it. I have already gone through a failed attempt of steroid treatment, a bowel resectioning, and am currently on Remicade and 6 MP. I honestly do not know what remission feels like because the doctors are actively working to get my Crohn's under control. I look forward to the day when I can eat many of the foods I currently miss. I have not allowed Crohn's to stop me from living life. I am still very active in my school, community, and church. I look forward to using my Crohn's story to help others and to connect with others that have my same condition.
Actively pursuing adventure since 1991.
Hi Everyone! My name is Madison! I am a member of the CCFA National Council of College Leaders. I was diagnosed with ulcerative colitis thirteen years ago, and have been involved with CCFA ever since. I have attended and counseled at Camp Oasis, walked in Take Steps walks, volunteered at my local chapter office, and participated in many other CCFA sponsored events! I am studying Psychology with a concentration in Human Development, with dreams of one day becoming a Child Life Specialist!
I am a doctoral student in college teaching of English and a college instructor. I teach English literature and writing. In my free time, I write poetry. It helps me to keep my emotional balance and relieve myself from stress. I was diagnosed with Ulcerative Colitis in 2009 but I had been struggling with it some years earlier. I hope there will be a real cure for UC and other IBDs soon.
I was diagnosed in October 2009 during my junior year of high school. I struggled very severe symptoms during my last two years of high school and in my first year of college. Due to my illness, I ended up taking a gap year after attending half the semester of my freshman year of college. I am now doing much better, receiving infusions of Remicade every 8 weeks in NYC. I am studying psychology/nutrition in hopes of supporting adolescents that are dealing with the same things I experienced.
I had UC for around 2 years. Then had a string of surgeries. I am attending University of Wisocin Eau Claire majoring in Nursing. I would love to talk to others!
I have had Crohn's disease since age nine. I am a Junior at Northwood University, and study Sports Marketing. I have raised over $20,000 for disease research, and will be holding my 6th fundraiser this spring in the Saginaw-Midland area.
I am a senior at the University of South Florida. I will be starting graduate school here at USF this fall. I will be working on my Master's Degree in Political Science. I was diagnosed with Crohn's and Colitis in June of 2003. I have lived with Crohn's and Colitis for 11 years and I have been through surgeries, multiple flare-ups, and a slew of different medications. I am very proud of my success in overcoming my illness and would LOVE to meet other people at USF who are also fighting the obstacles Crohn's and Colitis can create.
I'm a sophomore at Penn State, majoring in Health Policy and Administration with an interest in Pre-Law! Diagnosed with Crohn's disease at the age of 10, currently in a state of remission...Remicade treatments every 8 weeks! From NJ, 5 minutes from the beach! Camp Oasis (PA) camper for 7 years and counselor....love it!
I was born and raised in Grand Rapids, Michigan, and was diagnosed with Crohn's disease when I was 14 there. Less than a year later I moved with my parents to Jackson, Mississippi. I've been here since 2007, and I attend Mississippi College as a history major/communications minor.
My name is Monica Johnson and I am currently a sophomore electrical engineering major at The University of Texas at Austin. I was born in Chicago, IL and moved to Allen,TX when I was seven years old. I have a younger sister who's 15 and a younger brother who's 9.
I was diagnosed with Crohn's disease when I was just 5 years old and have tried many different types of medications and procedures to get me to where I am today. I am proud to say I am living a healthy and normal college life, well as normal as any IBD patient can have, and am so grateful to be where I am today.
Having this disease for so long has greatly impacted the person I am today and my strength and outlook on life. I have participated in many events to help raise awareness and fundraise money to help find a cure for this disease. Many of these events include Take Steps, Putt for a Purpose, bowl-a-thons and the gala. I also used to be a camper at Camp Oasis and am interested in becoming a counselor very soon. I have volunteered for my local North Texas Chapter for almost 7 years and have recently been involved with the South Texas Chapter while at school. I have been named Honored Hero at one of the annual Take Steps walks in Dallas as well as the Youth Ambassador. This year I plan to start training for the Team Challenge race in Kona, Hawaii which takes place next summer and as a practice race I hope to start a Campus Challenge team on my own campus. I have been a member of the National Council of College Leaders for one year now and it has been so inspiring to be able to work with such amazing people and actually be able to contribute to the CCFA community.
I was diagnosed with Crohn's disease when I was 15 years old, although I have experienced symptoms since I was five. I had never heard of Crohn's before I was diagnosed, but now I educate people around me every chance I get. I am currently a freshman at California Baptist University, studying in Health Sciences in hopes of becoming a Gastroerontological Physician's Assistant. This summer, I also hope to become a camp counselor at Camp Oasis. I am a follower of Christ, and I view Crohn's as an opportunity to be thankful for everything that I have. I was given a view of life that takes nothing for granted, especially those days that I feel well, and every success I have is that much more important to me. However, I do not face each day worried that my life will over in the next day. I can live a long and happy life.
I've had Crohn's since 2010. I was doing AFROTC at the time when I found out and you can't be in the military with IBD. I did school some more and then ended up taking a year away. I have since returned and am doing my best to make it. I work and go to school. It's really only hard when I have flair ups.
I'm a 2nd year law student at Ohio State, I served on the NCCL while in college at Kent State. I love meeting other patients! So if you're in Columbus, let me know!
Recently diagnosed with Crohn's, animal lover, interested in film, alternative music, vintage, theater, tv, literature and more!
I was diagnosed with Ulcerative Colitis when I was in the 1st grade. I had trouble adjusting to life with UC early on and spent time in the hospital twice for a few weeks each time. Since then I have used diet and medication changes to live mostly in remission, though college life isn't always easy to maintain a "clean" lifestyle. I'm looking forward to graduating in May and doing my best to stay healthy until then!
I am 56 years old. I am returning to college to study biochemistry and eventually do research such as the genome project. I have had digestive issues since I was 20. In my early 50's I had colon polyps removed twice and am also a breast cancer survivor. In the winter of 2014 I was diagnosed with Crohn's Disease.
I was born in 90 so whatever age that would make me now! I've had UC since 2002. I have been in and out of the hospital for a long time. When my flare is bad, it's really bad; when I'm doing good, life is normal for me. This has definitely made me grow pretty quickly. I had to let go of some friends in my life and find new ones. I definitely have learned that communication with people has made things a little easier. It makes me feel less of an outcast. So I love to dance, go to church, create litlte crafts, workout, watch my favorite shows, and a bunch of other stuff. I could go on and on lol!
Hey I'm Tatiana I'm 23 living with Crohn's for 12 years. I have my ups and downs with it but I try to stay positive. I would love to meet other people my age with this disease . Peace love and hope.
I'm a PA student at the Yale School of Medicine, have had Crohn's since I was 12 and had emergency ileoostomy surgery in 2009. Since then, I've gone from being a long time bicycle enthusiast to spending most of my free time cycling competitively. I was the Yale men's cycling team captain for the 2013 competive year, and am proud to show that there is no limit to what you can accomplish with Crohn's and an ileostomy. gutlesscyclist.blogspot.com