Government Affairs Committee

Statement of Purpose

The Government Affairs Committee of CCFA, in consultation with the National Scientific Advisory Committee and such other professional and volunteer personnel as required, is responsible to the Board of Trustees to: monitor the activities of governmental bodies regarding CCFA's three pronged mission of research, education and support; develop positions on relevant issues; recommend and, cause to be implemented those strategies and programs promoting the interests of the IBD community authorized by the Board of Trustees.

CCFA's Government Affairs Committee

Laura Durant, Co-Chair
Co-Chair, National IBD Advocacy Network
Massapequa, New York                                    

Rick Goldsmith, Co-Chair
Co-Chair, National IBD Advocacy Network   
Old Bethpage, New York 

Kenneth Edmonds, Co-Chair
National Board Member
Chief of Staff
Congressman Jesse Jackson, Jr.
Washington D.C.

Suzanne Rosenthal, Chair Emeritus
Co-Founder, Chairman of the Board, Emeritus
Riverdale, New York

Health and Medicine Counsel of Washington, CCFA Washington D.C. Representation
Gavin Lindberg, VP for Legislative Affairs 
Dale Dirks, President

Richard Blumberg, M.D.
Chair, CCFA National Scientific Advisory Committee (NSAC)
Associate Professor of Medicine, Gastroenterology Division
Brigham & Women's Hospital
Boston, Massachusetts 

Athos Bousvaros, M.D.
Pediatric GI Representative to GAC
Chair, CCFA NSAC Pediatric Affairs Committee
Associate Director of the Pediatric IBD Center
Boston Children's Hospital
Boston, Massachusetts

Michael Dolan
Washington, D.C.

Charles (Chuck) O. Elson, M.D.
Immediate Past NSAC Chair
CCFA NSAC Committee
Director, Division of Digestive Diseases
Director, Inflammatory Bowel Disease Center
University of Alabama at Birmingham
Birmingham, Alabama  

Arthur Falcone
National Board Member
Boca Raton, Florida

Shawn R. Gannon
Staffordsville, Kentucky

Mark Goldman
Chairman of the National Board
Weston, Massachusetts

Susan Johnson
Secretary of the National Board
Farmington, Connecticut

Paul Levin        
Cleveland, Ohio

Shelby Modell
Co-Founder, Chairman of the Board Emeritus
Hewlett Harbor, New York

William D. Modell
Co-Founder, Chairman of the Board Emeritus
Hewlett Harbor, New York

Robert Sandler, M.D., M.P.H.
NSAC Professional Affairs Committee Liaison
Professor of Medicine and Epidemiology
University of North Carolina
Chapel Hill, North Carolina

Joseph Sellin
NSAC Professional Affairs Committee Liaison
Professor of Medicine
Director, C2CREATE
Inflammatory Bowel Disease Center
Division of Gastroenterology
Galveston, TX 

David Street
National Board Member
Dousman, Wisconsin

John N. Udall, Jr. M.D., Ph.D.
NSAC/ Pediatric Affairs Committee
Professor and Chairman
Department of Pediatrics
Robert C. Byrd Health Sciences Center of West Virginia University - Charleston
Charleston, WV 

Marysue Wechsler
National Board Member
Alexandria, Virginia

CCFA ADVOCACY STAFF

Amy Friedman, Manager of Advocacy and Special Projects

Jeff Neale, Director of Marketing and Communications

Questions?  Comments?

Please email advocacy@ccfa.org or call Amy Friedman at
800.932.2423 ext 239.