Who We Are
Learn more about the Crohn's & Colitis Foundation of America’s history, mission, partners, and programs.
Our Mission and Core Values
The mission of the Crohn's & Colitis Foundation of America (CCFA) is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD).
CCFA sponsors basic and clinical research of the highest quality. We also offer a wide range of educational programs for patients and healthcare professionals, while providing supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely through our donors, grants, fundraising efforts, and sponsors.
Our areas of focus include:
- Research Programs—CCFA has provided more than $267 million for research on the treatment and cures of IBD. We fund a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment. CCFA-sponsored research has led to breakthrough discoveries in the role that genetics and the human microbiome play in IBD onset and progression, and we are establishing the largest research and information exchange ever created to accelerate the development of better treatments and cures. Our grants and fellowships nurture and enable researchers at every stage of their careers.
- Education Programs—CCFA provides information and education for the more than 1.6 million IBD patients and their families through a variety of channels at the national and local level. Our webcasts, support groups, IBD Help Center, and printed materials provide accurate and up-to-date information. CCFA also offers professional education through our professional journal, Inflammatory Bowel Diseases, as well as through health professional workshops, and our annual Advances in IBD Conference.
- Support Services—CCFA support services are delivered through local chapters, which offer more than 200 support groups annually, as well as through Camp Oasis (our summer camps for children living with IBD), and a wide range of educational and training programs for communities nationwide.
- Advocacy—CCFA recruits and organizes IBD patients, as well as their family members, friends, caregivers and doctors, to raise their voices and become actively involved in advancing our public policy goals (i.e., better access to insurance and medication) and increased research funding (i.e., National Institutes of Health, Food and Drug Administration). Our Crohn's and Colitis Caucus engages active members of Congress, and our special events (i.e., CCFA Day on the Hill) and special communications campaigns (i.e., IBD Awareness Week, PSAs, etc.) build awareness and support.
- Quality of Care—IBD Qorus™ is CCFA's national quality of care initiative that seeks to identify, implement, and improve standard practices for treating patients with Crohn's disease and ulcerative colitis. The initiative's innovative model of patient-provider collaboration and co-facilitation of treatment is designed to lead to enhanced health outcomes, as well as a better quality of life, for millions of IBD patients.
- Clinical Trials Community—CCFA is educating and supporting patients interested in participating in clinical trials, an essential step in the drug development process, to accelerate time to market and expand the number of treatment options for IBD patients. In addition to patients, our Clinical Trials Community includes gastroenterology professionals and researchers working together to increase clinical trial awareness and improve efficiencies and enrollment.
- Fundraising Initiatives—Essential to CCFA's mission, our ongoing fundraising efforts enable us to fund further research, as well as educational and patient support activities. Last year, we raised more than $80 million through memberships, fundraising events, sponsorships, and other programs. Local CCFA Chapters generate revenue through Take Steps, Team Challenge, spin4 Crohn's & colitis cures and other special events; and innovative commercial partnerships with aligned businesses (i.e., pharmaceutical, nutrition) are providing new sources of revenue to fund mission-critical programming. Find out how you can support CCFA.
Learn more about CCFA’s impact in these areas.
Core ValuesCore values -- defined as principles, standards, or qualities considered inherently worthwhile or desirable -- are the bedrock of CCFA's organizational culture. They are a pervasive set of understandings about how we work together and treat each other. Clearly articulated values usually answer the question "What is most important to us?" and provide guidance for day-to-day decisions and behavior. Values describe how we go about the business of achieving our mission and vision.
We establish and nurture caring, empathetic, respectful personal relationships with our constituents. We are deeply loyal to, closely aligned with, and ever hopeful for all people affected by Crohn's disease and ulcerative colitis.
We are unwavering in our mission focus and work tirelessly on behalf of our constituents. We are committed to children and adults affected by these diseases.
We are scrupulously truthful, ethical, and fair. We can be trusted to follow through on our commitments, demonstrate the highest standards of personal and organizational behavior, and consistently do the right thing in service to our mission.
We are proactive change agents dedicated to providing courageous leadership, the most credible information, excellent service, and bold, innovative initiatives that motivate and inspire others to join our cause.
We believe that our mission is best served by actively engaging and involving diverse individuals and groups in the Foundation's cause. We work together in close, collaborative, cooperative, mutually beneficial, and valued relationships to achieve common aims.
We hold ourselves responsible for setting aggressive goals, achieving measurable results, and accurately reporting our progress. We are prudent stewards of donors' funds who conduct our business openly, operate efficiently, communicate frequently, and welcome public scrutiny.